Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Wow! Suddenly Feel Better Than Ever Before!

navigator

Recommended Posts

navigator Apprentice
navigator
Posted

Started to feel an improvement a couple of weeks ago but for a week now I've felt better than at any point in my life! I keep thinking,' this is how other people feel, I had no idea!' I'm staying awake all day and evening, I'm walking every day, no aches, palapatations or numbness/tingling. I've even worked a day as a receptionist at the place where I go for massage, reiki and reflexology.

I had to finally give up my well-paid job as a social worker due to intimidation,bullying and threatened disciplinary action by senior management due to my illness. This was the first I'd worked since May, with the exception of one week when I went back to work against GP's advice to try and prevent disciplinary action. I was so ill, I put in my resignation the following week. It felt good to be out for the day. I'm now going to work a day a week and if I continue in good health I can increase this.

We travelled about 250 miles each way to visit my daughter at the weekend and I stayed awake for both journeys. My husband and I are so happy about this - it's a first. Normally I can't stay awake on any journey longer than 45 minutes. :D

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Di2011 Enthusiast
Di2011
Posted

Oh my isn't this the most amazing yet bizarre of "ah-ha" moments!!!??!! I had mine about 2 weeks ago. The washing up was done, clothes washed, floors clean, vaccumed and I was sitting at the table wondering what was next... "ah-ha" was this what some normal/healthy people actually do????????????????????????????

Link to comment
Share on other sites
Metoo Enthusiast
Metoo
Posted

I had mine yesterday! I feel so awake! I get up and go to bed with feeling like I am dragging! My stomach still is a little messed up....but yesterday I ate a bunch for lunch and felt FULL not pain! I realized that is what full is supposed to feel like!!

Link to comment
Share on other sites
maximoo Enthusiast
maximoo
Posted

I'm so happy for you (& everyone else who has improved!) I have a friend with a host of problems: fibromyalgia, herniated/bulging discs, scoliosis, gastro problems, etc. She has to take 50,000 units of Vit D daily! She was blood tested for celiac but it was negative. However I still begged her to go gluten-free & she finally did. Within 2 weeks the severe head/neck pain she has every single day of the yr has diminished, and her gastro problems are gone. I told her she will continue to improve. I almost feel like a Dr. b/c my advise helped. ; ) So to everyone you all will continue to improve, some more slowly than others

I wish you all the best!

Link to comment
Share on other sites
Silencio Enthusiast
Silencio
Posted

I would like to know how long you guys were having day to day problems before you started feeling better. I think it would be helpful to others too.

Link to comment
Share on other sites
navigator Apprentice
navigator
  • Author
Posted

I first started attending GP and hospital 3 years ago with debillitating fatigue. I'd had trouble with bowels, bloating, palpitations and joint aches all my life and just thought that everyone was the same and so never sought medical advice about these. I was finally diagnosed on 6th May this year and initially did not experience any improvement. At the end of August - beginning of September I started having good days/bad days. About 2/3 weeks ago I stopped having bad days and for the past week I have felt better than at any time in my life.

Hope this is the information you were looking for.

Link to comment
Share on other sites
India Contributor
India
Posted

Silencio - I've not had such a dramatic recovery but I can tell you that I do feel much better than I used to. My recovery was quite rough as I felt rather worse before I got better. After about eight months, I started figuring out my additional intolerances (soy, corn and FODMAPs) and that really helped. If you're not feeling better yet, keep looking for answers.

Navigator - glad to hear you're doing so well!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Silencio Enthusiast
Silencio
Posted

Yeah im feeling totaly fine right now, its just the beginning though. Im sure it will get a lot worse once im totally off gluten and take some in by accident.

Link to comment
Share on other sites
  • 2 weeks later...
navigator Apprentice
navigator
  • Author
Posted

My improvement has continued and I'm still working one day every week. It feels really good to be working all day and still feel okay at the end of the day - and I now get my treatments at half-price as I work every week :)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. plumbago
      - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed...
    2. trents
      - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    3. Suzi374
      - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it.
    4. Suzi374
      - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be be...
    5. Peace lily
      - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748
    Suzi374
    Newest Member
    Suzi374
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • plumbago
      Lots of tests

      By plumbago · Posted

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Lots of tests

      By trents · Posted

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Would like to gain weight

      By Peace lily · Posted

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...