• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
strausserc

What Is Considered Too Much Vitamin D ?

Rate this topic

Recommended Posts

My son is 15 and has been on a gluten-free diet for about 15 months at the reccomendation of our chiropractor after a bus load of symptoms that mimic Celiac Disease. After just 6 days all of his symptoms improved to the point that he wasn't willing to go off of the gluten-free diet and go back to the way he was feeling before the diet to be officially tested. So...he just continues on eating gluten-free. Blood work at that time showed that his Vitamin D level was low so he was put on 50,000 units of Vitamin D 3 times a week for 12 weeks. More blood work showed that it went up a bit but not like the Doctor thought thought it would taking that amount. This has continued for about a year and a half and he is now taking 50,000 units 2 times weekly at the suggestion of our Doctor. I have asked why his level is not going up and exactly WHERE is all of this Vitamin D going ? I know that too much isn't good either but have read conflicting info on exactly how much is too much. I am wondering if there is something else that they are missing. He is having trouble with his kidney's and bladder also that started around the same time he started taking these large supplements. It is making me very nervous...I am not sure what to do. Anyone have any experience with this ?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Vitamin d is one of those vits that our body does not produce. We actually receive it from the sun thru our skin and that is the best source for our bodies. However, many of here have asked this same question as many of us suffer from lack of vit d. If the body is having trouble absorbing in the first place, we are only getting part of the nutritional benefits of anything we eat and any supplement we take but how much we are actually receiving is hard for us to know.

Concerns for too much d is organ failure and I understand why you would ask this question.

Personally what I have done is I have played with amounts to keep the symptoms away. Perhaps kind of not so good measurement as we store our vits like banks in our bodies so depending on the vit, you may not see the results of a decrease or increase for 7-10 days. I take 5000 IU daily plus whatever is in my multi vit. As an experiment when clouds rolled in and I found myself terribly fatigued again, I increased my d to 10,000 for one week. Can tell you I felt a whole lot better but was concerned about the amount so have cut back to what I was tkaing before and trying to find ways to get sunlight every day.

You could cut back and see if his symptoms come back, and try to get more sun. There are foods that you can eat as well. Of course lots of dairy items are fortified with d but also eating fish with bones like sardines is supposed to help.

Share this post


Link to post
Share on other sites

I think you need to get him followed by someone other than a chiropractor. You definitely need a second (and possibly third) opinion at the absolute minimum.

  • Upvote 2

Share this post


Link to post
Share on other sites

I agree with Skylark. That's also alot of vitamin D and if its bladder symptoms maybe its not absorbing through the intestines like it should and absorbing through the bladder instead. Or kidneys even.

Share this post


Link to post
Share on other sites
Ads by Google:


I first had my vitamin D levels tested about four years ago because of my osteoporosis. They were quite low so I increased my supplementation for a year and retested. The levels had dropped. My PCP and nutritionist had no clue as to why they were lower. For the past three years I have supplemented with about 12,000 units a day with testing every six months. The levels did not rise significantly until I went gluten free. I have now backed off some on what I take and will retest in a few months. Everyone's body is different. You need to get your levels up but be sure to test.

Share this post


Link to post
Share on other sites

I first had my vitamin D levels tested about four years ago because of my osteoporosis. They were quite low so I increased my supplementation for a year and retested. The levels had dropped. My PCP and nutritionist had no clue as to why they were lower. For the past three years I have supplemented with about 12,000 units a day with testing every six months. The levels did not rise significantly until I went gluten free. I have now backed off some on what I take and will retest in a few months. Everyone's body is different. You need to get your levels up but be sure to test.

Thanks for this reply. Could you tell the difference in your body from being so low compared to actually being able to absorb and backing off? Mine is very noticable for me. I get my bloodwork this next week and will talk to doc about it.

Share this post


Link to post
Share on other sites

Thanks for this reply. Could you tell the difference in your body from being so low compared to actually being able to absorb and backing off? Mine is very noticable for me. I get my bloodwork this next week and will talk to doc about it.

The increase was gradual over several years, so, no, I could not tell a difference.

Share this post


Link to post
Share on other sites

vitamin D is a fat soluble vitamin. If your son (or anyone for that matter) does not have an adequate intake of healthy fats in his diet, vitamin D cannot be metabolized properly, regardless of the dosage he takes.

The current government suggestions for a low fat high carb diet are all backwards, and leaves most people deficient in fat soluble vitamins A, D, E, and K. If you turn the food pyramid upside down though, your body will be better able to metabolize these vitamins. Eat healthy sources of fats like avocados, fish, chicken with the skin on, pork with fat on it, beef with fat on it, seeds like flax seed, chia seeds, nuts, dairy, olives, olive oil, coconut, coconut oil etc etc etc...

http://nourishedkitchen.com/fat-soluble-vitamins/

  • Upvote 1

Share this post


Link to post
Share on other sites


Ads by Google:


