• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Reaction To Rice?
0

18 posts in this topic

Hello lovely people. I think I am having a problem with rice or/ rice based flours. When I eat a pretty good amount of either, it seems that I have trouble sleeping, tossing and turning and my mind races all night. My mind tends to get busy at times, but this was much worse.

I had a food sensitivity test done several months ago and rice was very high, but my doctor thought it was just because I ate it frequently. So many of the gluten free foods are rice based it's hard to avoid. I do not know if I agree with that because there were other foods that tested high and some I never ate at all. So why would that pertain to rice and not the other foods?

Does anyone else react this way to rice, and if so, is it whole rice or the rice flours??

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


what is this food sensitivity test you speak of, and how/where did you get it done? all I've heard of is allergy testing which is different.

and yes, people here have had trouble with rice. some people cannot eat any grains at all.

0

Share this post


Link to post
Share on other sites

I have a health practioner who ordered it for me. It's a blood test by Genova Diagnostics. I got the blood draw at a local lab. It tests IgG levels, as well as total IgE. So it is looking for sensitivites, not really allergies. There's a difference in the antibodies affected. Pretty interesting test.

0

Share this post


Link to post
Share on other sites

I want this test!! but I can't afford it till next year...

0

Share this post


Link to post
Share on other sites

I've had a similar test and rice and corn was deemed OK for me. But I do notice that if I eat those everyday for a few days I will feel lethargic. I think my system does better with little or no grains. But since I do have a tolerance for them, I include them for variety, just not everyday, and never two meals in a row.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Be careful, IgG testing can be very unreliable, as is most food intolerance testing generally. I.e. take one test get one set of results, take the same test the following day and get different results. IgG tends to produce high results in foods which you eat regularly so would tend to agree with your doc, even though I wish it weren't true, would have made my path a lot easier to tread. I spent a stupid amount on a York test which didn't really do anything for me in terms of resolution of symptoms.

However your symptoms (mind racing at night and inability to sleep, I had years and years of this) seem to point towards raised cortisol levels indicating a reaction to something, and plenty of people have issues with rice I'm sure. Best way is an exclusion diet (sorry I wish there was an easier way).

One thing to watch out for is my reaction to eating gluten lasts, on average, 2 weeks so I generally am very sensitive to most things during these two weeks, rice isn't too bad but it's still a bit funny on the stomach however I've got worse reactions with a lot of other things such as corn, soy and dairy that I have to eat it.

If you determine that you are definitely struggling with rice how about other gluten free grains, as I say I struggle with corn (it's not a gluten reaction but enough to make me avoid) but this might be ok for you. If so there are tons of products with corn in them, pretty much all gluten-free breads etc certainly in the UK. Otherwise if you'd prefer something more savoury you could try tapioca, millet, buckwheat etc etc, do a quick google to find gluten-free alternatives.

0

Share this post


Link to post
Share on other sites

Interesting. I have noticed that when I eat a bowl of plain white rice with non cc'd butter and sea salt, I end up with a mild stomach ache within an hour. Nothing more but enough that I am suspicious. Scary to have a rice issue since it seems to be the basis of all non gluten-free snacky like foods.

0

Share this post


Link to post
Share on other sites

and you're sure it's not the butter?

0

Share this post


Link to post
Share on other sites

No- I a sure of nothing these days. LOL However, the butter is clean.

0

Share this post


Link to post
Share on other sites

since a lot of us react to casein, that's what I thought it might be. Eating ice cream makes me feel drunk and gives me muscle aches later.

0

Share this post


Link to post
Share on other sites

I think I'm reacting to rice flour, but not rice itself. For me it's more like an anaphylactic reaction. My eyes start swelling up. I posted this in another section of the boards, but I had a reaction to Betty Crocker gluten-free chocolate chip cookies. It happened twice. But I don't seem to have a problem with regular rice. I don't know why the flour would be different than the regular rice, but it seems to be for me.

The not sleeping at night seems to come from the gluten withdrawal for me. When I was still eating gluten, I slept like a champ. Now that I'm not, it's hard for me to go to sleep and stay asleep. I guess that was one good thing about eating the gluten poison. <_<

0

Share this post


Link to post
Share on other sites

Be careful, IgG testing can be very unreliable, as is most food intolerance testing generally. I.e. take one test get one set of results, take the same test the following day and get different results. IgG tends to produce high results in foods which you eat regularly so would tend to agree with your doc, even though I wish it weren't true, would have made my path a lot easier to tread. I spent a stupid amount on a York test which didn't really do anything for me in terms of resolution of symptoms.

