• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

The Good Over The Bad Of Celiac
0

21 posts in this topic

OK, so I would by no means consider myself an optimist. Although, it is good to look at the brighter side of things sometimes. Obviously, celiac has a lot of downside to it or there wouldn't be a forum dedicated to it.

I believe good can come out of bad. So, in your minds, what good can come out of having celiac disease?? Think creatively.

I'll start.

For one thing, it is teaching me perseverance. I've realized that I need to stick to this diet whether I feel like it's working or not. I've not had gluten for about 3 weeks and am not feeling much better.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


It has taught me to listen to my body. For years I kept saying to hub, "I feel toxic" :blink: I was right -- I was in a state of toxicity.

1

Share this post


Link to post
Share on other sites

Persistence and intuitiveness are what it has taught me. I never gave up trying to figure out what was wrong with me even when the doctor said nothing was. Going with my gut feelings and instincts and listening to it for my self and my kids. I "knew" something was wrong, just not what. That intuition has served me well.

1

Share this post


Link to post
Share on other sites

Being ill for so long taught me patience and gave me more empathy. I never lost hope that the reason for my illness would be found but that last year before diagnosis came close.

1

Share this post


Link to post
Share on other sites

it got me out of living on the 19th floor of a dorm, which i think is great. I have also learned how to cook and fend for myself, i just went off to college in a diff state so my mom isn't here to talk to the disabilities office or the restaurant... so i have learned that I can stick up for myself and people do listen (with the exception of a few). I have learned so much that from my almost 3 years of celiac disease its amazing, i wouldn't trade it for the world (atleast today :D )

2

Share this post


Link to post
Share on other sites
Ads by Google:


I'm at a point right now where I don't have too much positive to say..but if I were to pick one thing..it has taught me to be my own advocate. To speak up and not be a "shy Violet". I've been horribly shy my whole life, so this is a big change for me.

1

Share this post


Link to post
Share on other sites

Well since ALL food is gluten free except for wheat, barley, and rye (and oats depending on the person) this has taught me to give up a lot of the processed food I was eating and to cook more. So now instead of fixing one of those boxed rice mixes I make plain rice and spice it up, or cook it with broth, or with veggies in it, or something. We're eating much better now. I'm the only gluten free person in the house but since I'm not a short-order cook (in fact, I hate to cook) I'm only cooking one meal for everyone. (If I make them pasta I just don't bother for myself and I'll eat the salad and veggie.)

1

Share this post


Link to post
Share on other sites

I have been gluten free since 7/2011. I was diagnosed after extensive searching for cause of burping. I have slight gastritis but the biopsy from endoscopy showed damaged villi. Blood test confirmed celiac disease. I am one who does not have any other symptoms other than burping (still not convinced it is from celiac disease). Doctor put me on Omeprazole and I have not seen improvement from burping so I've taken myself off.

The positive side of going gluten-free for me is that I am eating more natural and healthy foods. The downside is that since I don't have symptoms, I can't tell when I am getting hidden gluten. :-(

1

Share this post


Link to post
Share on other sites

I have learned that I am not a lazy person. I have believed all my life that I just simply wasn't as smart or as driven as everyone else but I was wrong. My food was poisoning me.

I am smart and driven and energetic. I have accomplished things in the past 6 months that I never dreamed I was capable of and I'm just getting started.

1

Share this post


Link to post
Share on other sites

This may sound odd but celiacs has made me a little more social. I'm painfully shy so I don't really talk a lot. However, it seems that somehow food almost always comes up in conversations and even though I don't throw out "I have celiacs" just for a conversation starter usually it does come up when people start talking about food. I admit I have gotten annoyed when people ask me a bunch of questions about it but I do find it a little bit easier to talk to people after having explained the whole thing to them.

1

Share this post


Link to post
Share on other sites

Also, oddly enough, celiacs has made me healthier. Not just for the obvious reason's of improved diet but after being diagnosed I got back into working out which has helped tremendously.

2

Share this post


Link to post
Share on other sites

I've learned a lot about nutrition and the effects of foods on the body (not just gluten). There really are so many foods that we *can* eat, and I've discovered so many that I don't miss gluteny foods at all. I cannot ever imagine ever wanting to poison myself like that ever again! Whole and natural is the way to go!

