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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

American Celiac Disease Association
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Below please read the recommendations from the American Celiac Disease Association, as the comment period ends today (October 3, 2011) to the FDA, regarding the proposed Gluten Free Labeling legislation.

http://www.celiac.org/images/cc/acda.pdf

Conclusion

There is no medical intervention for the treatment of celiac disease, no drug, no ongoing

therapy. The treatment, while medically prescribed, is self-administered and in many

instances without medical oversight. Gluten-free foods, in all forms, are the equivalent

of a prescription medication used to manage another lifelong, chronic condition. The

laws differ dramatically with regard to the labeling, and manufacturing between drugs

and foods, and we do not imply the two should be equal.

We do however, implore the FDA to consider the following: it takes an individual, on

average, six years of being ill, of bouncing from doctor to doctor before being properly

diagnosed with celiac disease. Gluten-free foods don’t undergo years of safety testing

before going on the market, like medications. Each and every day, celiac consumers

are placed at risk when trying to determine if the foods intended to maintain their health

are safe. They have only the clarity and accuracy of the labeling on which to rely. It is a

heavy burden, but one that will be eased dramatically with the completion of this

rulemaking.

FDA Deputy Commissioner for Food, Mike Taylor, stated in the teleconference to

stakeholders announcing the reopening of this NPRM, and in the press, that the agency

‘must get this right.’ We cannot agree more and believe that reflecting on the experience

of other countries, the FDA can determine the approach to gluten-free labeling which

best protects and works for the American celiac consumer.

Again, we appreciate the opportunity to comment on these proposed rules and look

forward to working with the FDA to ensure their timely and smooth implementation once

finalized in the third quarter of next year.

Respectfully,

Andrea

Levario,

J.D.

Executive Director

American Celiac Disease Alliance

2504 Duxbury Place

Alexandria, VA 22308

info@americanceliac.org

www.americanceliac.org

703.622.3331

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