• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
gott2be

Pregnancy Reverse Celiac?

Rate this topic

Recommended Posts

This might sound completely wrong, but I figured I'd put it out there and see if anyone else has had this occur to them. I was diagnosed with Celiac on 2/10/10. I got pregnant in March of 2010 (hardly even a month after my diagnosis). I stuck to the gluten free diet the entire time I was pregnant... knowing that was going to be best for my unborn child. Okay, so, I had him in December, and after I was done breast feeding, I felt the need to splurge.... so I did, and I admit that I never suffered any consequences for it. Now, that was back in March of 2011... I've watched what I intake for glutenous foods, and make sure that if I do "splurge", that I make sure there's weeks in between splurges. Well, since I figured that because I wasn't having a reaction to eating the foods that would normally send me running to the bathroom, I started lessening the gap between splurges, and have still found that I haven't suffered any consequences. This week has been a "bad" week for me as far as the exposure to those delicious glutenous foods, and I haven't been able to resist the temptation. I have probably eaten something glutenous every day this week and have yet to have any reaction. So, basically what I'm wondering is this. If celiac disease is something that you can carry your whole life and then comes out when triggered by something, is it possible that it can go back into hiding due to something like being pregnant? I know every person is different, especially when it comes to the effects of gluten on their system, but I would like to know if there's ANYONE else out there that has experienced what I'm experiencing! Thanks!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


This might sound completely wrong, but I figured I'd put it out there and see if anyone else has had this occur to them. I was diagnosed with Celiac on 2/10/10. I got pregnant in March of 2010 (hardly even a month after my diagnosis). I stuck to the gluten free diet the entire time I was pregnant... knowing that was going to be best for my unborn child. Okay, so, I had him in December, and after I was done breast feeding, I felt the need to splurge.... so I did, and I admit that I never suffered any consequences for it. Now, that was back in March of 2011... I've watched what I intake for glutenous foods, and make sure that if I do "splurge", that I make sure there's weeks in between splurges. Well, since I figured that because I wasn't having a reaction to eating the foods that would normally send me running to the bathroom, I started lessening the gap between splurges, and have still found that I haven't suffered any consequences. This week has been a "bad" week for me as far as the exposure to those delicious glutenous foods, and I haven't been able to resist the temptation. I have probably eaten something glutenous every day this week and have yet to have any reaction. So, basically what I'm wondering is this. If celiac disease is something that you can carry your whole life and then comes out when triggered by something, is it possible that it can go back into hiding due to something like being pregnant? I know every person is different, especially when it comes to the effects of gluten on their system, but I would like to know if there's ANYONE else out there that has experienced what I'm experiencing! Thanks!

While I cannot comment specifically to Celiac, I can tell you that my sister went into remission with her Crohn's Disease while she was pregnant and breast feeding her two boys. IMHO, it would be in the realm of possibility, but would not necessarily happen for everyone. My 2c...

Jen

Share this post


Link to post
Share on other sites

Why not? I'd always assume it could come back, though.

I probably have/had endometriosis - and the best "cure" for that is supposed to be pregnancy. And so far it has worked. My son is 9 and I don't have the awful cramps. Then again, I was in the middle of dx when I got pg, and since I also appear to have gluten issues (and intestines are awfully close to the uterus) - who knows. Maybe it wasn't endo, but was Celiac????

If you were dx'ed via endoscopy I'd ask for another one to see how your insides are doing.... You could just be asymptomatic and still be accumulating damage. Or, you could be having symptoms you simply don't relate to gluten.

Share this post


Link to post
Share on other sites

Why not? I'd always assume it could come back, though.

That's how it happened with my sister's Crohn's. It went into remission (and yes, they have said *remission* not cure) during both of her pregnancies and then reappeared after.

Share this post


Link to post
Share on other sites

Even if I were not having symptoms, I would still be concerned about the potential of long-term repercussions (or health risks) of eating gluten after being diagnosed celiac.

Share this post


Link to post
Share on other sites
Ads by Google:


Even if I were not having symptoms, I would still be concerned about the potential of long-term repercussions (or health risks) of eating gluten after being diagnosed celiac.

I agree completely. I will not even spend a second considering it, just saying that I do believe it is possible.

Share this post


Link to post
Share on other sites

Autoimmune disease generally can go into remission when pregnant, a rule of thumb is 30% get worse, 30% get better and 30% remain the same (not sure about the other 10% haha!). Mine did, as did my asthma, I felt a million dollars! (my gluten stuff didn't though - I made the mistake of eating it an ended up in ER) Having said that, they do come back. Even if you feel fine during pregnancy it won't last forever. Mine started back within weeks of giving birth- DOH. I had moments during the pregnancy thinking I had imagined my connective tissue stuff...but alas it's back. My rheumy says it is very common!

Share this post


Link to post
Share on other sites

I posted in the prediagnosis forum, but what I guess I didn't say was that since I delivered my son, a year ago, I haven't been taking my dapsone, I have DH, evidently in remission. I am pretty much on a normal glutenous diet. i want to know if even w/o symptoms, I could still be doing myself a disservive. Derm and GI both just say to enjoy a normal lifestyle, but even though I am in remission, I am very worried.

