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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

What Are The Extent Of Food Intolerances?
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i am not able to eat wheat rice corn soy dairy or eggs, and maybe something else im not sure? i have been off of wheat for almost 5 years (except for beer cause it never bothered me before) and the last ones ive phased out over the last year. the last week or two i have been getting gut pains again! and i am starting to get a little worried. how deep do these intolerances go? for instance if i cant eat soy can i eat soy lecithin? or corn syrup? or soy oil? corn starch? or maltodextrin? is there gluten remaining in these products? or is it just that they are hard to break down? i feel like i am at a huge loss here i cant afford insurance or a doctor, ive been feeling great since cutting all of these things out of my diet but im wondering if even eating something that is derived from one of those things is setting me back? help!

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The beer is full of gluten.

That could be enough to keep your intestines from being able to digest or absorb all of those other things.

Even if you only drink it once in a while.

Millions of villi are destroyed by ingesting gluten even in tiny amounts.

It means your antibodies are always reacting.

I don't think you will be able to resolve those other intolerances until you get rid of gluten.

The damage continues until you eliminate all trace gluten and it doesn't sound like you have.

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Sometimes a substance in one form is not tolerated while in another it is. It is a matter of experimentation. Be very strict on eliminating it all at first, and then you can experiment around the edges. I have discovered recently that while all other forms of soy still bother me, I can now tolerate soy lecithin which has brought lots of new foods back into play (like chocolate :D ). Also with corn, for me the more highly refined it is the better it is tolerated, so that while anything that retains any part of the skin of the kernel is poison, highly refined corn starch in baked products is tolerated and a little corn syrup sweetener is now okay. But you have to get rid of them all at first, in my experience, to give your body a chance to forget the bad experiences. Another thing I have discovered is that while potato starch used to really bother me, I can now have a couple of slices of Udi's bread without paying the price (this after a couple of years of eliminating ALL potato)

So pay your penalties up front, be very strict in getting rid of offending foods at first and who knows, after a year or two you may be able to tolerate limited quantities in some form..

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thanks a bunch! i have already cut out beer, i did in december. i was pretty much just in denial i think ha. potatoes i dont have a problem with i would absolutely die if i couldnt eat potatoes! i am just going to cut back and be even more strict like you said, avoiding ANYTHING that has any of those words in front of it, and go from there. is eating things like soy lecithin causing more actual damage to the villi? or just hurts cause its hard to break down? i hate to think that i have been causing more damage without knowing! all this is so hard without a seeing a doctor, but from the sounds of it, it might not be much help anyways. this site has really helped me figure things out!! i had no idea that so many other people have the same intolerances i do! thanks again :)

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    • Good advice Ennis!  I would add baking and freezing some gluten-free cupcakes to have on hand, so that she is never left out.  Be sure to read our Newbie 101 tips under the coping section of the forum.  Cross contamination is a big issue,  If the house is not gluten free, make sure everyone is in board with kitchen procedures.   Hopefully, your GI talked about the fact that this AI issue is genetic.   Get tested (and your TD1 child).  TD1 is strongly linked to celiac disease.  About 10% of TD1's develop celiac disease and vice versa.  Get tested even if you do not display any symptoms.    http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/
    • What does weak mean?  Like you squat down and and you can not get back up?  Or are you fatigued?  When you said blood panel, was your thyroid tested?  Antibodies for thyroid should be checked if you have celiac.  So many of us have thyroid issues.  
    • We are not doctors, but based on the results you provided, you tested negative on the celiac screening test.  You could ask for the entire celiac blood panel to help rule out celiac disease.  The other IgA that was high?  It normally is given as a control test for the TTG IgA test (meaning if the celiac test results are valid).  In your case, the TTG IgA test works.  Outside of celiac disease, you might have some infection.  Discuss this with your doctor as he has access to your entire medical file.  I would not worry about it though over the weekend!  
    • See: http://www.cureceliacdisease.org/faq/can-a-skin-biopsy-for-dermatitis-herpetiformis-dh-confirm-celiac-disease-or-is-an-endoscopy-still-needed/ Take a copy of that with you or mail it to the doc. How many endoscopic biopsies did they take? Those with dh tend to have patchier damage than "normal" celiacs.
    • Ironictruth, I think that is a very insightful thought. since different antibodies present for different body systems all the ways gluten affects the body is still not well understood. Here is a case of presumably someone who had the gut damage of a celiac but also had neurological damage. http://www.nature.com/nrneurol/journal/v3/n10/full/ncpneuro0631.html entitled "A case of celiac disease mimicking amyotrophic lateral sclerosis" so it has happened in the literal but since this is not well understood people don't make the connection today. I would also point you to this hindawi article on the "Lesson's learned from Pellagra" but I am afraid we haven' learn't yet. https://www.hindawi.com/journals/cggr/2012/302875/ notice specially the 2.1 section clinical feature of pellagra and all the neurological symptom's once associated with a Pellagra patient. quoting "The neurological manifestation did not stop there because other degenerative conditions, such as an amyotrophic lateral sclerosis-like picture, were described, with fasciculation of the tongue and upper and lower motor neuron signs. Cerebellar syndromes occurred and vertigo was frequent. Headaches, sensory and pain syndromes, epilepsy, and involuntary movements were noted as well as sleep disturbances. Cord lesions were also seen, as was optic atrophy, so there were multiple sclerosis (MS), like variants." which tells me doctor's don't recognize pellagra today when they see it because they haven't seen it in 75+ years. ***this is not medical advice but read the hindawi journal on lesson's learned and I think you will see yourself in their many descriptions of all the way Pellagra presents itself to doctor's and patients still suffering today and you can see why it (like celiac) is hard to pin down today because it presents in so many ways it can be soo overwhelming and since vitamins are not a focus anymore today (especially b-vitamins) that today I believe we are doomed to repeat history's lessons unless the current generation learns again all the ways pellagra presents itself today. good luck on your continued journey. posterboy by the grace of God,  
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