• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
salexander421

Protecting Yourself From Cc At Other's Houses

Rate this topic

Recommended Posts

So, for you super SUPER celiacs :P How do you keep yourself from getting cross contaminated while at friend's and families houses or at a function like a wedding etc.? How do you keep from going crazy when away from your house!?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I act like a crazy person, refusing to shake hands and hug if someone has been eating. I also jump up and leave if there is too much gluten around.

Last event I went to was a wedding. I was sure I looked absolutely crazy. When I next communicated with the bride she apologized for not being more sensitive about the gluten crumbs, that she hadn't realized that they would be a problem. I guess I didn't look as crazy as I had thought. I just looked like I was trying not to get sick. I told her that she had no way to know and not to worry about it. It was a beautiful wedding.

Share this post


Link to post
Share on other sites

At this point, I've stopped eating when those around me are, if they are eating gluten. I'll usually eat food on my own before a meal, use the meal time to socialize if I feel like I can do it safely, and then make myself food afterward, as well. But crumbs, and flecks of food, and hands that are touching food and then nudging my plate out of the way or moving my glass or whatever else - they are just too difficult eat around and stay safe. Made me sick too frequently.

When I eat at family houses where there's gluten, I wash my hands like crazy and treat every surface like it's potentially contaminated. If I touch ANYTHING (including the back of the chair to pull it out), then I wash my hands before they touch my food, my cup, my silverware, my mouth (the latter has been the hardest one to change my behavior on). I bring my own food. I have a mat, or paper towels, that I lay down under my plate and cup. I use my own plate and silverware that I bring with me. I now try to only eat with silverware when I'm out of the house, not my hands, because the silverware is easier to ensure cleanliness with. I bring my own dish soap and scrubby to clean off my dishes. I only bring glass or stainless steel with me so nothing can get cc'd that I can't scrub off.

I know there's a few other things we do that I'm forgetting right now, too. ^_^

It sometimes DOES kind of feel a little like I"m going crazy, but every thing I do now, I do for one of two reasons.

1. Not doing it has made me sick, a lot, in the past.

2. It makes things easier in the long run.

For the things that have made me sick, it usually took a while for me to really believe what the problem was. The hand washing, for example. I used to go to a hotel room with a microwave and I'd get my safe soap and water and wash the microwave down, wash down the countertops briefly, and then try to just use that area like I would at home. Where the microwave would be 'safe,' the countertops were safe, and I wouldn't have to wash my hands after touching them.

Didn't work. I always try a bit of whatever I'm cooking to take with me on the trip, now, so I know it will be safe for me when I'm away from home. And eating food I took with me from home, that I ate safely at home, I would get sick SO frequently, still. I wouldn't make it through a single DAY of a trip without getting ill until I started washing my hands every time I touched a surface, so that's what I do now...even though it's annoying as all get out!

Many of the things I bring with me, or utilize, are more convenience issues. I bring my own plate not because I can't get someone else's plate clean, but I would have to take out their plate and scrub the crud out of it with a scrubby and safe soap, every time I wanted to eat. Easier to bring my own where at least I only have to wash it.

When I didn't put a paper towel under my plate, if my fork fell off the plate, then I had to get up and go wash it off. With a paper towel underneath, it's still safe and I can just pick it up and use it. Things like that have become more commonplace.

It's still a lot of work. I don't like it (I'm a BIG fan of not working hard. :D). And I hope someday maybe I can think of better ways to do it...maybe where gloves more often, or have a routine that touches the least stuff so I have to do the least amount of handwashing. Even saw one of those little plate-sized tents people use to cover their food at an outdoor picnic and was thinking of how convenient that might be to keep gluten-free food safe around meal-times, possibly. At the moment, though, this is about as good as I've managed to get it.

I'm looking forward to hearing what everyone else does and getting some ideas!

  • Upvote 1

Share this post


Link to post
Share on other sites

I've stopped eating at people's houses. Even if they mean well they still get me sick. And they tend to get annoyed when they've specially served cut up fruit just for me and I won't eat it as the knife could have been used to cut bread just before or the cutting surface had crumbs etc. (I did get sick from cut up fruit one time and that ended my eating at someone else's house even if they try hard.) So instead I go out for a big meal just before going to anyone's house. If it is pot luck I bring one item that I can have and then I dive into it before anyone else can so there is no cross contamination with the serving spoon from touching a gluten item on someone else's plate.

Everyone looks a little confused when I say I just ate but it works better for me than getting sick. I make sure to eat a really big meal before going so that I'm convincing when I say I'm full and I'm not tempted when they are urging me to try just a bit of this or that as they know it is gluten free since they prepared it.

In terms of a wedding I did eat successfully at one but the caterer was very knowledgeable about gluten free food. If your going to something like that talk to the caterer and see how knowledgeable they are. If they aren't I would bring my own food and not eat theirs. In my case they served the food themselves, it wasn't self serve. Caters are much better about cleanliness than the general population. The non-gluten items were first in the food line so they were added to plates prior to any gluten items going on them and they had my gluten free bread wrapped up in plastic and set aside. I had a great meal and didn't get sick.

