• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
rana

Need Dectective Help

Rate this topic

Recommended Posts

Hello! I need some help/insight into my current situation: I am getting glutened first thing in the morning and I cannot for the life of me figure it out. I have learned I'm pretty sensitive (I eat nothing processed, at the moment in attempts to figure this out I am not even using spices, just meat and veggies and rice and i wash all those things as best i can, gluten-free kitchen and all that). The attack starts before I even get in the shower, this means NOTHING has even come near my mouth at this point. I have checked all my toiletries and even replaced them all with those that actually say gluten free on them. I suspected the chapstick I was using at night before I fell asleep (figure it doesn't really enter my stomach until I wake up and swallow, lick my lips, etc), I got rid of it, no help. Then I really thought I had it with my toothpaste (its aquafresh, i called about my previous aquafresh but realized i got a slightly different kind this time), same theory as the chapstick and would explain why i have a secondary gluten reaction come about 11am every day (morning glutening from brushing at night, afternoon from the morning brushing). I was so excited to wake up today convinced i had figured it out and would have the first real gluten free day in recent memory (if ever), but no luck. I really can't think of anything else, and it almost doesn't even seem food related at this point, I feel fine by the time I get home after work every day regardless of dietary changes (this is a minor cc reaction, but still annoying) does anyone have any ideas? My lotion is gluten free, I use Tide degerent and I believe Ajax dish soap (I have to double check though). I realize you really need to figure these things out for yourself, but like I said, I'm out of ideas and I just started a new job (after not working for a year to recover, I was so sick) so I really can't afford to be sick everyday like this. Any thoughts are very much appreciated!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi Rana, I have just one question before trying to answer your question. Does the attack go away as soon as you have a bowel movement? What are the symptoms?

Share this post


Link to post
Share on other sites

Also, when you say before you get in the shower and nothing has touched your mouth -- does that include no coffee either? I'm just asking because it might be one of those things we don't even consider as a possibility.

Share this post


Link to post
Share on other sites

Hi Rana, I have just one question before trying to answer your question. Does the attack go away as soon as you have a bowel movement? What are the symptoms?

This is an excellent idea. I noticed I now get nauseous if I don't have a regular bm (or need to go and can't at the moment).

Also, what about seasonal allergies? Mine make me ill - I even get a fever from them.

Are your ears ok? That can throw you off completely.

What do you DO at 11 every day? Are you hungry? Do you go to a specific spot? Perform a particular task?

Share this post


Link to post
Share on other sites

And you've been gluten free for a while now I'm guessing...

Are you waiting too long between meals/snacks? The timing sounds like when your stomach is most likely to be empty ie first thing in morning and long after breakfast/before lunch

Feel free to post a list of any of the bathroom/cleaning/laundry products (+ ingredients where you can, not just the brand but alsoo the type eg XYZ soap with dfsdfjsd for sensitive xyz) that you use and that touchs your skin. I'm gradually getting to be pretty familiar with the ingredients that cause me trouble but appear to be unrelated to gluten. I might be able to help.

I avoid anything with Xanthan gum (in most toothpaste, and many gluten-free foods). Doesn't matter what product (food / cleaning/bathroom or anywhere) it was in but I seemed to take 10 steps backwards.

Share this post


Link to post
Share on other sites
Ads by Google:


THANK YOU everyone for taking the time to reply, really really appreciate it!

To answer your questions I don't feel better after a BM, but I have been a bit more clogged up than usual and I did actually wonder if that was playing a role (if nothing more than gluten is staying in my system longer, not sure if that makes sense though). I have been wondering if its blood sugar issues and not glutening. I get blood sugar issues if i get glutened. these mysterious morning episodes have made my stomach protude like crazy as if a gluten attack (that symptom doesn't make sense to me blood sugar wise that's why I was thinking it was gluten), I've also had bouts of brian fog and irratibilty with it, which for me is a tell tale gluten sign, but again, that could be blood sugar i suppose... my biggest symptom throughout the day is armpit sweating (so attractive!) and feeling hot in the cheeks, i get these when i get glutened as well. its just that same feeling, like you know its gluten, you just know, but maybe i am wrong. i hope i'm wrong!

