• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
LivingGF

Sushi Rice... Again

Rate this topic

Recommended Posts

This past week I went to a sushi restaurant, which I always have believed was a safe dining option for a celiac (have been since 1997). I was told that the sushi rice was not gluten free, and that the same would be true for all of the restaurants making sushi! (gasp.)

The wait person told me that it was due to the seasoning they put in the sushi rice which contains wheat. I could have a bowl of rice, but not the rice they used for their sushi. This is the first time I have ever been told that the sushi was not safe, yet there have been several occasions where I have left Japanese restaurants not feeling 100%.

Has anyone else had this experience with sushi rice? I've looked at some of the earlier postings and several said they also believed sushi to be a "go to" meal for dining out, so is this a new issue or something we have not been fully informed of in the past?

I appreciate your input. (I am new to this forum and this is my first post.)

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Not only does the soy sauce have gluten / wheat, but the artificial crab meat does as well. I'm allergic to crabs so always thought that was ok. it's not, sadly. So unfair, as Sushi is my favorite food! I also wanted to check and see if the seaweed wrappers have it as a binder, but keep forgetting to.

Share this post


Link to post
Share on other sites

It's not true for all sushi rice. Sometimes sushi rice is fine, and other times it's not. I unfortunately found out the hard way. My experience is that usually sushi is fine, but of course we can't rely on 'sometimes'.

Besides that, you have to watch out for crab (the imitation meat includes gluten) and sauces.

Share this post


Link to post
Share on other sites

Thank you for your replies.

Yes, I understand that the soy sauce and crab often have gluten, but when in doubt I often just went for a cucumber or avocado roll, and I always bring my own soy sauce.

It was the sushi rice itself that I am asking about because this was the first I had heard of this issue.

Share this post


Link to post
Share on other sites

If you really crave sushi it is very simple to make at home. Sushi rice itself is gluten-free as is nori. It is what goes into the rice that can be suspect (i.e. I have seen a few brands of rice wine vinegar that contain wheat). Then it is just a matter of using real crab, shrimp, salmon, whatever. If you use wasabi and/or miso just ensure it is gluten-free. Same with tamari.

http://www.floradawn.com/cooking/tag/gluten-free-nori-rolls/

Share this post


Link to post
Share on other sites
Ads by Google:


That recipe was gorgeous!

And you can make it even more gorgeous! I have seen such intricate detailed photos of sushi that when sliced portray patterns such as flowers or animals. Lovely. Like I said, it is easy to make. When people say they miss such and such a dish I try to encourage them to make it at home. Homemade is always better and you know precisely what goes into it. :)

Share this post


Link to post
Share on other sites

Can someone please explain to me how rice, rice vinegar, salt, and sugar can contain gluten? That's all that is in sushi rice.

I can see how it might be a problem if you're one of the rare celiacs who reacts to distilled grain vinegars, as rice vinegar sometimes has grain vinegar in it, but for most celiacs sushi rice would be fine. I bet your waitress confused "gltuten" with "glutenous rice" which is another name for sushi rice. Of course sushi rice is gluten-free like all rices.

Share this post


Link to post
Share on other sites

Can someone please explain to me how rice, rice vinegar, salt, and sugar can contain gluten? That's all that is in sushi rice.

I can see how it might be a problem if you're one of the rare celiacs who reacts to vinegars, as rice vinegar sometimes has some distilled grain vinegar, but for most celiacs sushi rice would be fine. I bet your waitress confused "gltuten" with "glutenous rice" which is another name for sushi rice. Of course sushi rice is gluten-free like all rices.

I agree! It is rather odd. However, as I mentioned above, a few weeks ago I did see a few brands of rice wine vinegar that had "contains wheat" on the bottle.

Share this post


Link to post
Share on other sites

gluten-free as is nori.

We've run into nori that was a problem. Best I can tell, the issue was that it was also processed on equipment that processed wheat - flavored products that were using wheat based soy sauce.

I wonder if the same potential cc issue might be the problem with some of the sushi vinegar that lists 'may contain wheat?'

Share this post


Link to post
Share on other sites


Ads by Google:


We've run into nori that was a problem. Best I can tell, the issue was that it was also processed on equipment that processed wheat - flavored products that were using wheat based soy sauce.

I wonder if the same potential cc issue might be the problem with some of the sushi vinegar that lists 'may contain wheat?'

That could very well be. Shared lines are tricky things. And of course products can vary from country to country.

Almost all vinegar is safe but as I discovered not all of it is. However, the bottles I saw were specialty items at an ethnic food store. No matter what it is still wise to always read the labels even though it seems safe. And as we all know, labels can change.

Share this post


Link to post
Share on other sites

I really don't think gluten in sushi rice is a universal thing like this waitress suggested. It's not like unagi, where there will always be soy sauce in the flavoring. Plus I don't react to sushi and I eat it all the time! Agreed there are gotchas like the fake crab, many of the sauces, and roe.

