• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Voices And Other Noises
0

16 posts in this topic

My oldest daughter who is 5 has been on a gluten free diet for approximately 4 months now and we had a situation the other morning that has me concerned. Twice this past week she told my husband and I that she was hearing voices or noises in her head, the first time I just brushed it off as dreams but having it happen again has me concerned. When my husband and I were looking back it is entirely possible that she had been subject to cc both the days. The first day my husband and his father went out together and had fried chicken and onion rings, when they got home my husband washed his hands, brushed his teeth and changed his shirt while his father only rinsed his hands. The second day she was with my grandmother all day, I sent food and my grandmother wouldn't give her anything I did not send, but thinking back she would have been eating gluten and then helping my daughter open her food. I guess my question would be is it possible that she was hearing voices and other noises because of gluten even though it was never an issue before? Her only other symptoms have been excema and occasional nightmares (after gluten free she now only has them with when major cc occurs). So is it possible that this was all from gluten?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


My partner was recently diagnosed with narcolepsy, which is currently considered an autoimmune condition as well, and many people on the Narcolepsy Network report doing better after going gluten free. I mention this because the only condition in which it is common to "hear voices", besides schizophrenia, is narcolepsy. You may want to ask your doctor about having your daughter checked for narcolepsy via MSLT (sleep study). Vivid nightmares are also a common symptom of the hypnopompic and hypnogogic hallucinations associated with narcolepsy. Just a thought!

0

Share this post


Link to post
Share on other sites

Thank you, I will definitely mention that to her doctor.

0

Share this post


Link to post
Share on other sites

She's only five..creativity goes a long way. :D

0

Share this post


Link to post
Share on other sites

Very good point. I think I just worry more about her sometimes since unlike my other daughter it isn't obvious GI symptoms. Thank you for reminding me of that though.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I had a kid that talked to a " Grandpa" in his room sometimes. My Irish Grandma was convinced it was her husband's ghost. My son was happy to talk to a Grandpa ghost so I didn't worry about it. He's 18 and still thinks it might have been a ghost - but it's a happy memory whatever it was.

Do the voices bother her or affect what she does? That would worry me.

0

Share this post


Link to post
Share on other sites

The first time it scared her and I thought she was having one of her nightmares, but it didn't seem to bother her the second time, it just woke her up although she would not go back to sleep. She told me that she does not remember what the voices said to her so maybe it really is nothing then. I'm just really unsure about everything with her and her diet right now since it's not extremely obvious if she has gotten gluten.

0

Share this post


Link to post
Share on other sites

I'm pretty sure I've had undiagnosed celiac disease my whole life. When I was 5 years old, I used to climb down 13 steps in the middle of the night to wake up my parents and tell them that there was a tiger behind my door, or under my bed or in the closet. Good thing I had patient parents.

Have you cut out soy and dairy? Those proteins can be a problem... or corn...legumes...

Gosh, it's been hard enough figuring it out for me. I can't imagine the heartache of trying to work it out for your baby. I hope you work it out and wish you well.

0

Share this post


Link to post
Share on other sites

Thank you. We cut out soy and dairy for my 18 month old, but I am sure that the oldest still gets a little bit of it so I will try completely taking it out for her too. We limit corn quite a bit for the baby too, only using cornstarch to thicken some things so I can take that out too for now and see what happens. I think it is alot easier to figure out what is bothering adults then to figure out what is bothering kids, at least this one can talk to me though.

0

Share this post


Link to post
Share on other sites

Thanks for the mention of "voices". I am new to gluten free with lots of good results. My biggest symptom is double-over gut-wrenching pain. I will check my food diary to see if there is any correlation to what sounds like a radio talk show on at night. I don't have a radio, and definitely turn off the TV unless I am actively watching it. I live by myself rural where someone else's radio would not be a clue.

I am glad to find this forum to check out suspicious foods that don't label possible gluten content or processing contamination. I checked ingredients with my local Mexican restaurant and was delighted to be assured the chips and nachos are corn only. Three days of double over gut wrench suggest otherwise. It could be the tortillas or maybe white chocolate chips on the gluten-free cupcakes. I sure hope its not the tortillas. I can live without the white chocolate chips. I'm waiting for reply from the tortilla company and will write when I have info.

THANKS FOR GOOD ADVICE ALREADY FOUND ON THIS SITE. :))))

0

Share this post


Link to post
Share on other sites

I suspect corn in the 'hearing voices' thing. I heard some voices when I ate grits for breakfast every day in spite of antipsychotic medication I was taking at the time. It could have been other things, but was a strong coincidence.

