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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Probioticsor Probiotic Yogurt?
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6 posts in this topic

I've been wanting to use one for a while. I wasn't sure if any of the probiotic yogurts were gluten free so I tried one in pill form. Unfortunately, it gave me stomache aches! NOT cool! Has this happened to anyone else? Do you use one of the yogurts? I can tolerate yogurt, so that would be a better choice for me.

Thanks!!

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I just saw this on the GAPS webpage FAQ the other day. Maybe it will help. This is from http://gapsdiet.com/FAQs.html

"Even the smallest amount of any probiotic food or supplement causes me severe bloating, fatigue and pain. How do I do the diet if I can

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I second Skyark's advice to start slowly, possibly with probiotic powder instead of a whole capsule.

Probiotics are beneficial and not harmful. :)

I think your reaction is one of "die off" in which case, you may really need the probiotics to balance your gut flora.

Drink a lot of water to hydrate and flush.

Celiac guts need probiotics for many reasons.

Check out this article by Dr. Lewey:

http://www.thefooddoc.com/probiotic_facts

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It took me almost a year to get to a full capsule. I have lots of experience with die off. Its not a bad thing, it telling you it working but you don't feel so good. Makes for a tough day. My doctor said in order for the drug to help you, you must be able to tolerate it and that may take time and patience. So go slow, very slow, your body will tell you if you are going too fast. You can do it!!

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It took me almost a year to get to a full capsule. I have lots of experience with die off. Its not a bad thing, it telling you it working but you don't feel so good. Makes for a tough day. My doctor said in order for the drug to help you, you must be able to tolerate it and that may take time and patience. So go slow, very slow, your body will tell you if you are going too fast. You can do it!!

wow guys, i've never heard of this die off! so i should look for a probiotic powder? i will look into this, thank you!

anyone use any of the probiotic yogurts? i'm thinking my gut is very off!!!! ugh, wish me luck!

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I've been wanting to use one for a while. I wasn't sure if any of the probiotic yogurts were gluten free so I tried one in pill form. Unfortunately, it gave me stomache aches! NOT cool! Has this happened to anyone else? Do you use one of the yogurts? I can tolerate yogurt, so that would be a better choice for me.

Thanks!!

I just tried La Yogurt Probiotic which is gluten free. Had four of them in the past week. Today had an issue in the bathroom. It takes me along time to digest and since going gluten free I have issues not visiting the bathroom enough, so I thought the yogurt would help, now I am not sure after today with a stomach ache and a run to the bathroom;

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    • Yes you are correct. Interestingly my genes in the US are thought to be more associated with RA. Which is something they thought I had prediagnosis. In the Middle and far East they are more likely to be associated with celiac and they are rare genes in Caucasians which I am according to my parents known heritage. I always caution folks not to take the gene tests as absolute proof they can't have celiac because I had one child who had positive blood and biopsy, did well on the diet, then got genes tested in young adulthood and was told they could never be celiac. Of course that resulted in her abandoning the diet. I worry but hope someday doctors will realise we still have a lot to learn about the genetics of this disease. PS While I still have some deformity in my hands my joint pain resolved after a few months on the diet.
    • It seems like you really need a concrete or near concrete answer so I would say maybe you ought to get the gene testing. Then you can decide on the gluten challenge.   Thanks! I am convinced our dogs are there waiting for us. Meanwhile they are playing, running, laughing, barking & chasing. I have another favorite quote dealing with dogs: "If a dog will not come to you after having looked you in the face, you should go home & examine your conscience."  ~~~ Woodrow Wilson ~~~
    • I can't help thinking that all of this would be so much easier if the doctor I went to 10 years ago would have done testing for celiac, rather than tell me I probably should avoid gluten. He was looking to sell allergy shots and hormone treatment, he had nothing to gain from me being diagnosed celiac. I've been messing around ever since, sort-of-most-of the time being gluten free but never being strict about it. I really feel like three months of eating gluten would do my body a lot of permanent damage. I've got elevated liver enzymes for the third time since 2008 and no cause can be found which might be good, I guess. I wonder if it would be reasonable to do the HLA testing first, to decide if I really need to do the gluten challenge. If the biopsy is negative, that is. Squirmingitch, love your tag line about dogs in heaven. We lost the best dog ever last December. I sure hope all my dogs are there waiting for me!
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