• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Super Sensitive Please Help.
0

11 posts in this topic

I am super sensitive to gluten and recently to casein. I have just recently given up all processed foods with the exception of a select few. I thought that I was reacting to Lays Stax so I quit those. I KNOW I reacted to rice Chex. I am ok with Betty Crocker yellow cake mix. I make my banana bread with that. So other than the cake mix and bisquick which are produced in a dedicated facility and Smart Balance spread which is gluten-free and cf, I am not consuming anything processed. I has a bad reaction to Stax and Chex earlier this week and I just finished off the chex tonight with my homemaderice milk and I was in the bathroom with a reaction minutes later.

Are any of you THIS sensitive? I guess I am going to have to go with foods that I make myself. Sigh...

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I've been scared to try chex.

I'm afraid I am that sensitive too.

But I can't say for sure...because I just don't test things very often.

Kettle Brand Kettle chips don't bother me. Do they bother you?

I eat those and Rudy's bread and that is about it...except for some chocolate.

0

Share this post


Link to post
Share on other sites

I am afraid to try kettle chips. Once I feel better, I will give them a try. It's hard going from a person who could eat anything to someone who is super sensitive to gluten and casein. I suppose going back to basics and eating meat, fruit and veg would be the best thing for me. It seems like I keep getting more and more sensitive as time goes on.

Thanks for your help.

0

Share this post


Link to post
Share on other sites

I'm right there with you.

I used to think Oh I can do this!

I would eat in restaurants...but after a few attempts failed...I decided it's just not worth it..ugh!

Maybe there are certain products that are always safe for super-sensitives...and we will find them! Wouldn't that be nice?

Should start a list of things that never make anybody ill...ever.

0

Share this post


Link to post
Share on other sites

Yes, there are others who are that sensitive. I react to rice chex too. I haven't even tried those other things. Last winter I found that I even had problems with store bought produce. I'm trying to grow more of my own. I've been freezing stuff like crazy to last over the winter.

At least I have control over what I eat. It's harder to control exposure to environmental gluten.

My daughter got glutened yesterday when she washed her hands, but then touched a doorknob before eating her lunch. She knew it might be a problem, but didn't think that it would. Wrong! She looked 6 months pregnant last night.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I am super sensitive to gluten and recently to casein. I have just recently given up all processed foods with the exception of a select few. I thought that I was reacting to Lays Stax so I quit those. I KNOW I reacted to rice Chex. I am ok with Betty Crocker yellow cake mix. I make my banana bread with that. So other than the cake mix and bisquick which are produced in a dedicated facility and Smart Balance spread which is gluten-free and cf, I am not consuming anything processed. I has a bad reaction to Stax and Chex earlier this week and I just finished off the chex tonight with my homemaderice milk and I was in the bathroom with a reaction minutes later.

Are any of you THIS sensitive? I guess I am going to have to go with foods that I make myself. Sigh...

Hi!

I saw your post today and I just had to reply because I sooooo know what you are going through. To answer your question, yes some people are really sensitive! I am definitely one of those people. It took me a long time to figure out what I can and cannot tolerate. Mostly I've figured things out by trial and error (unfortunately). It is really hard because there are so many "gluten free" products on the market now that look really delicious, but I cannot tolerate 99% of them :( I have not found a brand of potato chip that I can tolerate, and I'm pretty sure I've tried them all. I make my own in the oven now. I also have not found a brand of cereal that I can eat. I make hot cereal from brown rice that I grind in a coffee grinder though. I had really made peace with it for the most part, but now that I am pregnant :) I can't even walk down the cereal aisle at the market without wanting to cry. Anyhow, I know everyone is different in what they can and can't tolerate, and I know that some people are even more sensitive than I am. But below is a list of processed foods that I have found I can tolerate so maybe this will help you.

Tinkyada rice pasta

Silk Almond Milk

Heinz ketchup

Kraft BBQ Sauce

Smuckers natural peanut butter

Kinnikinnick white sandwich bread

Hunt's canned tomatoes

I am usually ok with the regular store brand of granulated sugar or brown sugar although I have used Domino with no problem too. Also, never had a problem with any brand of olive oil I've tried. You can make amazing peanut butter cookies from just peanut butter, eggs and sugar (if you can tolerate these foods).

Hang in there, it will get easier!

0

Share this post


Link to post
Share on other sites

I am super sensitive, too. I avoid most processed foods and cook/bake the majority of what I eat from scratch.

There are things I have never had a problem with, and then there's things that usually leave me feeling icky, even though they're supposed to be safe. And potato chips are one of them. I used to love chips, but most of the time they don't sit too well so I just avoid them.

