• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Am I Getting Worse Because I'm Reading Too Much?
0

13 posts in this topic

Recommended Posts

I'm pretty new to gluten free. I stopped eating gluten about 3 weeks ago and started to feel better. I've been reading everything I can get my hands on. Now I seem to have more symptoms than I did before. I think I got glutened at a restaurant this weekend and the symptoms I've been able to live with for many, many years are now making me feel worse than ever! It seems like the more I know, the worse I feel...beginning to wonder if it's all in my head :-(

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Marilyn R    239

So you're thinking the more knowlegable you become, the more stupid you get : ;) That isn't logical...but there is a period of time that I experienced, manbe you won't, where your autoimmune system is really pissed off because you removed their favorite warrior (gluten) and started eating gluten-free. For me, my internal warriors hated the quinoa, soy, corn and dairy proteins. That doesn't necessarily mean your own experience will be similar.

Share this post


Link to post
Share on other sites
Korwyn    81

Hi gluten-free,

This is not at all uncommon (I'm sorry). Very often people become more sensitive once they go gluten-free for even a short time. It isn't in your head. This happened to me as well as many others here.

Share this post


Link to post
Share on other sites
mushroom    1,205

Yes, once your body has learned what it is like to be gluten free, the warriors attack with renewed vigor. Sorry :( But it is a good reminder to keep away from the stuff. :)

Share this post


Link to post
Share on other sites
sandsurfgirl    193

Your body is healing and it will go through withdrawal. There is an article somewhere about gluten withdrawal being equivalent to opiate withdrawal. Withdrawal and the healing phase are very real.

Use the search function and read old threads about withdrawal so you can know that it's normal, it will pass and you aren't going crazy.

At the 3 week mark, my body rebelled and every single thing I ate made me sick. I was freaking out but then I read about that happening to others and it usually goes away. About a week and a half later... it went away.

You need to be on a very clean diet for now to promote healing. Most of us cut out dairy and soy for awhile because those are hard to digest with a damaged intestine. Sometimes fructose can be hard too so maybe eat less fruit. Some people have to cut potatoes and tomatoes too. But it comes back as you heal!!!

Eat lean meats, nuts if you aren't allergic, veggies, fruits, rice. Keep it simple for just a little while and you will be happy you gave your body that chance.

Share this post


Link to post
Share on other sites
Ads by Google:


Yeah - it can make you feel nuts.

I never thought one thing could do so many weird things to my body...

Yes, you're reading a lot. Yes, you may flip a bit. But you aren't nuts...and you will get through this.

I thought sinus pressure was normal. I thought dry skin was normal. I thought C was normal. Guess what, it ISN'T!

I've only given up ONE THING. GLUTEN.

And from removing ONE THING, so much has changed. I learn something new about myself every day. Seriously.

Some days I feel like a walking science experiment.

Share this post


Link to post
Share on other sites
WhenDee    15

This happens!

When I first took gluten out of my diet, the most minor exposure would send me to the bathroom for an entire day, plus I would have a migraine. This from a woman who spent sixteen years with constipation and bowel obstructions!

I've been gluten-free for about a year now (it flew by!) and now it isn't nearly so bad. Getting glutened makes me miserable, but it isn't debilitating like before.

A friend of mine IRL is still debilitated by it, but I think she is much worse than me. Everyone is different. As your body heals, it will continue to change. I hope that you are like me, and your body will settle down and just complain a little bit when you get glutened.

What I do know is that the cleaner your diet is, the easier it is for your body to heal. Don't go overboard with gluten replacements, which are mainly rice, tapioca, bean flour, potato flour, etc. Very low in nutrition. Your body has been depleted for a long time. Focus on lots of fruit & veg, replacing those depleted vitamins & minerals. You'll heal faster & better. Plus you'll be focusing on the positive rather than thinking about how BAD most of the gluten-free replacements are! LOL

Share this post


Link to post
Share on other sites


Ads by Google:


sandsurfgirl    193

I had some really weird things happen when I went gluten free. I had improvements all the time but it was six months before I felt really good.

I got dehydrated easily and had to drink Gatorade daily in order to not feel dizzy and shaky. For some reason natural electrolyte replacements gave me horrible D. Go figure. Plain old Gatorade did the trick.

Lots of people will poop like 10 or 15 times per day at first. that was a weird one.

