• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

New Here - Need A Little Advice.
0

3 posts in this topic

Hi there,

It's my first post here, and I may not even be welcome or belong! Apologies if this is the case. :-)

First, a little medical history! I'm female, in my late 30s, and have had an "interesting" variety of medical issues in the last few years. These include two episodes of severe acute pancreatitis (no reason found), a few episodes of gastritis and oesophagitis including one serious enough to land me in hospital, and so on. After several unpleasant attacks of abdominal pain, sudden urgent need for the loo (sorry if that's TMI!) and some mucus/blood, I had a colonoscopy a few months ago which showed minor inflammation and led to a diagnosis of severe IBS, but nothing more worrying. Incidentally, I also have fibromyalgia and have suffered from depression at various points.

After the diagnosis, I started to pay more attention to which foods seemed to affect me. I noticed most obviously that if I have toast or other bread-type stuff for breakfast, I get lower abdominal cramps, stomach ache and at least mild diarrhoea, all starting within an hour of eating, followed by exhaustion. I love and even crave bread, so this isn't good!

This morning I decided to do the BioCard test, which came up negative. Given that it purports to be 93% accurate, I'm therefore presuming that I don't have Coeliac Disease - I'd been a little concerned because autoimmune problems (Crohn's Disease, hypothyroid disease) run in my family.

So I suppose the question, after all that long-windedness (sorry!) is: where do I go from here? Given that I'm not Coeliac, so that's not what's causing my pain, bloating and other unsavoury digestive symptoms, I'm not sure what to do best to help myself. I don't believe in cutting out food groups without established cause (I hate fad diets, and so on), but I can't afford the York test, don't wish to come across as a hypochondriac to my doctors and can't go on feeling so gut-sore.

Any advice or information gratefully received!

Gill x

EDIT: Given the stuff I just read casting some doubt on the York tests, maybe it's a good thing I didn't have the money, anyway! ;-)

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi there,

It's my first post here, and I may not even be welcome or belong! Apologies if this is the case. :-)

First, a little medical history! I'm female, in my late 30s, and have had an "interesting" variety of medical issues in the last few years. These include two episodes of severe acute pancreatitis (no reason found), a few episodes of gastritis and oesophagitis including one serious enough to land me in hospital, and so on. After several unpleasant attacks of abdominal pain, sudden urgent need for the loo (sorry if that's TMI!) and some mucus/blood, I had a colonoscopy a few months ago which showed minor inflammation and led to a diagnosis of severe IBS, but nothing more worrying. Incidentally, I also have fibromyalgia and have suffered from depression at various points.

After the diagnosis, I started to pay more attention to which foods seemed to affect me. I noticed most obviously that if I have toast or other bread-type stuff for breakfast, I get lower abdominal cramps, stomach ache and at least mild diarrhoea, all starting within an hour of eating, followed by exhaustion. I love and even crave bread, so this isn't good!

This morning I decided to do the BioCard test, which came up negative. Given that it purports to be 93% accurate, I'm therefore presuming that I don't have Coeliac Disease - I'd been a little concerned because autoimmune problems (Crohn's Disease, hypothyroid disease) run in my family.

So I suppose the question, after all that long-windedness (sorry!) is: where do I go from here? Given that I'm not Coeliac, so that's not what's causing my pain, bloating and other unsavoury digestive symptoms, I'm not sure what to do best to help myself. I don't believe in cutting out food groups without established cause (I hate fad diets, and so on), but I can't afford the York test, don't wish to come across as a hypochondriac to my doctors and can't go on feeling so gut-sore.

Any advice or information gratefully received!

Gill x

EDIT: Given the stuff I just read casting some doubt on the York tests, maybe it's a good thing I didn't have the money, anyway! ;-)

That sounds pretty awful. I know you said you don't believe in cutting out food groups with cause, but I think you have a long list of causes. I would strongly consider an elimination diet. I am thinking of trying that myself to see if that helps me. The gluten elimination help tremendously but I still have some issues and it is very common to be sensitive to more than one thing. Two weeks of your life where you have to cut back may be more than worth it if you can figure out your triggers.

1

Share this post


Link to post
Share on other sites

Hi and welcome

Even if it isn't celiacs that is causing you pain, it could be gluten intolerance. That is my official diagnosis after years of being ill (mentally). The physical didn't start until march last year. I went on an elimination diet out of sheer desperation and lo and behold things improved without the gluten, and eventually dairy had to go too.

So much has come into line now I'm not on gluten...psoriasis and eczema seriously in remission, no medication needed for depression/anxiety/insomnia, hormonal problems have settled right down. After taking a gluten challenge to attempt to get diagnosed properly (moment of madness and one I seriously regret now because I still have stomach problems a month later) I realised I don't actually need a formal diagnosis really.....the fact that I feel like I am dying when eating gluten is good enough reason for me to cut it out.

Had someone suggested that to me two years ago, I'm pretty sure I would have been sceptical too, but the proof is in the (gluten free of course) pudding.