0

Share this post


Link to post
Share on other sites

That's very interesting since my other daughter who only has GI symptoms has problems with corn.

0

Share this post


Link to post
Share on other sites

Upon thinking about it some more I also realize that I was putting a lot of butter on those grits. Maybe the casein, or the combination.

0

Share this post


Link to post
Share on other sites

I'm new to this forum, and am still in the process of trying to get a celiac disease diagnosis myself, but somewhere in my internet travels for information, I remember reading about hearing voices being a symptom of celiac. I was on so many sites, and so can't remember which one I read it on, so I can't direct you there. I recall that the article didn't go into a lot of detail, but I remember thinking how odd of a symptom it was.

I didn't think of it with regard to myself, but someone who replied to you above talked about "hearing" a radio when none was around, and that made me think that on numerous occasions, I've thought I could hear a radio/voices/singing when I've had the faucet running. It's even made me turn off the water to see if there really was some other noise, but that's never been the case.

Regardless, good luck with finding out what is causing your daughter's problem.

0

Share this post


Link to post
Share on other sites

I've recently read articles linking schizophrenia and celiac, and showing that for some folks being gluten free can alleviate schizophrenia symptoms. I'm not saying she has schizophrenia, just thinking there is likely to be some sort of spectrum of symptoms there.

I had a couple periods in which I had hallucinations that included sound, or were completely auditory. They were linked to manic and hypomanic episodes.

0

Share this post


Link to post
Share on other sites

Other interesting research...I read when I had hyperparathyroidism (which I believe was caused by gluten and possibly corn) that a significant porportion of patients admitted into psych hospitals tested positive for high calcium levels and high PTH levels (indicating hyperparathyroidism).

Oats and quinoa (and derivitaves) hurt me too, but that could just be me.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,465
    • Total Posts
      930,718
  • Member Statistics