I don't do anything in particular at 11am, i've even kept track of snacks, gum, chapstick, lotion, coffee (i buy whole beans, wash them, then grind them, i'm that paranoid)and no matter what i switch out or refrain from i seem to have the same result. Maybe I've cut down my food too much out of paranoia and my body is going haywire from it. i would hate that i'm bothering you guys if its just blood sugar, and admittedly i experience hunger pains throughout the day (something i cherish and didn't experience for years), when usually if i'm glutened i don't feel hungry for hours after if not days. these are minor attacks, but enough to distract me from learning a new job.

Diandliam, thank you for your offer of help finding safe cleaning products, i will take you up on that! (i'm at work now though, shhhh) What toothpaste do you use? I did switch to Desert Organics I think? and used it last night. was too scared to use it again today, and admittedly i did do better today overall, but i'm realizing its probably not toothpaste related. What liquid hand soap is safe? that's one i've been worried about, i use the off brand Equate maybe i shouldn't.

Is it possible to have 'phantom' symptoms? Like maybe I've been getting glutened more than usual lately and it takes a while for symptoms to completely disappear? this is so confusing to me because i didn't use to have this problem, i would wake up feeling great and only have blood sugar issues if i got glutened. maybe its new job stress coupled with everything. i have insurance again so i'll hit up the doc for other intolerances and blood sugar issues.

Share this post


Link to post
Share on other sites

I'd try the blood sugar thing first, seems the most obvious.

Try adding fiber in every meal, it stretches the protein.

Eat every 2 hours before you're hungry.

I'm sure you know all of this, but just thought I'd toss it in.

I went through a phase with blood sugar. It was awful.

Share this post


Link to post
Share on other sites

I'd try the blood sugar thing first, seems the most obvious.

Try adding fiber in every meal, it stretches the protein.

Eat every 2 hours before you're hungry.

I'm sure you know all of this, but just thought I'd toss it in.

I went through a phase with blood sugar. It was awful.

thank you! i will do that... i did know this but i haven't been doing it lately. i think i finally, finally, cut all the cc gluten sources out of my diet in the last few weeks so i'm sure that changes a person's body chemistry and could trigger bloog sugar issues. hashing this out on this forum has made me realize its got to be blood sugar. thank you again.

Share this post


Link to post
Share on other sites

Is it possible that it's something from the night before? Vitamins or other meds that you take every night? Often I can tell as soon as I wake up, but there are times when I think I feel OK when I first get up, and then WHAM it kicks in after a few minutes. More often for me, though, that's a corn reaction. Is it possible that you're reacting to something else?

  • Upvote 1

Share this post


Link to post
Share on other sites

Is it possible that it's something from the night before? Vitamins or other meds that you take every night? Often I can tell as soon as I wake up, but there are times when I think I feel OK when I first get up, and then WHAM it kicks in after a few minutes. More often for me, though, that's a corn reaction. Is it possible that you're reacting to something else?

well you're the first person i've heard from that also has morning episodes. this only started for me in the last few weeks and i can't for the life of me think of what changed. In the past these blood sugar issues have always been linked to gluten, so i hope i'm not still getting cc'ed somewhere because i sure don't know where at this point! i don't even take any vitamins right now or meds while i'm trying to figure out all gluten sources (i drink green smoothies for natural vitamins for now). i'm beginning to realize i need to check for other intolerances! i love corn. i hope its not that...

Share this post


Link to post
Share on other sites


Ads by Google:


It might be worth taking out the corn / rice (ie go grain free) for a week or so and then introduce one at a time. There seems to be a few members of this forum who have had to cut out all grains so worth considering. Make sure you stock up on a variety of yummy potatos for variety and to help fill the belly.

I'm in Australia so products probably differ but mostly imported so hopeful. Check your online healthfood/gluten free stores.