However your symptoms (mind racing at night and inability to sleep, I had years and years of this) seem to point towards raised cortisol levels indicating a reaction to something, and plenty of people have issues with rice I'm sure. Best way is an exclusion diet (sorry I wish there was an easier way).

One thing to watch out for is my reaction to eating gluten lasts, on average, 2 weeks so I generally am very sensitive to most things during these two weeks, rice isn't too bad but it's still a bit funny on the stomach however I've got worse reactions with a lot of other things such as corn, soy and dairy that I have to eat it.

If you determine that you are definitely struggling with rice how about other gluten free grains, as I say I struggle with corn (it's not a gluten reaction but enough to make me avoid) but this might be ok for you. If so there are tons of products with corn in them, pretty much all gluten-free breads etc certainly in the UK. Otherwise if you'd prefer something more savoury you could try tapioca, millet, buckwheat etc etc, do a quick google to find gluten-free alternatives.

Thank you for the great info. The IgG test is confusing, because as I stated there were high levels of antibodies for foods I hardly ever eat, so what does that mean? :blink: I agree with the cortisol levels too since I have been sleeping very well until the overabundance of rice. I guess I just need to cut it out for a while! <_<

0

Share this post


Link to post
Share on other sites

Sorry I don't think I was totally clear there glutout, the foods you regularly eat influence the test and the test is not therefore completely defined by the foods you regularly eat. So you having foods highlighted that you do not regularly eat is normal for these tests, and certainly in my experience, however a large proportion of the foods identified in mine were those I was at the time eating large amounts of.

Interestingly there is no correlation between IgG and allergies (I know it is intolerances and not allergies being tested but surely your body would react in a similar fashion, albeit more dramatically to allergies). There is plenty online about the fallibility of intolerance testing, I like you did not want to believe it at first but everyone who told me it was a waste of money/time was right. And the worst thing is you can't question it - it is what it is to the company's who offer these tests.

Wish I was more upbeat but I'm afraid it comes down to painstakingly going through food groups to try and weed out the baddies in your personal circumstances.

Again I would re-iterate that I react to most of the main foods you would expect to react to (soy, dairy etc) in the two weeks after being gluttened. After that I can eat more of these things, albeit I don't for the large part, psychological block, call it whatever.

The fact that you say you slept well before eating the rice is very encouraging, it took me ages to get to the point where I'd weeded out the offending food groups enough so that I had a good nights sleep.

0

Share this post


Link to post
Share on other sites

I have insulin resistance and rice is just too starchy for me. A tiny portion (like, a teaspoon but who can stop at that?) is ok but any more and I get a bit high on the sugar rush and then crash. Could it be something like that?

0

Share this post


Link to post
Share on other sites

Maybe so...I, too have insulin resistance, and never even thought of that! Need to watch my starches!!! :o

0

Share this post


Link to post
Share on other sites

Do you have any problems with corn? If so, something else to consider is that if it's white rice or enriched rice, it will usually have corn contamination. Many white rices use cornstarch in the process of getting it polished and white. Most vitamin enrichment uses corn-based ingredients to deliver the vitamin, as well.

Something that might be helpful if you're avoiding rice is a cookbook "Gluten-Free without Rice" by Nicolette Dumke. I'll be honest, it's not a great bunch of recipes, and it's a very small book. But it has multiple recipes for the each type of food (like crackers) just all with different flour bases. These are just not very exciting, is all. So...more a nice book to give you a basic recipe for you to build off of, if that makes sense?

It was very useful when I needed it, though! :-)

0

Share this post


Link to post
Share on other sites

I think corn is the only thing I do not react to! :D

0

Share this post


Link to post
Share on other sites

Do you have any problems with corn? If so, something else to consider is that if it's white rice or enriched rice, it will usually have corn contamination. Many white rices use cornstarch in the process of getting it polished and white. Most vitamin enrichment uses corn-based ingredients to deliver the vitamin, as well.

Very interesting, I knew straight away with the vitamin tabs I used to take that it had something in them that I reacted to (after investigation found out that they are made from corn, Vit C especially) but I never knew about the rice and that probably explains why although it's by far the best staple food I have, I always in the back of my mind thought I had a bit of a reaction when eating. I guess in the back of my mind I was a bit blinkered and thought 'I have to avoid pretty much every other food, surely not....'