For what it's worth, I adored gluteny foods too. Craved them, absolutely, and for a while after going gluten free I thought I would go crazy. But, it does settle down and now I wouldn't trade feeling well for anything. If you have stomach problems, suspect it could be gluten, which you do obviously, then you are doing yourself a huge favour by trying an elimination diet. It is not a fad diet if you improve without gluten.

After all of the problems I had mentally and physically, not one person in the huge amount of medical people I have seen over the last ten years even suggested it could be a food problem until I myself discovered it. Not one. I trust my bodys judgement on this one, because the medical community seems to favour treating symptoms rather than cause.

Good luck, whatever you decide to do...but I would say you have nothing to lose, and everything to gain, if this is the problem. Only one way to find out ;)

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,805
    • Total Posts
      932,567
  • Member Statistics

    • Total Members
      64,299
    • Most Online
      3,093

    Newest Member
    Lauren Leon
    Joined
  • Popular Now

  • Topics

  • Posts

    • It won't let me attach a picture. It's the Pure Beef Protein Isolate French Vanilla with vanilla seeds in the front.  
    • Thanks everyone!  The L-Glutamine is from Nutri-Dyne and the Paleo Protein is from Dynamic and is sold by Nutri-Dyne. Is this the brand you got sick from? 
    • Hi kelzz..........the only way you will find out if the increase is from gluten exposure is to have your doctor run the correct test.  I have said this a million times on this forum but I will say it again.....the DGP/IgA tests for reaction to gluten ingested. The tTg/IgA tests for intestinal damage and that can be elevated from other autoimmune diseases, or from ingested gluten.  So you are either being glutened in sneaky ways OR you may have another autoimmune issue going on. Sorry my answer is so late but I have been on vacation. I hope this information helps you!
    • Ok, so long story, but I'm hoping some knowledgeable folks can chime in and tell me if a) I'm not crazy for thinking this sounds a lot like celiac and not a lot like anything else and  are the tests being run the right ones? I had malabsorbtion symptoms my whole life, rashes on the inside of my elbows and knees, chronic constipation, chelisis, brittle cracking nails, my hair sheds a ton, irritation on the edges of my scalp, blistery rashes on my hands, low iron, low blood sugar, bloating, painful gas (like bring me to my knees type). I pretty much just accepted it as my normal, and when I went to get the skin issues checked out in my early 30s, I was just told it was eczema and sent away. The rashes on the insides of my elbows and knees went away when I was about 15 or so, but in my 20s I started seeing a blistery, itchy rash on my elbows occasionally. Fast forward to 2015, and I have a terrible outbreak of GI symptoms (always constipation with me, with the occasional horrible D experience sprinkled in) along with a pretty bad itchy rash on both elbows. I start researching and find that a lot of what I have experienced sounds like DH/celiac. By the time I get my referral in and appointment to the GI doc, I've decided to cut milk out of my diet. I thought back to when I had the last period of time where I had no GI symptoms, and it was when I was last deployed. The dairy in the chow hall was either expired or near it, so I lived on eggs, rice, and chicken, and hot sauce. ;p. Once I cut out milk, and I saw a pretty impressive relief of most of my symptoms. The chelisis is gone, my rash disappears, bloating is much better, gas pains are gone. I get tested for celiac- negative, lactose intolerance- negative, SIBO- positive. Two rounds of antibiotics 6 months apart and my SIBO (methane type) clears up. Basically they said I had IBS-C and my skin issues were likely unrelated. I'm pretty sure my issue with milk is casein-related, because my son has the same issues with casein, and I sure have GI issues when I drink it. (TMI... mucousy rabbit poo). So I figure most of my issues have cleared up, no active rashes, good right? Nope. Since then, I had a couple outbreaks on my elbows, but they went away fairly quickly, My scalp rash thing ebbed and flowed, and my hair still sheds a ridiculous amount. About a month ago, I had another rash outbreak on both elbows, a couple blisters on my hands... and it stayed. After a month of rash, I finally contacted my doc and said "look, this rash is active, please take a look." Just as if it sensed it, the rash started clearing, that same day. :-< By the time I saw her a week and a half later, it was gone, save for a couple scabs. So, good news is my doc disagreed with the GI doc and said it sounded auto-immune to her. I'm military, so I get what I get for referrals, labs, and doctors, but she's luckily very good and knowledgeable. She ran the following tests: Complement Panel: Awaiting results C-Reactive Protein: Awaiting results Celiac Disease Ab IgA Panel: Awaiting results Tissue Transglutaminase Ab IgA: Awaiting results
      Gliadin Ab IgA: Awaiting results Endomysial Ab IgA: Awaiting results Rheumatoid Factor: NEG Comprehensive Metabolic Panel W/eGFR: Normal with the exception of a higher than normal Urea Nitrogen/Creatinine (indicates poor kidney function or bleeding in intestines (ding ding ding) My GFR was normal, so kidneys are probably okay. ESR: 9 (normal is 0-20) Indicates inflammation  
    • I've tried 3 shampoos and a skin cream, sorry can't recall names! It can keep it under control but I want to know why it happened in the first place. I was already gluten-free, and never had it in my life beforehand. Just looking for a magic cure
  • Upcoming Events