• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Having A Bad Day...
0

10 posts in this topic

Okay, may I vent please to someone who understands...or isn't already tired of hearing how bad that I feel? So, I feel horrible today, and I'm so frustrated about trying to figure out what is causing me issues! It's too overwhelming! I am cranky and irritable...and sadly just snapped...at my much deserving children:) I started feeling bad again a couple of weeks ago for unknown reasons. I was wondering if I'm getting glutened somewhere. Then I took my son to a birthday party at a bounce place...with pizza and cake...against my better judgement. I didn't touch anything, but you know I have two kids. My hubby washed them up, but I figured I'd probably "get it" anyway. I started feeling worse, but still wondering if it's a compounding gluten effect from something that I'm eating. Then I felt bad all week, but still functioning. Then my son had his birthday party this week at a sprinkler park and playground. We were going to do a "gluten free" party, but there were at least 25 kids that responded and their parents. It would have cost too much to do it gluten free. So we decided to go ahead with gluten full cake and pizza with snacks. I asked my hubby and mother to please help to serve the kids and set up the cake and pizza. Were they paying attention when it was time? Of course not. So with 40 people standing around looking at me, I was forced to cut the cake because my helpers were awol. I started cutting the cake and got it all over my hands, and finally got my hubby to come over and finish. Really...he knows what it does to me. Crikey! Okay, so that was saturday. It is now Wednsday and I feel worse than I have in the past 2 weeks. Why? I am sooooooooooooooo frustrated trying to figure out the source of problems!!!!!!!!!!!!!!! It's darn near impossible! Now, I look 7 months pregnant today and feel miserable. I just started having "hot flashes" or flushing pressure in my chest trying to breath. Ugh. Sometimes I think that I can't take it anymore....

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I feel so bad for you honey. :(

Sometimes it takes several days to a couple of weeks to get over a glutening. Eat real simple whole foods like apples or bananas, chicken and rice, etc. Stay away from prepared gluten free versions of things.

Rest as much as you can and listen some music that's your favorite..pamper yourself. Do whatever helps you destress. It will pass.

Be sure to check that any sunscreen/toothpaste/shampoo/bath products you use are gluten free too, if you haven't already.

(((hugs)))

0

Share this post


Link to post
Share on other sites

Okay, may I vent please to someone who understands...or isn't already tired of hearing how bad that I feel? So, I feel horrible today, and I'm so frustrated about trying to figure out what is causing me issues! It's too overwhelming! I am cranky and irritable...and sadly just snapped...at my much deserving children:) I started feeling bad again a couple of weeks ago for unknown reasons. I was wondering if I'm getting glutened somewhere. Then I took my son to a birthday party at a bounce place...with pizza and cake...against my better judgement. I didn't touch anything, but you know I have two kids. My hubby washed them up, but I figured I'd probably "get it" anyway. I started feeling worse, but still wondering if it's a compounding gluten effect from something that I'm eating. Then I felt bad all week, but still functioning. Then my son had his birthday party this week at a sprinkler park and playground. We were going to do a "gluten free" party, but there were at least 25 kids that responded and their parents. It would have cost too much to do it gluten free. So we decided to go ahead with gluten full cake and pizza with snacks. I asked my hubby and mother to please help to serve the kids and set up the cake and pizza. Were they paying attention when it was time? Of course not. So with 40 people standing around looking at me, I was forced to cut the cake because my helpers were awol. I started cutting the cake and got it all over my hands, and finally got my hubby to come over and finish. Really...he knows what it does to me. Crikey! Okay, so that was saturday. It is now Wednsday and I feel worse than I have in the past 2 weeks. Why? I am sooooooooooooooo frustrated trying to figure out the source of problems!!!!!!!!!!!!!!! It's darn near impossible! Now, I look 7 months pregnant today and feel miserable. I just started having "hot flashes" or flushing pressure in my chest trying to breath. Ugh. Sometimes I think that I can't take it anymore....

