• Ads by Google:

    Get email alerts Celiac.com E-Newsletter

    Ads by Google:

       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long For A Reaction?

6 posts in this topic

Recommended Posts

Okay. So tonite, we made a HUGE mistake and grabbed a bag of pizza crust from the freezer, made the boys their pizzas and watched them chow down........ then looked more closely and they were eating WHOLE WHEAT pizza crusts!!!!!!!! They were over half way done, we figured the damage was done and let them finish their pizzas.......... Now we are waiting for the blow outs...... literally.

Gotta say I am surprised, though- they ate around 6pm, went to bed around 830. It is now 10pm and no complaints of tummy pain, no trips to the bathroom. How long does a reaction take? I am confused because there are many times that we think Jacob is reacting to something- due to diarrhea, complaints of tummy pain, etc. However, it must be traces as we are very careful about his food, cross contamination, etc. SO, if he hasn't had ANY reaction to speak of so far after eating whole wheat pizza, are these episodes of diarrhea and tummy pain really related to gluten? Or could it be some other food reaction.

Please don't get me wrong- i KNOW they can't have gluten. I KNOW reactions can vary. I am not using this as an excuse to feed him gluten or become lax on his/their diet. Just wondering if what we thought were gluten reactions may be something els. Also wondering what is a 'typical' length of time between eating gluten and symptoms.


Kim, Momma to 4 wonderful kids-Rebecca (age 7, two negative blood tests, no symptoms), Jacob- (age 6, celiac blood work positive, confirmed by biopsy March 2010), Gabe (age 6, Down Syndrome, celiac blood work positive July 2011, mommy refused the biopsy), and Susanna, (age 2, no testing, no symptoms)

Share this post

Link to post
Share on other sites
Ads by Google:
Ads by Google:

Mizzo    22

We had a simlar situation happen with spaghetti. Our DD had a reaction 6 hours later which was severe tummy pain for 2 hours then bed with no other side effects and nothing the next day.

Usually when I suspect cc it's followed within an hour or so with moderate tummy pain and diarhhea for a day or two, but not with the spaghetti. ????

I am confused as well.

Can't wait to hear responses.

BTW has anyone noticed a similarity between side effects and what specific food the gluten was consumed from??

Share this post

Link to post
Share on other sites

Well, just a quick update........ no GI reaction AT ALL. We didn't tell them that we had made a mistake. Didn't want to cause undue anxiety. Bathroom events have been 'normal', no complaints of headache or tummy ache. Yesterday Jacob was super tired and emotionally sensitive, but that was several days after the glutening episode, so hard to say if it is related or not.

Very weird. I am confused now.

Share this post

Link to post
Share on other sites
nmlove    2

Everyone's different. I have a really hard time sensing if my kids are cross-contaminated. Now, they haven't eaten whole wheat pizza so I can't compare with that but on occasion I notice some behavior change or a poop change and wonder, is this from gluten? But that can really drive me crazy so I try not to worry about it much - unless the symptoms were to continue. The only time I've noticed a problem was after continued, daily exposure of small amounts of gluten in something that was supposed to be gluten-free (Trader Joe's rice milk). Even then, the boys went months drinking that before they started acting like they did prior to diagnosis and by then their ttg levels were way up again. So if they're not reacting, don't sweat it. It was a mistake and it happens. Just get back on track. Be thankful they didn't get too sick! :)

Share this post

Link to post
Share on other sites
Notso    0

I had a similar experience last month. A relative had brought us muffins and gluten-free muffins and I gave our daughter the wrong one. She had no reaction for a day and a half. Then, we had four solid days of GI issues. I know it was the only gluten she had consumed. celiac disease is so odd.

Share this post

Link to post
Share on other sites
Ads by Google:

RideAllWays    27

This is happening to me right now. I usually know right away when I've been glutened, because I bloat and feel sharp pains in my stomach about half an hour after eating the food, and the GI symptoms come a few hours later. But I just started a gluten challenge yesterday and have eaten large amounts, and while I still got the bloating and cramping nothing else has happened.. I was expecting a hugely violent reaction. Maybe the reactions are delayed? Did you notice anything a few days later with your kids?

