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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten Free Shampoo
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45 posts in this topic

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ravenwoodglass    1,211

I'd heard of wheat and milk alergies....but this certainly doean't ACT like no alergy I've heard of LOL...

That's because celiac is an autoimmune disease caused by antibodies. It is not an allergy which is a histamine reaction.

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cougie23    23

Ataxia is a feeling of being off balance. I likened it to walking on a ship in a rough sea and I tended to fall to the right. Pins and needles, numbness and sometimes pain in the hands and feet is often paresthesias. If you are not already taking it get some gluten free sublingual B12 as that can help the nerves heal more quickly.

Yeah I forgot about that one! Got that to...tend to drift to the right while walking(cutting people off/running ing to them like a drunken sailor) losing my balance..while walking..sometimes even while stationary(i've gotten some real funny looks! :rolleyes:

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catsmeow    42

I use Alba hawaiian hair wash, it's organic. I love it!

The formula has been changed since I wrote this. Alba is now putting hydrolyzed wheat protein into their shampoo.....GGGGRRRRR... :angry:

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AVR1962    88

Since I'm losing my hair, I probably need to buy a gluten free shampoo. Can anyone tell me what brands are safe to use?

I did not read thru all the replies so someone may have already mentioned this. Besides looking at what you are using on your hair make sure your thyroid is good. If you mention to your doc that you are having hair loss and you are cncerned about the function of your thyroid he/she should set you up for a blood test. Thyyroid problems can cause hair loss.

However, another thing to look at is the possibility that your body is not absorbing the proper nutrients for hair growth which is not uncommon for celaics. I was losing my hair so I started taking an additional zinc supplemn on top of my multi vit which also contains zinc and take BioSil drops and my hair stopped falling out. I know a lady who took Evening Primrose oil tabs and it helped her regain her hair loss.

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Hi everybody...

I'm quite new to this, but it bothers me that everyone seems concerned with ingestion only...when talking shampoo, but if everything I've read so far talks about wheat contamination and so on...what about absorbsion?

can't it be absorbed into your skin? why isn't anyone conserned about that!? We just bought this lovely bottle of Nexxus at Cosco...My family loved it. Everyone liked the way thier hair felt...except me!I was ok at first... then my hair just went limp and raggy,dirty looking within an hour(sorta wilted). I wasn't feeling that great either...then my 12 yr old pointed out that it had (Wheat) in the ingreadiance(I hadn't thought to look..being new at this, but he did...great kid!!!)

Also in the past I have mysterous tender sopots in my scalp(like bad sun burn without the sun burn!) I'm wondering if its ben shampoo related all along (and no...I ussreally don't get shampoo in my mouth) but notice my arms and back itch alot after shampooing!

Thats what I have to say about that!

So what does anybody hear about panteane??? I know the ingreadiants have changed over the years...several times...but I just bought some and couldn't find wheat on there any where..is it under a differant name? someone mentioned on a past blog that it had gluten( I read this after googling the question this morning and this cite popped up!)

This cite has been heaven sent by the way...thats why I desided to join!!!

THANKYOU EVERYONE FOR YOUR EXPERIANCES AND ADVICE!!!

COUGIE23

I think you are very right, I like to use Benedryl as an example, the bottle says right on it not to use it on the skin if you are also ingesting another form, and every dr out there will tell you the same thing. Yet those same doctors will tell you that gluten in your beauty products will have no affect. Realy? Also most facial products claim that they are "healing" your acne/roseca making your skin healthier etc....well if that is true it is being absorbed.

I have to admit though one of my symptoms is DH so as soon as I use a product that has any form of gluten in it the rash that covers my body is worse than another other symptom I have.

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mtdewpeg    0

Hi. I am new here. I just started gluten free diet on Dec.28th. I was diagnosed with celiac disease recently.I have probably had it for many years, but never got the diagnosis until now. Very frustrating! I haven't been told to use gluten free shampoos and soaps. I guess when I see my gi GI Dr. on the 9th i WILL GET ALOT OF INFO. Is there any good gluten free shampoos avaliable in the local stores? MY DH and I are both on disability and just can't afford gluten free specialty shops. Thanks for any info. I am sure I will be on the boards alot trying to figure things out.

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Bubba's Mom    103

If you want gluten-free and widely available at a low cost..try Sauve brand. I use the coconut shampoo and have had no problems.

If you want a different scent be sure to read the label. Sauve is very good about labeling what's in their products.

Welcome to the forum!

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sa1937    324

I also use Suave shampoo and conditioner...it's about as inexpensive as you can get and is readily available at grocery stores, drug stores and Wal-Mart...many times on sale for around a dollar or so for a bottle.

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cougie23    23

I think you are very right, I like to use Benedryl as an example, the bottle says right on it not to use it on the skin if you are also ingesting another form, and every dr out there will tell you the same thing. Yet those same doctors will tell you that gluten in your beauty products will have no affect. Realy? Also most facial products claim that they are "healing" your acne/roseca making your skin healthier etc....well if that is true it is being absorbed.

I have to admit though one of my symptoms is DH so as soon as I use a product that has any form of gluten in it the rash that covers my body is worse than another other symptom I have.

