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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Carry Gene But Not Celiac?
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9 posts in this topic

I am a little confussed can you have the gene for celiac but not test positive for it? And if you have the gene does that mean you should stay away from gluten as you will get it in the future?

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About 30% of people carry the most common genes. But only about 1% of people develop celiac. The gene only asseses your RISK of developing celiac disease. If you have the genes you are at greater risk than if you don't have them. But you can carry the gene and never develop it and you can also NOT have the most common genes but still have celiac disease.

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Yes, you can most definitely have the gene (or genes) and not test positive for a number of reasons. For one thing, celiac may not have been triggered. You generally must have one of the genes and then a triggering event (illness, surgery, birth, traumatic event, etc.) to develop celiac, although I think that one day a more definitive reason for why some people develop celiac and others don't will be discovered. Anyway, even though you don't really need to avoid gluten, unless you have a sensitivity, you should get tested regularly to make sure that you don't develop celiac in the future.

Also, it's possible that your test results presented a false-negative and that you actually DO have celiac....or you don't have enough damage yet to test positive. Bottom line: if gluten makes you feel ill, avoid it.

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Ok another question then can h pylori cause the same symptoms...

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Yes, you can most definitely have the gene (or genes) and not test positive for a number of reasons.

Also, it's possible that your test results presented a false-negative and that you actually DO have celiac....or you don't have enough damage yet to test positive. Bottom line: if gluten makes you feel ill, avoid it.

true

or you could be someone that damage is done in a way that the current testing can not pick up.

For some of us damage is done to the villi ,some of us it is the skin (DH) ,some of us it is the brain(gluten ataxia)or the "wonderful" combo of all three <_< Bottom line: if gluten makes you feel ill, avoid it.

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Well, either myself or my husband must carry the gene as my daughter has celiac disease. My two boys were tested today, so won't know for another 2 weeks with them. Both my hubby and I tested neg.

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Well, either myself or my husband must carry the gene as my daughter has celiac disease. My two boys were tested today, so won't know for another 2 weeks with them. Both my hubby and I tested neg.

I've been wondering about this. My hubbie and I have not been tested yet. Does one of us HAVE to carry the gene because our son has celiac disease? Or could it come from somewhere else in the family, ie a grandmother or other relative?

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It was said before, but I will underline the point. Thirty per cent of the population in North America carry a gene associated with celiac disease. Only about one per cent will develop celiac disease during their lifetime. The genes are predictive as to risk, but a trigger is required to activate celiac disease.

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I've been wondering about this. My hubbie and I have not been tested yet. Does one of us HAVE to carry the gene because our son has celiac disease? Or could it come from somewhere else in the family, ie a grandmother or other relative?

your son received a gene from ea of you....if he is positive for celiac it is likely that he has one of the major genes, and whatever genes he has he got from his parents.

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