I feel so bad for you. My partner wanted tacos with canned roast beef the other night. Ingredients: wheat. Ugh. I get physically ill at the thought of putting the stuff in a bowl and mixing it up. I don't have small kids any more and can only imagine how hard it must be to deal with all that gluten! Feel better!

0

Share this post


Link to post
Share on other sites

Okay, may I vent please to someone who understands...or isn't already tired of hearing how bad that I feel? So, I feel horrible today, and I'm so frustrated about trying to figure out what is causing me issues! It's too overwhelming! I am cranky and irritable...and sadly just snapped...at my much deserving children:) I started feeling bad again a couple of weeks ago for unknown reasons. I was wondering if I'm getting glutened somewhere. Then I took my son to a birthday party at a bounce place...with pizza and cake...against my better judgement. I didn't touch anything, but you know I have two kids. My hubby washed them up, but I figured I'd probably "get it" anyway. I started feeling worse, but still wondering if it's a compounding gluten effect from something that I'm eating. Then I felt bad all week, but still functioning. Then my son had his birthday party this week at a sprinkler park and playground. We were going to do a "gluten free" party, but there were at least 25 kids that responded and their parents. It would have cost too much to do it gluten free. So we decided to go ahead with gluten full cake and pizza with snacks. I asked my hubby and mother to please help to serve the kids and set up the cake and pizza. Were they paying attention when it was time? Of course not. So with 40 people standing around looking at me, I was forced to cut the cake because my helpers were awol. I started cutting the cake and got it all over my hands, and finally got my hubby to come over and finish. Really...he knows what it does to me. Crikey! Okay, so that was saturday. It is now Wednsday and I feel worse than I have in the past 2 weeks. Why? I am sooooooooooooooo frustrated trying to figure out the source of problems!!!!!!!!!!!!!!! It's darn near impossible! Now, I look 7 months pregnant today and feel miserable. I just started having "hot flashes" or flushing pressure in my chest trying to breath. Ugh. Sometimes I think that I can't take it anymore....

I am so sorry you are feeling so bad. That is a clue it IS gluten. Hope you can rest and be in a clean environment for long enough to get balanced out again.

0

Share this post


Link to post
Share on other sites

I'm so sorry. I hope that you get over the major glutening soon so that you can figure out the minor glutening. Do you have a short list of for sure safe foods that you can go back to for now?

Next time you have to decide. Is it worth getting very sick to not have people looking at you like "why aren't you giving us cake?" Maybe you could have asked one of the other parents to help. I know, myself, I don't have very good reasoning when glutened so that probably contributed to your getting even more glutened.

You need to give your health a greater priority. You can't properly take care of your son if you are sick. I'm sure he would rather have a healthy mother than a fun birthday party.

I have a technique for figuring out what is getting me. I get as good as I can, then I eat 3 or 4 times the usual amount of whatever I suspect. That seems to be enough for me to notice being much worse or not. Then I can tell if I have to eliminate that thing, or go on to something else. I just figured out something using that method.

I hope you feel better soon.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Thank you for your kind words. I think that I may have figured out that the olive oil (Villa Flor Organic)I have been using for the past few weeks may be contaminated, but I'm not sure. I called them yesterday, and they told me that there might be cross-contamination in their facility...oops. I just quit the last brand of olive oil that I was using because someone said on here that they reacted...and it was processed on shared equipment as wheat germ oil (Spectrum Organic). So if that is a source of consistent mild contamination, then it has finally compounded up to a level where I can't function...then the birthday parties on top of that. I usually have olive oil up to 3 times per day...cooking eggs, on salad, on chicken or fish. I will just have to wait to see if I get better without it I guess. I think that I'm more stressed, because I can tell that my husband is just tired of me feeling bad. I get little to no response from him when I vocalize how I feel. I feel bad about expressing what I'm going through all of the time, but I just can't seem to stop myself. I'm tired of myself too! Anyway, thank you for letting me get that off of my chest:)

0

Share this post


Link to post
Share on other sites

It is hard with the expense of gluten free food for everyone but I switched because I couldn't risk the crumbs. Now everyone LOVES the gluten free birthday cakes! (People take a slice for their friends to see how good gluten free cake can be.) :D

Live and learn. :rolleyes: Feel better soon! :)

1

Share this post


Link to post
Share on other sites

I wouldn't have guessed the Olive Oil would be cc'd. Good detective work there!