2

Share this post


Link to post
Share on other sites

Having this disease is (I hope) going to make me a better cook. Not there yet, though, LOL.

I used to believe that it's never to late to learn something new, but I didn't really apply it to myself too much. Now, I have energy for the first time since I was a kid and I'm realizing how much this applies to ME now. I want to learn martial arts, and piano, and all the things I wanted to do before but didn't, because even getting out of bed felt almost too hard to do.

I've been able to show my kids that even when life-altering events hit you, you can still roll with it, get back up and keep going, and use it to make things better, even. And I was able to prove to myself that I could do it.

Coping with the cooking with this disease has also done something for my kids that I never expected: they are no longer slaves to immediate gratification. They are noticeably more patient, and understand much more the concept of having to work to get what we want (like getting up early to cook food for the day, so we can go and stay at a friends for longer), and that sometimes it takes time before we can get it. It's a huge change for them.

2

Share this post


Link to post
Share on other sites

I don't know about good or bad, but it's just part of who I am now.

I guess a good is that it's the first diet that I've never thought of drifting from. Like, not even an option.

And that it gave us an excuse to buy new kitchen appliances. :D

I've always loved baking and it's given me an excuse to bake more (although my husband blames my increased baking on his weight gain...)

1

Share this post


Link to post
Share on other sites

This post hits me right in the heart. I recently hooked up with a first cousin on a social networking site. It's been 30 years since I've seen her. I told her about my gluten sensitivity and she responded that it's great that I can deal with a disease by what I eat.

She asked if I'd heard that she has pancreatic cancer and is on chemotherapy. She's a single mom and has a 20 year old son that is severely mentally retarded. Wow. I am so not into feeling sorry for myself.

I never look at the threads that ask what you miss most.

On the good side, I have learned to challenge doctors. I know more about celiac disease than a majority of them do, via this forum and a subscription to "Living Without". We're saving money from not eating out. And we're eating better by eating whole foods vs. processed. Meals are more about what we're eating vs. cooking up something quick to eat while we're watching tv, so we're having more meaningful conversations. And both of us are learning to cook things we never cooked before. Figuring it out saved my life and quality of life.

2

Share this post


Link to post
Share on other sites

This post hits me right in the heart. I recently hooked up with a first cousin on a social networking site. It's been 30 years since I've seen her. I told her about my gluten sensitivity and she responded that it's great that I can deal with a disease by what I eat.

She asked if I'd heard that she has pancreatic cancer and is on chemotherapy. She's a single mom and has a 20 year old son that is severely mentally retarded. Wow. I am so not into feeling sorry for myself.

I never look at the threads that ask what you miss most.

my husband has several life- long disabilities... I sooo hear what you're saying!!!!

on a lighter note, one thing I like about being gluten- free is that I get the whole box of KinniToos or KinniKritters!! And any larabars or Kind bars we buy are mine, too!! :)

2

Share this post


Link to post
Share on other sites

I guess I know now to 'trust my instincts' for years I had Drs basically treating me like a hypochondriac- now all those bizarre symptoms make sense and I know I'm not crazy!

2

Share this post


Link to post
Share on other sites

It has helped me appreciate every day we are given and to accept what I cannot change.

2

Share this post


Link to post
Share on other sites

Love this post!

Being celiac has given me a great many things. Good health first of all. After being sick for so many years, realizing that a diet change can make me feel good again is amazing. I also am very thankful for the early diagnosis for both of my children. They will never have to suffer like I did. And on a vain note, I've lost 30 pounds! I went from a size 12 to a size 2. I finally feel like ME again. My entire family eats SO much healthier now. I consider celiac disease a blessing in disguise. :D

2

Share this post


Link to post
Share on other sites

Oh my. Where to start?

I am learning to cook, which is saving me money as well as my health. No more junk food for this girl!

I feel better, I sleep better, I have more energy.

