• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Out..of..breath
0

Rate this topic

13 posts in this topic

Recommended Posts

I'm so tired of being out of breath. I've been gluten-free for 5 months now and it has definitely improved, but still randomly, I get so out of breath from very simple things...sometimes for no reason at all. I used to be an athlete and now 1 flight of stairs and I'm winded. I'm 33 years old, healthy, non-smoker. I'm tired of this.

Am I alone?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Just wondering, is it a feeling of being truly winded, or a feeling like no matter how hard to breathe in you don't feel like you're getting enough air?

I've had the latter in the last few months when I was going through a little weirdness with my stomach - that and a little chronic nausea. The breathing "thing" was pretty severe and I even underwent chest xrays, stress testing and breathing testing. All came back stellar. Right around the time the breathing thing started I had begun eating a slice or two of nitrate free bacon every morning, so I quit eating it altogether and it cleared up immediately (the nausea turned out to be minute cross contamination from supplements). But I've also noticed this breathing thing (to a much lesser degree) at times when my stomach isn't right, and sipping a glass of water seems to make it go away. So, because the breathing thing seemed to be connected to the bacon, I've wondered if it doesn't have more to do with dehydration than an issue of CC or anything else. Whatever it is, I know it's scary. Hope you can figure it out soon.

Share this post


Link to post
Share on other sites
Ads by Google:


Are you possibly anemic?

I was really short of breath for so long, even for a few months post-DX and gluten free. Just walking the length of my driveway had me breathing hard and feeling totally exhausted. :blink:

When I read that celiacs often have both B-12 and Folate deficiency anamia, I had my doctor test my folate level and sure enough, I had a FOLATE deficiency.

Once I was treated for 2 months with prescription folic acid, it stopped. :)

Share this post


Link to post
Share on other sites

For me it's low thyroid. I totally lose my exercise tolerance and a couple flights of stairs will have me red-faced and breathing hard.

Share this post


Link to post
Share on other sites


Ads by Google:


I have that out of breath feeling in my head (vs really not being able to breath) when I am having gut issues. I think some tummy gas is pushing the diaphragm up and messing with some nerves.

Share this post


Link to post
Share on other sites

For me it's low thyroid. I totally lose my exercise tolerance and a couple flights of stairs will have me red-faced and breathing hard.

well, it is low, but not enough to treat...and it's always been low. I think that as I continue to recover/heal, it will go away, too....I hope anyways.

Share this post


Link to post
Share on other sites

well, it is low, but not enough to treat...and it's always been low. I think that as I continue to recover/heal, it will go away, too....I hope anyways.

Who told you it's not low enough to treat? Please read the website stopthethyroidmadness.com If it's low you need treatment. It's dangerous to have low thyroid, as you can see by your breathing problems. Get another doctor asap.

Share this post


Link to post
Share on other sites


Ads by Google:


well, it is low, but not enough to treat...and it's always been low. I think that as I continue to recover/heal, it will go away, too....I hope anyways.

You need a second opinion if you're hypothyroid and symptomatic and your doctor refuses to treat.

Share this post


Link to post
Share on other sites

I just found I have severe tachycardia (rapid heart beat) and often when my pulse goes really high sometimes over 200 I get very short of breath. Pay attention to how your heart feels when you are short of breath, if you have palpitations then she your doctor. I let it go for years blaming it on asthma and stress and now I am about one step away from heart failure, mind you I am only 24. Although I did get a drug for An illness that can cause heart damage but please be super careful!!!

Share this post


Link to post
Share on other sites

well, it is low, but not enough to treat...and it's always been low. I think that as I continue to recover/heal, it will go away, too....I hope anyways.

Jai,

Two things to consider:

What were the results of the thyroid antibodies test?

Do you have other symptoms indicative of hypothyroidism?

(And that is a good question, who told you it was "not low enough" treat?

A primary care doc or an endocrinologist?)

In MY case, my thyroid was sluggish and my TSH was always on the hypo side and when put on medications, it made me go nearly HYPER. (I was a jittery mess of anxiety and insomnia :blink: ) I was told it was okay to go OFF the meds when I questioned why I was on it in the first place. (no thyroid antibodies) My thyroid functions normally now, and some people report a similar recovery of thyroid function on here. Some people also have to adjust their meds after going gluten-free because their thyroid rebounds and they do not need as much.

They have changed the range that is used to judge what is "optimal range".

It used to be that a TSH of 4.5-5.5 was still considered "borderline" for hypo, but in 2003, the American Association of Clinical Endocrinologists stated that doctors "consider treatment for patients who test outside the boundaries of a narrower margin based on a target TSH level of 0.3 to 3.0." Mine was 5.3 at one point, so going by the OLD range of 5.5, my PC doctor was reluctant to put me on medication. The endo disagreed--and as it turned out, my PCP was right all along. Even though THAT ONE reading was 5.3, it was also 4.2, .8 and 2.4 in the months that followed. Because of the un-DXED celiac, It was all over the place. :blink:

Now it is 1.8 - 2.4 and I feel fine. :)

If your numbers are outside of that range, maybe you need to see an endocrinologist for a second opinion? I would hate to see you go on medication and feel worse as a result. Likewise, it would be just as bad if you do not get APPROPRIATE treatment.

