This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease?
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
There is a question in my mind as to whether the canker sores are actually caused by your celiac disease. Sounds like the doctors pinned it on celiac disease as there was laboratory evidence proving you were a Celiac. And having canker sores is in fact one of the documented medical conditions associated with celiac disease. But there are many other possible causes.
Have you had follow up lab work and endoscopy to check the response of your celiac disease to gluten free eating?
Antibodies can remain in your system for months to over a year....or go away within two weeks. It sounds like you were advised to go gluten free and that could have caused your TTG to decrease. Does your GI know you had been gluten free?
Some folks with DH have no intestinal or it can be patchy. The antibodies are primarily in the skin. If you know that rash was DH, then you have celiac disease.
Hello, I was diagnosed w celiac in 2016 and I am male age 46- there is some extended family also w celiac. What happened w me is that I started to get canker sores/ mouth sores in my mouth and especially on tongue and in and around cheeks, inside lip area, they became too frequent and lasted a few days always- would go away for a week and then boom another round of them in my mouth. After a few visits to different doctors they finally focused on celiac potentially after my blood test showed elevated and then I got a endoscopy to confirm. Since then I have been very careful w gluten free, I only buy gluten free products at home and don't only go by ingredients labels to see if any wheat, I am sure that occasionally when I do eat out despite being as careful as I can there is inevitably CC ...... I will still get the mouth sores occasionally and it's very hard to determine if they come about bc I have gotten CC or is this something I will always get because I have celiac and doesn't matter if I get exposed to gluten or not?? I am hoping someone else has these type of triggers out there, I don't see this symptom mentioned a lot out there
Thank you for that information and idea. I don’t know if I react to oats because I don’t have symptoms. I’m actually on a six month trial of pure oats now and am about to have my TTG retested to see if oats affect my levels. If oats are a problem for me I will definitely have to think about shared-with-oats lines.