• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Super Sensitive Please Help.
0

Rate this topic

11 posts in this topic

Recommended Posts

I am super sensitive to gluten and recently to casein. I have just recently given up all processed foods with the exception of a select few. I thought that I was reacting to Lays Stax so I quit those. I KNOW I reacted to rice Chex. I am ok with Betty Crocker yellow cake mix. I make my banana bread with that. So other than the cake mix and bisquick which are produced in a dedicated facility and Smart Balance spread which is gluten-free and cf, I am not consuming anything processed. I has a bad reaction to Stax and Chex earlier this week and I just finished off the chex tonight with my homemaderice milk and I was in the bathroom with a reaction minutes later.

Are any of you THIS sensitive? I guess I am going to have to go with foods that I make myself. Sigh...

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I've been scared to try chex.

I'm afraid I am that sensitive too.

But I can't say for sure...because I just don't test things very often.

Kettle Brand Kettle chips don't bother me. Do they bother you?

I eat those and Rudy's bread and that is about it...except for some chocolate.

Share this post


Link to post
Share on other sites

I am afraid to try kettle chips. Once I feel better, I will give them a try. It's hard going from a person who could eat anything to someone who is super sensitive to gluten and casein. I suppose going back to basics and eating meat, fruit and veg would be the best thing for me. It seems like I keep getting more and more sensitive as time goes on.

Thanks for your help.

Share this post


Link to post
Share on other sites

I'm right there with you.

I used to think Oh I can do this!

I would eat in restaurants...but after a few attempts failed...I decided it's just not worth it..ugh!

Maybe there are certain products that are always safe for super-sensitives...and we will find them! Wouldn't that be nice?

Should start a list of things that never make anybody ill...ever.

Share this post


Link to post
Share on other sites

Yes, there are others who are that sensitive. I react to rice chex too. I haven't even tried those other things. Last winter I found that I even had problems with store bought produce. I'm trying to grow more of my own. I've been freezing stuff like crazy to last over the winter.

At least I have control over what I eat. It's harder to control exposure to environmental gluten.

My daughter got glutened yesterday when she washed her hands, but then touched a doorknob before eating her lunch. She knew it might be a problem, but didn't think that it would. Wrong! She looked 6 months pregnant last night.

Share this post


Link to post
Share on other sites
Ads by Google:


I am super sensitive to gluten and recently to casein. I have just recently given up all processed foods with the exception of a select few. I thought that I was reacting to Lays Stax so I quit those. I KNOW I reacted to rice Chex. I am ok with Betty Crocker yellow cake mix. I make my banana bread with that. So other than the cake mix and bisquick which are produced in a dedicated facility and Smart Balance spread which is gluten-free and cf, I am not consuming anything processed. I has a bad reaction to Stax and Chex earlier this week and I just finished off the chex tonight with my homemaderice milk and I was in the bathroom with a reaction minutes later.

Are any of you THIS sensitive? I guess I am going to have to go with foods that I make myself. Sigh...

Hi!

I saw your post today and I just had to reply because I sooooo know what you are going through. To answer your question, yes some people are really sensitive! I am definitely one of those people. It took me a long time to figure out what I can and cannot tolerate. Mostly I've figured things out by trial and error (unfortunately). It is really hard because there are so many "gluten free" products on the market now that look really delicious, but I cannot tolerate 99% of them :( I have not found a brand of potato chip that I can tolerate, and I'm pretty sure I've tried them all. I make my own in the oven now. I also have not found a brand of cereal that I can eat. I make hot cereal from brown rice that I grind in a coffee grinder though. I had really made peace with it for the most part, but now that I am pregnant :) I can't even walk down the cereal aisle at the market without wanting to cry. Anyhow, I know everyone is different in what they can and can't tolerate, and I know that some people are even more sensitive than I am. But below is a list of processed foods that I have found I can tolerate so maybe this will help you.

Tinkyada rice pasta

Silk Almond Milk

Heinz ketchup

Kraft BBQ Sauce

Smuckers natural peanut butter

Kinnikinnick white sandwich bread

Hunt's canned tomatoes

I am usually ok with the regular store brand of granulated sugar or brown sugar although I have used Domino with no problem too. Also, never had a problem with any brand of olive oil I've tried. You can make amazing peanut butter cookies from just peanut butter, eggs and sugar (if you can tolerate these foods).

Hang in there, it will get easier!

Share this post


Link to post
Share on other sites

I am super sensitive, too. I avoid most processed foods and cook/bake the majority of what I eat from scratch.

There are things I have never had a problem with, and then there's things that usually leave me feeling icky, even though they're supposed to be safe. And potato chips are one of them. I used to love chips, but most of the time they don't sit too well so I just avoid them.