My son is 15 and has been on a gluten-free diet for about 15 months at the reccomendation of our chiropractor after a bus load of symptoms that mimic Celiac Disease. After just 6 days all of his symptoms improved to the point that he wasn't willing to go off of the gluten-free diet and go back to the way he was feeling before the diet to be officially tested. So...he just continues on eating gluten-free. Blood work at that time showed that his Vitamin D level was low so he was put on 50,000 units of Vitamin D 3 times a week for 12 weeks. More blood work showed that it went up a bit but not like the Doctor thought thought it would taking that amount. This has continued for about a year and a half and he is now taking 50,000 units 2 times weekly at the suggestion of our Doctor. I have asked why his level is not going up and exactly WHERE is all of this Vitamin D going ? I know that too much isn't good either but have read conflicting info on exactly how much is too much. I am wondering if there is something else that they are missing. He is having trouble with his kidney's and bladder also that started around the same time he started taking these large supplements. It is making me very nervous...I am not sure what to do. Anyone have any experience with this ?

1) You are raising a smart son!

2) Is the Vit D that he is taking D2 or D3? If it is the little green footballs it is D2 and is not

the better choice.

3) Getting small amounts of SUN shine daily, is the optimum method of obtaining Vit D.

4) Good luck!

  • Upvote 1

Share this post


Link to post
Share on other sites

I was also diagnosed by a chiropractor/nutrition specialist and he has me taking 10,000 iu a day of Vit D3. Healthy fats are definitely a must. I'm vegan, so this is usually avocado, olive oil, nuts, coconut oil etc. I cut down on my supplements on the days I can get at least an hour of sun with signifigant skin exposure (tank top and shorts) otherwise I keep it the same. I am going to talk to him about getting tested and possibly increasing his week because I have been very fatigued. Not sure if it is the cold cloudy weather or something else. Good luck!

Share this post


Link to post
Share on other sites

vitamin D is a fat soluble vitamin. If your son (or anyone for that matter) does not have an adequate intake of healthy fats in his diet, vitamin D cannot be metabolized properly, regardless of the dosage he takes.

The current government suggestions for a low fat high carb diet are all backwards, and leaves most people deficient in fat soluble vitamins A, D, E, and K. If you turn the food pyramid upside down though, your body will be better able to metabolize these vitamins. Eat healthy sources of fats like avocados, fish, chicken with the skin on, pork with fat on it, beef with fat on it, seeds like flax seed, chia seeds, nuts, dairy, olives, olive oil, coconut, coconut oil etc etc etc...

http://nourishedkitchen.com/fat-soluble-vitamins/

Thank you for this info, I found ir very helpful!

Share this post


Link to post
Share on other sites

Be careful suggesting sunlight. Some people are very sensitive and can damage in as little as 10 min per day. Also for some reason, I think some people can not metabolise Vit D from the sun. Best to get a blood test done.

Share this post


Link to post
Share on other sites

Be careful suggesting sunlight. Some people are very sensitive and can damage in as little as 10 min per day. Also for some reason, I think some people can not metabolise Vit D from the sun. Best to get a blood test done.

Since, in general, the human body is MADE to be touched by the sun......10 minutes causing damage would be rare...if you are talking photosensitivity caused by drugs we are on another subject. And I did specify SMALL amounts of sun.....

Share this post


Link to post
Share on other sites

As I said, best to get a blood test done. Different parts of the world, different seasons, different strength of sunlight!

Share this post


Link to post
Share on other sites

....and, thinking about it, I am sorry I bit back, though it did sound to me a bit attacking. :(

I had two of my vit D tabs the other day and was amazed at how much extra energy I had that day, will have to see if it is continued or just a fluke. :)

Share this post


Link to post
Share on other sites

Be careful suggesting sunlight. Some people are very sensitive and can damage in as little as 10 min per day. Also for some reason, I think some people can not metabolise Vit D from the sun. Best to get a blood test done.

Very interesting.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,939
    • Total Posts
      943,600
  • Member Statistics

