• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Felt Great, Got Scared
0

4 posts in this topic

Been gluten free now for three weeks. I've been really sick for a few months with all the common symptoms you read about on this site. All of a sudden tonight I feel great, no pain, no headaches, this wierd light feeling overcame me. Parts of my body feel different but not in a bad way. Great right? Wrong. I started having an anxiety attack. I feel like there is something wrong with me because I don't feel bad. Does that make any sense to any of you? I have not been diagnosed officially but I have learned enough to know that I needed to go gluten free in order to get better. I dont know how long I've been sick, just know that it hit it's peak a few months ago.

Did any of you out there feel so different that it scared you? Im worried that im going to feel ways that I haven't felt and not realize it's me getting better. This migh not make any sense to some of you but this is all new to me. Unfortunately after a few hours of laying here in bed worrying, I'm starting to get a headache again. Oh well, hopefully these are the signs of recovery.

1

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


It makes perfect sense to me. When first diagnosed we tried to be a household with gluten products still in the home. But I still had my own toaster, butter, pans, etc....Everytime someone would eat bread, crackers, etc....I kind of freaked out. My doctor did prescribe some anti-anxiety meds, which did help but left me feeling out of it. So after the doctor said go completely gluten free in the house, it made a world of difference. I think because what can hurt us is so readily available everywhere it makes it really scary for us. Something that really helped me was meditation and yoga. I am so glad you are feeling better, I know that sometimes it can be scary after feeling so bad for so long, just stay positive, keep thinking about how great you feel and that you will not let this define you.

Take care and stay positive B)

1

Share this post


Link to post
Share on other sites

I had a similar feeling - not related to celiac - but after a tremendously difficult year (almost lost my husband, daughter and Mom; promoted at work with three employee slots to fill, etc), I decided to declare the next year The Year of Fun. As part of that, we went to Disney World. I was sitting outside Italy at Epcot watching a parade. I felt this strange light feeling. Almost bubbly. I started to panic. What is this? Am I getting sick? Oh my gosh! ... Oh...wait... I'm feeling happy. This is happiness. It had been a while and was hard to recognize. But I sure was glad it was back!

I hope you continue to heal and more happiness comes to you.

1

Share this post


Link to post
Share on other sites

Yep, yep, and yep. I get panic attacks :< Not fun at all when it goes off like that.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,802
    • Total Posts
      932,550
  • Member Statistics

    • Total Members
      64,291
    • Most Online
      3,093

    Newest Member
    1Newtothis
    Joined
  • Popular Now

  • Topics

  • Posts

    • I would suggest a certified gluten free soy sauce, just to be safe.  Test that and if you react, you'll be able to rule out a gluten reaction from La Choy.  
    • I second cycling lady here, you should not go gluten free unless your doctor confirms you have celiac disease via the blood test and a biopsy. You need to be eating gluten for the testing to be accurate so a 30 day trial based on the gene is a REALLY bad idea, getting back on gluten for the testing is a nightmare once out of your system. Also going gluten free, what are you eating? If your eating just a bunch of gluten-free foods that are processed like the pre made breads, foods etc. your on the wrong path. Those are normally non enriched and more like junk food/comfort food. You need to eat a whole foods diet, of various greens, meats, nuts, seeds, (fruit if you can have it and sweet potatoes). etc. Doing this will boost your healing and you and introduce some of those processed foods later on sometimes. If you have celiac disease then your intestines are probably damaged and you will need to supplement some nutrients, we all have common ones like magnesium, iron, b-vitamins, folate, potassium, D etc. and you should talk to a good doctor about what your missing. The whole out of it things sounds like b-vitamins to me. Another point is going gluten free, you have to be careful for CC if your a celiac, after removing gluten re exposure to gluten makes your symptoms MUCH worse, and the tend to change and evolve in addition. Be sure to check the Newbie 101, your pretty much have to replace most of your cookware, condiments, etc. https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/  
    • Do you still consume gluten and/or dairy? If so, I highly recommend that you eliminate both entirely. That includes anything with the ingredients; whey powder, casein, "lactose free" can be misleading as well. I also recommend taking a good probiotic regularly.  http://mentalhealthdaily.com/2016/03/01/10-best-probiotics-for-depression-anxiety-gut-brain-axis-modification/  I use Garden of Life brand for Mood. I buy it in the refrigerated section at Whole Foods. I also recommend double doses of B vitamin for a stint. However, you should have a full work up done by a neurologist, if you haven't already. Assuming everything comes  back negative then I highly recommend trying these few things.  I hope you can find answers and start feeling healthy again.
    • I suggest researching Mast Cell Activation Syndrome or EOE.   http://www.mayoclinic.org/diseases-conditions/eosinophilic-esophagitis/basics/definition/con-20035681  Also, Benadryl crosses the blood brain barrier and there have been long-term complications.  Talk to your doctor about using  another antihistamine.  If your reactions have been anaphylactic, you should have an epi pen.  I hope you feel better soon!  
    • Welcome!   Yikes, first I would suggest that you consider a new doctor.  Your doctor gave you some pretty bad advice biased on your posting.   The celiac gene is common.  Some 30% or more of the population carries the genes that could develop into celiac disease.  Are you sure it was not an antibodies test?  Telling you to go gluten free for a 30 day trial is another huge error.  Often they takes months to years for a celiac to recover.  A celiac is diagosed by blood tests and small intestinal biopsies obtained via an endoscopy.  There are times when an endoscopy is skipped because if financial reasons, too ill or long wait times.   Learn more at the University of Chicago's celiac website which is very informative and well-recognized.   http://www.cureceliacdisease.org/screening/  
  • Upcoming Events