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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

No Sleep?
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Anyone else up almost everynight not able to sleep for hours at a time? Will get up at midnight and have some gluten-free oatmeal and a peach. Then still can't sleep. I am tired. But sleep eludes me...

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bartfull    565

How long have you been gluten free? And did this start AFTER you started the diet?

My insomnia was unbearable before the diet. Much like yours, I would usually go to bed between nine and ten, but by midnight I was so wide awake there was no point in lying there, so I'd get up and start my day. If I was lucky, around dawn I could go take a short nap, but often I couldn't get back to sleep even then.

You might just be going through gluten withdrawal. Give it a couple more weeks. If it doesn't clear up by then, I would start looking for hidden gluten that might be sneaking into your diet - or posiibly other food intolerances that can cause similar symptoms.

I sleep like a baby for eight hours straight almost every night since I gave up gluten and corn. I hope yours improves soon too.

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love2travel    396

Definitely. My insomnia has been raging for many years and has become severe the last four (lots has to do with constant chronic pain and trying desperately to find a position in which to sleep). Last night I was up about eight times to walk around. Have been strictly gluten free for six months with zero improvement with insomnia. Those who can sleep are incredibly blessed.

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Menic    21

I find it very hard to fall asleep and constantly wake up. I've been off of gluten for over a year, so I'm not sure if it's some other food or if I'm just a light sleeper.

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RL2011    27

I have not slept consistently well any time throughout my life. I have learned to not let it bother me or slow m down. Probably the wrong way to handle my poor sleep habits but that is the way it is. I have found that most foods interfere with my getting to sleep so I try not to eat anything for 2 to 3 hours or longer before bedtime.

Not sure if my sleep issues are celiac disease related or if I am just wacky.

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Bubba's Mom    103

You may be deficient in calcium? That effects sleep, as does being low on B6. Suppliment! ;)

Try a gluten-free melatonin suppliment an hour before bedtime. It has helped me a lot!

I also had the habit of using a high intensity lamp for doing needlework or reading in the evening. I found it best to turn it off and have the room darker for about an hour before bedtime. It tells my brain to settle down.

Be sure you're not drinking/eating anything with caffeine after 3:00pm. It could interfere with sleeping too.

Going without sleep is miserable! I hope you can sort out your cause.

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cougie23    23

You may be deficient in calcium? That effects sleep, as does being low on B6. Suppliment! ;)

Try a gluten-free melatonin suppliment an hour before bedtime. It has helped me a lot!

I also had the habit of using a high intensity lamp for doing needlework or reading in the evening. I found it best to turn it off and have the room darker for about an hour before bedtime. It tells my brain to settle down.

Be sure you're not drinking/eating anything with caffeine after 3:00pm. It could interfere with sleeping too.

Going without sleep is miserable! I hope you can sort out your cause.

Good advice I'll try that too! :D

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cashs mom    1

I've been gluten free since May, 2015.  I slept very well until my adrenal supplements ran out (I was on a ton of supplements per my holistic nutritionist until I started having sensitivities to everything.  Then weaned myself off all but a few).  When I tried to start taking the adrenal supplement again, I had developed a sensitivity and couldn't take it any longer.  I made me very wakeful and felt like I was buzzing in my head and the core of my body.  I haven't slept well since sometime in September.  I don't know what's wrong, but it's awful.  I have an appt with an internist tomorrow and hopefully he can help me.

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cashs mom    1

I haven't tried tryptophan.  I had a bad reaction to melatonin and it kept me awake so I haven't tried anything else.  I'm going to see what the internist says tomorrow and go from there.  But I may try it.  Thanks for the suggestion!

I"m no longer going to the nutritionist since I believe he's the one that caused a lot of this problem and when I tried to talk to him about it, he wasn't responsive.  He'd become a bit arrogant and seemed to think he didn't have to listen to me.

 

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kellibee    1

Some things that may help improve your sleep...

- No coffee or caffeine after 10am. 

- Magnesium oil applied to your skin before bed really helps relax your muscles!  I use it religiously.

- Epsom salt baths before bed

- Drinking a cup or two Chamomile/bedtime tea

- Rubbing coconut oil with a few drops of lavendar essential oil on your feet before bed

Any combination of these things really helps me get high-quality sleep.   :)

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cashs mom    1
12 hours ago, kellibee said:

Some things that may help improve your sleep...

- No coffee or caffeine after 10am. 

- Magnesium oil applied to your skin before bed really helps relax your muscles!  I use it religiously.

- Epsom salt baths before bed

- Drinking a cup or two Chamomile/bedtime tea

- Rubbing coconut oil with a few drops of lavendar essential oil on your feet before bed

Any combination of these things really helps me get high-quality sleep.   :)

I don't do caffeine after morning.  I'm not sure about magnesium oil, I have so many sensitivities and magnesium capsules are one of them.  Likewise epsom salts.  I do drink Sleepytime, Tulsi Sleep or camomile tea and I diffuse lavendar oil and put it on my pillow which hasnt' done much.  Frankincense seems to be better.  I've also done guided imagery and all the "sleep hygiene" things.  When I'm reacting to something all of these things don't even make a dent.  I still feel like something in my core is vibrating and it makes it impossible to sleep.  The simple "hints" don't really touch it, thus the doctor's appt today to see if he can help me.

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cyclinglady    715
1 minute ago, cashs mom said:

I don't do caffeine after morning.  I'm not sure about magnesium oil, I have so many sensitivities and magnesium capsules are one of them likewise epsom salts.  I do drink Sleepytime, Tulsi Sleep or camomile tea and I'm diffuse lavendar oil and put it on my pillow which hasnt' done much.  Frankinsense seems to be better.  I've also done guided imagery and all the "sleep hygiene" things.  When I'm reacting to something all of these things don't even make a dent.  I still feel like something in my core is vibrating and it makes it impossible to sleep.  The simple "hints" don't really touch it, thus the doctor's appt today to see if he can help me.

Hyperthyroidism can affect sleep, along with other hormone deficiencies.  Not sure how old you are, but perimenopause can greatly affect sleep.  HRT helped me and my celiac disease diagnosis resolved my unstable thyroid (I have Hashimotos).  Things to have your doctor check if those tests have not been run lately.  😊. Just something to consider.  

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cashs mom    1
15 minutes ago, cyclinglady said:

Hyperthyroidism can affect sleep, along with other hormone deficiencies.  Not sure how old you are, but perimenopause can greatly affect sleep.  HRT helped me and my celiac disease diagnosis resolved my unstable thyroid (I have Hashimotos).  Things to have your doctor check if those tests have not been run lately.  😊. Just something to consider.  

I'm going to have the doc check for thyroid problems as my mother had them at about the age I am now (63).  I'm really hoping to get some help or a referral to someone who can help me.  Wish me luck!

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