• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Frequent "glutenings"
0

16 posts in this topic

Recommended Posts

Elfbaby    13

I am trying so hard to do this stupid thing right. I felt better at first, but it seems like, the farther from the gluten that I get, the more sensitive to it I get and every little thing sets me off! My skin is a miserable mess again, and I literally can't keep from getting "glutened" long enough for it to clear up. It will start to get better, and then suddenly, some CC will occur and I will get those little freaking orange blisters again, which I can't help but scratch and then they scab and turn into a flaky mess. My hands are back to looking really freaking gross.

I am eating strictly gluten-free foods. Everything that I put in my mouth is gluten-free and I am really careful about that. The problem is that I live with 3 other adults who aren't gluten-free. My mom is super careful about CC and looks out for me as much as she possibly can. When this all started, she almost immediately identified butter, peanut butter, and mayonnaise as sources of contamination. So now there is separate "gluten-free" versions of those foods. She has fixed the cookware so there is completely gluten-free cookware and dishes, and even bought a separate cutting board so that we could cut veggies and things without using the bread board. My step-dad is likewise careful (although not nearly so much as she is). I realize that this is a huge imposition and and super grateful to both of them. I have pretty much given up on my sister though. She does nothing to minimize contaminating community food. So much so that they other day, my mom came in and told me that she made me my own sugar container because she found bread crumbs in the sugar. I identified the shredded cheese as the most recent culprit for cross contamination since my sister is using it to make grilled cheese sandwiches and not only not washing her hands before getting cheese, but she is buttering her bread over it. I don't expect her to change. I just don't know how I can protect myself from this while living in the same house. The other day she brought me a peanut butter cookie and told me that she made it using the gluten-free peanut butter. I ate it. The next day- had big problems. I finally remembered the cookie and when I went and checked, the gluten-free peanut butter hadn't even been opened. She had used the regular one and lied about it. I don't know what the motives were there, but it sort of makes me feel like she is screwing me up on purpose.

If you have made it this far, thanks for reading. I am just trying to figure out how to handle this. Moving out isn't an option at this point since I have just started a new job and have a 10 month old. I just need a new angle on how to handle the food issues.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I know you have a baby and a new job but is there any chance you can move out soon-ish? I think that's your best bet TBH.

Share this post


Link to post
Share on other sites
Roda    186

If moving out isn't an option right now then buy and make your own food and keep it under lock and key in your bedroom or somewhere noone can get to it and contaminate it.

  • Upvote 1

Share this post


Link to post
Share on other sites
ravenwoodglass    1,214

I agree with Roda, get your own stuff and keep it under lock and key. If your Mom will let you put a small padlock on a cupboard and let you put a small dorm size fridge in your room that is most likely your best recourse if moving is not possible.

Since having only one celiac in a family seems to be rather rare your sister may have some payback coming from her own body in the future. If she is doing this deliberately perhaps your Mom and step father can have a stern discussion about this with her.

Share this post


Link to post
Share on other sites
kareng    1,992

You can get a "camp box" or "dorm chest" or a "truck box" at Walmart or a large hardware store. They have a place to put a lock. There are also small fridges that have a place for a lock. In college, my hub rigged up a latch - can't remember how but he might remember if you need to know. Or lock the room but that might not work if Goober sleeps there, too.

I have a 15 & 18 year old & they can follow a few simple porcedures. The main one is get a clean plate. Put/cut you cheese or cold cuts on the plate first. Put the cheese away. Then get the bread or crackers. Pour out the chips.

Your sis sounds like she doesn't like the attention you & the baby are taking away from her. Perhaps your mother could explain that everytime you get "glutened" it makes it that much harder for you to keep a job & move out. It makes it hard to take care of the baby when you are sick, so mom wants to keep you & Goober where she can help.

Have Mom & Sis been tested?

Share this post


Link to post
Share on other sites
Ads by Google:


Jestgar    715

Have your parents announce that you will need to live on your own, since you keep getting sick in their house. Then announce that in order to help you save money for your own place, the family would be doing without {list of sisters favorite treats}. :P

  • Upvote 1

Share this post


Link to post
Share on other sites
eatmeat4good    313

Knowledge is Power!

You KNOW your enemy is Gluten!

And now you know your other enemy is your Sister!

Stop taking her word for anything and don't eat from anything she has touched...ever.

She doesn't get it...but you do! So protect yourself from her.

I agree with the suggestions above.

Make your own food at all times, unless your mom made something (it sounds like she is careful) But you MAY not be safe even if your mom cooks if your sister is going around contiminating things. Jeez...with friends like that...who needs enemies?

Your sister prolly makes her grilled cheese in your gluten free pans when no one is home. Don't put it past her. Lock them up too!

