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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Pelvic Pain
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I was diagnosed with celiac disease in this past March, and my symptoms have slowly been getting better. However, for the past week to 2 weeks, I've been having some pelvic pain, mainly on the left side, but sometimes on the right side too. I wouldn't say it's all that painful, it's more of just a dull ache, and in no way debilitating. It would come and go, except today, it's been there pretty much all day.

I was just wondering if anyone else experienced any pelvic pain after going gluten free. Could it possibly be gluten related?

I know that pelvic pain could be caused by a bunch of different things, so if it doesn't go away in a week or so, I'll go to the doctor and have it checked out.

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I went through that a while ago, and the episode lasted nearly two months. I thought I had an ovarian cyst, but an ultrasound came up clean. Oddly enough, I figured out it was coconut causing it. I stopped eating and it went away. When I started eating it again, it came back. I'm not sure what exactly was going on (sorry, I can't be more helpful), but I hope you resolve your issue soon. It was pretty annoying and I began to wonder if something more serious was wrong.

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I have pelvic pain and it was diagnosed as Interstitial cystitis - inflammation in the bladder. It is related to several autoimmune diseases including celiac disease. I was diagnosed by an Urologist but my gynecologist first did an ultrasound of the pelvic region to rule out other issues. Hope you can get to the bottom of it. I know it can be so uncomfortable! I like using a heating pad when it is most uncomfortable.

Take care

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I went through that a while ago, and the episode lasted nearly two months. I thought I had an ovarian cyst, but an ultrasound came up clean. Oddly enough, I figured out it was coconut causing it. I stopped eating and it went away. When I started eating it again, it came back. I'm not sure what exactly was going on (sorry, I can't be more helpful), but I hope you resolve your issue soon. It was pretty annoying and I began to wonder if something more serious was wrong.

Thanks. This is really frustrating. I'm a hypochondriac, so I always assume the worst whenever I get weird symptoms. I'm trying to convince myself that I don't have ovarian cancer or something serious like that. It's just frustrating that the symptoms are almost exactly the same as those of celiac. I know deep down that most likely, I don't have cancer or anything serious, but I can't help it lol.

I'm going to go strictly whole foods only for a while and hopefully it goes away. Maybe I'm just eating something that has gluten in it. If it doesn't soon though, then I'll go to the doctor.

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I went whole foods and it helped me a lot! It really helped me figure out foods that I cannot eat. Corn is one of my biggest problem foods. I ate very basic with only adding or taking away one food at a time. The longer you're gluten-free, you'll understand your body more. Well, that was so for me. I can now tell if I get CC or a food that I cannot digest well. I happen to have an overian cyst now and something wrong with my uterus(DX by ultrasound)

A year ago I probably could not have told you if it was gluten or what. Now I understand my body's reactions so much better. Hang in there!

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Thanks. This is really frustrating. I'm a hypochondriac, so I always assume the worst whenever I get weird symptoms. I'm trying to convince myself that I don't have ovarian cancer or something serious like that. It's just frustrating that the symptoms are almost exactly the same as those of celiac. I know deep down that most likely, I don't have cancer or anything serious, but I can't help it lol.

I'm going to go strictly whole foods only for a while and hopefully it goes away. Maybe I'm just eating something that has gluten in it. If it doesn't soon though, then I'll go to the doctor.

I completely understand...I always assume the worse too. My theory as to what was going on is that the coconut was causing inflammation in my colon. I have no idea if that at all possible, but this in my crazy self-diagnosis. :rolleyes:

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I went through that a while ago, and the episode lasted nearly two months. I thought I had an ovarian cyst, but an ultrasound came up clean. Oddly enough, I figured out it was coconut causing it. I stopped eating and it went away. When I started eating it again, it came back. I'm not sure what exactly was going on (sorry, I can't be more helpful), but I hope you resolve your issue soon. It was pretty annoying and I began to wonder if something more serious was wrong.

This is interesting... I too have been experiencing pelvis pain and what feels like colon spasms on my lower left side for the last 2 weeks. My appetite has also dropped off dramatically. Coconut never even crossed my mind! I introduced coconut oil into my diet around the same time the pain started up <_< . Guess I will cut the oil out and see if my pain disappears.

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Every month at ovulation time, I have really bad pains. Everything in there tightens/spasms, and it hurts a lot. It makes me constipated until it goes away (lasts maybe around 5 days or so), and then I get very loose stools. I'm thinking of making a dr appt just to check it out. I am always thinking the worst too. I wonder if there's a huge tumor in there and at ovulation time, just gets bigger.

I was diagnosed with celiac disease in this past March, and my symptoms have slowly been getting better. However, for the past week to 2 weeks, I've been having some pelvic pain, mainly on the left side, but sometimes on the right side too. I wouldn't say it's all that painful, it's more of just a dull ache, and in no way debilitating. It would come and go, except today, it's been there pretty much all day.

I was just wondering if anyone else experienced any pelvic pain after going gluten free. Could it possibly be gluten related?

I know that pelvic pain could be caused by a bunch of different things, so if it doesn't go away in a week or so, I'll go to the doctor and have it checked out.

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I've determined that it's probably just constipation due to not enough fibre. I started taking Metamucil and after a few, when the Metamucil started working, the pelvic pain went. I stopped taking the Metamucil for a few weeks and the pain and constipation came back. So I started taking Metamucil again, and once again, after a few days, it all went away. I guess I'm just going to have to take Metamucil everyday from now on. Oh well, at least I'm pretty sure I've figured it out.

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I've been gluten free now for four weeks and am experiencing the most horrendous ovulation pain. I usually only get it for a few hours on the right hand side, but this time i have had it on the left hand side and it has lasted for nearly two days with no sign of abating. In addition I feel quite constipated, like the swelling there is stopping everything from moving! Luckily I have a doctor's appoint at the end of the week to see if he will allow me to take the Genova diagnostics Celiac panel as the IgA TTG showed up negative.

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My uterine problems started at the same time as the celiac. Who knows why. I'm 5 weeks out of a hysterectomy. For me it was good. Hystersisters is a very good forum if you need help with pelvic issues, not just hysterectomys.

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I get the same thing and that's usually a sure sign I've veen glutened. However I get ovarian cysts from time to tine too and those cause a similar pain. Whichever the cause a heating pad works wonders!

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And don't feel bad about being "a bit of a hypochondriac" I think all of us that battled celiac for a long time before diagnosis were almost forced into that. For me it was a desperate search for what the heck was making me sick all the time. Celiac is the great mimicker and there are literally hundreds of symptoms it can have.

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