AMEN...THANKYOU...finally someone who understands what I'm saying!!! :blink::lol::D

Also I'd like to point out that if you can SMELL it ,Gluten molicules are entering in through your NOSE!! so you don't nesasarily have to INGEST it to have interaction with your mucus membranes....which makes more sense than geting it in your mouth...just saying! :rolleyes::D

But I still stand by my absorbtion therory!!! My HAIR can testify to that! LOL :P

(personally I use pantene)

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rarmama    2

I've been using Organix Moroccan Argan Oil shampoo, and was happy to see that all their products are gluten-free. I also like Joico, and it is gluten-free as well (or at least most of it is, from what I understand.)

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Kass1107    0

AMEN...THANKYOU...finally someone who understands what I'm saying!!! blink.giflaugh.gifbiggrin.gif

Also I'd like to point out that if you can SMELL it ,Gluten molicules are entering in through your NOSE!! so you don't nesasarily have to INGEST it to have interaction with your mucus membranes....which makes more sense than geting it in your mouth...just saying! :rolleyes:biggrin.gif

But I still stand by my absorbtion therory!!! My HAIR can testify to that! LOL tongue.gif

(personally I use pantene)

I explain it to people like this, if you can absorb medicine from a transdermal patch into your skin and it get into your blood stream, etc then how could you not absorb gluten into your body by using shampoo, conditioner, lotions, etc? Our skin is the largest organ we have.

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shadowicewolf    166

I explain it to people like this, if you can absorb medicine from a transdermal patch into your skin and it get into your blood stream, etc then how could you not absorb gluten into your body by using shampoo, conditioner, lotions, etc? Our skin is the largest organ we have.

No, that is not how it works.

 

The "gluten" molecule is too big to be absorbed.

 

The reason people use gluten free items is because of the chance of ingestion, not because of skin contact.

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kareng    1,992

I explain it to people like this, if you can absorb medicine from a transdermal patch into your skin and it get into your blood stream, etc then how could you not absorb gluten into your body by using shampoo, conditioner, lotions, etc? Our skin is the largest organ we have.

 

 

But that isn't really how that works. Everything is made of molecules.  We can't absorb everything thru our skin - water, dirt, dog hair, etc.  It doesn't work that way.  The medications are specially made to be small enough and sometimes have a special chemical that helps them penetrate the skin layers.  Gluten is a large molecule that is too large to go through the skin.  Even if it go in, say in through a cut, it needs to be in the intestines to start the immune reaction.

 

http://www.cureceliacdisease.org/archives/faq/will-my-skin-breakout-if-i-use-topical-products-like-shampooslotions-that-have-gluten-in-them

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Gemini    785

But that isn't really how that works. Everything is made of molecules.  We can't absorb everything thru our skin - water, dirt, dog hair, etc.  It doesn't work that way.  The medications are specially made to be small enough and sometimes have a special chemical that helps them penetrate the skin layers.  Gluten is a large molecule that is too large to go through the skin.  Even if it go it, say in through a cut, it needs to be in the intestines to start the immune reaction.

 

http://www.cureceliacdisease.org/archives/faq/will-my-skin-breakout-if-i-use-topical-products-like-shampooslotions-that-have-gluten-in-them

How very common sense and scientific of you, kareng!  :D

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kareng    1,992

How very common sense and scientific of you, kareng!  :D

 

 

We could get really scientific - molecular masses, octanol-water partition coefficients, etc but most of us would just be looking like this confusion-smiley-emoticon.gif

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RNGayle    0

Do you have wavy or curly hair? I went "no 'poo" (I use an occasional surfactant-free soap like dr. Bronner's, and lots of regular conditioning, the book "curly girl" or the Internet has lots of info), and my hair felt a lot better and shed less. That was pre-gluten-free, and now that I'm gluten-free, my hair feels amazing and I'm shedding a more normal amount.

My college freshman daughter has gone "no poo" and pretty much loves it. She always had such a bad dandruff problem along with extremely oily hair prior to going no poo.

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moosemalibu    48

I use Alterna Bamboo line. I used to get a really bad itchy scalp and since using it I don't anymore from shampoo... only itchy if I get glutened via food.

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calli    1
On ‎9‎/‎12‎/‎2011‎ ‎1‎:‎11‎:‎57‎, Katrala said:

 

(I'm speaking purely for celiac here - not for anyone who has any other types of issues with gluten)

 

For celiac the damage comes when gluten enters the small intestine.

 

You picking up a handful of wheat gluten isn't going to hurt you unless you ingest it.

 

I doubt a shampoo makes your hair directly fall out. I'd say it's either a different issue or the malabsorption of nutrients is what is causing the hair loss. I had big issues with it before diagnosis and it's just now getting better.

 

I think it was the Australian research with vaccines that does it by injecting gluten, yes?

 

Once again - I'm not referring to anything regarding a wheat allergy or some other type of gluten sensitivity. I haven't done my homework on what reactions can or may be caused by direct contact, etc.

I have celiac disease. And just smelling regular flour with enriched wheat flour will make me sick. If dust from the flour is in the air it will make me sick. Yes! this very serious and will cause other problems if we don't make sure that everything in our home is gluten free. My family is having a hard time with it.  I could eat my sandwich because it bumped into gluten bread, even the slightest crumb can make me sick.

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calli    1

Sorry folks my last comment said that I could eat a sandwich, what I meant was I could not eat my sandwich because it bumped into gluten bread.

What my doctors told me I have had celiac disease for a long time, It explains a lot, I wish I had known sooner.

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