(((hugs)))

0

Share this post


Link to post
Share on other sites

I had trouble with olive oil too. I tried and reacted to several brands of olive oil and other oils until I tried Bariani.

Edited to add: I am crazy sensitive.

0

Share this post


Link to post
Share on other sites

Ah man, so sorry you've been zapped so badly!

Yeah - I reacted to the Spectrum Avocado oil. I was so, so bummed about it. Same thing as you - the cc was low, and slowly, slowly building up, and it took me a while to figure it out. And I had that same moment of contacting the company and finding out it was a cc risk. <_<

I hope you have the same success with dropping the oil as I did. Wish you didn't feel so bad!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,803
    • Total Posts
      932,560
  • Member Statistics

    • Total Members
      64,297
    • Most Online
      3,093

    Newest Member
    igone02@verizon.net
    Joined
  • Popular Now

  • Topics

  • Posts

    • Ken, I have the same thing. Did you ever find a reason or solution? I'm tired of shampoos and creams that only work short term. My problem cropped up after I had gone gluten-free. Thanks!
    • Hi, I recently was tested (blood) and got a positive for celiac disease. I'm 31 and have had 3 kids, and no longer have the urge to urinate. I birthed all of my children naturally, no c-sections, no surgeries. I thought perhaps there was some trauma during the birth and attributed it to that. But have come across a few things online saying that bladder problems can be related to celiac disease? I have been to a few doctors for this problem, including a very confused urologist (I asked him about my stomach bloating issue with pictures of it- before having any clue it was from celiac!) and he wanted to run some tests but I have not been back. I had multiple (or perhaps just one very bad) urinary infections which would not go away for about 6 months. The last round of harder antibiotics finally killed it off. Has anyone else had this problem? I have not met with a GI yet to ask, I'm super poor right now! hah.
    • You're right on the extremes, I'm sitting in a gluten-free food festival right now and still unsure if to eat anything which I guess means I've hit the extreme end of the scale. Seem to be noticing the recovery pattern over the course of 6 weeks or so after a gluten hit. Will be very interesting to see what the blood test readings come out like when I eventually get them done again. And thanks for the good wishes
    • Your getting plenty of proteins for once and I would drop the L-glutamine supplement what brand is it? Paleo Protein as in the brand? They were not gluten free last I checked, I got sick from it 2 years ago or so when they changed to a non dedicated facility.
    • Very interesting. However, my positive on the DGP test is on the combined assay. When separated into IGA and IGG they are within normal range. Twice the IGA was a point or two above normal range, which can be easily disregarded per University of Chicago.  Much of the research done on NCGS is showing activation of cells which are different then in celiac. Placing it still in a gluten related illness spectrum, but an entirely different kind of mode of transport, if you will, then celiac disease. Odd, because I am pretty sure I read that 1st degree relatives of celiacs have a higher prevalence of NCGS suggesting it is, in part, that they are related. But I cannot recall where I read that.  I think my specialist doc is following the right track given that all of this began at the tail end of a 6 week challenge in 2015/16 and I have an increase in IELs.  which, as I've stated before, is a very non-specific finding however. Symptoms continued On a gluten free diet for me months after.  however I was only on it for that 3 months after they found some inflammation. So maybe I didn't give it long enough.  Or like I said, maybe it's something else. We shall see! 
  • Upcoming Events