• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Suicide Rate Amoung Coeliac/celiacs
0

5 posts in this topic

IS there any kind of research on this? I know the prevalence of depression and anxiety is much higher in Coeliacs but have never heard much about suicide pertaining to the disease, although I am certain it must go on, alot probably dont even know they have Coeliac.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


*among...brainfog! No not really I just spelt it wrong.

0

Share this post


Link to post
Share on other sites

IS there any kind of research on this? I know the prevalence of depression and anxiety is much higher in Coeliacs but have never heard much about suicide pertaining to the disease, although I am certain it must go on, alot probably dont even know they have Coeliac.

The key to my answer is what I have bolded. They would not routinely do any GI biopsies on autopsy with someone who has committed suicide.

I do know that if I hadn't had any children when I was on my long and painful road to diagnosis I would be one of the unknown statistics.

I did commit suicide at 11 when the neuro symptoms hit me really hard but thankfully I was brought back in the ER. Would they have known that it was celiac associated depression that caused it, no. And neither did I until almost 40 years later after I was gluten free and got glutened and saw the relationship between my being glutened and my suicidal ideation.

0

Share this post


Link to post
Share on other sites

I've wondered if my birth mother's suicide at 45 was in some way related to undiagnosed celiac. She had a wheat "allergy" that she ignored, a strange rash, behaved erratically and violently, was depressed, said the strangest crap, poor memory, had a host of health problems (real or imagined we don't know), etc. In myself, after dropping the gluten I recognized some of the same crazies in myself, including thoughts of offing myself. (The only reason I didn't was because of what it would do to my brother.) And I wonder if she had simply cut those foods out of her diet she might not have been such a fruit loop and if the suicide could have been prevented.

As for research, I don't know of any, but it would be interesting. There are snippets scattered all over this forum regarding folks' suicidal thoughts and attempts, old and new. Fortunately, those people are with us today to share their thoughts and lives. (Raven, I'm really glad you're here!)

0

Share this post


Link to post
Share on other sites

I've seen it mentioned that DH (the skin form of Celiac) was considered to be a high risk for Suicide before they figured how to treat it. It's supposed to be one if the most miserable skin conditions, ever.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,786
    • Total Posts
      932,420
  • Member Statistics