Share this post


Link to post
Share on other sites

Sushis rice is most definitely NOT universally unsafe. Most that I've found has in fact been OK.

richard

Share this post


Link to post
Share on other sites

Thanks all!

The waitress made it sound as if it was something in addition to the rice wine vinegar, because I tried telling her that rice vinegar is usually fine for me. She said it was another seasoning that they add to the rice. I agree with you that this was shocking, as a Japanese friend's mother had taught me to make sushi and there was definitely not wheat in anything we used.

I am glad to hear that many of you still have had positive gluten-free sushi experiences, and I will continue to ask and give sushi another chance elsewhere. In fact, now I am curious about another local place (BlueC sushi in Seattle) which has a gluten-free menu, and wonder if rice seasoning has fallen on their radar since I have gotten sick there before.

It would be a terrible thing if we had to knock another food group off of our dining out experiences!

Share this post


Link to post
Share on other sites

I have only gotten sick once eating sushi. Someone at our table ordered a spider roll and the best answer I can come up with is that the same knife was used to cut it and the cucumber roll I ordered. I generally don't order rolls - only sashimi and occassionally sushi. Never had a problem with sashimi.

Share this post


Link to post
Share on other sites

Instead of soaking the rice in rice vinegar and then fanning it dry (the more traditional way) there's now a faster way of making sushi rice that involves these little seasoning packet things. I can't think of what it is called right now. Anyway I would bet they are using that method and the stuff probably contains gluten. If I could eat gluten I wouldn't go to a place that makes their sushi rice that way anyway... Kind of a cheap/fast method.

Share this post


Link to post
Share on other sites

Not that I can eat sushi right now (iodine thing) , but this makes me want to cry.

I dream about sushi. I like sashimi but I love sushi.

Share this post


Link to post
Share on other sites

I felt awful for the next day when I ate sushi, and I ate it without the soy sauce though and it could of been the type of sushi? I know for a fact I wasn't eating the popular makis which contains gluten for sure

Share this post


Link to post
Share on other sites

I felt awful for the next day when I ate sushi, and I ate it without the soy sauce though and it could of been the type of sushi? I know for a fact I wasn't eating the popular makis which contains gluten for sure

Could it have been bad fish? Or cc from the knife or mat getting wheat ingredients on it?

Share this post


Link to post
Share on other sites

I have only gotten sick once eating sushi. Someone at our table ordered a spider roll and the best answer I can come up with is that the same knife was used to cut it and the cucumber roll I ordered. I generally don't order rolls - only sashimi and occassionally sushi. Never had a problem with sashimi.

That happened to me this past weekend. My husband and I went out. I ordered sashimi, sunomono and a couple of rolls. He ordered some tempura rolls and I had D all the next day. Pretty sure it was a shared knife problem. Luckily for me those trace contamination episodes don't last long.

Share this post


Link to post
Share on other sites


Ads by Google:


Can someone please explain to me how rice, rice vinegar, salt, and sugar can contain gluten? That's all that is in sushi rice.

I can see how it might be a problem if you're one of the rare celiacs who reacts to distilled grain vinegars, as rice vinegar sometimes has grain vinegar in it, but for most celiacs sushi rice would be fine. I bet your waitress confused "gltuten" with "glutenous rice" which is another name for sushi rice. Of course sushi rice is gluten-free like all rices.

The sushi chef at the restaraunt where I am currently trying to eat (;)) enlightened me to the fact that in many restaraunts, the rice vinegar added to the rice contains trace amounts of wheat to thicken it and make it more sticky. This may not be true of all rice vinegar, but you should always check with the chef where you are. Hope this helps (:

Share this post


Link to post
Share on other sites

There's a post on why sushi rice may not be safe here ():

As far as the rice is concerned you have to know the type of vinegar they use with it. I've been glutened with just a rice bowl and sashimi, turns out they were using a vinegar made for sushi rice and it had some barley syrup as a sweetner.

Also: Japanese MSG is apparently not gluten-free (although US MSG is)

And: cc is a huge problem at sushi restaurants

Although a friendly place where you can chat with the chef while he's making it and watch him work will probably be fine. They'll probably also let you check the vinegar.