I can't drink most sodas anymore. Once I went gluten free Coke, Pepsi, and things like Sprite taste like soap water to me. It literally does not taste like Coke. I tried Sprite again recently to see if that changed and nope. Soap water. Natural root beer like Hansens tastes good to me. I was never a big soda person anyways, but now I almost never drink it.

I had a pain in my right side for years and years. They did all these tests on my gallbladder but it was fine. I never had a colonoscopy though. One night about a month into the diet I had this weird pulsing in that area and it started spasming. I felt like a little pop and then had to run to the bathroom. This stuff like tar came out and I think it was impacted for years!!! I had a small panic attack too and then when it was out of me the anxiety went away. Now that is crazy!!!

Share this post


Link to post
Share on other sites

Thanks to all of you. It's just strange that I was able to live with this for years and not even know it, and now I'm just such a mess. I've always eaten very healthy food, very little processed food, so I'm not tempted at all by the gluten free processed stuff. I will stay positive and keep plugging away knowing it will get better!

Share this post


Link to post
Share on other sites
lovegrov    148

It is possible that you're now more sensitive and it's also possible you're having some withdrawal -- neither of which ever happened to me -- but it's also possible you're just driving yourself temporarily crazy worrying about everything -- which DID happen to me.

richard

Share this post


Link to post
Share on other sites


Ads by Google:


Korwyn    81
I've always eaten very healthy food, very little processed food, so I'm not tempted at all by the gluten free processed stuff.

My wife and I ate pretty health as well (compared to the average western/American diet). Lots of whole grains, lots of veggies, salads, lean meats, low fat, etc. I kept getting sicker, and fatter. Now I eat mostly protein and fats and I'm physically doing better than I've ever been in my adult life. My body really doesn't like carbs much at all. The more refined the worse it is. :blink:

Share this post


Link to post
Share on other sites
Chad Sines    69

It helped me to realize that my system was all screwed up and had no clue what it wanted. I can have issues with eggs one day and the next be okay, same with corn and many other triggers. It does seem that it gets a lot better quickly then a lot worse and then I guess stabilizes over time.

Share this post


Link to post
Share on other sites
sandsurfgirl    193

It helped me to realize that my system was all screwed up and had no clue what it wanted. I can have issues with eggs one day and the next be okay, same with corn and many other triggers. It does seem that it gets a lot better quickly then a lot worse and then I guess stabilizes over time.

For most of us it totally stabilizes over time. My new GI who actually knows about celiac and even particulars (a rare find) said that soy may not come back for me since it's still a problem all this time, but soy isn't that big of a deal for me to eat anyway. I'm glad I can eat dairy after years of it being a problem.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,903
    • Total Posts
      938,578
  • Member Statistics

