• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

First Day Of Chemo Went Well
0

21 posts in this topic

Good morning friends,

Well yesterday was my first day of chemo, actually my daughter and I don't like the name so we have decided to call it the cocktail hour, sounds much better right. :) Anyways it is a very aggressive treatment, and of course with the Celiac disease that makes it that more fun. I have three chemo drugs, along with steroids, anti-nausea meds, magnesium, and I cant remember the name but also a drug to keep my white count up. The good news is that I have a port so it is only one poke at the beginning of the day, and you know what I can't even feel it, so that is good. Their main concern now is keeping my weight stabilized, my goal is to make it through the two months of chemo without having to have a feeding tube, so I am eating every two hours, just small amounts, my husband and girls have been great about reminding me, actually they made two signs for me in the house that say "Don't forget to eat!"

So I am still in very good spirits, the doctors, nurses, everyone who is treating is very optimistic about a good outcome, I know this will be a very difficult time, the worst time will be the stomach surgery, but right now just taking this one day at a time. Thank you all so much for the support it means so much to me, sending out hugs and good thoughts to all. B)

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


blessings & prayers are being sent your way...

0

Share this post


Link to post
Share on other sites

Hugs!! I am hoping that you get through this OK.

0

Share this post


Link to post
Share on other sites

Keeping you in my thoughts and prayers!

0

Share this post


Link to post
Share on other sites

Good luck! I hope everything goes smoothly.

0

Share this post


Link to post
Share on other sites
Ads by Google:


((((((((((((((((((HUGS))))))))))))))))

Keeping you in my thoughts and prayers. I hope things continue to go smoothly.

0

Share this post


Link to post
Share on other sites

I am sure you will do just fine!!! Just be positive! Don't stress too much about the feeding tube they can be very beneficial and easily removed after treatment. I have been through chemo before and although my treatment was fairly easy and everyone's experience I different feel free to email me if you need to vent. Your family will be best your support thought this. My prayers are with you!

0

Share this post


Link to post
Share on other sites

Glad your first cocktail hour went well. Great idea to rename it and take control :D. Hope it continues to go well. Thinking about you and your family.

0

Share this post


Link to post
Share on other sites

We're here with you Bonnie B. Stay strong.

0

Share this post


Link to post
Share on other sites

I'm new to the forum, but still want to wish you the best--my thoughts and prayers go out to you!! As someone else said, take it one day at a time. God bless!

0

Share this post


Link to post
Share on other sites

Good idea~coctail hr!lol glad to hear everything is starting out well! Good luck, keep us updated!

0

Share this post


Link to post
Share on other sites

looks like you're discovering ways to deal with this in a positive light, that's awesome :) Cocktail hour it is! LOL

0

Share this post


Link to post
Share on other sites

I so glad to hear the first treatment went well. Good luck!!!

0

Share this post


Link to post
Share on other sites

The Cocktail Hour...I love it. I've heard that keeping a good attitude during chemo can really help you fight the cancer. Sounds like you're already ahead on that score.

0

Share this post


Link to post
Share on other sites

Bonnie...I am a very tough person emotionally but your bravery and good spirits leave me in awe. I am one of those very thin celiacs

who was close to a feeding tube at diagnosis so can understand totally your concern over possibly having one. Eating every 2 hours sounds like

a fantastic plan and I hope the weight sticks to your frame with every bite! You are an amazing person and I look forward to your continued reports and well being. Keep up that amazing spirit!

0

Share this post


Link to post
Share on other sites

Thanks for letting us know how it's going for you. I like the renaming to cocktail hour. ;)

It sounds like you still have your sense of humor? It will help you get through this. I admire your positive attitude.

(((hugs)))

0

Share this post


Link to post
Share on other sites

Way to go, Bonnie. Each day at cocktail hour I will sip and send best wishes your way. You have a great attitude. {{{hugs}}}

0

Share this post


Link to post
Share on other sites

Stay strong Bonnie, but if you need to let loose and vent know we are here! Thinking happy positive thoughts for you and your family.

