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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Dry Mouth A Symptom Of Celiac?
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I have really bad dry mouth. Is this a symptom of Celiac? Any ideas what I can do? I have been drinking a ton of water and got a humidifier in my room, tried a lot of different mouthwashes and chewed sugar free gum. Nothing is helping.

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Absolutely! If I recall (the percentage), you absorb 75% of your fluid intake in your small intestines. If your intestines are damaged due to Celiac, you're not getting adequate hydration.

Listen to your body and drink as much as it asks for. ;)

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I used to get dry mouth periodically before I was diagnosed with coeliac disease. I don't think it's anything to worry about (assuming coeliac is the cause). My doctor recommended a gel for my mouth which performs almost the same function as a moisturiser for your skin. It worked to some extent. I'm in Australia - so I don't know how available the gel is in the US - but I just bought it over the counter here.

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Yes - exactly skylark. There is a correlation between SJogren's and Coeliac, if you are getting things like dry eyes and dry mouth you should see your Dr.

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Well im going to talk to a GI on the 23rd so I will see what she has to say about it. I went through so many blood tests in the past few weeks. Im sure if it was anything serious they would have found it in the tests? Also my doc didnt say anything at all about my vitamin levels. Should I just assume there fine?

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They have to do specific tests to check for autoimmune disease and I guarantee you they wouldn't do them unless there was a reason for it. Anyhow - ask your GI and see what he/she says.

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I have really bad dry mouth. Is this a symptom of Celiac? Any ideas what I can do? I have been drinking a ton of water and got a humidifier in my room, tried a lot of different mouthwashes and chewed sugar free gum. Nothing is helping.

If your mouth and/or eyes are dry enough that you are noticing it, then there is a strong possibility that you may have Sjogren's Syndrome. I have Sjogren's and there isn't much you can do for it except keep yourself hydrated, chew gum to encourage saliva production and use Biotene mouthwash, which is made specifically for those with extreme dry mouth. There is blood work which can be done to test for it and those would be the SS-A and SS-B antibody tests. However, it's like Celiac. You can have a raging case of Sjogren's and not pop positive on your blood work.

I had all the symptoms and knew I had it but never bothered to go to a doctor about it because their track record with autoimmune disease is poor. If your blood work is negative, then they move towards a biopsy of a salivary gland. No way was I going to let them do that, especially when I was so blatantly symptomatic for Sjogren's. My doctor insisted on blood work, which I let her do but told her I knew had it, so this was just to make her happy. My antibody levels were sky high.

Along with Celiac testing, they insist on multiple tests for diagnosis for Sjogren's. Do diabetics have to go through multiple tests just to get a diagnosis? As you can see, I have little patience with the medical profession! ;) Other symptoms of Sjogren's are a fissured tongue (from being so dry) and my favorite, the bread test. I cannot swallow a bite of bread without water or liquids or I will choke. That's how deprived of saliva I am. If you have this issue also, you probably have it. Then there is the dry eye....very fun!

You may want to ask about the blood work as that's pretty easy testing but a negative test does not rule out Sjogren's. Good luck to you!

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Thanks for the detailed post Gemini. My eyes dont get dry at all. My mouth is fine during the day when I can get water in. I havent ate bread since I was diagnosed with Celiac a few weeks ago but I dont think I would have that much of a problem. I tried Biotene, didnt help at all. I will see what the GI has to say then maybe go in for testing to see whats up. I really dont mind all the doctors as much as you, I live pretty close so thats a good thing.

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See - I don't have dry eyes- or what I mean is, I don't feel like I have dry eyes, they don't feel gritty or annoying or anything. But I had the shirmer's test and scored 0-0 which means I produce no tears when there is a foreign thing in them (dry as you can get) - we don't have the salivary gland test in Oz - and my bloods are negative. At this stage I am undiagnosed but have something of the connective tissue autoimmune stuff going on. As Gemini said - Autoimmune diag can be a royal pain. Although I do think that you should still seek a diag if possible. Sjogren's can cause other things, not just dryness. Anyhoo. bloody autoimmune diseases!

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I get a disguisting, coated, dry mouth from eating cheese. It usually shows up when I am asleep and is terrible for a few days if I eat cheese. It's better when I eat or drink, but comes right back a bit after I'm done. I also get BO and dandruff along with the bad breath and dry mouth. Does this sound like what you get?

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Hey domesticactivist = that sounds like hairy tongue? Do you think it could be that? I get it when I'm on antibiotics and it throws of my gut flora - so gross!!

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I don't think it's hairy tongue. My whole mouth gets coated and is dry and sticky and stinky. In fact all of me gets stinky! It was chance that we figured out the connection. I'm very curious about what component of cheese is the problem. I can eat yogurt!

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a GI doctor is unlikely to know what Sjogren's is, let alone know what tests to do for it. It is not a disease that turns up in your gut, it's a rheumatic auto-immune disease. Make an appointment with your GP and/or get a referral to a rheumatologist.

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Yeah the GI I talked to yesterday said its probably nothing, she said to not even bother seeing a family doctor about it. I would like to deal with it though since its bothering me so much and I know it does mess teeth up when gums are so dry through the night. Dosent it?

Should I just go to a family doctor and ask to be checked for Sjogren's, or how do I go about this?

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Start with the family doctor. The specialist who will really be familiar with Sjogren's testing is a rheumatologist so you may need to ask for a referral. (Or go directly to a rheumy if your insurance allows.)

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