    • Total Members
      65,815
    • Most Online
      3,093

    Newest Member
    Jmsc4321
    Joined
  • Popular Now

  • Topics

  • Posts

    • Solid advice. Wish that more people would consider that this might be necessary for some and not entirely paranoid. Could very well be airborne, but most likely culprit is something you're eating. That said, baking, construction/open drywall, farms/animal food and bulk/flour aisles in grocery stores are legitimate worries. I was recently having frustrating problems with random but minor flare-ups, and have eliminated almost all packaged food (even gluten-free) for a bit. It has helped tremendously. I hope that perhaps my sensitivity levels will calm down in a few years, but not being itchy and scabby is worth almost any cumbersome restriction. I think for me the problem has largely been to do with the use of oats in many dedicated factories (even gluten-free oats make me very, very sick). I came to this when lodging a complaint/notifying a company that I'd had an issue with one of their GFCO certified products. I figured that mistakes could happen, and could not imagine anything else I'd eaten that day could be a culprit (had only eaten veggies/rice/meat) so I contacted them to report it. Their response made me quite sure that the lot my food came from was fine from a legal/GFCO gluten-free perspective, but revealed that they make all their gluten-free products on the same line - which include granolas, oat flour etc. When I investigated it a bit more, I realized that many of the gluten-free products that I suspected were causing me problems (but had no real basis for why) were all made by companies that also make lots of gluten-free oat products. Previously, I had only avoided gluten-free products that contained oats as an explicit ingredient, and had never considered that the residues from gluten-free oats could be problematic. Unfortunately, now that gluten-free oats have been legalized in Canada, it is very difficult to find companies that do not use them in some capacity, which is why I axed most of the processed gluten-free stuff. Presumably, because the oats are considered gluten-free, there is no reason to clean the line or employ any allergen food safety practices from the company's perspective. While this may not be a concern outside of those who are super sensitive, it might worth considering if you are still having problems or have a known issue with oats. At the very least, avoiding most processed gluten-free foods (breads/flours/pastas/baked goods) seems to have helped me a lot, even if minor contamination with oats is not the true culprit. I would vouch for mostly sticking with rice, dry beans, root veggies and fresh corn (from the cob) as complex carbohydrate sources for a bit, even though it's a bit inconvenient.   
    • Hi everyone! I'm obviously new to the forums, but I'm also new to the idea of celiac/gluten free/etc.  Lemme give you the Cliff Notes version of my journey: 1992: I'm diagnosed with CFS/ME. It sucks and I'm tired and sick all the time. 2014: I'm still tired and sick all the time, so I decide to become a vegetarian. Maybe that'll help, right? I began getting deathly ill when I ate. Vomiting and diarrhea, everything I eat seems to be a problem.  I go to a doctor who runs a million tests. Nothing turns up. In among those tests is a celiac panel which has this result: no antibody detected and no serological evidence of celiac disease. No cause is ever found. I continue to suffer. Later in 2014: I notice that my stomach issues are triggered every time I eat a raw vegetable. I can eat bread or pasta no problem. Fake chicken? Great. Have a salad? I'm dying. This is a problem, as I'm a vegetarian. I nix the fresh veggies and continue to live my life. 2015: I'm diagnosed with Fibromyalgia. I realize that the problem with vegetables is worse than I thought. I can no longer eat cooked spinach, can't have lettuce on my sandwich, and stealing a single slice of cucumber set my stomach on edge for days. I'm becoming hypersensitive to veggies in food and protecting myself from their evil influence; my stomach thanks me. 2017: After a relative peaceful period, the stomach issues are back, worse. So I go to a new doctor (I've moved) and he recommends a colonoscopy and EGD (no labs). This was done yesterday. The full results will of course have to wait for the biopsies to be examined, but apparently there is scalloping "through the entire duodenum".  Doc told my partner that he believes I have celiac and discharged me with orders to go gluten free. Now I'm sitting here alternately considering drinking alone in the dark and throwing things--I guess I'm wavering between the stages of depression and anger on my trip through grief for my lost favorite foods. But here's where the confusion comes in...everything I'm seeing says that I should give up bread and eat more veggies, but veggies make me sick. Does anyone else have this reaction to vegetables? Meanwhile I'm thinking back to the labs done in 2014 and wondering if its possible to have a negative test and still be positive for celiac? Also, what actually happens if you DON'T go gluten free?
    • Hi Guys, I just thought of giving update on my case. I finally got my EGD done and unfortunately, the conclusion is I have Celiac. There was Villus atrophy and presence of Inflammatory Cells, looks like the atrophy of Villi isn't that worse yet, but of course, I need to get on strict gluten free diet right away. I am planning to see a Dietitian next week to have a healthy gluten free diet plan. Any suggestions from the experts in here are most welcome and appreciated. Thanks  
    • Hi this is my first time commenting but I just had to. I too get chest tightness. I have had it flare up several times with no answers. I was diagnosed with celiac about 6 months ago and am pretty confident this is a glutening symptom for me. Last month it was so bad... Started with random chest pains for a couple days then chest tightness that last for two weeks. I ended up going to the emergency room ( again) because I started worrying about my heart. Felt like my bra was so tight, bloated belly, trapped gas like pain in chest, swollen lump under sternum and no relief. EKG, chest xray and blood tests showed heart was fine. GI said he didn't think it was GI related. I give up on doctors. I've had this before and I'm sure I will again. It's like inflammation in there or something but it makes you anxious and uncomfortable. I truly hope you are okay and I hope it will give you some comfort to know you aren't the only one with this.
    • While I agree that getting more sleep when ill or stressed is a must, many people can easily get by on 6 hours of sleep a night.  Not everyone needs 8 hours of sleep.  Sleep needs, like the gluten-free diet, is different for everyone.  Nursing school can be very tough so it may be hard to get 8 hours every night.  I think the most important thing is to make sure no gluten is getting into your diet at all so you feel well and can manage your schedule better.  Good luck to you!
  • Upcoming Events