I have just (about a week) changed from a xanthan gum containing toothpaste to this one:

Ransom AloeDent Sensitive. aloedent.co.uk My teeth have never felt so clean and along with diet change are looking so much better in colour too. Not 100% convinced about other chemical ingredients (gluten free) so still doing my homework.

I've had no reaction to the change so hope I'm on to a winner.

I did some googling and presume your toothpaste is Desert Essence ? The ingredients look good. I'd avoid it only for the seasalt (my DH reacts to iodine) but otherwise probably better than the brand I'm using.

Bananas are my staple. I would be up and down like a yo-yo without them!

Share this post


Link to post
Share on other sites

well you're the first person i've heard from that also has morning episodes. this only started for me in the last few weeks and i can't for the life of me think of what changed. In the past these blood sugar issues have always been linked to gluten, so i hope i'm not still getting cc'ed somewhere because i sure don't know where at this point! i don't even take any vitamins right now or meds while i'm trying to figure out all gluten sources (i drink green smoothies for natural vitamins for now). i'm beginning to realize i need to check for other intolerances! i love corn. i hope its not that...

I would say you are on the right track here. Tracking meals or snacks from the night before may show something.

When I initially went soy free, I was just avoiding the things that would give me an (near) immediate reaction (soy sauce, protein, etc.). I felt much better, but I was having delayed (minor) reactions on the way to work in the AM. Since eliminating all other sources of soy (and correcting a couple of other intolerances), the morning issues went away.

Best of luck.

Share this post


Link to post
Share on other sites

stress is a digestive deal-breaker for me. i keep a little xanax around for unavoidable bad news and i take it in tiny tiny doses - like i break the tablet into sixths - it seems to help my guts not turn to jello. a new job would certainly stress me out.

soy (for me) will mimic gluten without the lasting effects so i eat as little soy as possible. or if i do eat some, i expect the results :P dairy just makes me tired after i eat it but no huge gut issues.

Share this post


Link to post
Share on other sites

thank you everyone! Its obvious i need to check for other intolerances. I don't eat any soy at the moment (no processed foods so its not sneaking in) but I do eat a little corn and one serving of brown rice a day. The corn is eaten at night though so that's something to consider! I used to cut out all grains (did the Specific Carbohydrate Diet for a while, it really helped, but now I follow it loosely which sort of defeats the purpose of it).

notme! - good name - i just put that together last night myself, i know i was majorely stressed at the prospect of getting this job, then way more stressed when i actually got it, its intimdating to join the world again after gluten takes you out of it, and i'm thinking the stress maybe triggered my blood sugar issues again, regardless of gluten. And i do still think that maybe that aquafresh toothpaste was subtely nailing me, it just makes so much sense the more i look back at other mystery glutenings (i would attribute it to a meal, then try that same food later and no reaction, etc, it all times out to when i would brush my teeth!). but who really knows.

anyway, thanks again for everyone's input! I'm seeing some improvement over the past few days, hopefully i can keep that momemtum up!

Share this post


Link to post
Share on other sites

I have been finding that if I get overtired or stressed at work or even when out trying to get errands done, it will bring on a milder form of gluten reactions, I have found that if I can relax and calm myself or just take a break and rest, that the symptoms will go away - I am pretty new to this so am not ruling out that it could be lingering effects from being cc'd (like you I am still in the process of changing out my toothpastes and lotions etc - there is just so much to work out). But my feeling is that for myself, some of these reactions are stress related and my hope is that as I get further along in my recovery that things will level out. Hope things work out for you.

Share this post


Link to post
Share on other sites

well you're the first person i've heard from that also has morning episodes.

