• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Rate this topic

Recommended Posts

My doctor ordered a second cbc/metabolic panel for me about a week ago. When it came back, she told me it was normal. I asked for a copy of it, which I got today.

My last cbc, four months ago, was totally normal, with all my values square in the middle of the normal range. Not this time.

These were off:

White Blood Cell Count

Current test: 2.2

4 months ago: 8.5

"normal": 4.0-10.5

Platelet Count

Current test: 123

4 months ago: 255

"normal": 140-415

Polys-Man% (neutrophils)

Current test: 39

4 months ago: 59

"normal": 40-75

Monos% (monocytes)

Current test: 17

4 months ago: 7

"normal": 0-14

I tried to get a hold of my doctor but could only leave a message with her office. I am concerned about the white blood cell count- when I looked into it 2.2 is very low- I saw a few people saying that when their WBC was 2.2 it was considered critical by their doctor. I'm not on any medicine that causes leukopenia, I've been gluten free for about a month and a half and the only abnormal test result that I've gotten recently besides this was a low serum iron. My main symptoms are fatigue and various GI complaints, mostly stomach cramps and nausea. I've bruised easily all my life and I have reactive airway disorder so a cold can put me in the emergency room- neither of those symptoms are abnormal to me.

I'm not sure if I'm even dealing with celiac disease at this point, but I don't know where else to ask because you guys are so nice and my doctor is unreachable. Am I in danger?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I do think you need the Dr to read these results again. It looks like pretty much all of them fall out (or almost) out of the normal ranges. You need to go back with test in hand to ask again. What any of it means is beyond me but the practice of getting copies of your tests is a smart one.

  • Upvote 2

Share this post


Link to post
Share on other sites

I do think you need the Dr to read these results again. It looks like pretty much all of them fall out (or almost) out of the normal ranges. You need to go back with test in hand to ask again. What any of it means is beyond me but the practice of getting copies of your tests is a smart one.

Well, I highlighted the ones that were out of normal range. Everything else (red blood cells, etc) were all apparently normal. Some of the liver function ones had also changed significantly since my last test but were still within normal.

I am hoping she will call me back. It is actually my psychiatrist that ordered these tests- but my GP seems to always just tell me to follow up on my referral to the gastroenterologist. It seems like what I really need is to see a hematologist.

Share this post


Link to post
Share on other sites

Well, I highlighted the ones that were out of normal range. Everything else (red blood cells, etc) were all apparently normal. Some of the liver function ones had also changed significantly since my last test but were still within normal.

I am hoping she will call me back. It is actually my psychiatrist that ordered these tests- but my GP seems to always just tell me to follow up on my referral to the gastroenterologist. It seems like what I really need is to see a hematologist.

If your GP will not address these blood results IMHO you need to find a new GP. That much of a change in 4 months needs to be addressed.

  • Upvote 2

Share this post


Link to post
Share on other sites

I'm not a doctor, but common sense suggests that if you feel basically normal you are not in immediate danger. Some insurance programs have "ask a nurse" phone lines where you might be able to call for reassurance. I'm sure your GP will get back to you as well. You probably need the tests repeated and a referral to a hematologist if they come up the same.

Share this post


Link to post
Share on other sites
Ads by Google:


I'm not a doctor, but common sense suggests that if you feel basically normal you are not in immediate danger. Some insurance programs have "ask a nurse" phone lines where you might be able to call for reassurance. I'm sure your GP will get back to you as well. You probably need the tests repeated and a referral to a hematologist if they come up the same.

Basically normal for me these days is low grade fever and significant fatigue, it's a bit hard for me to tell sometimes if I'm ok or not. I did some research and found that a WBC <1.0 is considered acutely dangerous, so I won't keel over and die, but I am concerned about getting an infection.

I'm going to make an appointment tomorrow to actually get in and see my doctor as opposed to discussing over the phone.

Thanks, guys!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,923
    • Total Posts
      943,529
  • Member Statistics

    • Total Members
      67,139
    • Most Online
      3,093

    Newest Member
    Kymy02
    Joined
  • Popular Now

  • Topics

  • Posts

    • Found it:   "The Canadian Celiac Association (CCA) recommends that people with celiac disease or gluten sensitivity DO NOT consume the gluten-free labeled Cheerios products at this time because of concerns about the potential levels of gluten in boxes of these cereals...Based on the information provided to date, our scientific advisors are not convinced that the testing procedures described by General Mills are sufficient to detect these contamination “hot spots” in the oats and oat flour or in the boxes of cereal that may contain those contaminated oats." 
    • I got very sick from the Cheerios but never the Chex. I posted something about this before and I'll try to dig it up.  
    • You don't have Turner's Syndrome do you? My niece was diagnosed with celiac disease which later led to a diagnoses of Turner's. There is evidently some sort of connection between the two. They gave her shots of HGH to help her grow because she too was very short.
    • Kim, I tried with those two doctors you mentioned and didn't have much luck at all. They are from the Ohio Liver and GI group. The local support group isn't local and the webpage hasn't been updated in 4 years and it seems that nobody with celiac disease wants to talk about things that help out here in Cinciny. I actually posted a similar plea for help some time ago laryssabeth. I went to the local dietitian that was recommended named Anita Duck but she was no help at all. It was a total waste of money and time in my opinion. She didn't know about cross contamination, parts per million, the different certification organizations and so on. I live in Bellevue, Ky. The so called "local group" that can't be reached actually is in Centerville area almost an hour from me. You both sound local and I'd love to bounce questions off of both of you on things you've tried, successes and failures. What part of town are you two from?
    • A quick perusal of Dr. Brownstein's website outs him quite quickly as a purveyor of pseudoscience. Though he may be an MD, he appears to have abandoned evidence in favour of selling stuff people don't need by making them afraid, using his authority as a doctor. Like all such individuals, what he says has some basis of truth (eg. hypothyroid disorders are quite common, the average North American has a terrible diet), but he twists it to create fear and take advantage of those who are less scientifically literate. Conspiracy theories abound to be found at: http://www.drbrownstein.com/dr-bs-blog/ Here is a criticism of his work: https://sciencebasedmedicine.org/does-your-antivax-doctor-have-another-agenda/
  • Upcoming Events