• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Ate A Mars Bar Which Contains Barley Malt
0

18 posts in this topic

Today I decided to expose myself to 'just a little bit' of gluten. I ate a mars bar. Although I knew it contains barley malt I decided I had to have it. I wanted to see how and whether I would react to that small amount.

I was sick from lunch (due to the chilli chicken, which was gluten free) so I thought I might just have my mars bar and eat it too at the same time to see if there is a difference between me reacting to chilli and gluten.

Indeed there was. My slightly uncomfortable symptoms vanished as soon as I ate the Mars bar. About 20 minutes to half an hour later, I started to notice my sinuses went a little bit dry and I was less congested but more like I had a 'cold' that was coming on. the symptoms were very mild.

Then I noticed some random tingling and extremely subtle bloating in my stomach. It was really quite subtle but I did seem to have a little bit more 'brain fog' and felt a bit warmer than normal.

As for the mars bar, it seems like the malt flavouring is quite a unique one. I quite like it. Sadly it comes from barley.

Do most celiacs react to mars bars? Also are my symptoms typical? I'm better now but can still feel the tiniest bit of bloating which seems to be slowly going away - hopefully tomorrow all will be back to normal.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


If you are celiac then yes most of us would react to the candy bar because of the barley malt in some way. Reactions vary for each person. One of my bad reactions was from a regular milkyway(they have barley malt also). Last halloween I raided the kids candy stash(they were not gluten free at the time). I had been eating the candy I knew was safe and for whatever reason, I didn't think about the three "bite size" milkyways and I scarfed them down. Oh boy, did I react, and was miserable. I didn't go near the halloween candy afterwards. Probably one of my worst reactions was from eating gluten free oats! I never want to experience that pain again for sure.

0

Share this post


Link to post
Share on other sites

I don't know if you ate a big bar or one of the little Halloween type ones. The amount of barley you may have consumed was probably not much. Its not like its mostly barley its just a small amount. Maybe not enough to really get you going.

Not saying you should eat it! Even a small amount isn't good. But it isn't like you ate a wheat flour roll. If you got a little problem from that tiny amount of gluten...think how bad the dinner roll would be.

0

Share this post


Link to post
Share on other sites

Yea I would react very badly to the barley malt in that. For me the worst of the reaction is a couple of days after I eat the offending food. Just be prepared in case that happens to you also. If you are celiac you can't do 'just a little bit of gluten' as the reaction is an antibody reaction and it takes very little to flare those antibodies. There are candy bars that are safe. Baby Ruth is one and also DARK chocolate Milky Way, the regular ones are not safe.

0

Share this post


Link to post
Share on other sites

I react differently to barley as I do with wheat/gluten. It's still a reaction, but it's less painful (but not painless), but more abdominal swelling. I had Corn Flakes once, not knowing there was barley (I figured what harm could Corn Flakes do?), then I got a reaction a few hours later, and read the ingredients (duh, should have done it before hand) and that was it. It's not as painful, but still just as uncomfortable enough for me to avoid it.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I am afraid to try anything that has barely or ingredients that I shouldnt have. I did that once and spent hours throwing up and having the runs and tremendous stomach and left side pain. I thought I was going to die so I try so hard not to even get glutened although I sometimes do.

0

Share this post


Link to post
Share on other sites

I'm better today than I was yesterday. Gluten reactions seem less predictable than others. I just didn't realise it could affect my sinuses so much. It doesn't appear to have spread to the skin, so hopefully I didn't do much damage. The amount of barley malt was only equivalent to the amount of cocoa mass in the chocolate that covers it and I think the malt flavours the nougat layer in it that's below the caramel. That's where I tasted it.

Are flu-like symptoms normal from such tiny amounts of gluten though?

0

Share this post


Link to post
Share on other sites

I don't know if you ate a big bar or one of the little Halloween type ones. The amount of barley you may have consumed was probably not much. Its not like its mostly barley its just a small amount. Maybe not enough to really get you going.

Not saying you should eat it! Even a small amount isn't good. But it isn't like you ate a wheat flour roll. If you got a little problem from that tiny amount of gluten...think how bad the dinner roll would be.

It was a large size. i didn't want to get bite-size ones since if I reacted I didn't want to be stuck. Other people say they don't react to them at all. Lindt says their chocolate with malt in it only has 3.6ppm so I'd like to see how that goes sometime. <20ppm is safe isn't it?

0

Share this post


Link to post
Share on other sites

snickers are gluten free supposedly but it sounds like you ate a milky way and they dont give me such a bad reaction but when i ate them the next day i felt better and ate something heavy like chicken and potatoes and i felt bloated which meant the malt damaged my intestines and it made it harder for my food to digest. i would suggest not eating it again.