Share this post


Link to post
Share on other sites


Ads by Google:


Are any of you THIS sensitive? I guess I am going to have to go with foods that I make myself. Sigh...

Yeah, lot of us are right there with you. I agree: sigh. I'm off dairy as well, too. And eggs and soy, but seriously, without dairy and gluten, most processed food is gone anyway, yeah?

I have a brand of oil and a salt that I can eat safely. I had a whole grain sorghum, but it looks like I'm reacting to it so it's outta here for a while. I just found out it shares a harvester and processing equipment with gluten grain places, so that's likely the problem.

Otherwise, I'm trying very hard to become a better cook with lots of home grown herbs, veggies and a few fruit, and a little meat. Because at this point, it looks like I'll never eat good food again otherwise and I so, so, SO miss good tasting food.

I'd better become super-whole-foods-chef soon. ;)

Share this post


Link to post
Share on other sites

I just found out it shares a harvester and processing equipment with gluten grain places, so that's likely the problem.

Last I checked it was just harvester and not processing equipment. They clean the harvester for 2 days and then use the first large amount (I forgot how much) for the animals. Nonetheless, I have found both corn and wheat in it.

Share this post


Link to post
Share on other sites

Oh thanks, Steph! I got that information second hand and didn't double check it. Ha, teach me to stop doing that! :-)

Share this post


Link to post
Share on other sites


Ads by Google:


I am newly diagnosed with gluten sensitivity. I have read that non food items such as hand lotion, chap stick, and lipsticks could be a problem. Are there any that are safe? If I call the manufacturers, what questions do I ask?

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,128
    • Total Posts
      939,812
  • Member Statistics

    • Total Members
      66,109
    • Most Online
      3,093

    Newest Member
    thetravelingceliac
    Joined
  • Popular Now

  • Topics

  • Posts

    • Mine didn't count past 100 - so I was over 100.  When the numbers are that high, it means you have Celiac.  Slightly elevated numbers can sometimes be caused by other things.  Welcome to the club!
    • I recently took a blood test and went over the results with my GI doctor who will be performing and endoscopy and colonoscopy on me soon. I can't remember exactly what she said, but I believe she was talking about my IGA-TTG levels. She said the normal range was under 10 but mine was 639. I think she was talking about IGA-TTG but I'm not sure. For people who have done this test what were your high levels?  Thanks! Female, 16
    • I can not help you with the Candida  issues (except to advise reducing sugar from your diet and talk to your doctor about antifungals).  I can tell you that my folate and B vitamin levels were off the chart.  No, I did not have cancer, which is what you will find if you google).  Yes, I have autoimmune  issues and maybe I have the MRTHR gene (never tested....why bother?).  Instead, I gave up all supplements even those found in processed foods.   My lab reports are all normal after a year.    I am not deficient in anything at this time.   Vitamins and supplements are a good thing, but they are not for everyone.  There is no “one-size-fits all”.   Consider changing your diet to include just whole, unprocessed foods like the ones your Great-Grandparents ate.  Eat a varied diet full of vegetables, fruit, nusts, seeds, meats, fish and grains.  See if things improve.  Work in the Candida diet into this Whole Foods diet, but find out why you think you have a Candida issue.  This should be diagnosed by a medical doctor.  Systemic Candida is rare and is usually found in people with immune-related illnesses.   If you suspect celiac disease, get tested.  It is a simple blood test.  Learn more: http://www.cureceliacdisease.org/screening/        
    • It could be celiac disease related or not.  The fact is her antibodies are still elevated.  They have come down dramatically (great job!) and she has had some  intestinal healing, but she is not completely healed.  She probably needs more time.  She is under a lot of stress which is known to affect menstrual cycles even excluding celiac disease.   She has been malnourished (think concentration camps...extreme, but you get it)  and still is based on her eating habits you described.    She  is a student who is away from home and has to deal with celiac disease every single moment on her own.    Every bite of food must be checked.  That can be exhausting!  It will get better, but it takes time.  It can take a long time to heal.   The fact that it occurred when she stopped gluten is probably a coincidence.  It probably added even more stress.  Can you imagine a life-long dietary change?  Ever dieted?  How long did the diet last?   Give it more time for her antibodies to come down.  She is still being attacked. They are not in the normal range.    Most take a year or longer to heal.  Ask anyone here.  Read through forum comments.   How about baking her some chocolate chip gluten-free cookies and shipping them to her?  Or mail a fruit basket.  You both will feel a bit better.   Hugs!!!!
    • Done and wish you luck. I moved to a full on keto/paleo diet after also. This might be why it does not come back, once you get rid of it probiotics help keep it in check as they eat the yeast.
  • Upcoming Events