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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
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Enterolab Testing
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9 posts in this topic

Hi everyone! I am new here. I have figured out that I have some kind of gluten and milk sensitivities. I have bad digestive problems, water retention, headaches, hair loss that all disappear as soon as i stop eating gluten and dairy. I was recently diagnosed with iron deficiecy. Does anyone have any experience with the enterolab tests? Are they easy to do? Will my insurance cover them? I have stopped all gluten and most dairy so should I resume eating gluten before the test?

Any resposes would be very much appreciated.

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You don't have to go back to eating dairy or gluten to do the Enterolab tests. They are not difficult if you follow the instructions very carefully. I did the complete panel with the gene testing too and feel it was so worth it. My results came back in a little less than two weeks via email. I had tested negative on a blood test from the doctor's office, but positive for dairy and gluten through Enterolab. Now that I have been gluten-free for nearly a year, the dairy thing has gotten a lot better. I can do most all processed dairy, but still use rice milk on my cereal. I never drink milk so that isn't an issue. I have a granddaughter who has celiac disease and I feel much better now that I don't eat gluten. I no longer have pains in my stomach and before I either had diarreah or consitpation and now that is completely resolved.

Hope you do the Enterolab thing....I think those tests will be the gold standard in the years to come. Barbara

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Can Enterolab dx Celiac Disease or do they just all come back as gluten intolerant? With the gene test does this identify whether a person has celiac disease or not? I know if you dont have the gene then you cant have celiac disease but if you DO have the gene how do you know whether you actually have Celiac or not? I'm confused about this. I'll be getting results from Enterolab in a few weeks.

-Rachel

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An Enterolab tests for gluten sensitivity but also for malabsorption and tTG and those would indicate celiac. If you have the gene you have the predisposition for it and can have it activated at any time but it won't say whether it is activated at that time. If you don't have the gene you are 99.99% likely not to get celiac and it that case you could be gluten intolerant though. There are also genes for gluten intolerance.

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Thanks for your responses. Has anyone had any luck getting insurance to cover this? I am a student and very poor right now. Thanks!

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My insurance covered everything except the genetic testing. My daughter and I have both tested with EnteroLab, and are very pleased with them. The tests are very easy. Good Luck!

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Beverly

How did you get your insurance to cover it? did you work directly with Enterolab and then submit a claim.?

Brenda

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EnteroLab sent me a coded invoice and I then filed the claim with my insurance company. I am in a HMO, so it would only play 60%, but that is better than nothing.

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EnteroLab sent me a coded invoice and I then filed the claim with my insurance company. I am in a HMO, so it would only play 60%, but that is better than nothing.

<{POST_SNAPBACK}>

Wow! Can you give me any tips on getting my HMO to pay? I have Blue Cross and the medial group has denied the request to pay, so I'm appealing to the insurance company directly. With Blue Cross HMO, the medical group is responsible for paying for labwork. I haven't yet ordered the tests, hoping to first get approval.

Diane

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