0

Share this post


Link to post
Share on other sites

If it has malt you're going to react. It may be a small amount of malt so maybe you won't react as bad. That also depends on how sensitive you are. Experimenting with gluten isn't a wise choice to make. It's autoimmune, so every time you do that, your intestine gets damaged and so does some other part of your body. It's not worth it.

0

Share this post


Link to post
Share on other sites

No offense, but I am taken aback that people would actually plan to eat gluten just to experiment with reactions. Even if your symptoms aren't severe, it's having detrimental affects on your body. I'm with sandsurfgirl...it's not worth it.

0

Share this post


Link to post
Share on other sites

Thanks for this. I've heard other ingredients like wheat glucose syrup are safe but haven't tried them yet. I also heard lindt milk chocolate only has 3.6 ppm gluten so was going to try that and see how I go. Maybe I'm just really sensitive.

The mars bar I don't know that necessarily damaged my intestines, or did it? For an amount that small just once wouldn't it just get things up a bit and then slow down pretty quickly.

I'm 100% fine now, but when eating out at my usual place earlier in the day (the meals are probably always a tiny bit cc'd) today, I seemed to respond a lot more strongly to the 'tiny traces' of gluten that are normally fine (i.e. gluten-free toast with same butter spread) so it could be a slightly longer-term thing. Don't know for sure.

0

Share this post


Link to post
Share on other sites

Thanks for this. I've heard other ingredients like wheat glucose syrup are safe but haven't tried them yet. I also heard lindt milk chocolate only has 3.6 ppm gluten so was going to try that and see how I go. Maybe I'm just really sensitive.

The mars bar I don't know that necessarily damaged my intestines, or did it? For an amount that small just once wouldn't it just get things up a bit and then slow down pretty quickly.

I'm 100% fine now, but when eating out at my usual place earlier in the day (the meals are probably always a tiny bit cc'd) today, I seemed to respond a lot more strongly to the 'tiny traces' of gluten that are normally fine (i.e. gluten-free toast with same butter spread) so it could be a slightly longer-term thing. Don't know for sure.

It isn't just your intestines that are a concern if you are celiac. Some of us have no intestinal symptoms at all. The antibodies can attack any organ so you are risking damage to your brain, gallbladder, liver, joints and muscles etc and also end you up with lymphoma or other cancers. Please if you are a celiac avoid even small amounts of CC. It is just not worth the risk.

0

Share this post


Link to post
Share on other sites

Alright I'll leave the whole thing alone then. Seems odd how something as harmless as barley can hurt us so badly. Still new so I'll get used to it.

0

Share this post


Link to post
Share on other sites

Your post made me laugh. Alright then! Like a kid who was told not to eat cookies before dinner. LOL

Stop bargaining. There are plenty of chocolates that do not have any malt or gluten ingredients in them. Eat those. Let the Lindt and Mars Bars go. I'm not sure how old you are, but those of who are in our 40's or older at diagnosis... we don't bargain. You don't want all that damage in your body. You really don't.

0

Share this post


Link to post
Share on other sites

Your post made me laugh. Alright then! Like a kid who was told not to eat cookies before dinner. LOL

Stop bargaining. There are plenty of chocolates that do not have any malt or gluten ingredients in them. Eat those. Let the Lindt and Mars Bars go. I'm not sure how old you are, but those of who are in our 40's or older at diagnosis... we don't bargain. You don't want all that damage in your body. You really don't.

I'm 23 so that may explain some of it.

0

Share this post


Link to post
Share on other sites

You asked about how other's react so I'm going to chime in though I'm a little late. I accidentally got barley malt in a candy bar I thought was gluten free. As I bit into the bar, I turned it over to read the ingredients. Crap. Barley Malt. I thought it would be a mild reaction because I spit it out, brushed my teeth and threw the rest away. I was wrong. I got sick as a dog for a whole damn week. Migraine, nausea, unable to eat, D, fatigue, dizzy, brain fog, and depression. Wow! That is the last time I got glutened and it was some months ago...I will never forget it. But then, I'm in my late 40's. No bargaining for me. Now I strictly avoid anything that is even processed in a facility that also processes wheat. I never wanna be that sick again.

0

Share this post


Link to post
Share on other sites

No offense, but I am taken aback that people would actually plan to eat gluten just to experiment with reactions. Even if your symptoms aren't severe, it's having detrimental affects on your body. I'm with sandsurfgirl...it's not worth it.