Wendi

0

Share this post


Link to post
Share on other sites

I'm glad to hear your first cocktail hour went well. I love the name.

0

Share this post


Link to post
Share on other sites

Wonderful news!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,806
    • Total Posts
      932,572
  • Member Statistics

    • Total Members
      64,299
    • Most Online
      3,093

    Newest Member
    Lauren Leon
    Joined
  • Popular Now

  • Topics

  • Posts

    • I'm glad you have a diagnosis.  Fibromyalgia is recognized by western medicine, FDA has even approved several drugs for its treatment.  This article from the NIH is interesting, saying that not all doctors are familiar with it ( those are probably the ones who minimize it).   I hope your health improves now that you know what you have and can begin to do something for it. https://www.niams.nih.gov/health_info/fibromyalgia/#c
    • Hi Casy and welcome! I say welcome, you've been here before! Welcome back then You probably know already that you tick a lot of the celiac boxes (so answer to a) is no you're not crazy ). It's a bugger to diagnose however and you have to be eating gluten for the tests to work. So your previous test when the mess hall diet was eggs rice and chicken may not have been accurate.  I collected some faqs on the diagnosis process sometime ago. They're here along with a couple of links that may be of use in regard to the second question about the tests available:  There's also the board FAQ stickied above of course: https://www.celiac.com/gluten-free/announcement/3-frequently-asked-questions-about-celiac-disease/  If I were you I'd be tempted to try cutting gluten. My advice would be not to do that at least just yet - if the test comes back positive they may want to run an endoscopy or other blood test. It's not pleasant to go back on it if its a problem for you, the 'gluten challenge' in other words.  One final point, I don't know what a positive diagnosis would do for your military career prospects. Maybe thats something you should think about or discuss with someone in confidence? The diagnosis can't do much for you practically, treatment is to not consume gluten. So you may be able to not pursue the diagnosis and just do your own test with avoiding gluten. Although I don't know how practical that is with MRE's etc... There may be others here who can help with that question.  Oh and theres a genetic element, so your son's GI issues may also be related... Best of luck! Matt  
    • Perhaps you were run down and your immune system was compromised? Here's a good paper on the subject: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3579488/ Not much definitive, but this for instance is interesting: In my own case I know that under gluten I lived for years with an impaired immune system. Any cold going around I got it and kept it for longer than everyone else. I was often 'under the weather' and I had unexplained urinary infections etc. The skin issues were one part of that and the SD the most visible. So many things resolved when going gluten free that I was upset that the SD, whilst improving, didn't also disappear.  I saw a consultant dermatologist and he diagnosed it and said that Nizoral had the best chance of impacting on it - in fact its the active ingredient: ketoconazole that you need to look for: I only use the shampoo now if its bad and it isn't too bad at all, I think because I'm broadly healthy, eating well and strict on the diet. I have an itchy scalp and occasional spots at bottom of scalp but I can always go back to the shampoo if needed. Like you I have a couple of others sat around for an alternative.  My research has suggested its a case of treating symptoms and staying well, but its control rather than cure.  Sorry!  
    • Yours looks safe I was using paleo pro back then and the company changed from gluten free to manufactured in the same facility as.
    • Hello all! Does anyone take the Claritin non drowsy reditabs for indoor and outdoor allergies? Its the dissolvable ones. I was prescribed loratadine as prescription but pharmacist told me the pill form had gluten in its ingredients and that this Claritin reditabs were gluten free. I will call manufacture company as well just wanted to see if my fellow celiacs took this or what type of allergy medicine do you guys take? Any advice is helpful. Also for my post nasal drip I was prescribed Fluticasone Propionate Nasal spray. I have yet to use this as it is the generic equivalent for Flonase. Anyone know if it is gluten free? The manufacturing company said they could not state if it was free of gluten because they do not test it but she did say nothing in the inactive ingredients looks like it contains gluten???? I really  need to you a nasal spray as I cannot breathe or swallow due to allergies in the air.
  • Upcoming Events