• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

No Sleep?
2 2

14 posts in this topic

Anyone else up almost everynight not able to sleep for hours at a time? Will get up at midnight and have some gluten-free oatmeal and a peach. Then still can't sleep. I am tired. But sleep eludes me...

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


How long have you been gluten free? And did this start AFTER you started the diet?

My insomnia was unbearable before the diet. Much like yours, I would usually go to bed between nine and ten, but by midnight I was so wide awake there was no point in lying there, so I'd get up and start my day. If I was lucky, around dawn I could go take a short nap, but often I couldn't get back to sleep even then.

You might just be going through gluten withdrawal. Give it a couple more weeks. If it doesn't clear up by then, I would start looking for hidden gluten that might be sneaking into your diet - or posiibly other food intolerances that can cause similar symptoms.

I sleep like a baby for eight hours straight almost every night since I gave up gluten and corn. I hope yours improves soon too.

0

Share this post


Link to post
Share on other sites

Definitely. My insomnia has been raging for many years and has become severe the last four (lots has to do with constant chronic pain and trying desperately to find a position in which to sleep). Last night I was up about eight times to walk around. Have been strictly gluten free for six months with zero improvement with insomnia. Those who can sleep are incredibly blessed.

0

Share this post


Link to post
Share on other sites

I find it very hard to fall asleep and constantly wake up. I've been off of gluten for over a year, so I'm not sure if it's some other food or if I'm just a light sleeper.

0

Share this post


Link to post
Share on other sites

I have not slept consistently well any time throughout my life. I have learned to not let it bother me or slow m down. Probably the wrong way to handle my poor sleep habits but that is the way it is. I have found that most foods interfere with my getting to sleep so I try not to eat anything for 2 to 3 hours or longer before bedtime.

Not sure if my sleep issues are celiac disease related or if I am just wacky.

0

Share this post


Link to post
Share on other sites
Ads by Google:


You may be deficient in calcium? That effects sleep, as does being low on B6. Suppliment! ;)

Try a gluten-free melatonin suppliment an hour before bedtime. It has helped me a lot!

I also had the habit of using a high intensity lamp for doing needlework or reading in the evening. I found it best to turn it off and have the room darker for about an hour before bedtime. It tells my brain to settle down.

Be sure you're not drinking/eating anything with caffeine after 3:00pm. It could interfere with sleeping too.

Going without sleep is miserable! I hope you can sort out your cause.

1

Share this post


Link to post
Share on other sites

You may be deficient in calcium? That effects sleep, as does being low on B6. Suppliment! ;)

Try a gluten-free melatonin suppliment an hour before bedtime. It has helped me a lot!

I also had the habit of using a high intensity lamp for doing needlework or reading in the evening. I found it best to turn it off and have the room darker for about an hour before bedtime. It tells my brain to settle down.

Be sure you're not drinking/eating anything with caffeine after 3:00pm. It could interfere with sleeping too.

Going without sleep is miserable! I hope you can sort out your cause.

Good advice I'll try that too! :D

0

Share this post


Link to post
Share on other sites




I've been gluten free since May, 2015.  I slept very well until my adrenal supplements ran out (I was on a ton of supplements per my holistic nutritionist until I started having sensitivities to everything.  Then weaned myself off all but a few).  When I tried to start taking the adrenal supplement again, I had developed a sensitivity and couldn't take it any longer.  I made me very wakeful and felt like I was buzzing in my head and the core of my body.  I haven't slept well since sometime in September.  I don't know what's wrong, but it's awful.  I have an appt with an internist tomorrow and hopefully he can help me.

0

Share this post


Link to post
Share on other sites

Have you taken tryptophan?  It helps me sleep. Just curious if that's one of the supplements your nutritionist recommended.

0

Share this post


Link to post
Share on other sites

I haven't tried tryptophan.  I had a bad reaction to melatonin and it kept me awake so I haven't tried anything else.  I'm going to see what the internist says tomorrow and go from there.  But I may try it.  Thanks for the suggestion!

I"m no longer going to the nutritionist since I believe he's the one that caused a lot of this problem and when I tried to talk to him about it, he wasn't responsive.  He'd become a bit arrogant and seemed to think he didn't have to listen to me.

 

0

Share this post


Link to post
Share on other sites




Some things that may help improve your sleep...

- No coffee or caffeine after 10am. 

- Magnesium oil applied to your skin before bed really helps relax your muscles!  I use it religiously.

- Epsom salt baths before bed

- Drinking a cup or two Chamomile/bedtime tea

- Rubbing coconut oil with a few drops of lavendar essential oil on your feet before bed

Any combination of these things really helps me get high-quality sleep.   :)

0

Share this post


Link to post
Share on other sites
12 hours ago, kellibee said:

Some things that may help improve your sleep...

- No coffee or caffeine after 10am. 