I equate it to putting your hand on a hot stove. In your mind you know it will hurt and burn you. But some times you have to actually touch the stove and get burned for it to "sink in." If you associate something with pain then you are less likely to do it again.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,421
    • Total Posts
      930,469
  • Member Statistics

    • Total Members
      63,848
    • Most Online
      3,093

    Newest Member
    glutenfreekiddo
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hello Anonymous, and if nobody has said as much yet, welcome Don't worry (difficult to do when it can cause anxiety :P) it's very early days and you have a lot of healing to come.  If you've not already seen it there's advice and further info here:    It gets easier over time as checking becomes routine, you know your 'safe' products and your eating pattern changes. You'll get there  Maybe start a thread of your own if you'd like some input from others? Finally, back on topic. My Aunt has narcolepsy and although she's fiercely resistant to giving up gluten she has now made a connnection to eating bread and it's onset. As often, not conclusive but suggestive...
    • Hello again   Well first thing is the - Usual disclaimers apply... and this is something you have to follow up with your doctors as you know. But it's helpful sometimes to get another perspective so here's this layman see's from outside.  What I have seen from the various results posted here is that people's numbers vary wildly and, just as important, the numbers often don't bear any direct relationship to the level of intestinal damage revealed via endoscopy. Ultimately although you're not scoring much above positive, you are scoring a positive  and there are a couple of other risk factors you've mentioned that are suggestive if not conclusive - you have another autoimmune which raises the odds of having another one for example.  You've had two tests that are positive. The purpose of taking the second test was either to invalidate or confirm the first. I'd suggest it's achieved the latter, at least inasmuch as a GI may want to check you via endoscopy. That's still the 'gold standard' of celiac diagnosis and would give you an idea if there's any intestinal damage. I suspect with 2 positive tests and the history above that's what they'll suggest.  If your doctor or GI doesn't want to proceed with that you have a decision to make. Push for a second opinion or new doctor or if you're done with testing give the gluten free diet a proper try. Make a journal and see if some of those subtle things you reference may actually be symptoms. Fwiw, there are a lot of people here whose thyroid issues improved dramatically once they were gluten free, so whether celiac or gluten sensitive you should certainly give the diet a try. Only however once the testing is completed and remember: 
    • Hi! I've just been recently diagnosed as Celiac through the whole biopsy-shebang, and I have a little bit of insight on the whole diagnosis thing and how I was eventually diagnosed, and my advice for you. Brace yourself, this might be a bit long, but it might be worth the read and I promise I will eventually get to the point. If you don't want the huge story, skip to the long line of capital As: I first saw my doctor when I had a few problems swallowing. I've compared it to when you're nervous and you feel like you have a lump in your throat - but after I eat and (sometimes) drink. I just mentioned briefly it to my family doctor when I was addressing another issue, but right away he referred me to a gastroenterologist and ordered a barium swallow x-ray test. The x-ray came back completely normal, and so the g.e. then suspected GERD, put me on acid blockers to see if they would work, no harm done sort of thing. The only thing I got out of the acid blockers were the side effects, so it was back to square 1. The g.e. said that the next test he could do was an upper endoscopy with biopsies. (hint: the celiac test!) Wanting to find a solution to my problems, the endoscopy was scheduled. Pretty painless, I was in and out in a day, but the results took much much longer. Biopsies, or the little pieces of my esophagus, stomach, and small intestine, were sent to the lab, and they came back clean. I didn't really go back to the g.e. for a whole year after that because life became busy, I wasn't prompted to follow up, and I just dismissed the swallowing problems the best I could and went on my way. Now, I've never been huge on the gluten, big bread-y sandwiches or croissants or pies were never foods that I super "enjoyed". I wouldn't feel bad after eating them, I just didn't like the taste of bread so much, but I loved cookies, cake and a lot of other things that do have gluten in them. I lead a lowish gluten life but I wasn't really monitoring it that way. Everything changed when I got really nasty (systemic) poison ivy. My eyes were swollen shut, and the rash was everywhere. I almost went to the hospital, but cooped out at the family doctor's place and got a script for prednisone (a steroid). But, I found that after I had tapered off the steroids, I had magically become lactose intolerant. So back to the family doctor again probably because I broke my toe or something, but we also got to talk about this magical lactose intolerance business (because I love anything dairy and it was indeed devastating). He was surprised as there is literally no correlation between steroids and becoming lactose intolerant. He asked me if I still had the swallowing problems, which I did, and so it was back to the g.e. for round 3. because my family doctor "does not believe in coincidences". Meeting with the G.E., he mainly addressed the swallowing problems telling me that he had done what he could to diagnose with the technology that we had at the highly specialized hospital that we were at, and I would have to travel about 3 hours away to see a different doctor who would do some tests involving the muscles in the esophagus. But right before I was