And watch out for barley tea. So annoying it exists and is so popular. :(

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,915
    • Total Posts
      943,492
  • Member Statistics

    • Total Members
      67,090
    • Most Online
      3,093

    Newest Member
    Angie663
    Joined
  • Popular Now

  • Topics

  • Posts

    • Apologies for my over-reaction.  As the shampoo exposure was only for a couple week or so, I doubt any lab tests would have indicated exposure. Unfortunately, since I didn't have the antibodies, I can only rely on my symptoms to tell me if I've been exposed. I'm fortunate enough that eliminating gluten (and dairy) from my diet completely fixed my problems. I have had no lingering systems, and now that I have been gluten free for a while, when I do get gluten I have a very clear reaction (and a distinct reaction to dairy) that follows a fairly predictable timeline. This has accidentally been tested a couple of times. For example, early on before I was better at reading labels I grabbed some cookies at the grocery store that I thought were gluten free (the company produces both a normal and gluten-free version, and this was before I learned to avoid shared facilities). I had grabbed the wrong bag but I didn't figure it out until about a week of feeling crappy had passed and I went searching for a culprit. Things like this have happened a couple of times, where I accidentally did a blinded experiment on myself. The symptoms are consistent, and resolve once I remove the offending item. So when I recognized my symptoms as the result of gluten, I went looking for a culprit and I found the shampoo and conditioner. I removed them and then I got better.  My problems are largely systemic. I wouldn't be surprised if I don't actually have celiac but some other immune mediated reaction that hasn't been defined, but calling it celiac is the best way to get people to take my needs seriously (which I'm sure you understand). Unfortunately, my problems don't seem to fit into any particular diagnostic bucket, so I've learned not to rely on the official medical terms and just go with what works. I'm lucky to have had doctors who think the same way, else they might have told me that I didn't need to go gluten free once I failed to show clear-cut celiac. Maybe I'm pre-celiac, maybe it's the much maligned NCGS, or it's all related to leaky gut (I am eagerly awaiting the FDA approval of larazotide so that I can get a doctor to give me some, I think it might do me a lot of good). All I know is that when I went gluten and dairy free it literally changed my life.  In general it seems that gluten exposure causes a generalized inflammatory response. I get some inflammation in my gut that manifests as reflux, acid indigestion (what I call "fake hunger"), and a little bit of urgency and unpredictability with regards to bathroom needs, but if that were the only problem, I think I could live with it. I also get headaches, brain fog, my depression/anxiety gets triggered to a scary degree, arthritis, muscle aches, and then, the clincher, muscles spasms in my upper back and neck that have been known to lay me out for a couple of days while I wait for the muscle relaxants to help me heal. The muscle spasms, arthritis and brain fog are the most recognizable and are usually what cue me in that I got glutened, especially the spasms.  Again, sorry for being oversensitive. I should have known better, since this is such a supportive community.  
    • I appreciate your point. However, constancy of my celiac symptoms indicates that I have had the disease for at least three years - while I have never experienced any food allergies in that time. Although I will keep an eye on any emerging allergies, I believe my current fatigue is due to nutritional deficiency, because the only exogenous change in my life style has been the transition to gluten free diet.   Yes, I certainly need to keep a food diary. Thanks again for the advice.
    • In many cases no.....I consume heavy magnesium foods like pumpkin seeds, cocoa nibs etc....and still need 2-3x the dose of magnesium recommendations. Going on more of what poster boy said. You dose magnesium to tolerance with citrate like Natural Vitality Calm you start off small partial doses and slow ramp up....it can hit you hard causing gas and D if you go to quick into it. You dose citrate to tolerance meaning you slowly up your dose til you get loose stools...then back down a bit. You should have vivid dreams with a good dosing....also if it becomes to harsh or you can not handle citrate there is Doctors Best Glycinate...it does not have the gut effects at all...but the dreams and how much it makes you relax is more more felt.   ...with this disease you can have a food intolerance or allergy crop up out of the blue....like no where. You have a autoimmune disease....celiac it effects your immune system and can make it really wonky. Like it seems to always be on guard like a sleep deprived sentry on stim packs...jumps at everything and shoots it. If you get sick, eat something odd or harsh you system might red flag it as a issue for awhile and go bonkers....keep a food diary and try a food rotation in the mean time...OH as a example to this, I was fine with chia seeds last week...I got a cold over the weekend....same bag, same brand same way....withing 30mins I now puke if I eat them...new intolerance.....I also am finding jalapenos/paprika making it sleepy tired....so I am removing them both for a few months from my diet and changing to other sources for fats/fiber and vitamin A/C til I get over that issue.....these things just happen. https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
    • Hi Isabel, Your body needs nutrients to grow.  Nutrients not absorbed well when we have celiac disease damage in our guts.   But, if you do a good job of avoiding gluten, the gut damage should heal and you will be able to absorb nutrients again. The thing to remember is celiac disease is an immune system reaction.  Immune reactions are very sensitive and just a tiny amount of gluten can get them going.   And they can last for months.  So it;s very important to avoid all gluten all the time, to keep the immune reaction down.  Keeping the immune reaction down keeps the damage down, and the healing can keep up. You may start to grow more if you can absorb nutrients better.  Some extra vitamin pills might be a good idea.  Your doctor should know.  
    • Thank you Gail for your response. Of course one should be mindful of the possibility of food allergies but I don't think that's the case with my current situations. Save for gluten containing product, everything I eat now I used to eat before with no reaction whatsoever. I think my issue is more likely to be deficiency in minerals and such.
  • Upcoming Events