That's when I get my worst GI symptoms too. Sometimes very early in the morning. For me it can be anything I had the day before. I would eliminate almost everything to figure it out. For a few days you can go without toothpaste, soap, laundry detergent etc. If that doesn't help, then you know it's your food. Start using that stuff again and start eliminating food things etc. Elimination diets are the only way I have managed to do it. It is hard to count on other people's reactions unless you are very familiar with their reactions and know that theirs are like yours. We are all individual in our levels of sensitivity and just because someone else reacts to something or doesn't gives us no assurance as to what we will react to. This is stated in the recent FDA report analyzing research of gluten exposure. http://www.fda.gov/downloads/Food/ScienceResearch/ResearchAreas/RiskAssessmentSafetyAssessment/UCM264152.pdf

  • Upvote 1

Share this post


Link to post
Share on other sites

Thank you both for your input... I do believe stress is playing a role, but I also believe gluten must still be getting in somewhere. I have been doing the swapping in and out of things (i went two days without using traditional toothpaste don't tell!) and no definitive results. My lasest guess is the On The Border corn chips I've been eating, I usually eat them at night, it was my last hope of being able to eat easy, ready made, food and i was desperate to hold onto them. So no more chips for a while, maybe forever if that's proving to be it.

Steph, I see you on a lot of posts and have come to trust your opinion as you seem like one of the few people on here who really is pretty sensitive. Thank you for being a helpful presence on this site. Is there any kind of peanut butter you can use? I would love to have peanut butter back but am too scared to try any. Also, is there a source you know of for safe nuts? I have tried nu tson line but became suspiscious of their almond flour and stopped (i'm not sure if its the flour or not, further testing needed, but don't want to test until i am truly gluten free for several weeks, which i'm close to being able to do but not there yet). Thanks again!

  • Upvote 1

Share this post


Link to post
Share on other sites

Steph, I see you on a lot of posts and have come to trust your opinion as you seem like one of the few people on here who really is pretty sensitive. Thank you for being a helpful presence on this site.

Thank you. (I think LOL)

Also, is there a source you know of for safe nuts?

I'm sorry, but no. I'm trialing almonds from Anderson Almonds currently, but don't have a definitive answer yet. They are shelled and I really hope they work. I do know someone else who is very sensitive who recommended them, which I why I am trying them.

In general nuts work better when you shell them yourself. That worked for me for some time until I started noticing reactions to lower levels. It's time consuming though.

I have noticed that nutsonline carry gluten containing products in addition to their nuts. anuts was a gluten free facility last I checked and they are the ones from which I used to get my nuts in shell.

I WAS ASKED MY OPINION AS A SUPER SENSITIVE

FOR THOSE WHO ARE NOT SUPER SENSITIVE, NUTS ARE NATURALLY GLUTEN FREE

  • Upvote 2

Share this post


Link to post
Share on other sites

Hi Rana, I just had a look at your symptoms list again and can say I've recently been having terrible sweating periods in the mornings (feeling much hotter than it actually was) and also pooling in the stomach (with bloating). It doesn't say on your profile if you are a lady or gentleman. For my part I know that I was experiencing quite an imbalance of hormones and there was a lot of pooling of food/blood in my lower belly during these episodes. With the herbs I'm taking that is getting quite a lot better. How is your digestion overall? Do you void your bowels every day? Is there any sign of constipation/dehydration?

Share this post


Link to post
Share on other sites

Hi Caroline, thanks for taking the time to try and help me! I am a lady (or at least a female hehe), so I suppose hormones could be playing a role. I am not sure if I've ever experienced "pooling" specifically, but I defintely, absolutely, experience the good ol' stomach bloat. My stomach is pretty much permanently bloated all the time right now with all this stuff going on and gets worse when I get glutened. If only I could wear sweat pants to work on those days ;). My digestion seems great otherwise, I can tolerate dairy like a champ (i took a long break from it while healing but am back because i couldn't help myself), and I can tolerate fruits / veggies I couldn't tolerate when first going gluten free. I do seem to void my bowels most days which I attribute to my green smoothie intake, otherwise I think I would have to deal with constipation pretty regularly (did you like my wording there? is that a pun!?). I try to drink plenty of water being in Colorado so I'm usually pretty good about that, but by no means perfect.

What herbs are you taking and which brands? and speaking of, Steph can I pick your brain one more time and ask if there are any brands of supplements you have found to be safe? I hate to not be taking any but I'm just too terrified right now and have gotten horribly ill off several brands that say "gluten free" right on the label. I really seem to be highly sensitive right now. Does that ever wear off for some people?

