• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Best Method Of Testing
0

Rate this topic

5 posts in this topic

Recommended Posts

My husband has been having some digestion issues over the last 3 months and we are planning on doing some testing come the first of the year. Over Thanksgiving I talked to his family and found there to be a family history of colon problems including: His Aunt just had some of her colon removed, his cousin recently went to the er with a ruptured colon due to diverticulitis, his mom won't admit to anything but has always struggled with c and hemmies, and his brother is currently having issues and going in for test the first of the year also(I found this out through his wife-he won't admit to it.)

So back to my hubby, he feels very inflamed in his colon and get fever blisters any time he gets contaminated. I have celiacs and so our house is mostly gluten free but when we say eat steak at a friends house, I will react and he reacts stronger!

So I guess I have 2 questions:

Does anyone have "inflamation" in their colon when they get contaminated? Or do you think it sounds more like colitus (he has no D but many of the other very typical celiac symptoms of fatigue, excessive foul smelling gas, anxiety, brain fog, anemia, etc. that last's about 2 weeks from contamination and then goes away)?

And: what tests should I request from my DR? Or should I just go to enterolab myself? The expense will be out of pocket one way or the other.

Thanks

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


If he is eating mostly gluten free, and only flares when he gets some gluten, the traditional testing is not going to be a lot of use for him, since it requires a full gluten diet for 2-3 months. You could go the Enterolab route - while not diagnostic it does give a picture of what is going on, including the genetic predisposition if you so choose. Does he discuss his symptoms with his regular doctor? It sounds like an endoscopy and colonoscopy could be a good idea for him to rule out colitis, Chron's and anything else. If you are sure it is specifically a gluten reaction and he has been avoiding gluten, the testing options are pretty limited.

Share this post


Link to post
Share on other sites

If he is eating mostly gluten free, and only flares when he gets some gluten, the traditional testing is not going to be a lot of use for him, since it requires a full gluten diet for 2-3 months. You could go the Enterolab route - while not diagnostic it does give a picture of what is going on, including the genetic predisposition if you so choose. Does he discuss his symptoms with his regular doctor? It sounds like an endoscopy and colonoscopy could be a good idea for him to rule out colitis, Chron's and anything else. If you are sure it is specifically a gluten reaction and he has been avoiding gluten, the testing options are pretty limited.

Yes I do know that it is directly related to gluten. I have watched his symptoms and what he eats. It's a cycle. he eats something, tummy gets icky, swelling begins, gas begins, when he starts to feel better a week later, he gets grumpy. Then when he starts to feel normal again after 2 weeks he eats something else that messes him up. He has been trying to be good, it just takes more knowledge to be aware of things like spices.

He hasn't been to the DR. I think he is nervous about what it could be. I am pushing him to get tested.

He says eating gluten to test is not an option and I don't want to waste my money sending him for a bunch of blood work if it is inaccurate. I am debating just doing the Enterolab gene test. Any idea how accurate it is in diagnosing?

Share this post


Link to post
Share on other sites

The gene test is not diagnostic -- it merely indicates a predisposition to develop celiac disease if he has DQ2 or DQ8, although a small percentage of celiacs carry different genes. The Enterolab test will also measure overall IgA levels, also not especially diagnostic except if they are exceptionally high.

Share this post


Link to post
Share on other sites

What are you trying to learn with the testing? You already know he can't eat gluten. There are forms of colitis that involve reactions to gluten. I don't know whether it's autoimmune or an intolerance reaction.

Right now the science of celiac testing is in such a sorry state of affairs that we can only dceliac autoimmunity by making someone have a complete relapse, and even then the tests are only maybe 80% accurate if you get both blood and biopsy. As Mushroom said, enterolab and genetic tests are not diagnostic.

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,160
    • Total Posts
      939,999
  • Member Statistics

    • Total Members
      66,143
    • Most Online
      3,093

    Newest Member
    honeyboss
    Joined
  • Popular Now

  • Topics

  • Posts

    • Pretty sure it's 12 weeks recommended by experts. Good luck to you!
    • Starch is gluten?  Ive been teaching all day and way too tired to make sense of this article.... http://healthyeating.sfgate.com/gluten-starch-same-thing-7317.html
    • I added some onion powder to my dinner today.After eating it i became curious and send an email to manufacturer.They told me its not gluten free they add starch to it.And on package it was saying we dont add anything else:( i dont have symptoms yet but they were selling a range of gluten free products so i remembered like it was gluten free and ugh im so tired of getting glutened by random and useless stuff like this i was doing great for more than a month then this happened im just exteremely sad right now Motivate me for tomorrow guys :((())  
    • Thank you both for the replies. The article is very insightful. Right now I am trying to reason with the thought of being miserable for 4-8 weeks to get a diagnosis. I feel so good right now it seems almost not worth it, but I also need to know if something is wrong and if there are potentially any other digestive system issues. I will likely go on a gluten challenge and deal with the side effects... after all, Thanksgiving is coming up 
    • Cheetah, We all have to make our own health decisions based on our individual circumstances.  There is not any “one size fits all” approach.  ☹️In your daughter’s case, she was asymptomatic.  I also would find it hard to believe that she had celiac disease despite confirmed biopsies and antibodies tests.  I get the denial.  I just had anemia that was disguised by a genetic anemia.  I was shocked at the suggestion of celiac disease.  My hubby had been gluten free for 12 and I knew exactly what the treatment meant — gluten free for life.  A total game changer.   Because we have bought our health insurance for over 20 years, we have lived through the times that I was uninsurable due to my Hashimoto’s, Rosacea and toe nail fungus (yes, that is right).    I never went without, but I could not freely jump from plan  to plan.  My premiums were higher than my hubby’s.  So, we worry that health insurance could change and I would be uninsurable again.  (Did I mention that our annual premium is $24,000?) However, the genetic test can be invaluable but is mostly used to help rule out celiac disease.  There are other genes associated, but they have not been studied well.   “So far, scientists have identified over a dozen possible non-H.L.A. genes that may be associated with celiac disease, but whether these genes actually play a role remains to be seen.”  (Sheila Crowe, now head of the American GI Association).   https://consults.blogs.nytimes.com/2010/01/13/genetic-testing-for-celiac-disease/ The antibodies test, in conjunction with the biopsies is the best means of diagnosing celiac disease to date.  The blood test is the least reliable as there are false positives (rare).    It is hard to dispute villi damage.  Too bad your Aunt did not get a biopsy, but understandably, an endoscopy can be costly if you lack insurance and there are many other reasons, so many are forced to forgo this procedure.   https://www.ueg.eu/education/latest-news/article/article/mistakes-in-coeliac-disease-diagnosis-and-how-to-avoid-them/   It is unfortunate that we must weight the risks and benefits of everything.    
  • Upcoming Events