    • Total Members
      64,267
    • Most Online
      3,093

    Newest Member
    Michelle Robinson
    Joined
  • Popular Now

  • Topics

  • Posts

    • I can tell you that the head pressure you are speaking about is one of the symptoms I am experiencing now.  And fogginess and dizziness.  I'm going to go as long as I can with my challenge. Im hoping the new GI I'm going to see will work with me. I would like him to do blood work every month to see if levels are changing.  There were so many problems with my daughter's challenge and testing. U of C at the time only recommended a 6 week challenge. And only tTG IgA and total IgA were run. Not a full panel. Well after the biopsy and when insurance wouldn't give us another referral we were told that there was a more extensive panel. By then she was gluten free and we were not going back.  
    • People are able to find a very old topic and add to it (bumping it up to current).  We need to remember to check the dates and realize that these people from 10 years ago may not respond.  Also, remember that product info, ma be even medical info, can change in that amount of time.
    • When I was changing doctors due to insurance issues, I got one doc who I told I had celiac, and had been gluten-free for 2 years. He ordered a blood test and said I DID NOT have celiac cause the blood test came back negative....I looked at him like it was crazy, told him course your not going to detect the antibodies in test if I am not eating it. Told him to go back to med school and never went back. Similar experience with another doctor around that time....funny memory glad I found one that knows about the disease to some extent.
    • ÖThe potential celiac or  NCGS  diagnosis is given to me by the Celiac researchEr.  I do not think it's official until after we meet again.  actually I have not heard of that doctors work. I will look it up and see if I can listen to an interview. Thanks for sharing.  some of the symptoms that I continue to have Had on a strict gluten-free diet or similar to what I have now  and some of them disappeared. Of course During that time I was thrown on Xanax and some Protonix even though I don't actually have acid reflux. So there may have been some symptoms that were caused by those medications but I've been off Of Them for months now.  I guess headed pressure would be one of the more prominent symptoms  that I still had on a gluten-free diet although it's much much worse recently well I'm gluten.  it was almost like I can feel a strange sensation in my gut and the head at the same time but it's nothing like what you would think it wasn't cramping it wasn't... I don't know how to describe it. it does not feel anything like sinuses it's a really strange feeling like my brain Is inflamed Or being squeezed.  When I first started getting it it scared the living crap out of me because I thought I was going to end up passing out. I would be afraid to drive alone with my young son. Now admittedly I was diagnosed with inflammation of the small intestine in late August and was gluten free throughout the fall but started eating it again in late December. So I may not have given myself a tremendous amount of time to heal from the August duodenitis.   Currently I have pain in the right rib cage area,  I also get a tremendous amount of pressure in that area mostly when I'm sitting. Kind of like when us pregnant women had a baby's foot stuck up in that area.  I get nausea on and off, some shortness of breath, dizzy,  when my brain gets that  pressure my eyes often feel it as well, and I get some transient numbness and tingling in my hands and oddly in my face.  last summer I had Random episodes of blood pressure drops as well. I would start to really not feel well and noticed that eating actually helped those episodes. I was exercising a lot At the time but ate constantly  and was maintaining my weight. One doctor theorized it might be my blood sugar dropping so I bought a monitor but I never caught that. The only thing that I did catch was when I bought the blood pressure monitor and started taking my blood pressure when these episodes were happening.   for the most part I had pretty good health up until about a year-and-a-half ago and a very strange six months or so about 13 years ago where a lot of neurological stuff happened as well. I had vertigo, visual disturbances, eye floaters, muscles twitching, ants crawling sensation on my scull, some really strange stuff. It lasted about 6 months and over time it just went away.  except for the eye floaters, they stuck around. I'm not particularly concerned about them it's just that they were not there one day and I had some visual disturbances and Bam there they were and they never went away. I have a half-sister with MS but we ruled it out for me at that time and we also ruled it out last summer as well.   I did the whole 12-week thing that they're suggesting for your daughter. We figured the six weeks wasn't long enough.  For the most part other than a few weird things I honestly didn't get strange symptoms until the end of the six weeks so 12 weeks made sense. I think I actually ended up doing 10 weeks before the biopsy This time. Nothing but the increase in IELs.  I know they only biopsy the duodenum and I wonder sometimes if it's not just lower down. But with the negative blood work except for that one random test I don't know if it's really worth pursuing any more testing at this point. I'm so tired.  I know my brother is seronegative but that's pretty rare although I have no idea whether or not they've ever done a study on if that happens to be familial.  I also would really like to know if people who test positive for TTG 6 have any gut damaged. Because if that's the case perhaps there is no seronegative celiac disease  Have you read Dr. Fasano's work?  he writes back both Celiac and ncgs.  How long are you doing your challenge for again?  I know you may be anxious for answers as well but my suggestion just from personal experience would be to go as long as you can. 
    • I should qualify that I'm actually consuming the equivalent of 1-3 slices of bread in the form of vital wheat gluten. Sometimes I have bread, if I'm eating out. But I don't really want all of the carbs and I want to demonstrate that it actually IS the gluten causing the problems and not a Fodmap issue.  My reaction to bread and my reaction to the gluten are the same.  I'm actually shocked at how quickly things have changed. My hair is starting to thin again (boo hoo 😩), and my stools are completely different and it's only been about two weeks. The headache and dizziness and nausea are the worst.  Ennis, you are right. You would think that all of these symptoms would show on blood work. Grrr. I'm hoping that the GI I'm seeing on June 7th will run a preliminary full celiac panel.  It will only be 4 weeks by then.  Will it show something?  My sister has her PhD in immunology and I remember her saying how difficult research in immunology is because you need clearly high antibodies to demonstrate anything. 
  • Upcoming Events