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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Twitching In Fingers - Neuro Or Ortho?
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11 posts in this topic

Ok, question.

One of the symptoms I attributed to gluten was the "shaky left hand". It improved off gluten. Worsens when I feel bad - assume gluten exposure or during DH breakout.

A week or do ago I started noticing it again, maybe it started when my blood sugar was off. I guess I noticed it was still around when blood sugar got stable.

Anyway, I don't notice the shaking as much now - just when I try to do the Spock move (seperate fingers in groups). Within the last few days I've noticed my right pointer finger and thumb sometimes contract....what the left hand did initially (year+ ago).

So, at this point I can't ignore it anymore and assume it was gluten. So, where should I go first - neuro or ortho???

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For me that would mean that my magnesium and/or potassium levels are low. I would consider it a neuro issue.

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They aren't. Been tested. Well, magnesium has been tested and I take supplaments.

It's more than just twitching...my left thumb now doesn't bend down as much as my right. It is better gluten-free, but why is it starting in the right?

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neuro/electrolytes/carpal tunnel?

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They aren't. Been tested. Well, magnesium has been tested and I take supplaments.

It's more than just twitching...my left thumb now doesn't bend down as much as my right. It is better gluten-free, but why is it starting in the right?

This is a good question, one I have asked myself. For me, my issues are on my left. Do you ahve any cramping in the fingers/hands or sharp pains in the joints? My hands will cramp up sometimes and I find burpless Omega 3,6,9 helps. I was getting terrible sharps pains in the joint where I had an old fracture and started taking BioSil drops which helped that.

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I would suggest neuro too. I don't think ortho would be productive. Have you seen a rheumutalogist?

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Sigh.

I saw a Rheumy years ago when I was dx'ed with Hashis. She said as long as I felt good, not to go back.

I am not currently taking Omegas...I could add and see. I think potassium was also tested and was fine...

I noticed the shaking was worse Sunday (after improving for days) - the day after I ate out. Started thinking, in addition to stress (not talking about it but it's been a decent amount ) I've been eating that freaking Halloween candy....which opens up gluten issues. Also, I've noticed hands shaking more when my blood sugar is off....

So, is this still related to gluten and blood sugar????

SOB, this makes me angry. I don't usually get stomach gluten symptoms (I think it has to be enough to make a DH spot start to swell before I get a stomach issue).

Ive also noticed my lower arms are very sensitive after I spend time on the computer (leaning on the desk).

I intend to go to a neuro when I find one....but want to go with a good diary of how/when/how. Also, my hands sometimes ache and cramp (new) and I think it's when it's cold....

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Oh boy, Halloween candy! So many things in candy you could be having a reaction to, unfortunately. I've pretty much had to eliminate it. It could be the sugar that'd causing the shaking. Could be high fructose or lactose in the candy that's upsetting your stomach. The hands really sound like they might benefit from either potassium and/or Omgea. The forearm issue could be due to your hand position typing or doing something where there is pressure against the wrist. Try streching it....take your hands in a prayer position with hands up and then while still holding hands flat against one another point the hands to the chest. The take your arms straight out, make s fist and release several times, then bend the hands down while arms are straight. I teach piano....these are techniques I use. Also, try to keep the wrist from being put in a crimped postions....too much pressure on the wrist can cause issues into your arms.

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Hi prickly,

If you have neuro reactions, it could be due to eating out, or I noticed the tag line above listed gar & xanthum gums along with carrageen as food sensitivities. I bet you had a good dose of those with the candy.

I had a nasty reaction lasting two days due to xanthum gum in a popular bisquit mix.

Here's what happened with my neuro visits. Nerve Conduction Test. What is a nerve conduction velocity test?

"A nerve conduction velocity test (NCV) is an electrical test that is used to determine the adequacy of the conduction of the nerve impulse as it courses down a nerve. This test is used to detect signs of nerve injury.

In this test, the nerve is electrically stimulated, and the electrical impulse 'down stream' from the stimulus is measured. This is usually done with surface patch electrodes (they are similar to those used for an electrocardiogram) that are placed on the skin over the nerve at various locations. One electrode stimulates the nerve with a very mild electrical impulse. The resulting electrical activity is recorded by the other electrodes. The distance between electrodes and the time it takes for electrical impulses to travel between electrodes are used to calculate the speed of impulse transmission (nerve conduction velocity). A decreased speed of transmission indicates nerve disease. A nerve conduction velocity test is often done at the same time as an electromyogram (EMG) in order to exclude or detect muscle conditions."

Oops, I meant to copy the link, I just pasted the context. I had the EMG too. They were really painful tests.

In my follow up appointment, the neuro told me I had polyneuropathy. Always knew that, but had been told by dr's that I couldn't say that I had it until I'd been diagnosed. Then she wanted to do a nerve biopsy and I said no after researching it. She prescriped Lyrica, which I told her I didn't want because I'd read about the side affects. She prescribed it anyway and I didn't fill the rx. My neuropathy is at a 2 now vs, 8 before I went gluten-free. I have permanent nerve damage. I went to the neuro based on the recommendation from the rheumy.

I usually take anywhere from a few days to a full week to recover from gluten CC. I also have food intolerances to gar and xanthum gum. I had two gluten-free bisquits made with Xanthum gum Sunday, and even though I could show up to work, it was pretty bad. I had a rough time going down a flight of steps, and it was hard putting my mascara on.

She tested me for Lime's Disease too, even though I told her I'd never found a tick on my body and don't live in a particulary ticky area.

She wants to see me back in six months, I suggested 12, she said 9. I think I'll cancel.

She did say that exercise helps everything. I mean to be helpful by giving you this info, not a bummer. Since you have DH I'm pretty supposing you're super sensitive too.

Good luck, hope you feel better soon.

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Hi Marilyn, it was me with the signature (instead of Prickly) that has the issues with guar gum, carrageenan, high fructose and xanthan gum. That was actually why I targetted the candy, they all mess me up for about 3 days....vertigo, digestive issues.

Thanks for sharing about the nerve damage and the tests you have undergone. Sounds like you are doing better. Have you found the longer you are away from gluten, there is any change in your nuero issues? If I back off my supplements I'm a mess again so doc wants me to keep doing what I have been, B12 and D being my hardest to keep up.

I recently bought 2 books, one about what to eat to help neuro issues, and the other explaining what happens in the body with nerve damage. I have not received them. Have been reading a little on the Internet and have been purposely putting more B12 and vit D foods in my diet which have me feeling alot better. As long as my supplementing is working for me and doing my body no harm I will continue, and maybe one day I will get to the point where my body can go without the extras.

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Hi AVR,

Yes, the neuro issues have subsided, they just took a long time to do so and I have to be really careful about what I eat.

In my opinion, those two tests were a total waste of time. They didn't shed a light on anything and were totally painful.

Last weekend I wanted to try a gluten-free bisquit mix with xanthum gum. I felt like a drunk driver the next day and had to go to work. Taking a flight of stairs (down, couldn't do up) was scary.

I like the D-3 vitamin in drop formula if you can get it in Germany. So far my B vitamin levels have been good. I have osteopenia though, and have to take Calcium. And I like to take glucosomine.

I'm going to do some exercises before turning in tonight.)

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