I still seem to be having some hot episodes here and there (i'm only 29 so no menopause yet!) but they have come down drastically with the absence of those corn chips. Sigh... I miss them. Now I'm wondering if its CC or a corn intolerance and hoping nothing else pops up to bother me, I am so ready to feel "normal". Or at least my version of it.

Share this post


Link to post
Share on other sites


Ads by Google:


Steph can I pick your brain one more time and ask if there are any brands of supplements you have found to be safe?

I made a health breakthrough when I dropped all vitamins and supplements. Counter intuitive, isn't it?

I MENTION THIS REACTION AS A SUPER SENSITIVE CELIAC. SORRY TO BE IN THE REGULAR SECTION, BUT I WAS SPECIFICALLY ASKED A QUESTION. PLEASE DISREGARD IF YOU AREN'T A SUPER SENSITIVE CELIAC.

I try hard to eat a balanced diet and get everything I need through food.

I did add back an iodine supplement, Thyadine,and Life Extension Vitamin D3, 2,000 IU, in the winter. I diluted it since I didn't want to take that much. I only need a drop a day of each. That cuts down the effect of possible cc.

  • Upvote 2

Share this post


Link to post
Share on other sites

I made a health breakthrough when I dropped all vitamins and supplements. Counter intuitive, isn't it?

I MENTION THIS REACTION AS A SUPER SENSITIVE CELIAC. SORRY TO BE IN THE REGULAR SECTION, BUT I WAS SPECIFICALLY ASKED A QUESTION. PLEASE DISREGARD IF YOU AREN'T A SUPER SENSITIVE CELIAC.

I try hard to eat a balanced diet and get everything I need through food.

I did add back an iodine supplement, Thyadine,and Life Extension Vitamin D3, 2,000 IU, in the winter. I diluted it since I didn't want to take that much. I only need a drop a day of each. That cuts down the effect of possible cc.

It is so interesting that you should say this. Though I'm on a herbal prescription i completely dropped my usual vits/minerals and the wierd thing is that I really don't feel that i need them at all now. I don't get the muscle aches, itching, D and other things that used to bother me so I suppose am very lucky! Like you the vits seemed to be making things worse not better!

  • Upvote 1

Share this post


Link to post
Share on other sites

Hi Caroline, thanks for taking the time to try and help me! I am a lady (or at least a female hehe), so I suppose hormones could be playing a role. I am not sure if I've ever experienced "pooling" specifically, but I defintely, absolutely, experience the good ol' stomach bloat. My stomach is pretty much permanently bloated all the time right now with all this stuff going on and gets worse when I get glutened. If only I could wear sweat pants to work on those days ;). My digestion seems great otherwise, I can tolerate dairy like a champ (i took a long break from it while healing but am back because i couldn't help myself), and I can tolerate fruits / veggies I couldn't tolerate when first going gluten free. I do seem to void my bowels most days which I attribute to my green smoothie intake, otherwise I think I would have to deal with constipation pretty regularly (did you like my wording there? is that a pun!?). I try to drink plenty of water being in Colorado so I'm usually pretty good about that, but by no means perfect.

What herbs are you taking and which brands? and speaking of, Steph can I pick your brain one more time and ask if there are any brands of supplements you have found to be safe? I hate to not be taking any but I'm just too terrified right now and have gotten horribly ill off several brands that say "gluten free" right on the label. I really seem to be highly sensitive right now. Does that ever wear off for some people?

I still seem to be having some hot episodes here and there (i'm only 29 so no menopause yet!) but they have come down drastically with the absence of those corn chips. Sigh... I miss them. Now I'm wondering if its CC or a corn intolerance and hoping nothing else pops up to bother me, I am so ready to feel "normal". Or at least my version of it.