about to leave, we started talking about lactose intolerance. He brought up other foods that I was avoiding (if any), and then the conversation went to gluten. I mentioned that I had an aunt that was gluten-sensitive. He advised that I do the blood test that can show an indication of celiac whenever in the future. I decided to do it that day. At this point in time, I was not eating much gluten because of the fact that it was personal preference. The normal range for values in this test is from 0 to 20. A few weeks later, I learned that I scored a 35. A second upper endoscopy with biopsies was scheduled, but this time I was told to eat a moderate amount of gluten everyday before the procedure. I ate about two slices of bread per day, which is more than I normally would. I was normal for the first two-three weeks of the gluten plus diet, but then I became really sick. I started getting the normal celiac symptoms, like diarrhea and extreme tiredness. Near the end, I had debilitating stomach pain and I was 2 times more asleep than awake each day. I couldn't do the 2 pieces of bread a day some days, but the pain was still there. I knew that I wouldn't ever have to force myself to eat bread for a test ever again. I was called a few days before my endoscopy telling me that a kid in a worse state than me had to take the OR during my time. I forced myself to eat more bread for another month and a half. The day finally came. I was diagnosed celiac, which I have concluded to be initiated by (1) the steroids/poison ivy and (2) the gluten binge fest.  AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA Celiac Disease isn't completely understood yet. Most of the time if you weren't showing symptoms when you were a baby (so your case) it means that celiac was/could be triggered by an event in your life that causes stress on the body (like stress, physical injury, etc.).  The positive result that you got from the blood test doesn't automatically mean celiac, but it could. Here's some options: Talk to your doctor (or a different doctor) or even a specialist gastroenterologist (you can get a referral from a family doctor (general physician)) and see if you can do the blood test again, you have to have some kind of gluten for this to work in advance, so if you don't want to break your gluten-free streak, than don't really invest in this option. If you feel comfortable, you could even ask to do this test under a few scenarios (no gluten (now) and after a gluten binge, compare results). If you do this test and your indication is low off gluten and then high after gluten, I'd probably skip the biopsy. That's a strong enough sign that you don't need to put yourself through the painful-gluten binge. Maybe this is what that first doctor just assumed. But having that test when you haven't had any gluten could make the difference - it acts as a control. Go straight to the biopsy. You could do this, but I'd probably do the blood test first. I went through a lot of stress with the gluten-binge that you have to do to get an accurate result, you would also be breaking your gluten-free diet that may/may not be helping you right now. Do nothing, stay on your gluten free diet hoping that it is helping you. But if you are not celiac or gluten-sensitive (celiac before it starts to wreck your small intestine), going gluten free isn't healthy - you can do some research on this if it interests you. If you feel bad/unhealthy after going gluten free it's probably a sign. Good luck, also know that you might come to a point of stress in your life that can start celiac's destructive path. Ultimately, it is your body, and you should not feel forced or hesitate to act on health issues that impact you.
    • I'm sorry that life is so hard right now. Really.  I can't imagine working 3 jobs and trying to manage this terrible illness.  I think about American society and their obsession with food often.  Whenever you look at the internet, there are all these fabulous gluten-free recipes, but when you don't have time or money to cook these things, a simple gluten-free lifestyle is just that - simple. There isn't a lot of variety, so it's kind of boring. But, I guess I have gotten used to being boring. I just eat corn chex and fruit or yogurt for breakfast. I eat a lot of eggs, beans, rice, corn tortillas, nuts, chicken, fruit and veggies.  A loaf of gluten-free bread will last me 4-6 months in the freezer.  I buy a bag of dried beans for $1.29, I soak them overnight, and put them in the crockpot the next day. I add different spices, sometimes chicken and Voila! - dinner is ready when I get home from a long day. Family gatherings are miserable and I haven't quite figured out the best way to deal yet. If my grandmother were still alive, I imagine she would be a lot like yours - well-meaning but not really able to understand the nitty-gritty.   I just reassure my family that I am fine and that they really shouldn't do anything special for me. I bring a bag of Hershey's kisses or other gluten-free candy I can nibble on along with my meal and then I try to treat myself to a nicer home cooked meal later in the week when I have time to cook - because who has time to cook during Christmas???? And, I agree with knitty knitty. If someone else in your family/friends were gluten-free for medical reasons, it would make socializing a bit easier. One of my husband's good friends is NCGS. When we get together as a group, we can make each other special dishes and it helps to feel less isolated.  Good luck!  
    • Hi!  Um, please forgive my quirky sense of humor..... Celiac Disease is genetic... All first degree relatives of people diagnosed with Celiac Disease should be tested for the disease, too.  Gall bladder problems are often associated with Celiac Disease.  Your diagnosis might save your whole family from further medical problems as they age and the disease progresses... You need to set a good example if relatives are similarly diagnosed.... and then everybody will have to eat gluten free at family gatherings....  
  • Upcoming Events