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now


  • Forum Statistics

    • Total Topics
    • Total Posts
  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
    Scott Nelson
  • Popular Now

  • Topics

  • Posts

    • Yeah been there, done that, I have broken down to learning to how to cook acorns even, fall I steal pumpkins from the city decorations after halloween so I can eat the seeds and sell the meat in baked goods at the markets. I sometimes used to take produce from the grocery stores. Note you can sometimes talk with a manager and haggle on damaged produce they would toss.  I do not do steal them anymore, my family now offers to support me more now days, and the farmers market and bakery sales keep it where I can just afford food.

           It is  risky state, you have to MAKE sure you eating plenty of fat and protein. Otherwise your body eats itself, as the next best source for fats and protein is the stuff stored on your body as the fat and muscles your have. I live this way myself bit more mild since I can not eat meats. But I eat plenty of egg whites, nuts, seeds, and leafy greens. I literally eat every 4-5 hours at least a protein shake to prevent my body from turning on itself. You can actually body build in ketososis. You just need to really load on the fats and protein, it makes for a LEAN and slow building process....not as easy as carb bulking but my only choice due to my ulcerative colitis having carb, and sugar triggers.

          I am allergic to corn and break out in a rash from it....my mother is hispanic and well you see where that goes, I recall about a year ago she hugged and kissed me on the cheek....well she had eaten something with corn or drank a soda cause I ended up with a red rash in a lip imprint on my cheek bit amusing story for you.   I did a post earlier about where to bulk buy foil sheets, and freezer paper online from my supplier for my bakery I will update this later today with links for you. Buy in industrial rolls and they last you 4-6months
    • FYI newly diagnosed should not have oats right away. 
    • You may want to ask your doctor for a celiac panel. That would be a good start. The biopsy needs to be done next to an active lesion and they need to be looking for DH.  Unfortunately it can take a while for DH to be diagnosed because many doctors are not very knowledgeable in the skin form of celiac. Keep eating gluten until all celiac related testing is done. Then you can try the diet if the doctors haven't been able to figure things out or won't test properly.  It can take some time for DH to resolve so you might not notice a difference right away and folks with DH tend to be very sensitive to even small amounts of gluten so you must be very strict. Hope you get some relief soon as I know how miserable the rash can be.
    • Take the opportunity to get healthy!    Nuts, seeds, fruits, take these as snacks on your drive. I personally love almonds and pumpkin seeds. Or bananas and blueberries. Or if you need protein there's lots of gluten free protein bars at gas stations. I like to pack hard boiled eggs too.  One thing I do for long trips is I make sort of a granola/protein bar at home and take it with me.    1 cup oats 3 eggs two spoonfuls of peanut butter some cinnamon and a banana.   mash it all together and bake it like a cake for about 20 minutes. Chop em up into little bars and bag em for your trip. just get creative and try new things! 
    • I totally understand.    Ive noticed the same thing when I started really ramping up my fitness program.    To start, cut out the 30 day challenges. If your serious about fitness, you will incorporate it as a normal entity of life. We already have compromised immune systems so putting sudden outbursts (or challenges) of stress on it will only make you more susceptible to pathogens and ultimately, get you sick.    Take a week, only stretch, light cardio, very light strength training, and lots of rest. Next week, add a little more. Show your body that you can handle it, but do it push it by any means. This new training regime is forever, it's your lifestyle. Take it easy, and play it smart. Slowly add more intense training over time... slowly. Get to a point where you feel your nutrition and fitness needs are being satisfied, and you're productively making differences.   i personally work out 3-4 days a week. But if I go too hard, I get sick. Then I get frustrated that I can't exercise, I work out anyway, and get even more sick. It's just not smart. So I stopped that. I have respect for my immune system and its limits. I took it very slow, and increased my intensity over time. Now I'm at that golden point in my life where everything is balanced. Progress (in terms of personal aesthetics for myself and my interests) is slow, but it's progress. And it's a hell of a lot better than the go hard and get sick cycle.   Best of luck to you friend! I'm sure you will find your way! Learn your body. Know that you are strong, you are powerful, you just have to play it smart. 
  • Upcoming Events