• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Who Else Has It?
0

4 posts in this topic

Hi, my name is Elyse and I have 11 year old triplets. 2 boys and 1 girl. One of my sons, Joe, always had trouble focusing, was very picky with his eating habits, and always had stomach issues. Before this past Thanksgiving, I had noticed that the stomach problems were getting worse, and when he had to go, he had to go right then and there or else... We went to see the pediatrician who suggested that before we went through invasive testing, just keep his gluten intake to the bare minimum. I did this, and almost immediately he was more focused, he became involved in conversations with everyone, and he had no more "accidents". This was fine for about 3-4 months, and now it seems that he is having the problems again. Do I see my regular pediatrician, gastroenterologist, allergist? I'm not sure, and my pediatrician is really no help. Can someone point me in the right direction. Just to let you know, my other two kids do not seem to have this problem and my husband and I do not have this problem, so we can't figure out where it developed from. I was told that it was hereditary. Thanks so much for your input.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Celiac disease is hereditary and you may carry the gene but not have the disease, unless it is triggered. If you have only been keeping his gluten to a minimum, you may try cutting out gluten altogether. This is the only way to control gluten intolerance. One way to tell if the problem is really Celiac, is to have the genetic testing, which costs about $160 from enterolab without a doctors order. If he truly has Celiac disease the only way to prevent future problems is to maintain a totally gluten free diet for life. If he has been on restricted gluten for some time he may or may not register on a Celiac panel (blood testing). But at least the gene test would tell you if the disease is in the family. Many people carry the gene. At least 1 in 150-200 people in the U.S. Try reading up on Celiac disease on Celiac.com and then turn to enterolab.com. Dr. Fine, who runs this web site, is a Celiac and has developed testing which is cheaper than most of the lab tests in the U.S. Good luck with your hunt for health. Shirley

0

Share this post


Link to post
Share on other sites

Elyse,

I have 3 kids also and they all have celiac. My husband was first diagnosed with it then as I read on it I saw that the kids were having symptoms. They are all colleg kids and having a hard time dealing with the diet. I found out I have it too. SO I think the whole world has it and just hasn't been dianosed.

I say you need to cut out all gluten Karne

0

Share this post


Link to post
Share on other sites

I also believe all of my three children have Celiac, but try to convince them. At least the oldest one is really unconvinced and I think she has had it since infancy. Please read all that you can about this disease and take appropriate moves to keep a gluten free diet, eventually your child will grow into a healthier adult. Shirley

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,339
    • Total Posts
      935,571
  • Member Statistics

    • Total Members
      65,000
    • Most Online
      3,093

    Newest Member
    ritamichelle
    Joined
  • Popular Now

  • Topics

  • Posts

    • This is all so interesting. Thank you all for responding, you've helped me.
    • You could try removing all grain and dairy and see if that helps. Processed foods can have cross contamination.  Lactose intolerance is common with celiac disease.  Fruits are high in fructose and it can be difficult for some people to digest fructose if they have digestive problems. Vegetables are healthy and nutritious.
    • Yeah with the chocolate, I can attest that it really helps with ones mood, problem is most cocoa is processed and defatted, your best best are RAW cocoa from BigTree, Cocoa Nibs, or my personal favorite Crio Bru which is ground cocoa nibs that are meant as a coffee replacement >.> I eat them by the hand full with a bit of sweetener or over food/deserts as a sprinkle They have different roast, and origin beans so you can get varied flavors.  My life has been really hectic as of late, I manage it by consuming a ton of cocoa, and hemp, I honestly can not get depressed if I tried or sad. I just am OH WELL with everything. https://www.criobru.com/shop/
    • I don't know for sure but if you have a emotional roller coaster it may be do to food sensitivities.  The pattern however may be difficult to figure out.  I also removed all grains and milk from my diet. I limit my fruit and fructose consumption (fructose binds with tryptophan in the gut) and don't eat processed food. That might be something you could try. Alcohol can be problematic as well as a diet too high in protein or fat.  Vegetables may be your best bet as far as a healthy nutritious diet.  I take glutamine powder as unbound glutamine is the preferred food for the cells that line the intestine. It is known to help with "leaky gut syndrome."  I think it really helps!!! Glutamine powder is gluten free and it may help repair damage to the brain blood barrier as well.  I also am experimenting with dark cocoa powder as it is rich in antioxidants and flavinoids which can help with healing and improving mood.  Another option would be to research the AIP diet. 
    • While celiac is primarily a genetic disease, there are cases of it appearing in people that have NO genetic history of it, nor the genes for it and it develops as a complete mutation caused by a trigger normally associated with some kind of shock or trauma to the immune system. There the same theory that that applies to bringing out the dormant gene for the disease applies that when the body and immune system is under shock or stress, and consuming gluten the body is easily confused and slips up identifying the gluten proteins as harmful and developing antibodies for them (more so common if you have another AI issue and the body is already under stress).....and like a kind of messed up vaccine you from then on pretty much have it....NOTE this is based off a article I read a while back and I can not quote sources or confirm my wording. PLEASE if anyone can correct this if I am wrong or messed up on my memory. 
  • Upcoming Events