    • Total Members
      63,893
    • Most Online
      3,093

    Newest Member
    Jihoca
    Joined
  • Popular Now

  • Topics

  • Posts

    • I was at a used book sale yesterday and happened to see an old dermatological textbook.  Of course the first thing I looked up was dh just to see what it had to say.  What I read shocked me as well as scared me half to death. The description of dh was right on, severe itching, blistering, bilateral, arms/elbows etc. but there was no mention at all of celiac, wheat, gluten or anything along that line.  The reason they gave for the cause of dh was "a manifestation of an internal cancer," and later it said it results from cancer, usually cancer of the ovaries or one other that I can't remember.  Being a hypochondriac, this was about enough to put me into cardiac arrest. I looked at the publication date and it was printed in 1963 which really isn't all that far back.  Has anyone else ever heard of this?? I thought by 1963 they were quite certain that dh was a form of celiac or did it come way after that? Sorry if I'm freaking anyone out by asking this.  That's not my intent at all, but since cancer is one of my biggest fears I found this rather unsettling.
    • Feeneyja, This will be a little long but I will  try to be brief as possible. See this discussion thread that talks about how Pellagra is often diagnosed as other disease's today because doctor's rarely recognize it today in a clinical setting. Pellagra's is described as the 3 D's if you don't count the 4th D of death if it goes long enough and is not diagnosed in a timely manner. Dementia (Neurological) Digestive (GI problems), Dermatitis issues (Ezcema, Psorsias, Acne etc.) According to mdguidelines website http://www.mdguidelines.com/pellagra indicates that quoting “The diagnosis of pellagra is straightforward when the classic rash is present but may be elusive if there are only gastrointestinal and/or neurological manifestations.” And why I believe in many cases Pellagra goes undiagnosed today.  Because doctor's have forgotten how it presents. A longer researcher article about the neurological presentations of pellagra mention the many ways a Niacin deficiency can present itself. Here is the link https://www.hindawi.com/journals/cggr/2012/302875/ and I will quote some of the neurological/dementia related symptom's of an undiagnosed pellagra patient. "Mental symptoms were wider than dementia, in that depression, fatigue, psychomotor retardation, mania, obsessions, and a whole range of psychoses with auditory and visual hallucinations were well described, along with personality change and sociopathic and drug and alcohol addictive behaviours. Panic disorders were seen as was a general inability to deal with physical or mental stress. Poor brain development such as hydrocephalus or cerebral palsy was also common. Acute delirium or even coma occurred, with some patients having myoclonus and other extrapyramidal signs reminiscent of the spongiform encephalopathies. The dementias of pellagra included features akin to Lewy body, Alzheimer’s, frontotemporal, vascular, and prion diseases. Parkinsonism was also common and a festinant gait was first described in pellagrins. Tremors of various descriptions, including asymmetric rest tremors, were noted and some patients had typical paralysis agitans. Pellagrins had a characteristic expressionless facies, so some signs of parkinsonism were present in most cases. Many features of pellagra closely resemble the nonmotor aspects of PD. The neurological manifestation did not stop there because other degenerative conditions, such as an amyotrophic lateral sclerosis-like picture, were described, with fasciculation of the tongue and upper and lower motor neuron signs. Cerebellar syndromes occurred and vertigo was frequent. Headaches, sensory and pain syndromes, epilepsy, and involuntary movements were noted as well as sleep disturbances. Cord lesions were also seen, as was optic atrophy, so there were multiple sclerosis (MS), like variants." It is me again. You can see the neurological symptom's of Pellagra are severe and wide ranging. Taking Niacinamide 3/day for 6 months can alleviate many of these symptom's if your daughter has subclinical pellagra and the doctor's don't know to look for it. I had deep depression for many, many years and I shudder to think now that only a Vitamin could of helped me 30+ years ago and the doctor's didn't know to look for it. Shoot it isn't just Niacin.  All B-Vitamin's help your stress levels.  IF you have stress B-Vitamins can help your stress levels. I take Folic Acid for Blood pressure problems and it keeps my BP with in a normal range. A article on celac.com discussed this topic in detail a few months ago. https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html I hope it is helpful.  Good luck on your continued journey. If you have never heard of Pellagra you are not alone. Dr. Heaney discusses why this is so in his online article Pellagra and the 4 D's. http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ If you don't have time to read the whole hindawi article I also suggest this shorter but informative blog about why a Niacin deficiency can cause dementia related conditions. https://pellagradisease.wordpress.com/ Then decide for yourself and your daughter's sake to decide whether to take Niacinamide or not to see if it helps the D's symptom's she is experiencing (Digestive, Dementia etc.) The International Journal of Celiac Disease makes note of this in their research that Pellagra could be contributing to symptom's being diagnosed as Celiac disease today instead of a possible (co-morbid) Pellagra that causes the same symptom's. When they discuss how Pellagra and Celiac disease are related (Co-Morbid) in a Celiac diagnosis are surprised to find that in 58% of Celiac's -- can also be diagnosed with Pellagra. See this link http://pubs.sciepub.com/ijcd/3/1/6/ Quoting 3. Pellagra and celiac disease "The two diseases can be connected in two aspects. 58% of pellagra patients were shown to have malabsorption and many had intestinal pathology on biopsies [36, 37]. Alternatively, Pellagra was described in celiac disease [38]. The skin manifestations in pellagra might have some additional etiologies, since multiple nutrient deficiencies are at the origin of the cutaneous manifestations in celiac disease. The following nutritional deficiencies inducing skin rashes, were describe in celiac disease: Zinc, Iron, Vitamin A, E, B12, niacin, folate, selenium and essential fatty acids [39, 40]." If one is being diagnosed incorrectly the other co-morbid conditions can continue to cause Celiac like symptom's. But if the majority of those who have been diagnosed as Celiac could be helped by taking Niacinamide I see no you reason you shouldn't try it. Or at least research it some more. Again good luck on your continued journey. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,
    • Read this posted on the FDA.gov site: https://www.fda.gov/food/guidanceregulation/guidancedocumentsregulatoryinformation/allergens/ucm362880.htm
    • Color me confused.  I went to Costco yesterday and there were 2 products there that had GLUTEN FREE plastered on the box but then in the ingredients was a: May contain wheat. How is this possible?  How can they still put gluten-free on the box?  We should be able to trust gluten-free labeling no?? And second question:  How many of you would still buy that item?  I REALLY wanted to buy the Island Way Sorbet for my daughter as it is her FAVE.  But I didn't want to take the risk.  Maybe when she is healthier?  I mean it is SORBET?! LOL So frustrating!
    • JMG I have never laughed so hard! This was the best epic comment I've read! Thankyou so much!  Your all teaching me so much! Love the 'my glass to go' idea!! I will be adopting this... can't believe the mucky glasses we must be drinking from! Shocking!  Im still baffled how so many people don't understand cross contamination i.e. The crumbs on the work surface to cut the lime for your tasty beverage!  Your all amazing Thankyou x
  • Upcoming Events