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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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I thought I would pose this question here since you are some of the most knowledgable folks I know. My son's teacher emailed me a couple of weeks ago that he had been going to the bathroom a lot. So we talked about it, and a couple of days later when I asked him about it again, he said he went at the appropriate times.

There are some days where I think he goes to the BR alot, and then some where I don't notice it. So of course, my radar was up for diabetes. :( Recently, he's been saying he's cold. Today he wore a long sleeved shirt out it was 90 degrees out (and humid!).

And he's hungry ALL of the time! I figured it was cause he was a 6 yr old growing boy, but he is always looking for something to eat, and he loves, loves, loves starchy stuff.

Any thoughts? Even my husband, who is usually not the alarmist, is wondering if we should take him to the doc.

As a side note: he was tested for celiac about 3 yrs ago, and it was negative. I was ok with that, since he really wasn't experiencing any symptoms, he was growing fine, etc. I mainly had him tested because I had recently been diagnosed, and I knew he carried the gene.

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get himr retested, and for anemia, my SIL is aneamic and feels the cold

tests are unreliable in young kids so now he's a bit older it may give you a psoitive

or even just remove gluten and see what happens, unless you need a diagnosis for insurance reasons, or to get cooperation with his school for glutren free lifestyle

def go to the doc, and ask for retesting

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I had a 4-7 yr old who always went if he was given the opportunity, passed the house bathroom or got bored shopping.

I would go to the doc & see about the diabetes and a UTI. They tested mine for the UTI because they said it doesn't always bother boys like it does girls. Mine was all negative, just a quirky boy. My boys find the A/C cold when just sitting still. They spend a lot of time , 1 outside working & camping the other in a poorly cooled office & no A/C warehouse.

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I had a 4-7 yr old who always went if he was given the opportunity, passed the house bathroom or got bored shopping.

I would go to the doc & see about the diabetes and a UTI. They tested mine for the UTI because they said it doesn't always bother boys like it does girls. Mine was all negative, just a quirky boy. My boys find the A/C cold when just sitting still. They spend a lot of time , 1 outside working & camping the other in a poorly cooled office & no A/C warehouse.

We were at my my mom's last night and she and her husband don't turn on the air... ever. He wanted a blanket. :ph34r: Last night was milder than it has been, but the house was by NO means cold. It's just odd that he's always so cold.

I'm thinking he needs to go. I just am unsure if the two are related. I emailed his teacher and asked how the bathroom situation was going... never heard back, but it is the end of the year. I'll see her on Tuesday so I'm going to ask her about it again.

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We were at my my mom's last night and she and her husband don't turn on the air... ever. He wanted a blanket. :ph34r: Last night was milder than it has been, but the house was by NO means cold. It's just odd that he's always so cold.

I'm thinking he needs to go. I just am unsure if the two are related. I emailed his teacher and asked how the bathroom situation was going... never heard back, but it is the end of the year. I'll see her on Tuesday so I'm going to ask her about it again.

The cold parts a bit odd. I had 2 6 yr old boys & bathroom stuff can be an issue. Maybe thyroid for the cold part? I hope it's about yearly check-up time. The 2 things may be separate things - lucky you! :unsure:

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i agree with everyone above- get him retested- it could have been triggered since then... or maybe there's enough abs now to show up.

also- i often (towards the end of my gluten days) felt like i was getting a bladder infection. i HONESTLY think that if i had continued to eat gluten- i may have developed Interstitial Cystitis. it seems like some of the autoimmune people i know have this- i wonder if it's common in ai disease.

also- i know its more common in women, and not common in childhood- but thyroid disease is still possible- and is often in those with autoimmune genes in the family. i was not diagnosed till i was 38- BUT i had Beau's Lines on my thumbnails ever since i was 8!!! and they did not go away untill 30 years later- after being on meds for a month!! so may be a good idea to check his thyroid- (a complete panel- and maybe also TPO abs)

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A sensitivity to cold could be thryoid related. That's how I was, I'm now on medication. I'd also check for diabetes and anemia. Do see a dr and discuss whats been happening and if it isn't mentioned, then ask about possibilities of thyroid issues, diabetes and anemia x

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Definitely get him tested for celiac, diabetes and thyroid issues. Oh, and one kind of anecdotal thing about the bathroom visits - I always needed to pee a lot, and have always had problems regulating blood sugar, but diabetes screening came back negative. Once we switched to the GAPS diet I stopped needing to pee all the time and I don't have those big blood sugar spikes and crashes any more.

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I was told that my negative son needs to be tested every two years regardless of symptoms. MD said bring him in earlier if he has any symptoms before that. (Younger son has celiac disease - biopsy and I had a positive blood test but negative biopsy)

Cara

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Just a story to share on bathroom visits . . . in first grade when my son starting going to school full time (Kindergarten was part time), I noticed my son started having to go to the bathroom quite often. I took him to the doc and had him checked for a UTI which was negative. She said it was common that kids have a tendancy to mess up their ability to tell when they need to go. It starts off by holding it too long . . . repeatedly . . . like not wanting to go to the bathroom in school. Then when they do go, they don't empty their bladders all the way because they've lost the ability/sensation to tell if it's empty. Stress on the stretched out bladder muscles from constant full bladders can also lead to muscle spasms that give them an urgency to go. This all resulted in my son having to go to the bathroom ALL the time.

There was a medication to help with the spasms but the doc wanted us to try some "retraining" first and that took care of it so no medication was required.

We were suppose to send him to the bathroom every hour whether he needed to go or not. When he went to the bathroom, he was suppose to empty his bladder, wait a couple of minutes, try to go again (since he couldn't actually tell if his bladder was empty), also try bending over to help empty the bladder. I can't remember how long we did this . . . a week maybe . . . then started letting the interval get a little longer and longer.

We also added mini lectures/reminders about waiting too long to "go".

Hope your situation is something as benign as this. I would check with the doc, though, too.

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My son had a UTI too, but he was potty training at the time. And it was for the reason stated above, and he just had to quit holding it. I have 2 boys, and they are ALWAYS hot! The clothes come off as soon as they come in the door. I have a hard time keeping clothes on them! I find that to be odd for a little boy to be cold so much. I am cold all of the time, but then I'm a grown up with multiple autoimmune issues...thyroid being one of them. Although my thyroid has been testing normal. Not to throw this in the mix, but if he is genetically prone to autoimmune issues...Lupus people are cold a lot too. I recently joined their forum, and they all complain about being cold. I'm sure that's not an issue, but just throwing it out there. My Endo and GI doc both said that the positive gene testing for celiac disease just really meant...that i was prone to autoimmune diseases in general...no matter how they decide to manifest themselves. I'd definitely get him checked anyway. Little boys should be warm from all of their energy...I would think.

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