- Magnesium oil applied to your skin before bed really helps relax your muscles!  I use it religiously.

- Epsom salt baths before bed

- Drinking a cup or two Chamomile/bedtime tea

- Rubbing coconut oil with a few drops of lavendar essential oil on your feet before bed

Any combination of these things really helps me get high-quality sleep.   :)

I don't do caffeine after morning.  I'm not sure about magnesium oil, I have so many sensitivities and magnesium capsules are one of them.  Likewise epsom salts.  I do drink Sleepytime, Tulsi Sleep or camomile tea and I diffuse lavendar oil and put it on my pillow which hasnt' done much.  Frankincense seems to be better.  I've also done guided imagery and all the "sleep hygiene" things.  When I'm reacting to something all of these things don't even make a dent.  I still feel like something in my core is vibrating and it makes it impossible to sleep.  The simple "hints" don't really touch it, thus the doctor's appt today to see if he can help me.

0

Share this post


Link to post
Share on other sites
1 minute ago, cashs mom said:

I don't do caffeine after morning.  I'm not sure about magnesium oil, I have so many sensitivities and magnesium capsules are one of them likewise epsom salts.  I do drink Sleepytime, Tulsi Sleep or camomile tea and I'm diffuse lavendar oil and put it on my pillow which hasnt' done much.  Frankinsense seems to be better.  I've also done guided imagery and all the "sleep hygiene" things.  When I'm reacting to something all of these things don't even make a dent.  I still feel like something in my core is vibrating and it makes it impossible to sleep.  The simple "hints" don't really touch it, thus the doctor's appt today to see if he can help me.

Hyperthyroidism can affect sleep, along with other hormone deficiencies.  Not sure how old you are, but perimenopause can greatly affect sleep.  HRT helped me and my celiac disease diagnosis resolved my unstable thyroid (I have Hashimotos).  Things to have your doctor check if those tests have not been run lately.  😊. Just something to consider.  

0

Share this post


Link to post
Share on other sites
15 minutes ago, cyclinglady said:

Hyperthyroidism can affect sleep, along with other hormone deficiencies.  Not sure how old you are, but perimenopause can greatly affect sleep.  HRT helped me and my celiac disease diagnosis resolved my unstable thyroid (I have Hashimotos).  Things to have your doctor check if those tests have not been run lately.  😊. Just something to consider.  

I'm going to have the doc check for thyroid problems as my mother had them at about the age I am now (63).  I'm really hoping to get some help or a referral to someone who can help me.  Wish me luck!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
2 2

  • Forum Statistics

    • Total Topics
      107,339
    • Total Posts
      935,565
  • Member Statistics

    • Total Members
      64,999
    • Most Online
      3,093

    Newest Member
    Con Smith
    Joined
  • Popular Now

  • Topics

  • Posts

    • It seems like you really need a concrete or near concrete answer so I would say maybe you ought to get the gene testing. Then you can decide on the gluten challenge.   Thanks! I am convinced our dogs are there waiting for us. Meanwhile they are playing, running, laughing, barking & chasing. I have another favorite quote dealing with dogs: "If a dog will not come to you after having looked you in the face, you should go home & examine your conscience."  ~~~ Woodrow Wilson ~~~
    • I can't help thinking that all of this would be so much easier if the doctor I went to 10 years ago would have done testing for celiac, rather than tell me I probably should avoid gluten. He was looking to sell allergy shots and hormone treatment, he had nothing to gain from me being diagnosed celiac. I've been messing around ever since, sort-of-most-of the time being gluten free but never being strict about it. I really feel like three months of eating gluten would do my body a lot of permanent damage. I've got elevated liver enzymes for the third time since 2008 and no cause can be found which might be good, I guess. I wonder if it would be reasonable to do the HLA testing first, to decide if I really need to do the gluten challenge. If the biopsy is negative, that is. Squirmingitch, love your tag line about dogs in heaven. We lost the best dog ever last December. I sure hope all my dogs are there waiting for me!
    • Most (90%-95%) patients with celiac disease have 1 or 2 copies of HLA-DQ2 haplotype (see below), while the remainder have HLA-DQ8 haplotype. Rare exceptions to these associations have been occasionally seen. In 1 study of celiac disease, only 0.7% of patients with celiac disease lacked the HLA alleles mentioned above. Results are reported as permissive, nonpermissive, or equivocal gene pairs. From: http://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/88906  
    • This is not quite as cut & dried as it sounds. Although rare, there are diagnosed celiacs who do not have either of those genes. Ravenwoodglass, who posted above, is one of those people. I think she has double DQ9 genes? Am I right Raven?  My point is, that getting the gene testing is not an absolute determination either way.
    • Why yes it is! jmg and myself are NCIS, I mean NCGS specialist/experts or is it NCGI people ourselves. posterboy,
  • Upcoming Events