Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Absolutely Everything I Wanted To Know About Cd...

Guest AmandasMommy

By Guest AmandasMommy
in Publications & Publicity

Recommended Posts

Guest AmandasMommy
Guest AmandasMommy
Posted

Absolutely everything I wanted to know about celiac disease....

:)Open Original Shared Link

:o WOW!!!.... this answered any and all of my questions!!!!! :lol:

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted
Absolutely everything I wanted to know about celiac disease....

:)Open Original Shared Link

:o WOW!!!.... this answered any and all of my questions!!!!! :lol:

<{POST_SNAPBACK}>

nice! Thanks for posting that!

Link to comment
Share on other sites
Guest Viola
Guest Viola
Posted

Thanks for this Amandasmommy! Will be printing it to educate a few people :D

Link to comment
Share on other sites
Canadian Karen Community Regular
Canadian Karen
Posted

Thanks! That is a really good one, I am sending it to my sister......

Karen

Link to comment
Share on other sites
Mjohnson73 Apprentice
Mjohnson73
Posted

Thanks!

I am going to print it out and give it to my hubby to read

--Maya

Link to comment
Share on other sites
watkinson Apprentice
watkinson
Posted

Hi amandasmommy,

Thank for this link...what a great article!! :) So often I read medical articles that are written in such a "doctorly" manner. Since this one is so easy to understand

I'm going to send it to a few family members that just haven't been able to get it, or refuse to believe they have it.

Wendy

Link to comment
Share on other sites
shimma Apprentice
shimma
Posted

From the article:

"When somebody presents with severe diarrhea and wasting, that means most of the small intestine is damaged and it is not able to

compensate for the damage closer to the stomach. So it is the amount

of the small intestine that is damaged which determines the symptoms.

If you have all of the small intestine damaged you'll have diarrhea and

weight loss. If only a small portion of the small intestine is

damaged, you may have pain, bloating, and discomfort after eating but

not diarrhea."

This seems to explain why different people take different amounts of time to heal. I had NO idea that if you had diarrhea and weight loss that the damage was so extensive. I have to heal my whole small intestine! That's 26 feet of innards! I thought it was just the top part. No wonder it's taking so long.....

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest barbara3675
Guest barbara3675
Posted

WOW E WOW --- Wouldn't it be nice if we could all have this guy for our doctor? Someone who REALLY gets it. His patients are very lucky people, I hope they realize it.

Barbara

Link to comment
Share on other sites
Canadian Karen Community Regular
Canadian Karen
Posted

Hey Shimma!

The best way to tackle 26 feet of innards is one foot at the time, eh?

;)

Most people, it "one day at a time", for celiacs, we measure improvement by the foot!!! LOL!! :P

Karen

Link to comment
Share on other sites
emeraldskies Rookie
emeraldskies
Posted

After reading this, I checked out more of Dr. Murray's writings. I like his policy about doing bone mineral density scans on his patients. If we can ever sell our house, I know which doctor I will be attempting to see. Thanks for pointing this out.

Link to comment
Share on other sites
Guest AmandasMommy
Guest AmandasMommy
Posted

your welcome. this explains so much more for me, and it will also help my family and friends too. i sent it to em all.

this also explains why amanda is thin and i am not. also before we found out about her having celiac disease we almost lost her, i know that now. she wasn't just skinny, she was boney, bloated stomach and steatoreah ( i hope i spelled it right) yea not just diareah. she was slowly starving to death, i was soo scared.

i do think more people need to hear about this, even test them selves. that is also why im trying to contact oprah. Open Original Shared Link just page down to see mine.

did you see the percentages of having celiac disease? i bet the more people who test themselves the more common it will be!!!!!

Link to comment
Share on other sites
Guest ~wAvE WeT sAnD~
Guest ~wAvE WeT sAnD~
Posted

In fact, Dr. Marsh in Manchester (England)

has put gluten in the rectum and in a couple of cases he had DH

patients claim that they got an attack of DH afterwards.

~Hahaha! I had to laugh when I read this! OUCH!

Link to comment
Share on other sites
Guest zipy
Guest zipy
Posted
i do think more people need to hear about this, even test them selves. that is also why im trying to contact oprah. Open Original Shared Link  just page down to see mine.

did you see the percentages of having celiac disease? i bet the more people who test themselves the more common it will be!!!!!

<{POST_SNAPBACK}>

Hey!!! I wrote to Oprah too saying that she needs to do a show on this!!!! I hope she does!

Link to comment
Share on other sites
Guest GITRDONE
Guest GITRDONE
Posted

Thank you!!! AMANDASMOMMY. That was excellent. I have made a copy for my husband to read. And the next copy is going to my daughters doctor. I have been trying to get her tested, and her doctor said he would have to do a colonoscopy to determined if she was a celiac or not. It makes me so mad that hes a md and totally clueless.

Anyway, that a whole another thread. Many thanks for the info.

:D:D Susan (GITRDONE)

Link to comment
Share on other sites
tarnalberry Community Regular
tarnalberry
Posted
In fact, Dr. Marsh in Manchester (England)

has put gluten in the rectum and in a couple of cases he had DH

patients claim that they got an attack of DH afterwards.

~Hahaha! I had to laugh when I read this! OUCH!

<{POST_SNAPBACK}>

They'll do that for some gluten challenges, instead of 3 months eating gluten. I don't know... sounds painful, but not as painful as 3 months of gluten! ;-)

Link to comment
Share on other sites
  • 11 months later...
Kaycee Collaborator
Kaycee
Posted

I having a few moments to do whatever, thought I would have a look at some old posts on this forum. I came accross this, and the referral to an article, which might be a little bit old, but I think it was great reading, and probably worth bringing back up again.

Cathy

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,208
    • Most Online (within 30 mins)
      7,748
    davidwilly045
    Newest Member
    davidwilly045
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Trying to read my lab results

      By trents · Posted

      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi, I received my labs via email yesterday and have not heard back from my doctor yet. Can anyone tell me if these results indicate I have Celiac?      Endomysial Antibody IgAPositive  Ft-Transglutaminase (tTG) IgA6  H0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10 - Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten-sensitive enteropathy. FImmunoglobulin A, Qn, Serum55  L87-352 (mg/dL) Ft-Transglutaminase (tTG) IgG183  H0-5 (U/mL) - Negative 0 - 5 - Weak Positive 6 - 9 - Positive >9
    • Aussienae
      Constant low back, abdominal and pelvic pain!

      By Aussienae · Posted

      Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse.  Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
    • ButWhatCanIEat
      Constant low back, abdominal and pelvic pain!

      By ButWhatCanIEat · Posted

      Good morning,   I got an email about replies to this post. Some of my doctors had blamed a slipped disc for the pain I had and that contributes, but after meeting with a gastroenterologist AGAIN and trying some lifestyle modifications, I found out I have IBS and can't tolerate corn or excessive fructose to any degree. Cutting out corn AFTER having cut out all gluten containing products was a real pain but I feel much better now!
    • trents
      Isolated DPG-Iga

      By trents · Posted

      So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the tTG-IGA antibody test.
×
×
  • Create New...