And I understand what my Mom went through! For years and years, my poor mother was plagued with health problems. Not only did her doctor think it was all in her head, but, I am ashamed to say, so did I. It seemed that every day my Mom had a DIFFERENT complaint. One day she had a sick stomach, the next day it would be a headache, the day after that it was a backache. I was convinced she was making it all up for attention. I even told my Dad once, that I thought Mom was a hypochondriac. To my Dad's credit, he told me I was wrong, and that I should have more respect for her.

Even after she was diagnosed back in the mid-eighties, I didn't believe her "other" symptoms were real. I knew she would have digestive symptoms, but I thought the headaches, joint pain, and all the rest were fake.

Now of course, it's too late to apologize to her. :(

2

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,792
    • Total Posts
      932,467
  • Member Statistics

    • Total Members
      64,273
    • Most Online
      3,093

    Newest Member
    midwayliz
    Joined
  • Popular Now

  • Topics

  • Posts

    • Reality check in the past few weeks, looks like I got glutened at what should be a "safe" restaurant for gluten-free and gone right back to the beginning again recovery-wise Now too scared to eat anywhere and turning down social opportunities because of the food issues, what a miserable way to live this is.
    • Your issues is probably with the carbs then. there is a alternative. best pricing is miracle noodle. For Konjac rice substitute. Konjac flour works with some people others it does not. https://miraclenoodle.com/collections/miracle-noodle-rice-products There is a trick to cooking it but they make no carb noodles, and rice. I use the rice to make all kinds of rice like dishes like my mothers mexican fried rice etc. It does have a tad off texture and flavor but comes close. If your looking for no carb breads Julians Bakery makes some pretty decent breads but you HAVE to toast them to use them. I just found them a month ago....First time eating a bread in 2 year, and first time in as long as I can recall eating one that did not make me feel bloated and fat. No carbs, no sugars, no yeast, no dairy, no soy, and very low sodium...... Been eating french toast, vegan cheesy bread, bread with almond butter and sugar free jam I have honestly been in food heaven since I found it. BTW some celiacs can not tolerate any grains very rare but it happens.    OH and on what I have is really bad Ulcerative Colitis, so I have a bunch of other trigger foods that cause inflammation, bleeding, distention, constipation, gas, bloating etc. Carbs/sugars is a huge one for me fructose, glucose, sucrose.
    • They rotate growing rice and oats in the same crop. I unfortunately am intolerant to oats.  I have Dysbiosis according to a stool test, which is why I am quite sensitive to gluten among other foods.  May I ask what AI you have that makes you sensitive to carbs? I have been in and out of the doctor since November 2016 with chronic pain.  Trying to figure out what is going on with my gut, it's terrifying. I tried Dynasty jasmine rice from Thailand the other day which was recommended in 2009 by someone on here and a few hours later had the worst low blood sugar attack I'd ever had in my life. I am severely underweight due to the pain and I think this happened because I ate a bit too much (I LOVE rice) upon my first introduction back into my diet.  Even so I reacted just as I do when I ingest gluten (intense anxiety/hard to breathe/fast heart beat/constipation/intense pain under my ribs) So I don't think Dynasty is a safe brand, not for me at least. I only react this way to gluten. My other food sensitivities, the symptoms pop up around 24 hours later and are completely different. 
    • Thanks so much for the information. I tried Dynasty jasmine rice which was a recommendation from a sensitive individual on here. The post I believe was from 2009 so there's plenty of time for practices to have changed. I only ask this here again for updated information as I tried the Dynasty brand and got sick. I do not have Celiac disease (according to an Endoscopy) however, I have been gluten-free for 2 years and only ate a cookie or a donut maybe a few times a month for a year and a half before I was tested. I actually like going without gluten as I get less low blood sugar attacks and rarely ever get migraines. Not to mention, before I had the Endoscopy I was fasting for 2 days with no food or drink while I received other tests while I was in the hospital. I also got a colonoscopy at the same time so I had to clear my system out completely. My doctor believes I have a non-Celiac gluten sensitivity due to my symptoms after ingesting gluten. I was diagnosed with Dysbiosis so it could be my body lacks the correct bacteria to break down gluten. I have several other food intolerances including dairy and oats which many facilities process along with rice. 
  • Upcoming Events