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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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    • Jane, my rash didn’t go to the bloody,  pressure filled blisters until about a year in. They would get filled with so much fluid they would pop on their own, especially my bottom area and elbows. I hope for you you get a proper dx quickly as I found with each passing week my rash worsened and basically took on a life of its own! Of course, I was poisoning myself daily with Gluten, building up more and more deposits,  which just lead to more breakouts. And each breakout got steadily worse, leading to the bleeding and deep scabs that lasted for weeks. I wish you a speedy dx and a quick recovery next month. Do keep us posted on your progress. Happy Holidays. 
    • Thank goodness you got a Dr in the end that recognised what was happening! I will have to see what my bloods show in January, I really hope they show coeliac, not because I want it but because I feel that's what this is!  A fair few people yourself included Barbie have said my elbows remind them of theirs! The only thing I'm wondering is, mine never go bloody/open like yours and some other DH members on this forum. I can't stand the thought of scratching my elbows when they flare so I scratch around the bumps. With my back I can't help but scratch as the itch is wild and as it's a flat surface I feel less sickened by the thought of scratching my back and legs. 
    • I'm so sorry to hear that!  (((Hugs))) I do wonder if gluten has been causing the symptoms of what your Dr believed was gastritis.    I think either a whole foods diet or whole foods plus certified gluten free for a time would be good.  Maybe 6 months and then retest.   In my house we only cook gluten free.  I do let my kids have crackers and snacks that have gluten, but they are in their own area and everything has to be cleaned up after.  I tried doing a shared kitchen after I was diagnosed, but it was too hard.  I do all the cooking and decided that we would just cook gluten free things.  My family fully supported me and brag about how my gluten free stuff is better than gluten stuff. 😀 Maybe it's time to make your home gluten free? Just a thought...big ((((hugs))))
    • Jane your fingers look exactly as mine did! So very painful, I remember feeling like I had broken a glass and shards were stuck in my fingers and hands.... 
    • Those elbows look very familiar! I had that rash for a little over a year and a half, and with each break out, the blisters would change, worsen in appearance and the itch got insanely itchier.  The only topical product I found that helped a bit, was GoldBond lotion or liquid spray with Lidocaine.... Drs had me then just use Aquaphor (the Vaseline jelly type ointment) So, yes, I’ve read too that blood tests can have false negatives & positives.  However, my Dr ordered a complete blood work up and then added a special Gluten panel order... I gave  about 6 vials of blood for all tests. I was having so many vitamin deficiencies and off the charts inflammation levels throughout the year & 1/2... it all made such sense when we looked at all my symptoms & also the positive bloodwork. He told me I lit up not like a Christmas tree, but like the entire tree lot. It also made sense why all biopsies and cultures kept coming back as “unknown uticaria”       The specialists were taking samples incorrectly. What should have been a somewhat easy diagnosis turned into just a nightmare. All the misdiagnosis (scabies 3 Times, spider bites, excema, herpes and 3 Drs flat out just said I don’t know, try another Dr.) and the heavy medications prescribed (methatetrix, Otesla, shots of cortisone followed by 6 months of oral steroids, the anti fungals and the parasite pesticides!) I was a mess! All unnecessary and many were very harmful to my overall health. Since I’ve not had many stomach problems,  my Dr. & I decided to just go with the gluten-free diet and Dapsone and see how I responded. Incredibly within 2-3 weeks the Rash was gone from everywhere except for my very worst area, my bottom. I may have some intestinal testing done next year to be sure there’s no damage there. So between the  positive blood test and diet changes are working so well, I’m convinced I do indeed have DH. It’s also genetic and I have 2 first cousins with Celiac Disease. I’ve also learned from people here and the great information site provides, you must still be eating gluten for tests to be accurate. I can’t imagine eating the poisonous Gluten to further confirm DH, so I chose just to go with Diet and Dapsone. I hope you get proper results next month and on to a rash and itch free life!  Below is the picture my Dr found on his own time, on his “weekend” research... he was so excited he phoned me and had me come in first thing that following Monday morning. That picture looked exactly like me! I am his first case of DH in over his 30+ years of practice. 
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