• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Voices And Other Noises
0

16 posts in this topic

Recommended Posts

alex11602    75

My oldest daughter who is 5 has been on a gluten free diet for approximately 4 months now and we had a situation the other morning that has me concerned. Twice this past week she told my husband and I that she was hearing voices or noises in her head, the first time I just brushed it off as dreams but having it happen again has me concerned. When my husband and I were looking back it is entirely possible that she had been subject to cc both the days. The first day my husband and his father went out together and had fried chicken and onion rings, when they got home my husband washed his hands, brushed his teeth and changed his shirt while his father only rinsed his hands. The second day she was with my grandmother all day, I sent food and my grandmother wouldn't give her anything I did not send, but thinking back she would have been eating gluten and then helping my daughter open her food. I guess my question would be is it possible that she was hearing voices and other noises because of gluten even though it was never an issue before? Her only other symptoms have been excema and occasional nightmares (after gluten free she now only has them with when major cc occurs). So is it possible that this was all from gluten?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Sinenox    0

My partner was recently diagnosed with narcolepsy, which is currently considered an autoimmune condition as well, and many people on the Narcolepsy Network report doing better after going gluten free. I mention this because the only condition in which it is common to "hear voices", besides schizophrenia, is narcolepsy. You may want to ask your doctor about having your daughter checked for narcolepsy via MSLT (sleep study). Vivid nightmares are also a common symptom of the hypnopompic and hypnogogic hallucinations associated with narcolepsy. Just a thought!

Share this post


Link to post
Share on other sites
alex11602    75

Very good point. I think I just worry more about her sometimes since unlike my other daughter it isn't obvious GI symptoms. Thank you for reminding me of that though.

Share this post


Link to post
Share on other sites
Ads by Google:


kareng    1,992

I had a kid that talked to a " Grandpa" in his room sometimes. My Irish Grandma was convinced it was her husband's ghost. My son was happy to talk to a Grandpa ghost so I didn't worry about it. He's 18 and still thinks it might have been a ghost - but it's a happy memory whatever it was.

Do the voices bother her or affect what she does? That would worry me.

Share this post


Link to post
Share on other sites
alex11602    75

The first time it scared her and I thought she was having one of her nightmares, but it didn't seem to bother her the second time, it just woke her up although she would not go back to sleep. She told me that she does not remember what the voices said to her so maybe it really is nothing then. I'm just really unsure about everything with her and her diet right now since it's not extremely obvious if she has gotten gluten.

Share this post


Link to post
Share on other sites


Ads by Google:


Marilyn R    239

I'm pretty sure I've had undiagnosed celiac disease my whole life. When I was 5 years old, I used to climb down 13 steps in the middle of the night to wake up my parents and tell them that there was a tiger behind my door, or under my bed or in the closet. Good thing I had patient parents.

Have you cut out soy and dairy? Those proteins can be a problem... or corn...legumes...

Gosh, it's been hard enough figuring it out for me. I can't imagine the heartache of trying to work it out for your baby. I hope you work it out and wish you well.

Share this post


Link to post
Share on other sites
alex11602    75

Thank you. We cut out soy and dairy for my 18 month old, but I am sure that the oldest still gets a little bit of it so I will try completely taking it out for her too. We limit corn quite a bit for the baby too, only using cornstarch to thicken some things so I can take that out too for now and see what happens. I think it is alot easier to figure out what is bothering adults then to figure out what is bothering kids, at least this one can talk to me though.

Share this post


Link to post
Share on other sites

Thanks for the mention of "voices". I am new to gluten free with lots of good results. My biggest symptom is double-over gut-wrenching pain. I will check my food diary to see if there is any correlation to what sounds like a radio talk show on at night. I don't have a radio, and definitely turn off the TV unless I am actively watching it. I live by myself rural where someone else's radio would not be a clue.

I am glad to find this forum to check out suspicious foods that don't label possible gluten content or processing contamination. I checked ingredients with my local Mexican restaurant and was delighted to be assured the chips and nachos are corn only. Three days of double over gut wrench suggest otherwise. It could be the tortillas or maybe white chocolate chips on the gluten-free cupcakes. I sure hope its not the tortillas. I can live without the white chocolate chips. I'm waiting for reply from the tortilla company and will write when I have info.

THANKS FOR GOOD ADVICE ALREADY FOUND ON THIS SITE. :))))

Share this post


Link to post
Share on other sites


Ads by Google:


lwatsonz    0

I suspect corn in the 'hearing voices' thing. I heard some voices when I ate grits for breakfast every day in spite of antipsychotic medication I was taking at the time. It could have been other things, but was a strong coincidence.

