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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Is It True That Celiacs Lack An Enzyme That Protects Our Body/organs From Cancer?
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I have heard this from a woman on another board? And wonder how valid this statement was? Thank you!

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If there was an enzyme that protected people from cancer - only Celiacs would get cancer & researchers would be frantically trying to duplicate it. It would be all over the news. Celiac isn't about a lack of enzymes, its autoimmune.

Ask her for her source. Read the source. Beware her source, if she can provide one. It will not be a reliable & well recognized Medical Center. It will be someone trying to sell us "a cure".

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Thanx u I knew she seemed very whacky I trust this board with everything :) you made my weekend by confirming my thoughts xoxo

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I have heard this from a woman on another board? And wonder how valid this statement was? Thank you!

I remember reading a recent article about celiacs eating wheat having a cancer risk. Celiacs on the gluten-free diet were fine.

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Hello, almost every medical site you read frpm the Chicago Med Center who are top of field in Specialized Celiac Dr.`s to Columbia University, all state why it is important if diagnosed to follow life-time strict gluten free diet.

Left untreated or by ignoring confirmed celiac disease could be life threatening for you. We celiacs are prone to be afflicted with dibilitating or life threatening problems: malabsorption, osteoporosis, tooth enamel wearing, your central and peripheral nervous system can be effected, pancreatic disease, internal hemorrhaging, organ disorders (gall bladder, liver, and spleen), and gynecological disorders. Untreated celiac disease has also been linked an increased risk of certain types of cancer, especially intestinal lymphoma. Terri

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Terri I'm aware of all of this....I was wondering if this ? However was true.

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There are some people who are either not sticking to the diet, or have not recovered physically yet and are prone to saying crazy things. And then there are people who are just trolling trying to provoke anxiety or attention. Sounds like you found one of them.

Trying to figure this out, it just sounds like confusion. There is an enzyme involved in celiac reactions, transglutaminase 2, aka TG2.

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    • Hello and welcome I don't have celiac. I do have several symptoms in common with you and I do have a problem with gluten, so NCGS for want of a better term.  A celiac response to gluten involves the immune system so there certainly can be a delay between ingestion and the body producing the antibodies. That would correlate with your tongue aching progressively through the week. Some of the weirder symptoms of celiac occur because those antibodies that have identified gluten proteins as a problem then attack different parts of the body, maybe that's the more delayed reaction in your case. Last time I was glutened definitely I noticed some reaction in a few hours but it was a couple of days before I was certain. After effects can last for weeks or months even.  Wheat allergy is the one with the instant response, it's IGE mediated and so you can have an immediate surge in histamines and in extreme cases anaphylaptic reaction. NCGS is less well understood, some dispute it's existince or question if gluten is the cause. The symptoms however are similar to celiac as far as I know and that includes response time.  You've been through a miserable time but your still young and you need to decide whether you want to pursue a diagnosis or not. If you do, then it will require a gluten challenge of probably 6-12 weeks. See the links below for more details.  If you don't I suggest you go strictly gluten free, keep a food diary and see if the improvements you noted before continue. I think you've probably found your answer. Best of luck!   Further reading https://www.celiac.com/gluten-free/announcement/3-frequently-asked-questions-about-celiac-disease/
    • This is why many of us stick to our own "Trusted Brands" of things we know are safe, and only buy stuff with the offical certification for gluten free. NOTE also in the US they do not HAVE to tell you their facility also processes wheat on the label, just if the actual product contains it in the ingredients. But many will just to avoid legal mumbo jumbo if they somehow have CC issues. Saying the facility also contains/processes wheat is just them covering themselves if people get sick from it.
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    • I and many others here have been there and sympathise! Keep on keepin' on, it won't be long now before you can start feeling better. In the meantime, if there's a cheesecake, pastry etc that you want to say goodbye to, now's the time...
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