Share this post


Link to post
Share on other sites


Ads by Google:


Skylark    935

Bread crumbs don't just appear in sugar like they do butter or mayonnaise so you have to conclude your sister deliberately put them there. I don't know what's going on between you and your sister, but it isn't healthy and I agree it isn't likely to change. You need to lock up your food, dishes, and pans and obviously you need to turn down food your sister prepares for you as well.

Share this post


Link to post
Share on other sites
Nxsquid    0

I am trying so hard to do this stupid thing right. I felt better at first, but it seems like, the farther from the gluten that I get, the more sensitive to it I get and every little thing sets me off! My skin is a miserable mess again, and I literally can't keep from getting "glutened" long enough for it to clear up. It will start to get better, and then suddenly, some CC will occur and I will get those little freaking orange blisters again, which I can't help but scratch and then they scab and turn into a flaky mess. My hands are back to looking really freaking gross.

I am eating strictly gluten-free foods. Everything that I put in my mouth is gluten-free and I am really careful about that. The problem is that I live with 3 other adults who aren't gluten-free. My mom is super careful about CC and looks out for me as much as she possibly can. When this all started, she almost immediately identified butter, peanut butter, and mayonnaise as sources of contamination. So now there is separate "gluten-free" versions of those foods. She has fixed the cookware so there is completely gluten-free cookware and dishes, and even bought a separate cutting board so that we could cut veggies and things without using the bread board. My step-dad is likewise careful (although not nearly so much as she is). I realize that this is a huge imposition and and super grateful to both of them. I have pretty much given up on my sister though. She does nothing to minimize contaminating community food. So much so that they other day, my mom came in and told me that she made me my own sugar container because she found bread crumbs in the sugar. I identified the shredded cheese as the most recent culprit for cross contamination since my sister is using it to make grilled cheese sandwiches and not only not washing her hands before getting cheese, but she is buttering her bread over it. I don't expect her to change. I just don't know how I can protect myself from this while living in the same house. The other day she brought me a peanut butter cookie and told me that she made it using the gluten-free peanut butter. I ate it. The next day- had big problems. I finally remembered the cookie and when I went and checked, the gluten-free peanut butter hadn't even been opened. She had used the regular one and lied about it. I don't know what the motives were there, but it sort of makes me feel like she is screwing me up on purpose.

If you have made it this far, thanks for reading. I am just trying to figure out how to handle this. Moving out isn't an option at this point since I have just started a new job and have a 10 month old. I just need a new angle on how to handle the food issues.

I can imagine it might be your sister acting out. I know my sister has the same sort of mind-frame. She might view your disease as you getting more attention than her, and with your mom giving you so much kitchen space, it seems so. People have weird ways of showing their jealousy and for all the wrong reasons, but my sister was the same way (though less sabotaging). Unfortunately, I don't really have a solution. :/

Share this post


Link to post
Share on other sites
Reba32    41

peanut butter cookie made with gluten free peanut butter? How about all the other stuff that goes into making a cookie?

Share this post


Link to post
Share on other sites


Ads by Google:


kareng    1,992

peanut butter cookie made with gluten free peanut butter? How about all the other stuff that goes into making a cookie?

Might have been these cookies. Alot of people make them. I made them in my pre-gluten-free life.

http://abcnews.go.com/GMA/recipe?id=8714020

Share this post


Link to post
Share on other sites
aeb    2

My little sister is also a bit jealous of the "attention" my mom gives to my special diet. I am living at home while at grad school, my sister spends most of the year away at college. So my parents and I are really close. My sister decided to become a vegetarian right after I went gluten free. I haven't seen her actively putting gluten in my gluten free condiments and things, but she is always putting my food down and saying that just a little wont hurt. So I started making a big deal about accommodating her vegetarianism when she visits. Maybe try to find something to "accommodate" your sister, give her some additional attention.

Share this post


Link to post
Share on other sites
Medusa    2

Could also be a twisted kind of denial - some people are soo determined to "prove" that celiac is all in your head they will try and prove it to you by "testing" you - secretly or openly - by glutening you on purpose. If she is having to face the possibility that actually, she might need gluten free food too, but doesn't want to accept it, that can only make matters worse.

We got round any such issues by going gluten free as a family, it doesn't have to be expensive although it can be limiting at times. Actually, we all felt much better for it. If your sister is that anti-gluten-free, she might then move out and solve your problems!

Share this post


Link to post
Share on other sites
Elfbaby    13

peanut butter cookie made with gluten free peanut butter? How about all the other stuff that goes into making a cookie?

The peanut butter cookie recipe that we use is actually 1 cup peanut butter, 1 egg, and 1 cup sugar. They come out very tasty.

Thank you for everybody that read and gave advice. Moving out just isn't an option at this point, but separate foods are. I make my own money, so I am able to buy my own groceries. I have been labeling everything "Gluten-free" (even cheese and bacon) to mark them as mine.