Share this post


Link to post
Share on other sites
lwatsonz    0

Upon thinking about it some more I also realize that I was putting a lot of butter on those grits. Maybe the casein, or the combination.

Share this post


Link to post
Share on other sites
lizzy59    1

I'm new to this forum, and am still in the process of trying to get a celiac disease diagnosis myself, but somewhere in my internet travels for information, I remember reading about hearing voices being a symptom of celiac. I was on so many sites, and so can't remember which one I read it on, so I can't direct you there. I recall that the article didn't go into a lot of detail, but I remember thinking how odd of a symptom it was.

I didn't think of it with regard to myself, but someone who replied to you above talked about "hearing" a radio when none was around, and that made me think that on numerous occasions, I've thought I could hear a radio/voices/singing when I've had the faucet running. It's even made me turn off the water to see if there really was some other noise, but that's never been the case.

Regardless, good luck with finding out what is causing your daughter's problem.

Share this post


Link to post
Share on other sites

I've recently read articles linking schizophrenia and celiac, and showing that for some folks being gluten free can alleviate schizophrenia symptoms. I'm not saying she has schizophrenia, just thinking there is likely to be some sort of spectrum of symptoms there.

I had a couple periods in which I had hallucinations that included sound, or were completely auditory. They were linked to manic and hypomanic episodes.

Share this post


Link to post
Share on other sites


Ads by Google:


Marilyn R    239

Other interesting research...I read when I had hyperparathyroidism (which I believe was caused by gluten and possibly corn) that a significant porportion of patients admitted into psych hospitals tested positive for high calcium levels and high PTH levels (indicating hyperparathyroidism).

Oats and quinoa (and derivitaves) hurt me too, but that could just be me.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,919
    • Total Posts
      938,683
  • Member Statistics

    • Total Members
      65,843
    • Most Online
      3,093

    Newest Member
    SherriLynn
    Joined
  • Popular Now

  • Topics

  • Posts

    • This - I agree with all of this. I have also twigged that if oats are a problem then certified processed gluten free food is out. And I got really sick from drywall. It's such a relief to hear this as there was a time when I was feeling like an alien for thinking these things. Well I agree 99.9%. I had a skin problem, possibly DH, which got better when I gave up gluten, improved further when I gave up processed foods but it wasn't until I stopped eating dry beans that I stopped getting any flares. I am also sensitive to egg though (although that does something different to my skin) so I'm a bit a skin-reactive person. Could be worth cutting it out just to see if that helps?
    • Hi Celiac4762, The carbs I eat are sweet potato, parsnip and squash plus loads of fruit. With rice I'm ok if it's from a reputable source. If I ever get glutened by something then I steer clear of it for a month to give myself an extra break and then go back to it in smallish quantities. I have carbs once a day rather than every meal to save time. I can hear in your tone this tired, fed up tone that I recognise so well from when I get glutened. I know what it's like to dream of living in a far away gluten free bubble. I felt like that but after a couple of months (which were a hard adjustment) I got to a stage of knowing what I needed to do. Your medical background will help you methodically work out what you need to cut out and what is safe and you will get there. Stick with college. Don't let this crappy stage take that away.   The thing that saved me though over everything was finding this article: https://bmcgastroenterol.biomedcentral.com/articles/10.1186/1471-230X-13-40
    • Thanks to both of you. Ok, so I was feeling not great and went grain free for 5 weeks. Then slowly started to introduce grains. All seemed ok, then I had an issue after 3 weeks, with blood in my stool. Celiac wasn't on my radar. In fact, rice and oats are what seem to bother me most. But the Dr added on the celiac test and it was indeterminate. So I was sent for endoscopy and colonoscopy. I consumed gluten for just over two weeks, then went back to my grain free, dairy free diet. I saw my Dr this am and she said my bowels were healthy, that the Dr had taken 'several' samples and that all is well on both ends.  (No celiac, but also not H Pylori, crohn's, etc). She is running all kinds of other bloodwork, because I am still feeling terrible, and obviously the assumption I had made was that it was celiac. I'm going to stay off gluten for now, in hopes that I'll start to feel better. My GI symptoms are worse this week than they have been in ages...so something is up, but apparently I'm healthy??! I am pretty sure my Dr. would not refer me to another GI. She's not the best, but it's very hard to find another Dr. here, especially if you already have a Dr. (Canada) I am going to ask her for a copy of the report though, as well as the rest of the bloodwork she's sending me for. 
    • This is exactly what I'm wondering also.
  • Upcoming Events