Michelle

  • Upvote 1

Share this post


Link to post
Share on other sites

Thank you everyone for all your ideas! I think the hardest part for me is not keeping myself safe but keeping my girls safe. I told my husband today that I'm just going to stick them in a bubble! Kidding of course :P We went to a wedding this past weekend and brought all our own food and we, all 3 of us, got sick. It's so frustrating! I'm taking this advice though and will just have to be a little more crazy than I already am...I think the nearing holiday season has me a little extra stressed about it all as well. Anyways, thanks everyone!

Share this post


Link to post
Share on other sites
Ads by Google:


Sometimes it is just better to feign illness and stay home. If you go you will get sick, so it's not really all that made up.

  • Upvote 1

Share this post


Link to post
Share on other sites

I don't know if I am super sensitive or not, but I noticed today that all the checkout lines at the grocery store, even the self-checkout ones, are covered in gluten crumbs because the grocery sells fresh-baked bread.

suffice to say I washed my jar of peanut butter and squash that I bought with soap and water when I got home. I also re-cleaned my cabinets recently and wiped down all the food that was already in 'em.

Share this post


Link to post
Share on other sites


Ads by Google:


I don't know if I am super sensitive or not, but I noticed today that all the checkout lines at the grocery store, even the self-checkout ones, are covered in gluten crumbs because the grocery sells fresh-baked bread.

suffice to say I washed my jar of peanut butter and squash that I bought with soap and water when I got home. I also re-cleaned my cabinets recently and wiped down all the food that was already in 'em.

I know! Last time we were at the store I let my girls ride on one of the little toy car shopping carts, I wiped it out really good because there were crumbs in it. Probably won't do that again! The stuff is everywhere!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,910
    • Total Posts
      943,450
  • Member Statistics

    • Total Members
      67,044
    • Most Online
      3,093

    Newest Member
    kdp
    Joined
  • Popular Now

  • Topics

  • Posts

    • Ennis_TX, thank you for your response! I will take heed of all your nutritional pieces of advice, one by one. And yes, I am aware that a gluten marathon is on the horizon soon.   Before doing the test, however, I shall try to fortify my diet with the nutrients you mentioned, and report back in a week or two.   I think adding some iron supplement is wise too.    
    • Yeah I thought that rant might make me look like a queer after reading it a bit later.....I am straight btw I just have very long and fine hair...that yeah it blows everywhere and gets in my mouth sometimes, and always pushing it with my hands or having to tie it up.  I blew up because it sometimes feels like I am talking to a bunch jocks with buzz cuts when it comes to hair....like people that do not understand no matter what you do....it is going to end up in your mouth and you have to keep messing it and working with it when the stuff runs like 4-6" past your shoulders.
      >.< thing is some times with the way your hair is.....you do not rinse it all out...some conditioners I have used in the past used to b ones you would not rinse all the way out....it sort of does become a issue that is very easily avoided. There are many more options for gluten free shampoos now days and many companies have taken the allergy/gluten concern to heart and removed them/used alternatives to boost sales to a larger demographic. Point is while yes I did blow up about it...and honestly in many cases the "hydrolyzed wheat protein" thing is a hit and miss on if it really contained gluten, but better safe then sorry is my bet and with tons of options....why chance it?


       
    • B-vitamins...most gluten and processed foods are enriched...your basically eating a multivitamin every time you have a slice of bread etc. Look for a full spectrum B-vitamin supplement, others can be magnesium, iron, vitamin d, folate, etc. You mention plenty of greens and fruit so ruling out vitamin A,C,K, and a few others. Hmm did you drop off your carbs too much? If your carb dependent you need more complex carbs from like sweet potatoes, rice etc. And what about fat and protein? I am a keto dieter, my body burns fat instead of carbs for energy so I can say it is quite important to have plenty of fats and protein in your diet. Try snacking on nuts/seeds between meals or making up a protein shake with almond butter in it between meals (again going but what you said you eat vs what you might be missing)

      I use Liquid Health for my spectrum B vitamins and vitamin D. Might look into them, being in liquid form you can just add it to a beverage. Might see about magnesium also, huge issue with many with this disease.

      On other after thought, your probably already very aware of...but you mention your not "diagnosed yet" you will have to do a gluten challenge of eating gluten for a extended amount of time daily prior to getting tested. http://www.cureceliacdisease.org/screening/
    • Thanks guys! I have an endoscopy/colonoscopy  feb 5th, so we will see. I have had digestive issues for the past like 10 years. GERD, migraines, lactose intolerant, dizziness on and off starting last year. My test just always show chronic inflammation, I thought they tested for celiac last time but it was only H. pylori samples. As much as I don’t want to have celiac I’m hoping this could be the root of my problem! My doctor said I should probably go gluten free after the test regardless of the results. You guys have been so helpful!! 
    • Well was trying it in smoothies, and puddings...but yeah  I can see it especially with the jelling effects causing some issues...will try again later. I changed over to pumpkin seeds higher in zinc today for my rotation.

      PS I am allergic to corn..and any kind of sugar messes with me. SO most meds are off limits. I went with Immunity Tea from Republic of tea, Ester-C Capsules, Thayers slippery elm lazenges sugar free, and a zinc Supplement for my remedy. Oh and sugar free meds normally contain that asu what ever stuff......makes me go off the deep end mentally.
  • Upcoming Events