0

Share this post


Link to post
Share on other sites

Are any of you THIS sensitive? I guess I am going to have to go with foods that I make myself. Sigh...

Yeah, lot of us are right there with you. I agree: sigh. I'm off dairy as well, too. And eggs and soy, but seriously, without dairy and gluten, most processed food is gone anyway, yeah?

I have a brand of oil and a salt that I can eat safely. I had a whole grain sorghum, but it looks like I'm reacting to it so it's outta here for a while. I just found out it shares a harvester and processing equipment with gluten grain places, so that's likely the problem.

Otherwise, I'm trying very hard to become a better cook with lots of home grown herbs, veggies and a few fruit, and a little meat. Because at this point, it looks like I'll never eat good food again otherwise and I so, so, SO miss good tasting food.

I'd better become super-whole-foods-chef soon. ;)

0

Share this post


Link to post
Share on other sites

I just found out it shares a harvester and processing equipment with gluten grain places, so that's likely the problem.

Last I checked it was just harvester and not processing equipment. They clean the harvester for 2 days and then use the first large amount (I forgot how much) for the animals. Nonetheless, I have found both corn and wheat in it.

0

Share this post


Link to post
Share on other sites

Oh thanks, Steph! I got that information second hand and didn't double check it. Ha, teach me to stop doing that! :-)

0

Share this post


Link to post
Share on other sites

I am newly diagnosed with gluten sensitivity. I have read that non food items such as hand lotion, chap stick, and lipsticks could be a problem. Are there any that are safe? If I call the manufacturers, what questions do I ask?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,799
    • Total Posts
      932,534
  • Member Statistics

    • Total Members
      64,288
    • Most Online
      3,093

    Newest Member
    paacollins
    Joined
  • Popular Now

  • Topics

  • Posts

    • I am not getting enough vitamins my body needs before and after being diagnosed with celiac. Can anyone recommend great vitamins to help me get back on track. Everywhere I go the vitamins itself contains gluten or was made a gluten facility. I don't eat a lot because I am still getting sick so I need to find a way to get more nutrients into me.  Thanks!
    • It sucks when you've taken precautions and they don't pan out. Take heart however, although it feels like you're back to square one but one exposure doesn't negate all the healing that you've gone through. Eat simply and safely for now and get back on track. You should feel better soon. As for eating out, it's the same as when you learned to ride a bike. You dust yourself off, learn a lesson about that venue and get back on the bike. You need to balance risk and reward. Too far either way isn't the way to go. Hope you're feeling better soon  
    • My 9 year old daughter has the exact same marks as you. It is being dismissed as her doing it to herself. I honestly don't think she is but I do know once she gets the sores she is a chronic picker which does not help.  The main reason they say it is self inflicted is because they are only on her arms and legs - never her torso. Sorry I don't have anything for you but I was wondering where you are getting your sores?  I pulled my daughter off of gluten a year ago and they seemed to have cleared and two months ago I let her eat whatever they served at a birthday party and all the sores are back (still). 
    • Just one point on this - I'm no expert but I wonder if UTIs can present differently, depending on which section of the tract is infected?   Mine tend to be lower down in the urinary tract so I don't feel like I need to go to the loo a lot when I have one, but when I pee or afterwards it hurts, and then I get that feeling of my insides slipping out - as you put it.  My point is you may have a UTI in a different part of your urinary tract to normal.  Just a thought? 1. Diffuse pain sounds like it might be bloating. Are you drinking/eating dairy? 2. Sacroiliac joint inflammation can come about for all sorts of reasons - what you are suggesting would cause it.  However, I tend to find my pain transfers to the side of my groin and pelvis - not centrally.   Here is an interesting article which shows how it refers. http://www.massagetoday.com/mpacms/mt/article.php?id=14394 3.  I'm thinking perhaps it might be worth having a pelvic scan if you can? Internal and external. 4. Ditto - tight clothes are a distant memory! 5.  I'm no longer seeing a chiropractor.   I was in pain for months, then one day I underestimated the height of a step down and jarred my hip.  Agony!  Went to bed for four hours to sleep off the pain -  but the strange thing was my SI joint was much better for many many months after that! 6.  I agree - all this sort of stuff is highly ambiguous.  I remember when I was really concerned about my pain - which was before I had had my scan and then sigmoidoscopy - I did a lot of online research and it seems that a lot of women get unexplained pelvic pain.  So it appears we are not alone. If I were you I'd be inclined to pursue this with a GP, it might be a long journey but you should get some answers and peace of mind. I find unanswered medical questions only ever add to my pain - I think I must tense up with anxiety. Cx  
    • Thanks. Still figuring it all out. 
  • Upcoming Events