This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
Subscribe to Celiac.com's FREE weekly eNewsletter
What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Just needed to point this out while it seems the UK and perhaps even Canada they are. The US McDonalds has wheat in the fries.
Second thought in the US you have to a take more careful with CC and chains, the kids go in and out of these like crazy and think gluten free is a kind of fad. I would avoid chains of fast food restaurants here if celiac.
Sorry just did not want some bloke from here in the US seeing this and going OOHHH the fries are SAFE, then blam married to the toilet for hours.
Ingredients: Potatoes, Vegetable Oil (Canola Oil, Corn Oil, Soybean Oil, Hydrogenated Soybean Oil, Natural Beef Flavor [Wheat and Milk Derivatives]*), Dextrose, Sodium Acid Pyrophosphate (Maintain Color), Salt. *Natural beef flavor contains hydrolyzed wheat and hydrolyzed milk as starting ingredients.
Contains: WHEAT, MILK.
PS I have worked concessions years ago,,,,the fryers were like toys to us, we fried other foods for giggles.....so you can imagine how it might be a issue with a CCed fryer even with any place that has a non dedicated gluten-free fryer.
Bone scan is because coeliac (may as well spell it right if I'm talking to a countryman ) can affect bone density and is linked to osteoporosis
the thing about the diet is that gluten isn't something that disagrees with you, or that you have to cut down on, or just save for special occasions. It would be nice if that were the case, but it's just not so.
its your immune system which is being triggered. It's not an instant reaction, so you can fool yourself into thinking that it's ok. what the tests show however is that the damage is taking place over a longer term and across your body.
For your own sake you need to develop this understanding.
Joining coeliac uk would help. You get a book / online directory of safe foods and others to meet up with if you want.
if your out and hungry McDonald's fries are ok. If dairy ok then have a strawberry sundae, not the toffee one. Those and a coffee are all I have from there now, although you are supposed to be able to order a burger without a bun, some have done this and used lettuce to hold it! Wetherspoons have gluten free menu and some other chains.
Its also good to travel with some safe snacks. Protein bars, fruit, nuts etc. Enough so you don't feel tempted to risk something which isn't safe.
some good tips here
one final point, at the moment you are in worst of all worlds. All he hassle of the diet, none or not enough of the good healing feel. You need to get the diet cracked and eliminate gluten entirely, eat lots of nutrient rich foods and kick start the feeling good vibe, because once you get that all of it, the diet, the reading of labels, the awkward conversations etc all become 100 times easier. You just need that connection between the diet and feeling good again. Get that and your on your way.
all the best
Hope your all good just looking for a bit of support and information..How long do you take to recover from a glutening through cc?
been gluten free free for about 9 months awaiting a biopsy to confirm celiac. Have been recovering well so far but accidentally got glutened through cross contamination about 5 days ago. Brain fog and neurological symptoms have subsided but still having gi issues - mainly D and feeling pretty weak.
Just looking for some support that this will heal as when this happens I always have anxiety that I won't recover.
I have been been eating whole foods, no dairy etc
just want to know there is light at the end of the tunnel.
My story is pretty simple. I've had massive digestive issues since I was 16. I'm now 52. My late Mother and her Mother had both also suffered their entire lives, yet the condition was never diagnosed in either of them.
Perhaps the worst symptom for me initially was huge distension (Bloating) which would often strike late evening, 6 hours or so after eating, when I would bloat like I was 9 months pregnant before expelling huge amounts of air via very loud and long burps, that would last up to 8 hours, keeping me awake all night long. Acid reflux would sometimes occur and my tummy would always sound like a washing machine on full cycle.
At the age of 22 I began a career as a Police officer, however due to this debilitating condition having such a detrimental effect on my health, I was forced to retire on a ill health pension in 2005, in part also due to massive daily headaches, hemiplegic migraines and total loss of energy etc etc.
I underwent many tests in my life, including cameras in and out of most cavities, yet nothing was ever found.
In short, I lived my life afraid to eat, afraid to go out in case I needed to loo quickly and everything else associated with the condition, my Doctor had labelled as simply IBS.
As I got older, my symptoms worsened, I now have a permanently white tongue (Attractive), swollen submandibular glands, almost constant abdominal pain, total loss of energy where even walking upstairs becomes almost impossible, night sweats, dry eyes, facial dryness above eyebrows and a constant feeling in my tummy, like I have swallowed toy building blocks, covered in acid.
My blood tests always reveal inflammation, yet all the specialists I have ever seen, cannot find the source. I even paid £2500 for a pet scan of my swollen lymph nodes, due to concerns I may have had Lymphoma, as all the symptoms were there, but fortunately it was negative.
I was recently diagnosed with S.I.B.O and Addisons Disease (due to low blood pressure and dizziness), along with Fibromyalgia due to muscle pain. I've been on Codeine tablets for over 10 years which I'm sure don't help, and I recently stopped taking some nasty meds including Gabapentin and similar neuro style meds.
Yet, I had never been tested for Celiac or Gluten intolerance during all this time. Never, which I find shocking.
Two days ago, I purchased a home test kit for gluten which gave a strong positive result. To double check the result, I've booked a blood test with my Doctor for confirmation.
What really infuriates me, is that if I had been tested right at the beginning of all this, I could have lived a near normal life, kept my career and reduced the hellish suffering that this nasty condition brings.
I now wonder how much damage has been caused to my body. I often see undigested food in my waste, I often smell the acrid stench of bile and see either orange, bright green or even near black stools.
Thank God, for the simple home test that may be about to change my life and stop me feeling like some kind of hypochondriac due to the amount of different issues experienced by the body, all decreasing and reducing a good quality of life.
I just wanted to outline my story in the hope that it may help others who may still be undiagnosed but who have never been tested for Celiac or gluten intolerance.
My regards and best wishes to you all