Is there anything corn is not in?!?!?!!? Argh, sorry for the post highjack glutout but be very glad you are not like me and can eat corn, what a nightmare!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,802
    • Total Posts
      932,556
  • Member Statistics

    • Total Members
      64,294
    • Most Online
      3,093

    Newest Member
    Alisha Patel
    Joined
  • Popular Now

  • Topics

  • Posts

    • Very interesting. However, my positive on the DGP test is on the combined assay. When separated into IGA and IGG they are within normal range. Twice the IGA was a point or two above normal range, which can be easily disregarded per University of Chicago.  Much of the research done on NCGS is showing activation of cells which are different then in celiac. Placing it still in a gluten related illness spectrum, but an entirely different kind of mode of transport, if you will, then celiac disease. Odd, because I am pretty sure I read that 1st degree relatives of celiacs have a higher prevalence of NCGS suggesting it is, in part, that they are related. But I cannot recall where I read that.  I think my specialist doc is following the right track given that all of this began at the tail end of a 6 week challenge in 2015/16 and I have an increase in IELs.  which, as I've stated before, is a very non-specific finding however. Symptoms continued On a gluten free diet for me months after.  however I was only on it for that 3 months after they found some inflammation. So maybe I didn't give it long enough.  Or like I said, maybe it's something else. We shall see! 
    • Thank you for your replies, everyone! It was very helpful. I don't think I am comfortable with passing the whole gluten introduction diet again and getting that rash. Or, even getting the rash on my face flared up again. It actually might be a good thing I got 'glutened' at that bd party so I could finally make connection with all the symptoms. As I thought back about my 'allergy' rashes I start wondering if it could be related to gluten all those years but no one even suspected. For example, at some point I started getting itchy rash around my knees, spreading down to ankles (front of the legs) in summer. The dermatologist and GP said it is 'sun allergy'. The usual allergic treatments helped for the itch and the patchy scales slowly healed but it flared up on the same place during the summer multiple times. The strange thing is that it never flared up when I went hiking, or walking in the sun in the city (I have extremely low vit D levels and I need to supplement, so it was no-no to stay completely covered no matter the rash...I needed my natural vit D). The rash only appeared after beach visits. At some point I started washing and drying my skin with a towel every time I went out from the sea, the rash still appeared but I was able to control it so it showed up on day 4-5 when vacation was almost over. Then, last summer after I was completely gluten and dairy free for approximately 9-10 months, and I was annoyed of washing my skin each and every time and getting those weird looks on the beach, I stopped doing it. I was prepared with medicine and creams for that rash but guess what - my 'sun allergy' was mysteriously gone. Not a single blister, not a patch of itchy skin, nothing. Another 'allergy' case of mine is that I found from my own bad experience I got very bad rash from red dyes (in food or cosmetics). If it is food it shows on my face, if it is cosmetics (soaps, perfumes)...whenever I applied it. I am now reading that people with dh should stay away from red dyes. Mere coincidence? I don't know, I am more and more suspicious I could have this DH thing going on for years, if that is DH. I am just annoyed that all the dermatologists I went to during all those years never made connection. No one even suspected. It was the usual path - cortisone creams, pills, etc. At some point cortisone creams were no longer working so they started prescribing some mixtures made in the pharmacy specifically for me with sulfur. That worked like a charm but I couldn't walk around all covered in white cream looking like a mummy (long sleeves in summer here where I live and summer = 35-38 C, is not fun). Then, I tried homeopathy....it worked like a charm but of course those rashes kept appearing and disappearing, I was only able to control the itchy skin so I don't scratch, scratch, scratch...looong, long journey! Sorry about my rant...and, one more time thank you everyone who found the time to reply and share your opinion! Much appreciated!
    • Found this old thread when researching for my daughter who might be having an endoscopy in September. I'm curious to know what the results were?
    • Actually "flour" is not a common ingredient in soy sauce.   Accusing a manufacturer of "lying" about ingredients is a serious charge.  If you actually have proof that this company is not listing ingredients, you should report it to the FDA.
    • Ok guys, I messed up. I ate a bag of marshmallows the same day... low and behold, with wheat starch. I did not expect that. Sneaky sneaky marshmallows with with wheat starch. fml
  • Upcoming Events