I think the jealousy thing might be hitting the nail right on the head. I wont say that the whole house is completely gluten free, but when my mother cooks dinner, she doesn't cook with it anymore, which is probably irritating my sister.

I decided to take a chance and took her out to lunch the other day. I made her sit there and watch how careful the waiters and cooks are at Red Robin (the manager came over again and gave us the whole spiel about how careful they are again, which helped a lot) and I think that it may have made an impact. My skin has been clear now for almost a whole week, and I haven't had any digestive episodes. And today, I was even watching from the living room as she made a sandwich and I watched her wash her hands and then put the meat and cheese out on a plate BEFORE putting her hands into the bread bag (which is how mom and my step-dad have been doing it), so maybe things are going to get better. I can always hope!

Thanks again!

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,868
    • Total Posts
      938,407
  • Member Statistics

    • Total Members
      65,767
    • Most Online
      3,093

    Newest Member
    mishamouse
    Joined
  • Popular Now

  • Topics

  • Posts

    • You are a mom with a child who has an autoimmune disease that fortunately can be managed with diet.  It is your family's job to protect your son.  Most of that responsibility falls to you, your husband and your child.  It is very hard to completely understand the gluten free diet unless you are living it every single day.  But there are things that you can do. Send them some information via email about celiac disease and the diet prior to your arrival.  Hit the ground running the very first day to obtain food and the necessary tools to prevent cross contamination.  Keep those items in a storage bin located out of the kitchen.  Have a family meeting on the first day.  Tell them nicely and with love that you need to do all of these things to keep your son safe.   If they are not supportive, well, for me, it would be our last visit home.  It is that simple.   Luckily, my family has been supportive.  We go home for weeks at a time.  I have a bin, systems in place and hubby and I are kept safe.  I watch all food preparation and we hit the buffet first and only once.  We manage well at my parent's house and even at the family lake house where there are tons of gluten eaters.  We have a few others in the extended family who have allergies as well.  So everyone is careful.   Do they think I go over board?  Of course.  But I am an adult and my health and hubby's comes first.  it has taken some time, but they now feel comfortable with us just ordering a drink if they occasionally choose a restaurant that is not safe us.    After all, it is all about relationships and not food.  
    • Start taking to them now about the seriousness of him staying gluten free. You have to get them past that point of thinking you are being irrational. Send them articles talking about what it's like to be glutened. You've got to make this normal and you have the time now to do it. Be firm.  I've had too many dinners in the past with my husbands family that doesn't care or care to even understand about my issues where they actually told me things were made without flour, but I reacted. Badly. They still don't care but now I just don't believe them, lol. But with a child hopefully they do care and do want to understand. You have to make them realize he is going to SUFFER if he gets glutened. And you don't want your son to hear little snide comments either. You've done a good job normalizing it for him in your environment. Hopefully you will be able to prepare them now so you aren't walking into a war zone then.    
    • You can keep down the clutter by bringing a set of Nordicware microwave cook ware, r roll of butcher/freezer paper (makes gluten-free safe prep area on top of counters, tables, and a nice eating mat) spatula, plastic utensils, and perhaps a small griddle. I normally just do stuff that way and bring at home made muffins, cookies, etc to make myself feel good. I tend to stick to whole food omelettes and the premade stuff I bring to keep it simple and easy. PS the nordic ware has steamer dishes, rice cookers and microwave grill plates so you can cook salmon, rice, steamed veggies chicken all in a microwave.  I did a huge post a few years ago about me hosting my families thanksgiving. I even had instructions on how to make the turkey, and dressing.
    • Good to hear you tapered with your doctors assistance. Many drugs are very dangerous to stop suddenly and not just in terms of the withdrawl.  I tapered off all meds also at diagnosis and have only had to add back in my 'as needed' Alprazolam. I take that for something not celiac related though. Things can be up and down for a bit when we go gluten free. Hang in there.
    • My 13yo son was diagnosed by biopsy in August of this year.    We have not had to travel since he has been diagnosed.   I am concerned with holiday travel coming up.   My husband wants to visit his parents this year for our kids Christmas break but, I'm concerned about my son getting "glutened" while we stay at my in-laws.    I already know that they will think I'm being irrational if I insist on bringing a toaster and cookware for my son's meal prep.   They won't understand about him not being able to use the communal butter dish or serving utensils.   Fortunately, my sister-in-law says that there are gluten-free options at their small grocery store.   But, I'm worried about what to do, say and generally how to handle this.   I don't want to ruin my family's vacation.   I want to show my son that his life doesn't have to stop because he has Celiac.    I want him to still be able to travel and visit his friends and family! Any good advice out there as to how to handle this with my in-laws and how best to ensure my son doesn't get glutened without offending anyone?       
  • Upcoming Events