• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
  • Celiac.com Sponsor:
    Celiac.com Sponsor:

In Desperate Need Of Encouragement
0

3 posts in this topic

My title says it all. I'm new here. Have been helped a lot by reading for the pat few months and finally decided to join. Here's my too-long story. I apologize in advance. I'll make it point-form!

-March randomly fainted...followed by a week of dizzy spells

-March - June continued to have random dizzy spell, felt faint, light headed, had migraine with aura for 1st time ever, caught every cold, flu, bug going around.

June got sick. Couldn't get out of bed for 2 weeks kind of sick, loss of appetite, diarrhea, fatigue, weakness, dizziness, lost 10lbs in 1 week Bad. Went to ER, found nothing, but clued in that my mom has celiac and I had the exact same symptoms that she had before diagnosis. So, did the blood test, went home and immediately went gluten-free. Took over 2 weeks for results in which time I was very slowly but also very definitely improving. Results were "inconclusive" and I postively refuse to eat gluten to do biopsy!

Digestive symptoms improved quickly, but took all summer to get any sort of strength/energy back and get rid of brain fog. Don't work in summers and it's a good thing. No way I could have worked.

End of August started back to work (home daycare) which was extremely difficult and caused me to have anxiety/ sleeping problems. I overcame it within a few weeks realizing that I can do it!

mid Sept had a set back of abdominal pain. The Dr's guess was gastritis or ulcer caused by Advil. Took about a month to finally start seeing an improvement. Again, just when I though I was overcoming that I had a major bout of diarrhea last night like I've never had in my life! Today I'm left weak, exhausted and wondering where the light at the end of the tunnel is.

In 2 weeks I'm seeing a gastro for the 1st time in all of this! Gotta love our health care system here in Canada. Don't have colon cancer, so I'm not much of a priority...as I was actually told in emerg!

1

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Welcome to the board and sorry you are having such a hard time.

You mention starting up a home daycare. Do you also the kids in the day care to consume gluten in the house? If you do that may account for your setback. We even need to be careful with stuff like Playdoh and paints for the kids as those can be an issue for us.

Eat as much whole unprocessed food as you can and be careful to avoid cross contamination and hopefully you will be feeling better soon. We can have real ups and downs for a bit. Some of us will develop other intolerances with soy and dairy being the most common. If you consume either you may want to drop them for a bit and see if that helps.

1

Share this post


Link to post
Share on other sites

Thanks. I initially eliminated dairy, and successfully reintroduced small amounts, although every time I have a setback I cut it out again. I also eliminated soy as it made my throat itchy when drinking soy milk....

The daycare eats a regular diet, and I believe that I am careful with their food and PlayDoh.....

Maybe last night was just a `fluke` who knows... I feel like it`s always a guessing game.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,015
    • Total Posts
      933,810
  • Member Statistics

    • Total Members
      64,585
    • Most Online
      3,093

    Newest Member
    onlineessayhelp
    Joined
  • Popular Now

  •  

  • Topics

  • Posts

    • MK4800 I had it on a trial/rental for a bit trying to purchase one now. Things pretty good, and the cheapest on the market. If you order from the factory it cost $995 ($650+$345 s&H) I started a fund raiser from my bakery for it.   As for retail if you order on Amazon or Ebay your looking to pay $1100-1400 for it.    If your really interested I can give the sales rep your email and she can contact you about getting one. https://www.mkkchina.com/product/ice-cream-making-machine/ My plans when I get my own is to use it for catering, markets, and events. I found it on rental from a company out of Houston and tried it. Then looked into purchasing one.  
    • Ennis, Egg yolks are what make custard based ice creams. But you have me thinking. I make a frozen peanut butter pie where I make a Swiss butter cream frosting with added peanut butter. It tastes amazing. For my kids with lactose issues, butter isn't a problem (just fresh milks and cheeses), so I add butter to the whipped cooked egg whites then room temperature natural peanut butter. So I think that heating the honey and whites in a double boiler, then whipping and adding any solid fat would work. Then freeze (no need to churn because the whites and fat provide you with structure).   For Father's Day I made a chocolate brownie (cashew butter base) in a spring form pan, scooped out the center of the brownie leaving just a shell, added the peanut butter filling described above and topped with reserved brownie bits, froze that, then added a chocolate avocado ice cream and topped with chopped homemade dark paleo chocolate chunks...It was terrific! What industrial ice cream maker do you use?  I'm tired of making small batches of ice cream. 
    • Hello and welcome to the forum! i don't have a solution for you but I can tell you I had the same thing happen. After going gluten-free I was so extremely sensitive and the issue I had was the dh. I think I've read you can have flare ups even without gluten for quite a while. I certainly did! How long have you been gluten-free? I had flare ups and itching when I would even have foods that were supposedly less than or equal to 20 ppm. This went on for maybe a year? Something extremely ridiculous like that. Then one day my dh turned purpley and flattened out. Then one day it was a bit more skin colored and disappeared. Never had the problem since. good luck with it. I'm sure some others will chime in with their advice and great knowledge as well. You found a great place to be! It's my safe haven.
    • Victoria - Thanks for reply, man last night I was so itchy, and on a spot that hadn't been itchy for months! I'll keep an eye on gluten-free foods too

      artistsl - My hand was itchy yesterday and I ended up putting some off-brand neosporin on and it did help, so I'm glad we both had the same idea haha. Also I can't believe I forgot about hand soap! I've checked my shower bar soap (Dove) but for some reason I completely forgot to check the hand soaps here and at work, thanks! Oh and I don't need to see the pictures, I think I'm getting a better handle on what my body is doing now, but thanks! I've also stopped taking ibuprofin at night as a 'test' and I was itchy as hell like directly at midnight, but that might have been a coincidence so I'll keep going without that, and once a week I would put on that steroid cream I got from the dermatologist to help the really bad itching but I'm stopping that too.

      Thanks again everyone, man am I glad this forum exists!
    • The more people feel free to be who they are, the better, I say! Go forth and express whatever way you see fit. I like that you claimed your space. Plumbago
  • Upcoming Events