Hey Rana

It's great that we can all compare notes on our symptoms and hopefully find solutions. I'm on a proper herbal prescription made for me, so not necessarily the right herbs for you. Amongst them are: Schizandra Chinesis, Rosemary, Dong Quai, Borage, Burdock, Siberian Ginseng, Oregon Grape Root. To tell you the truth I feel better than I have done in ages digestion wise but some of the symptoms i've been having since i was a teen have cropped up (unrelated to gluten)... left arm pain, left lung congestion (sounds like angina but it isn't) - might be from all the cheese I've decided I'm going to eat :-). I'm hoping that they will start to go eventually too. Overall the effects have been amazing... more energy, clearer head, sleeping like a log (and i mean like a peice of wood, out for the count!!!), regular voiding of bowels (I did love your pun btw!). I had heat issues since my twenties and am only 40 now but found after children it was much worse... boy you are making me feel OLD!

The other great thing is that I'm hardly reacting to things anymore. I thought i was reacting to the food I ate... but no, it was basically that when I ate my liver was filled with congested blood (TCM term i.e. full of backed up hormones, compounds it was trying to excrete, cholesterol etc) and when i ate my liver just got overwhelmed and started dumping bilirubin in to my blood stream (hence the itching). This is what i had when I was pregnant (cholestasis). With the bitters in this mix my bile flow is much better. Cholesterol and hormones levels in my system are normalising. If you have a registered herbalist near you try going to see them but as Yolo on here says be very careful that they are using NON GRAIN alcohol - it would need to be something like beet (sugar beet here in the UK)... large companies like Vogel use this method.

  • Upvote 1

Share this post


Link to post
Share on other sites

i completely dropped my usual vits/minerals and the wierd thing is that I really don't feel that i need them at all now. I don't get the muscle aches, itching, D and other things that used to bother me so I suppose am very lucky! Like you the vits seemed to be making things worse not better!

There's been some press lately about how vitamins aren't regulated very well. That might have something to do with it.

About an earlier remark you made: I definitely notice a hormonal effect on my gluten reactions. They have always seemed worse when I am having my period. I noticed this even before I had heard of gluten.

Share this post


Link to post
Share on other sites

There's been some press lately about how vitamins aren't regulated very well. That might have something to do with it.

About an earlier remark you made: I definitely notice a hormonal effect on my gluten reactions. They have always seemed worse when I am having my period. I noticed this even before I had heard of gluten.

Yes, re the hormones. I have always suspected something wierd. I'm at the end of the month now and whilst it is definitely better, some things are still there faintly in the background. However, I used to be awful in the run up to my period. I knew things were really bad when it seemed like i had pmt for about 85% of the month!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,912
    • Total Posts
      943,463
  • Member Statistics