    • Total Members
      67,270
    • Most Online
      3,093

    Newest Member
    Ya'akov
    Joined
  • Popular Now

  • Topics

  • Posts

    • I am wanting to make a mac and cheese recipe that calls for cheddar cheese soup.  Anyone know a substitute for this?  Campbell's has gluten :-(
    • Hey!  I also recently started a gluten free diet because of non Celiac's gluten sensitivity, and as a college student who can't really eat in the dining hall or participate in late night pizza runs, I totally understand where you're coming from. First things first: you probably aren't as much of a burden on people as you think you are. They most likely understand that this is a big transition period for you and will take time. If you are really worried about it,  just talk to them, explain your concern and try to come up with a plan. I have found that if I don't make a big deal about being gluten free, neither will anyone else. The first time or two matter of factly explain that you cannot eat gluten for medical reasons, after that, if someone offers you something you can't eat, I have found it to be best to just respond with a simple "no thanks!" As far as making sure you don't starve, nut based granola bars (such as kind bars) are your best friend. I always try to have one or two handy, especially on trips! ( I like to have savory ones, like Thai chili flavored, that way it feel more like eating real food than sweet flavored ones!) That way, if there is really nothing you can eat, you always have something. I also scoured celiac and gluten free blogs my first few weeks and figured out what fast food places have Celiac's and NCGS friendly options (Chick-fil-A is a good one, I usually get their fries and request that they fry them in their designated gluten free frier, and a side salad, Wendy's is also good, you can get any of their baked potatoes, chili, or side salad with no croutons, there are a lot of other places too, but there are my favorites) I have found that a lot of times there are things that we can eat places, but because Celiac's and especially NCGS is something that has just started to get more attention, most people, even those working at restaurants just aren't familiar with it, and most restaurants do not have a designated gluten free menu. Your smart phone and Google are also great, I am all the time in a  restaurant googling "does (restaurant's dish) have  gluten?" Usually we can eat salads, and burgers and such without buns, but it is always a good idea to just tell your waiter or the person taking your order something to the effect of " hey! I am unable to eat gluten for medical reasons, which means I can't have things made with wheat, rye , or barley, or anything that touches things made with it, I was hoping to have (dish), Which isn't made with any of these things, but was wondering if you could use clean utensils and preparing area, that way I don't get sick! Thank you!" Usually people are more than happy to help, they just don't understand your situation. As far as you feeling like less of an outcast, this transition period has been a great time for me to realize the importance of hanging out with people and enjoying their company, even if you can't fully participate. No one really cares if they are all eating pizza and you are eating a sandwich you brought on gluten free bread. People are going to express concern because they care about you and don't want you to be hungry or feel left out. Whenever someone says something like " oh will you be able to eat anything here?" Or "oh I'm sorry I'm eating (delicious gluten thing)" just not making a big deal out of it and saying something like "oh I'm good anywhere!" (Because you are with your granola bar! Also you can almost always eat salad) Or "no, you enjoy what you like!" Will make you and them feel better. For a while you will feel a little left out, and that is okay, but I have found that I am so much happier when I go on that pizza run with my friends and a granola bar, even if at first you have to fake it till you make it! Good luck! I know it isn't easy, but it does get better!💙💙
    • Anyone who has ever tried to get an official diagnosis for celiac disease has likely experienced one very unpleasant reality: Having to eat wheat for a couple of weeks to make sure the antibody tests are accurate. Currently celiac diagnosis requires gluten consumption. This can be hard for people who have already given up gluten. View the full article
    • Perhaps automated word pull as JMG suggested. It is irrelevant, but I must comment :  Oddly was entertaining for me today (on a rough day) to read this drivel that included celiac bashing . The celiac dis didn't even hurt, for it was from someone who could not formulate a coherent rational  thought  and shared that publicly. At first I wondered what substance the author was on, then I read further to discover more of this odd piece. The author is all over the place. The piece is also laced with a poorly excuted, back handed attempt to express judgement , anger, and veiled hate in a masked arrogant self subscribed Christian label.  Sure the author  makes a point of shaming the offenders who dropped off the offensive clothes. If the author were perhaps more coherent and a better writer the piece could be borderline offensive or effectively shameful. Alas it is neither.  I however felt sorry  not for the donation facility , the homeless , or the readers, but felt sorry for the author . The author clearly has a lot of self hate, anger, low self esteem, poorly hidden beneath a false facade of uppityness, narcissism, arrogance, while identifying /self labeling as a Christian.  I very rarely get to read a piece where I can play/exercise my brain as lay person couch psychologist . This piece lends itself to that perfectly. I went to the link and read the comments below the article from the real people who express how best to give to those in need, where, and how appropriately. So all was not lost. The right people commented kindly, respectfully, logically, in a helpful guiding way and without hate or shame. So regardless of how admin got this article here - most of us should skip this for the rest of us  bored enough or seeking an odd entertainment piece that does not relate to celiac , let's hope the author gets the help they need as a disgusting gluten-free sandwich has more to offer to society. 😉 Lol  
    • Hi Gemma, Welcome to the very select, exclusive, super secret club of NCGS (or I if you like), where you get all the fun of living the gluten free diet with the added scepticism of half the medical establishment and most of the general public   If you're interested in learning more, there's some good resources collected here:  Feel free to add or just post there if you like.  It's great that the diet is working for you. The emotional side is difficult no doubt. It does get easier, trust me, for you and those around you also. You get better at planning, at coping, at working around it etc. The availability of safe foods and wider knowledge continues to improve year on year.  I've barely been back to Germany, one of my favourite countries, since going gluten-free but take some comfort in the fact that its always harder in a different country with a language barrier as well, but even so there's hope: https://foursquare.com/top-places/berlin/best-places-glutenfree-food https://www.tripadvisor.co.uk/Restaurants-g187323-zfz10992-Berlin.html You maybe need to accept there's a level of preplanning needed now that wasn't there before and if you do that you can still be spontaneous in other ways? Expect some setbacks, at times its ok to cry. Or, er happen to get something in your eye if you're a strapping bloke who should know better  Keep a good supply of nice safe snacks and treats at close hand. In your car/bag/pocket. Eat well before you go out. Have your freezer well stocked with nice safe food and your fridge too. Get to know what easy safe options are available, Are you in the UK? Join Coeliac.org and they'll send you the brilliant guide which will unlock so many safe, cheap foods, also available as an app. And post here, lots of good people with advice and support. Best of luck, Matt  
  • Upcoming Events