Share this post


Link to post
Share on other sites

I posted in the prediagnosis forum, but what I guess I didn't say was that since I delivered my son, a year ago, I haven't been taking my dapsone, I have DH, evidently in remission. I am pretty much on a normal glutenous diet. i want to know if even w/o symptoms, I could still be doing myself a disservive. Derm and GI both just say to enjoy a normal lifestyle, but even though I am in remission, I am very worried.

Personally, I would not be willing to take that risk. But you have to decide for yourself what you feel safe doing/not doing.

Jen

Share this post


Link to post
Share on other sites

I had my son 7.5 years ago, and I assure you, it didn't cure me.

If you wanted to take a risk, and it is a serious risk, you could eat gluten-y (at least = 2 slices of bread per day) for a month, then have the blood test again. If your antibody titer goes up, you're still having a significant antibody reaction and should not continue.

If it doesn't, well, I've never heard of anyone being "cured" of celiac disease before, but it could happen.

Good luck.

TK Kenyon

Share this post


Link to post
Share on other sites


Ads by Google:


I'm 8 months post partum with my second child in 4 years. I've likely been undxed celiac since childhood.

I lost lactose tolerance when I was 19.

When I'm pregnant I dont have any problems eating wheat or milk... Some malformed stool and constipation.. Meh, right?

Wrong. When you are pregnant your immune system must suppress itself to allow the baby to exist to term.

That suppression allows gluten to sneak in. Along with milk.. And whatever else because your body is trying to also get every nutrient it can.

When you do that it will bite u.

It started for me with the hard core ataxia 6 months ppd.. The dh on my stomach.. High blood pressure..visual stuff

Now I'm cross reactive to pretty much every grain.

If you react to things do not abuse your immune system's loopholes while pregnant!

  • Upvote 1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,966
    • Total Posts
      943,701
  • Member Statistics

    • Total Members
      67,279
    • Most Online
      3,093

    Newest Member
    Jean 67
    Joined
  • Popular Now

  • Topics

  • Posts

    • LOL yeah miralax was a joke for me WHOLE BOTTLE NOTHING, doctors thought I was lying. I found the ONLY thing that works for me is Magnesium Citrate, the bottled fizzy stuff for colon preps. Daily maintenance requires me to take Natural Vitality Calm daily, you dose to tolerance start off at 1/4 tsp 1-2 times a day and up it to the full dose over a week. If you get loose stools cut it back. You dose to tolerance with magnesium and with this disease a issue with absorbing it is very common, causing chronic constipation in many and requiring supplementation.
      Try going to a whole foods only diet for a while with soups and stews with veggies and meats also. Nut butters and avocados help lube up the system. I use some other seeds etc to add in bulk but I think we need to focus on clearing your out first before regulating.
    • I would say no even then....it belongs in its own little corner in hell. We have had members get sick from cross contact touching and handling paper mache, playdough, and dry wall spackle containing wheat then touching their mouths, or food.....heck you can inhale the powder from the sanding spackle and have it get trapped in the mucus in you respiratory tract to run down your stomach and make you sick......has happened to a few on many occasions.
    • Cross reactivity is a bit of a myth type thing, but we do get food sensitivities and intolerance issues that do creep up and they are always different for each person. A food diary and keeping track of what causes symptoms is what you need to do. Here is a true gluten avoidance list and a article on food sensitivities.
      https://www.celiac.com/articles/182/1/Unsafe-Gluten-Free-Food-List-Unsafe-Ingredients/Page1.html
      https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
    • Me too. I still get transient lower back pain occasionally when my bladder or colon is full. It goes away immediately on voiding. Regardless of anything other diseases you may have, being wheat free gives you relief so even if not Celiac you are Non Celiac Wheat Sensitive. There are over 200 symptoms that are improved with GFD gluten free diet. Google it. It is an impressive list. In any case, while it is good to have a diagnosis, there is only one treatment, do not eat wheat and deal with the inevitable malnutrition damage.(think Biafra babies 1970.) Most will improve over time. Whatever doesn't improve should be investigated to be safe, but realize that recovery may take years. Wheat flour used should be limited to Paper Mache sculpture and library paste.  
    • Here is a partial list of what I no longer suffer from as a result of not eating wheat. Some like the sleep apnea and gerd and back pain and addiction to alcohol were almost immediate. The foot pain is improved to just numbness sometimes. My long term depression went away when I added vitamin D 10,000 iu a day for a year, but the improvement started almost immediately. Muscle tone and energy improved when I added iodine. one sheet sushi seaweed a day. My Fibromyalgia is controlled with 15 mg oral Prednisone a day. I remember as a kid waking up and having to pick the dried mucuos off the roof of my mouth. That is gone and for the first time in my life I am a nose breather. Drink lots of water to help with the mucous if it is thick. Some mornings mine is like rubber cement. I need to quit smoking now.  You can improve have faith, but healing takes time. Stay the course. A Romaine lettuce salad everyday helped the gut pain. Gerd shortness of breath sleep apnea back pain snoring prostrate hypertrophy contact lens protein buildup night vision improved cataracts reduced head hair growth foot pain sleeping no more than 2 hours at a stretch slow healing no energy. Pretty much bed ridden. 
  • Upcoming Events