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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

When You First Went Gluten Free, Did You Lose Weight?
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I notice I've still been losing weight and am wondering if when you went gluten free if you lost weight?

I would guess it's from not eating empty calories from breads, bars, cakes etc.

If you lost, how much did you lose? How long before it started normalizing?

Paula

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rachbomb    1

I lost weight after I switched to a gluten-free diet. My doctor was pretty upset with me but I wrote it off that I was now eating all whole foods and basically no carbs (except for occasional rice and corn chips). He did have me start tracking calories though and I figured out that while I was full I was not consuming as much as I should be but it has now stabilized. In all, I lost 15 lbs since starting the diet (5-10 was ok by me!) and I stopped dropping after 2-3 months.

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alex11602    75

It took me about 3 months to stop losing too and I lost about 40 lbs, my weight has pretty much stabilized in the last month. That may be because I mostly lived on pasta and crackers before because I thought bland food would be good for my belly :lol:

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I lost 20 lbs my first month. I had it to lose however, as gluten makes me gain weight instead of wasting away. My weightloss stopped when I added carbs back into my diet (I had cut out all grains and all sugar as part of my elimation diet).

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txplowgirl    97

I have always been overweight and couldn't lose it no matter what I did. When I went gluten free it wasn't to lose weight but get rid of all the other problems I had. D, migraines, tingling, depression, stomach pain, anxiety, etc.

Losing weight was a shock. I went from 235 to 160 and it has stabilized. That's 75 pounds and I wasn't even trying. Took almost 2 years. But that's because I realized I was super sensitive. Can't really eat any of the gluten free processed foods. I have to stay with mainly whole foods. Plus finding out I have other food intolerances might have helped to.

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julandjo    10

Like others mentioned, I started out overweight. I couldn't lose weight no matter what I did. Once I went gluten free I still ate the same # of calories (I'd been tracking for a while and continued when I went gluten-free), but the weight started dropping off. Quickly at first, then slower. I'm 17 months in and have lost 55 pounds. I went from a size 16 to a size 6. I'm at a great weight now. My body was hanging on to every calorie I ate because the Celiac damage had left me malnourished. Now that I can absorb nutrients I'm so much healthier. Who would have ever guessed I was fat due to malnourishment?! :P

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stellinpa    3

I notice I've still been losing weight and am wondering if when you went gluten free if you lost weight?

I would guess it's from not eating empty calories from breads, bars, cakes etc.

If you lost, how much did you lose? How long before it started normalizing?

Paula

I lost weight as soon as I eliminated Gluten. I figured it was because I was eating more regularly. I lost 10lbs in the first month and have kept it off.

I did read somewhere that some people lose wt. and some gain wt. I'm glad I'm on the 'losing side'

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Menic    21

I've lost about 30 lbs. (which I had to lose) over the course of a year. I think this is mostly attributable in my case to no beer and no fast food anymore. Cooking non-processed foods and making my own healthy meals has mostly been the culprate of my loss.

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jemms    6

since being off dairy and gluten I have lost 40 lbs. I still want to (need to) lose about 50 lbs. right now my weight has bee at a standstill...I hope the weight loss will kick in again.

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love2travel    396

When I first went gluten-free (prior to my gluten challenge) I gained weight as I was in panic mode and ate weird processed things I normally would not such as potato chips. Then I went back on gluten for my challenge and after my celiac diagnosis in February have lost a few pounds but need to lose more. I do not eat processed junk and must work hard to lose weight. I guess it does not help that I love to bake! In fact, I bake more now than I ever did before (and I have always loved baking). Must put a stop to this madness. :lol:

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BaldurBen    1

About six months after I was diagnosed (Nov. 2006) I had lost fifteen pounds. Now that my diet is more varied, I've probably gained about five of those back and stabilized there.

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Poppi    101

I lost 10 pounds in the first 2 weeks and then stabilized at 129. After years and years of my weight swinging wildly between 125 and 150 it hasn't budged in 3 months now.

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deinanthe    6

Yes, I lost weight after being diagnosed last year. Anyway, I'm down about 20 and still losing gradually, which is great because I have it to spare and am very happy to lose a healthy pound or two a week. Back when I was still having gluten and unaware of the whole celiac thing, I think the biggest thing that brought on my weight gain was that I would get nauseous if I got hungry. The hungrier I was, the more nauseous I was, to the point of getting sick to my stomach. Needless to say, I didn't let myself get hungry if I could help it. And for some reason, that made me gain weight. ;)

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Bubba's Mom    103

Losing weight without trying was the first symptom my PCP took as real. I had lost 20 lbs. in just a few months.

I was diagnosed on June 28th of this year and have been trying to eat things that are healthy. I'm still losing weight. I didn't know if was due to malabsorption..or lack of breads/cookies/ etc. in my diet? I mostly eat fruits and veggies, and meat, some rice.

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T.H.    404

I always think I lost more than I did (keep messing up my actual weight with how much I lost, LOL), but looking to make sure I'm not screwing up...

I lost 50 pounds in the first 6 months (I was about 50 pounds overweight, though). Over the next few months, it fluctuated between about 5 pounds, up or down, and then finally dropped another 10 pounds within 5 months.

Since then, we think we've figured out the pattern. If I get glutened frequently, my weight starts to climb, no matter what I eat or how many calories. If I don't eat gluten, my weight drops rapidly into 'woo hoo skinny!' and stabilizes there. But if I eat any of the foods we realized I am allergic to, then my weight keeps dropping (lots of D) and the weight doesn't stabilize.

I got too skinny, really, until we figured everything out. I've gained a little from my lowest weight, at this point. :-)

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mamabear272    9
Who would have ever guessed I was fat due to malnourishment?! :P

I feel the same way! I never would have guessed (nor would anyone else) that I was malnourished!

I re-started Weight Watchers in Jan and from then till my dx in June I lost 7 lbs. When I got dx, I dropped 6 lbs in 3 weeks. I think I've put some on in the last couple of weeks but that's cause I spent some time eating gluten-free junk! I'm starting back today using WW simply filling plan. It consists of "power foods" which are fruits, veggies, lean meats, fat free milk, etc.

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Brooksbelle    4

3 weeks in and down 7 pounds without even trying. My appetite has stabilized; before going gluten-free I always felt this weird mix of bloating/nausea/hunger all the time. I still need to lose a few pounds too--so I'm happy about the weight loss. =)

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CarolinaKip    67

I had lost a lot of weight before going gluten-free. I didn't lose anymore once I went gluten-free. I started to gain 3 months gluten-free and now have gained 10 pounds. I needed to gain some of it back, but now trying to stable my weight. I don't eat a lot of gluten-free replacement foods or junk. I believe in treats every now and then :)

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AmyE    0

Unfortunately I have lost about 5 lbs which is alot being as I am already about 10lbs underweight. I want to gain some weight. I feel I am wasting away because so many foods cause me pain. It's ironic because I am a recovering anorexic and when I was mentally sick, I didn't want to eat over fear of gaining-----now it's not my mental state, but my physical state. Ain't life one giant irony!!!

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Jungle    28

I gained 10 lbs in the first two months (and wasn't trying to gain or lose) Now after 4 months gluten-free we are back to normal again.

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