    • Total Members
      67,066
    • Most Online
      3,093

    Newest Member
    JULEZ
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hello all! I am new on here, and I was wondering if it worth a look for me to get tested for celiac disease. I've been experiencing severe stomach aches accompanied by issues with loose stool, constant fatigue, lots of infections, worsening of skin on my face, frequent nausea, lots of trouble losing weight. I'm asking because I was feeling better at home from vacation after having a very rough semester at school and I'm not very good at keeping track of what I eat typically, but at home it is mostly vegetables and meat, with the occasional rice thrown in. This morning I had my first bagel in months and was extremely nauseous with severe pains and urges to run to the bathroom.  Do y'all think it is worth a try to get tested for celiac disease or some type of gluten intolerance? I'm so tired of being sick and not knowing why... Thank you <3 
    • LexieA, I agree with Plumbago. The symptom's of low stomach acid and high stomach acid are similar so it is easy to confuse the symptom's of one as the other. Dr. Myatt explains this well in her online article about stomach acid. http://healthbeatnews.com/whats-burning-you/ quoting "But My Symptoms Feel Like Too Much Acid…" Strong stomach acid and pepsin quickly "emulsify" fats and proteins, making them ready for the next step of digestion, passage into the small intestine. When these digestive factors are weak, food remains in the stomach for longer and it begins to ferment. Gas pressure from the fermentation can cause bloating and discomfort and can can also cause the esophageal sphincter to open, allowing stomach contents to "backwash" into the esophagus. Even though weak stomach acid is the central cause of this, even this weak stomach acid, which has no place in the esophagus, will "burn." This burning sensation confuses many people, including doctors, who then "ASSuME" that excess acid is to blame. Too little acid, resulting in slowed digestion, and gas which creates back-pressure into the esophagus is the real cause of almost all "heartburn" and GERD." so  you can see how they can easily be confused for each other. you no doubt are having stomach acid issues but it is because it is too little or too much? Timeline helps us determine which it is. If it happens when we eat something it is already to low to  digest the food we are eating. if eating something cause the heartburn/gerd to improve (especially meat) then your stomach acid is really too high especially if this happens between meals. because eating something will naturally dilute/lower the stomach acid pH. I wrote about my stomach acid being misdiagnosed on my celiac.com posterboy blog. ( have summarized most of what you need to know in this reply but the post is still there if you want to study it more for yourself. if your not taking an antacid now then taking BetaineHCL should improve digestion. If it does then raising your stomach acid by lowering you pH should improve your digestion. study on the best way to take powdered stomach acid before trying this. but I found taking 3 to 4 capsules in the beginning was easier than taking only 1 or 2 in the beginning .. .  until I could back it down to only needing one per meal or now none per meal to aid digestion. which is what we are shooting for.  The place where our body is now producing our stomach acid naturally at a healthy level. if you feel a "warm sensation" in your stomach you have reached a good level. I hope this is helpful. I only know it helped me. *** this is not medical advice but I hope you have as a good experience with it as I did. Usually peopledon't  have a trouble taking BetaineHCL unless they have an ulcer or already taking PPI's which are actually lowering  their stomach acid contributing to a viscous cycle of being locked into taking PPI's long term. if PPIs are taken for more than 6 months they can be almost impossible to stop/quit because of the acid rebound people experience when trying to stop taking them cold turkey and why they recommend stepping back doses by 1/2 gradually so they don't get overwhelmed by the stomach acid your stomach is  able to produce again naturally itself (hopefully). . . if taking betaineHCL jump started your ability to produce stomach acid again. . . if not taking betaineHCL (Powdered Stomach Acid) can replace what the body is missing much like taking a hormone. chris kresser has a good online article on this subject as well. https://chriskresser.com/what-everybody-ought-to-know-but-doesnt-about-heartburn-gerd/ he says it well. quoting chris kresser. "If heartburn were caused by too much stomach acid, we’d have a bunch of teenagers popping Rolaids instead of elderly folks. But of course that’s the opposite of what we see." **** this is not medical advice but I hope it is is helpful. posterboy by the grace of God, 2 Timothy 2:7 "Consider what I say; and the Lord give thee understanding in all things".  
    • Lex_ I agree with Ennis_Tx. You need to take some Magnesium.  It works best as a Magnesium Citrate or Magnesium Glycinate. Magnesium Citrate are easiest to find. Take it 2/day for the first couple weeks to see how much more energy you have. Then you can take it with each meal or 2/day and one hour before bedtime if it is not convenient to take it at work. If it is working you (right form of as a Magnesium Citrate or Glycinate) you will will experience vivid dreams. And wake up with enough energy to take on the day. **** this is not medical advice but it really helped my chronic fatigue symptom's. It is good for leg cramps too also known as charley horse's. posterboy,
