• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Rebecca Mezoff

Long Distance Backpacking--Any Celiacs Going Long Miles?

Rate this topic

Recommended Posts

I was diagnosed with celiac disease in 2005. I love long-distance backpacking and completed the Colorado Trail in 2003. I'm heading out on the Colorado Trail again in a few weeks (500 miles) as a shake-down hike for a 2012 attempt on the Pacific Crest Trail (2,650 miles; April 2012). I'm comfortable with my gear, but always am looking for food options. I need LOTS of calories for as little weight as possible, so rice noodle soup is not going to cut it. I have seen people post things about quinoa (and have heard it can be dehydrated though haven't tried this yet). I've eaten Lara bars and like them, but would like to find something with even more calories per ounce.

Any food suggestions for me? This is a 5 month hike and will require a LOT of food. Most of it will have to be shipped to post offices along the way as I won't be able to find gluten-free options in small towns.

Also, I'm interested in whether anyone with celiac disease has hiked one of the long trails. I did read the blog of the "Breadless Horseman" who did the AT a few years ago--but his Mom put together all his food. I think literally dehydrated and constructed each meal. I don't have time for this. It would take me a month just to put food in little baggies! (Though I definitely am willing to do some food assembly--I do like some good tasting food).

I'm interested in whether there was any different physiological effects hiking the trail with celiac disease... I think if your gut is healthy (mine is finally), it shouldn't be that different than anyone else doing it, but don't know as I haven't done a long trail with celiac disease yet.

Thanks,

Rebecca

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Yay for getting ready to do the PCT! (That's a lifetime goal for me. That and Rainier.)

When I backpack, I make and dehydrate much of my own food - it doesn't actually take as long as you'd think, but you would want to be doing it over the course of the winter.

You probably want to look into freeze dried options (especially for fruits/veggies) as they are both much lighter and tastier than the dried versions (though, also more expensive).

You may want to just try to keep some oil (like olive oil, that would work in a lot of different dishes) in your caches for very high energy density "food". Peanut butter is also a good choice, and you could always fill a re-useable tube with small amounts in each cache.

Even without a dehydrator, you may find it worthwhile to consider trying to dehydrate some gluten-free grains - they'll cook quickly (or even without cooking, just soak in water while you hike - I'm a big fan of 'freezer bag cooking' for my backpacking trips). Ditto with beans. (Dehydrated chili reconstitutes really well!) And also eggs (which also makes a good dense energy source, and a tasty breakfast when combined with potatoes).

Share this post


Link to post
Share on other sites

My gluten-free/CF spouse is planning an AT thru-hike in 2012. I am not at all sure this is do-able at this point, but I am reading up on dehydrating.

Do you like pemmican? What do you think about making hardtack with gluten-free grains?

Do you have a feel for how many calories you need each day?

Share this post


Link to post
Share on other sites

Two quick suggestions and I'll add more later when I have time. Costco carries a item called "Nonpareil Hash Browns". They are dehydrated and are sold in mini milk cartons. You add water and they reconstitute quickly and then you put the into a skillet. Secondly, Amazon sells several dried black bean packages. Again, just add water and they reconstitute very quickly. Both are all natural and pack some good carbo energy. Give both of these a try.

PS - Coloradan here.

Share this post


Link to post
Share on other sites

I was just diagnosed with celiacs last week. I climbed Mt Rainier this summer and am already scheduled to do I again next summer. It was a total white out on the summit so I need to go back to see the view from the top! :)

I went with IMG - a FANTASTIC guiding service! They provide your breakfast and dinner. Looking back it was very carb and gluten heavy. They will however do their best to accommodate any dietary restrictions.

Share this post


Link to post
Share on other sites
Ads by Google:


I have done 2 - 4 week trips to the BWCA and Quetico, and although I went prior to my Celiac's diagnosis, one thing I felt helped with quick energy was something called "Matt food." It's just peanut butter, powdered milk, honey, oats (Bob's red mill has gluten-free rolled oats), and chocolate chips. You just add the fixings to your taste. It's great to have a spoonful when you need a boost, and is rich in calories, protein and carbs.

Hope you have a great hike!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,955
    • Total Posts
      943,665
  • Member Statistics

    • Total Members
      67,261
    • Most Online
      3,093

    Newest Member
    Floris
    Joined
  • Popular Now

  • Topics

  • Posts

    • I feel the same.  Every so often, someone will roll their eyes.  I try not to discuss it unless I have to,  only because I don't love having the topic of conversation become me, but others seem genuinely curious.  Every so often I have a pity party over not being able to just pick up a sandwich at the deli when I'm rushed, or having to pass up all the good desserts on the cart, but mostly it's no big deal.  Maybe, like you, I know how lucky I am that I have something that can actually control and solve - without medications, chemo, surgery, etc.  
    • I can't remember, but it was a few years ago and maybe it had Maltodextrin in it, or maybe it was the 'flavorings' - which I never eat unless it's from a company like Kraft or McCormick that labels clearly.  But given that you eat it safely, maybe I'll contact the company for a clear answer.    
    • So the simple explanation is - You eat gluten.  It travels along and gets to your small intestine.  For some reason, your small intestine feels it is an invader.  but instead of making antibodies that "attack" the gluten, the small intestine cells make antibodies that attack itself.  Sort of misguided, but that's what happens.  Now these antibodies are in the small intestines .  It can take weeks to make enough of them in the small intestine for them to make it to the blood stream in big enough numbers to show up on a Celiac blood test.  So, one meal of gluten, after a long period gluten-free, probably wouldn't effect the level of antibodies in the blood.  
    • Hi - I think some of the issue here may be stemming from confusion about the word "exposed" and the two things in bold above -- while you are very strict about eating gluten, am I right that you've been accidentally eating some and for the past month have accidentally been not-gluten-free?  If so, that likely is the cause of your cognitive problems, which I'm sure must be really difficult.  It sounds like you're on the right track with trying to make sure you get this accidental gluten ingestion eliminated from your environment.  Have you checked all your meds, hand moisturizers, etc. (I don't worry about most care products, but I do care about what goes on my hands)?  Dedicated toaster, cutting board, non-stick cooking utensils and pots? Also, is your thyroid ok?  As auto-immune disorders seem to run in packs, it's not unusual to have Hashimotos Hypothyroidism and Celiac together. As far as communicating the issue to others (your original question), I think it's fair to say to those who know you well that this is a side effect of an accidental glutening, and as for others, I think you can just let it go.  Chances are they don't see your struggles as intensely as you feel them. Bringing it to their attention may even make it more of an issue.  
    • my thinking was that if I ate gluten tonight again , then the reaction would be there tomorrow not that there would be gluten for them to find exactly. So from what your saying It would make sense - i.e. if my body was going to react to gluten with antibodies then by eating gluten say tonight it would mean they would be in my system tomorrow. Now of course they could be in my system anyway from the gluten I ate a few days ago , but it would be more of a sure thing if id eaten it the day before I would have thought.
  • Upcoming Events