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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long To Eat Gluten Before Testing
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8 posts in this topic

When my doctor did a celiac panel a few weeks ago, I had been eating wheat for only a month or so. Is that long enough to give a good result?

I just found out I have a DQ2.2, which is "low risk" for celiac, and my celiac panel showed low enough levels of antibodies to be considered negative. Doc didn't test for DQ1, though I have much northern European heritage (Irish/German)

Just wondering about the time frame.

thanks.

beachbirdie

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When my doctor did a celiac panel a few weeks ago, I had been eating wheat for only a month or so. Is that long enough to give a good result?

I just found out I have a DQ2.2, which is "low risk" for celiac, and my celiac panel showed low enough levels of antibodies to be considered negative. Doc didn't test for DQ1, though I have much northern European heritage (Irish/German)

Just wondering about the time frame.

thanks.

beachbirdie

My understanding is that 3 to 4 months of eating the equivalent of 3 to 4 slices of bread a day is needed for a gluten challenge.

Even then some of us test "negative" for celiac's.

This is why it is so very important to be tested before going gluten free. But of course doctors don't tell us that <_<

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When my doctor did a celiac panel a few weeks ago, I had been eating wheat for only a month or so. Is that long enough to give a good result?

I just found out I have a DQ2.2, which is "low risk" for celiac, and my celiac panel showed low enough levels of antibodies to be considered negative. Doc didn't test for DQ1, though I have much northern European heritage (Irish/German)

Just wondering about the time frame.

thanks.

beachbirdie

I have Irish/German ancestry too, what more evidence do you need? :)

Kidding. I have read something like 6 weeks to three months of eating gluten, but the usual preference seems to be 3 months minimum. And there is still a chance of false negatives. You might want to read up on Enterolabs site. Dr. Fine has paper there suggesting that the blood tests are insensitive because they test the blood for antibodies, while most of the antibodies are actually inside the intestine. Testing the wrong area in other words. Sounds reasonable to me. I haven't tried Enterolab testing myself, but I think his ideas on that part of it sound right.

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My doctor told me two weeks would be enough, after a year of being gluten free (or at the very least gluten light since I wasn't very aware of CC)

My bloods came back neg.

On the uk coeliac charity site, they recommend one gluten containing meal every day for six weeks so it seems that ideas on this varies greatly (as if all of this wasn't confusing enough right? )

Good luck :)

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My doctors and dietitian all told me I absolutely must be eating the equivalent of four pieces of bread (at least) per day for three months (I had been off gluten for five months) for accurate results. As I did not have GI symptoms and love consuming gluten I was only too happy to oblige! :P But many would not be and I do not blame them one little bit.

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I have Irish/German ancestry too, what more evidence do you need? :)

Kidding. I have read something like 6 weeks to three months of eating gluten, but the usual preference seems to be 3 months minimum. And there is still a chance of false negatives. You might want to read up on Enterolabs site. Dr. Fine has paper there suggesting that the blood tests are insensitive because they test the blood for antibodies, while most of the antibodies are actually inside the intestine. Testing the wrong area in other words. Sounds reasonable to me. I haven't tried Enterolab testing myself, but I think his ideas on that part of it sound right.

:D LOL! I just mention the Irish/German thing because so many say there is a strong connection of celiac and northern European. More reading last night tells me my husband and I probably gave our kids a double gene whammy, two of them have strong reactions to gluten and my husband's Latin heritage probably contributed another gene. :huh:

I'm convinced now that with the one gene that I know about, my other autoimmune disease (Hashimoto's thyroiditis) and our symptoms, we don't need to pursue a diagnosis any further. We need to be gluten-free.

Thanks for your answer!

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Many thanks to all of you for your replies!

beachbirdie

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:D LOL! I just mention the Irish/German thing because so many say there is a strong connection of celiac and northern European. More reading last night tells me my husband and I probably gave our kids a double gene whammy, two of them have strong reactions to gluten and my husband's Latin heritage probably contributed another gene. :huh:

I'm convinced now that with the one gene that I know about, my other autoimmune disease (Hashimoto's thyroiditis) and our symptoms, we don't need to pursue a diagnosis any further. We need to be gluten-free.

Thanks for your answer!

Oh yeah, Hashimoto's thyroiditis is strongly linked with celiac disease. There are plenty of threads on here by people with Hashimoto's.

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