    • I am sorry that I was not clear.    I only mentioned  your diagnostic background, not to discredit you, but because without any lab results (other than a positive gene test), how can you be sure that gluten (shampoo containing wheat protein) was the actual culprit (not a guess) of your symptoms?  It is common for celiacs to receive follow-up antibodies to monitor their dietary compliance.  This is not perfect, but it is the only tool in the toolbox for now.   My husband has been gluten free 12 years prior to my diagnosis.  He went gluten free per the poor advice of his GP and my allergist.  So, I am not trying to discount your diagnosis at all.  I am just trying to see if other lab tests (e.g. liver tests that were elevated previously for you when you were still consuming gluten) were measured after your shampoo exposure.   I am curious because I have had issues over the last year.  I was glutened last January, had the flu, a tooth infection, a cold and a tooth extraction, three rounds of antibiotics (verified to be gluten free) within a month or so.  Like, you, I am very careful.  I have no idea as to how I was exposed.   The last time I ate out was a year ago and even then it was at at 100% gluten free restaurant.   My hubby did not have any symptoms at this time.  He is like my canary.    I went to my GI and my DGP IgA was off the charts even some three months later.   My celiac-related symptoms diminished in three months, but I struggled with autoimmune hives for six.  My GI offered to do an endoscopy in the summer.  Instead I chose to follow the Fasano diet.  I still was not feeling well.  In December, my antibodies were 80.  They were either on a decline or they were increasing again.  I opted for the endoscopy.  My biopsies revealed a healed small intestine (you could see the villi on the scope too).  But I was diagnosed with chronic gastritis and had a polyp removed.   So, all this time I thought my celiac disease was active, but it was NOT the source of my current gut issues.   Again, my apologies.  I just wanted to know how you know for SURE that hydrologized wheat protein from someone else’s shampoo and conditioner could reach your small intestine to trigger an autoimmune reaction.  Maybe, like me, Gluten was not the actual culprit.    
    • The reason I think it was the shampoo? Process of elimination. Our house is almost entirely gluten free (except for this shampoo which slipped through the cracks until I read the ingredient label). My husband has bread that he eats at lunch, but he practices something that resembles aseptic technique from the lab when he's making his sandwiches. He's been doing this for years now and I've never been glutened from within my home. The previous week I hadn't eaten out, I cooked all my food, I don't eat processed food and I never eat something from a shared facility.  Usually if I get glutened it's a single dose sort of thing and it follows a very predictable course, to the point where I can estimate when I got glutened within 24 hours of when it happened. However, this time, I was feeling achy and arthritic and moody for about a week before it got bad enough for me to recognize it as the result of gluten exposure, at which point we went searching and found the shampoo (and conditioner, which does leave more of a residue than shampoo), which he immediately stopped using. Within three days I was feeling back to normal (which is the usual course for me).  Sure, it could have been something else, but I know how sensitive I am, and, as silly as it sounds, it was the only thing that made sense. The other thing you said: You're correct, mine was not a rock solid celiac diagnosis, but I have no doubt that gluten is the problem. I was SICK. I went through two different gluten challenges in an effort to get a more straightforward diagnosis during which I was a barely functioning human being. Consuming gluten may not have given me blunted villi or elevated antibodies, but it did inflame my gut, and actually started to damage my liver. If you look at my diagnosis thread, I had elevated liver enzymes, which have been correlated with celiac disease in the past. There was no alternative explanation for the liver enzymes, he checked EVERYTHING.  I too am a scientist and I have spent a lot of time with the literature trying to make sense of my condition.  https://www.ncbi.nlm.nih.gov/pubmed/26150087 I also have no doubt that gluten was damaging my intestines in some way, as any prolonged gluten exposure in the past has inevitably been followed by a severe FODMAP intolerance that goes away once I've eliminated the gluten and given myself a month or so to heal.  I also had a very fast diagnosis following the onset of symptoms (~1 year) so it's possible that the disease never had a chance to manifest as full celiac. I wasn't willing to eat gluten long enough to find out. As a result of my diagnosis, hazy as it was, I am *meticulously* gluten free. It is not a fad for me. I don't occasionally cheat. It is my life, for better or worse. All of that being said, I'm not sure what my diagnosis has to do with your question. You say you're not trying to be rude, but when you bring up my diagnosis in a thread that has nothing to do with diagnostics, it seems like you're trying to undermine the validity of my disease or the validity of my input in this forum. If I'm being hypersensitive, I apologize, but that's how you came across on my end. I'll admit that the fact that my diagnosis wasn't more straight forward does make me a bit defensive, but I promise that even if I didn't have a solid diagnosis, I interact with the world as though I did, and I'm not out there giving people the wrong idea about celiac disease by not taking it seriously. If there was a connection between your question and my diagnostics that I missed I would appreciate you giving me the chance to better understand what you were asking. 
  • Upcoming Events