Blood work seems to be in order, in any case. Please do ask for a Folate level, though. It often gets overlooked (they check B-12 but not that) and is easily treated. Even my PCP said HE never would have thought of it. :rolleyes: We have to be our own best advocates.

IMHO :)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,133
    • Total Posts
      939,840
  • Member Statistics

    • Total Members
      66,113
    • Most Online
      3,093

    Newest Member
    cb1105
    Joined
  • Popular Now

  • Topics

  • Posts

    • You'll get to the point where you can eat other things, you just have to give it time. Can you do eggs? Hard boiled eggs. They make fast snacks and are highly portable. If you make nut butters, you can just eat it by the spoonful.  I don't like "normal" coconut macaroons, too wet for me, ick! I found this recipe though which drives me insane --- sooooooo good I about swallow my tongue. http://www.foodnetwork.com/recipes/alton-brown/toasty-coconut-macaroons-recipe-1912139 Don't know if you like them or not but re-fried beans. I NEED my carbs!!!!! If I don't get carbs, I will get weak & shaking 30 minutes after eating. I can't eat every 30 minutes!!! So I eat a lot of re-fried beans. I make a big vat & then portion into containers & freeze. If you have or get a stick blender, it will make super fast work of mashing those beans up. Only takes 2 minutes or less. I use olive oil in mine & lots of it -- need that fat. 
    • Coconut, almond butter, and cocoa nib fat bombs...I use plant fats to do it. You can make some great snacks out of fresh almond butter, shredded or coconut flour, and cocoa nibs. Sweeten with stevia for little dough like balls of goodness. Oh you miss potato chips, two options here I like to make my own protein chips with pea protein, or I can have 2-4 protes chips (vegan pea protein  chips made by a company) but they have to be eaten in moderation. Coconut chips....yeah I get Lets' Do Organic ones I can snack on a hand full of them or throw a handful of cocoa nibs in my mouth for snacks. If you like meat, try making jerky. get a dehydrator season your own and just do it.....lucky you can eat meat. I miss making roast in a crock pot....I used to make some of the best shredded meats. My old smoker.....I could make some of the best ribs and roast EVER. The jerky can be made and taken for snacks on the road or while out, crack open a can of spinach (canned unsalted delmonte does not bother me) or pack some stewed greens and have some jerky tear it up stir it in canned keto on the go. Other lovely thing are tuna and salmon if the canned bother you I often find them too salty to enjoy I have taken some and smoked it or dipped it in liquid smoke then cooked in a baking dish then loaded in to the dehydrator. I find doing this I can have that little bit of fish when I want without worry of spoilage (sucking on it and chewing it for a long time make it really satisfying for me) ....SOO doing this next week to try the fish again. Speaking of fish...since I perfected keto bread in my bakery this month......I think I might try making a tuna sandwich with avacado mayo....not had a tuna sandwich in over 5 years.....
    • I am a newly diagnosed celiac and am traveling abroad for the first time since starting the diet. I will be going to Greece in the spring. I was wondering if anyone had any tips for eating gluten free abroad or at airports? Thanks! 
    • Yeah I've wondered a bit if I'm not getting all the other B vitamins from food alone and if they'd do me well. Magnesium content in the keto vitals isn't a lot. I try to get some more through food but I doubt it's optimal. I might have to look into that stuff. Interesting about the meats. Unfortunately I need the fat, especially if I'm gonna continue trying this keto thing for awhile, give it a chance to work. I did know about the difference in omega content, but since starting this diet I've been supplementing with fish oil to offset the omega 6's. Hope you'll be able to eat meat again soon, even if in small amounts. So much this. Every day I want to get up and do anything, and can't and it sucks. I want to climb the walls, get away from myself... Ugh, this takes too long, and I'm too impatient. Yeah, looks like I have to cook everything. I figured I'd at least be able to eat raw baby spinach. I need SOMETHING I can just grab and eat, but it gives me the same slightly itchy mouth that fruit gives me. I've been allergic to fruit forever... Don't have this problem with my steamed broccoli and cauliflower. I already cook everything else I eat. (and it's all organic, real food) So annoying to have to spend half my day cooking, not that I have anything else I can do. But what do I do when (or if) I get healthy again and am like, out somewhere? Damn I miss potato chips. I'll tweak a few things here and there and keep trying.
    • I see banana pudding in your future! ENJOY! I'm glad you came back to report what happened with the cookies.
  • Upcoming Events