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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

How Long After Starting On A Gluten Free Diet Until The Behaviour Gets Better?
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My son is 4 yrs old and started on a gluten free diet (probably not a 100% yet, still learning and adjusting) 6 days ago. He has had bad behavioral issues particularly right after his stomach has been problemtic. I am know wondering what to expect with regards to how soon one can see changes in his behavior. Just to have some realistic expectations - but also I am eager to see my son get better. I will appreciate any input!

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we are 2 days in with our 35 month old, and she is so much better already, she has gone from being aggressive whiny and clingy to almost back to how i remember her 2 yrs ago.

today iwen to fold the laundry and she happily played by herself instead of crying and following me

when one of her toys didnt do as she wanted, she started to cry and i told her to stop and calm down, normally nothing would work and we would have a screaming fit all day long

she has stopped begging for food and had eaten 3 meals and three snacks, not asking for anything other than the stuff i gave her

she has taken herself to the bathroom and not needed help or soiled herself, she pooped withut the need of PEG

she even helped dress her sister

i guess it depends on how much damage is done, she has dropped a pound in weight in 1 day which i'm sure was mainly water and she is tired, but so far so good

keep us posted

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My son is 4 yrs old and started on a gluten free diet (probably not a 100% yet, still learning and adjusting) 6 days ago. He has had bad behavioral issues particularly right after his stomach has been problemtic. I am know wondering what to expect with regards to how soon one can see changes in his behavior. Just to have some realistic expectations - but also I am eager to see my son get better. I will appreciate any input!

my recovery was almost instant, within 3days 90% cured within two weeks, most symptoms had gone away completely....

look to eliminating other things like dairy products, eggs. quite often the body become intolerant with few other things to..

elmination diet is the only way. Which hidden gluten in sauces, gravies etc...

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For my 3 year old son, I noticed major changes within 3 days. Within 2 weeks, he was back to being his happy-go-lucky self that I had known the year before. But, you have to be very strict. Now that we have been gluten free for almost 5 months now, I can tell the minute he has been cross contaminated. He gets crabby, argumentative, and ready to fight.

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the experience with the gut is after stopping gluten foods (obvious ones like wheat etc, grains)

i got a lot better, but not 100%, and here's why:

you think the gut is auto-immune destroyed?

then there is a leaky gut syndrome.

so food normally passing out which has already had it's energy taken from it,

is now 'rotting' in a sense, having some toxic constituents,

and a leaky gut wall from the celiac damage,

is allowing those waste products into the bloodstream.

i have intestinal cleansing equipment, already built and designed,

so luckily its possible, if i remember,

at the right time when i start feeling 'down' some hours after eating

to do a cleanse to help hurry out and clean out the gut.

i believe this is better until the gut wall is stronger,

and when it is no longer incorrectly-permeable.

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hmm. it is also my experience that if you 'slip-up' (eat something that you thought was grain-free that you later realized was not) as i recently did, make sure to have some capsules of activated charcoal on-hand, and take one (for someone very small) or two or three (for fully-grown bodies) to help to soak-up/neutralize the effect of the grains.

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Not to discourage you, but it may also be awhile. My son, who is 8 has been gluten free since March. I was SO wanting to see immediate improvement in his depression, panic attacks, hyperactivity, constant stomach pain, foot and leg pain, numbness and tingling, eye pain...but months went by with very LITTLE improvement. I tried everything, nothing seemed to help. His micro-nutrient levels tested normal, except for ferritin. He was put on Zoloft and that made him manic. In desperation, I started him on some nutritional shakes and liquid B vitamins. WHAM. Within DAYS there was a big improvement. A month later, his issues have improved probably 75%. My guess is even though his nutrient levels were within "normal" range, they were still too low for him. If your son does not show improvement soon, please look into nutritional supplements. I hope things turn around for him soon!

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I have not been diagnosed as being gluten sensitive, but years ago--in my 20s--I felt I had allergies as a result of eating wheat (chronic post-nasal drip, diarrhea if I ate wheat germ or bran) and mostly gave up all wheat for about 10 years, though I didn't realize I also had problems with dairy and some symptoms persisted (mostly a much-diminished form of post-nasal drip and dark circles under the eyes).

Then in 2008 when I was commuting to a workplace where I found it hard to find the kinds of foods that I eat that don't contain wheat, I began eating wheat again. Within six months I started having balance issues; going up stairs my left leg would develop "a mind of its own" and do what it wanted to do, sometimes skipping a step, nearly causing me to fall. The first time it happened I almost freaked out. I thought I was crazy.

I soon learned that I had to walk slowly and deliberately upstairs, thinking about each step and hanging onto the handrail, although in the past I had often skipped steps and was faster going up stairs than most people my age.

I endured the frustration of having a leg that "had a mind of its own" and the only thing that made it tolerable was that it didn't happen with every step and that it only happened on stairs and never on flat ground. So I could continue to go on long walks. But I felt my self-esteem take a dive. I didn't want to go to a doctor because most of my dances with doctors have undermined my health.

When I lost that job and started working out of my house, where I could prepare my own food, my attacks of ataxia began to diminish. It was more of a gradual reduction rather than something that happened immediately. I think it was about 2-3 weeks before I noticed I had days without at least one ataxic episode. Because I live on the third floor I have to go up and down stairs nearly every day.

When I stopped eating wheat I would have fewer episodes and they gradually diminished until 6 months later I was free of any of the balance symptoms. One day I made the connection to gluten or, rather, I wondered if it was the cause. I was fortunate that I had been working in a field of publishing that granted me some medical knowledge and I had heard of ataxia and was able to identify the behavior, though I haven't had any kind of formal diagnosis.

After being gluten free for 4 years and again having no symptoms, I started working at another job and started eating wheat again and my symptoms returned within a few months. I went off gluten within a month of their return. That was about 2-3 months ago and the symptoms are diminishing, but now I have realized I cannot eat oats either. Then a blow has hit us. My father had diarrhea for years and I kept telling him he might have celiac disease (not realizing that I too might have it). He wouldn't listen and his health took a nose-dive, he lost weight and developed other health issues (hypothyroidism). Then he developed balance issues and fell and injured his head. He's slowly recovering in the hospital. I am gathering information for him so that he will be convinced to stay away from wheat. I learned that he had been eating a lot of wheat before he fell because it was the only thing that "helped" with his diarrhea. The doctors have him on a gluten free diet and he no longer had diarrhea after 2 weeks on the diet. And he is 94. They think he will recover. I am hopeful that he can pull through this. I just hope that there isn't too much damage to his brain from the wheat and from the fall.

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I meant to add that I often suspected that my housemate has problems with gluten. She too was always coughing, morning and evening, and has bowel issues for which she takes L-glutamine and she suffers arthritis-like symptoms in her joints. I kept telling her about my experiences with wheat and I think it fell on deaf ears. But while I was searching for transition foods for my dad I found some breads that I tried and I thought she might like and I gave her a loaf of gluten-free raisin bread. She really liked it and decided to try one day off wheat. The next morning no pain in her fingers. I can see the swelling go down. Sometimes the way to the ears is through the mouth.

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Hi there,

We have twins both likely will have final diagnoses of Celiac in about 10 days. One has major behavioral issues (impulse control, irritable, whiney, clingy, etc.) and the other is a total peacemaker/zen kid. Both have positive bloodwork and genes...and both are symptomatic in different ways. We are eagerly awaiting the day 3/20 when we can take them off gluten. We can hardly wait for behavioral changes (and hoping gluten-free will help significantly). Our GIs have said it could be six months...

Thinking of you!

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