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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

No Evidence That Gluten-Free Diet Promotes Weight Loss (with Reply by Dr. Ron ... - Celiac.com
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No Evidence That Gluten-Free Diet Promotes Weight Loss (with Reply by Dr. Ron ...

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By Amy O'Connell Amy O'Connell is a medical doctor and researcher who was diagnosed with celiac disease in 2003. She began writing professionally in 2010. Dr. O'Connell is working toward becoming a pediatric allergist/immunologist. ...

Cooking for Gluten Free Guests ValpoLife.com

US Foods Helps Colleges Meet Increasing Student Demand For Healthy & Gluten ... PerishableNews (press release)

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Very interesting article, thank you :)

It's indeed weird to think that some people treat a gluten-free diet as the latest fad diet. Some celebs go gluten-free because they think it will help them retain their weight. Odd...

For myself I'd have to say that before I got diagnosed, I constantly over-ate. I was hungry all the time, no matter how much I was snacking and munching. I didn't gain weight at that time. After diagnosis I gained maybe 6 or 7 pounds, but that's it. Now my weight is slowly dropping again because I now have enough energy to exercise. My weight is still healthy for my height, but I'm near the "slightly overweight" zone. Best lose a few pounds to stay safe.

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I wonder if the problem is because there is a gluten-intolerance "disease" yet to be "named" that has an alternative effect on individuals. ie overweight not "wasting". seems to fit my symptoms and recovery.

Celiac is a young disease in terms of how well and how long it has been known. Perhaps there is a genetic or alternative "reaction" to gluten (or wheat) that in a decade or two from now will be in same "known" state as celiac is today. I put myself in that category.

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Celiac is a young disease in terms of how well and how long it has been known. Perhaps there is a genetic or alternative "reaction" to gluten (or wheat) that in a decade or two from now will be in same "known" state as celiac is today. I put myself in that category.

I've thought the same: my antibody test was negative and my biopsy wasn't reliable enough to rule out celiac disease. However, I have strong reactions to gluten and my health quickly improved when I went gluten-free. My GI told me that we might never know and that I should just stick to the gluten-free diet.

Interesting fact about the history of the discovery of celiac disease: (from wikipedia)

While a role for carbohydrates had been suspected, the link with wheat was not made until the 1940s by the Dutch paediatrician Dr. Willem Karel Dicke.[98] It is likely that clinical improvement of his patients during the Dutch famine of 1944 (during which flour was scarce) may have contributed to his discovery.[99] Dicke noticed that the shortage of bread led to a significant drop in the death rate among children affected by celiac disease from greater than 35% to essentially zero. He also reported that once wheat was again available after the conflict, the mortality rate soared to previous levels.[100] The link with the gluten component of wheat was made in 1952 by a team from Birmingham, England.[101] Villous atrophy was described by British physician John W. Paulley in 1954 on samples taken at surgery.[102] This paved the way for biopsy samples taken by endoscopy.[6]

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Oh I know how bad that war was but maybe.. just maybe .. it may have sped any research about gluten intolerance. It wasn't a wanted war but I think that it created an absence of grains which was a seriously important development in the understanding the "wasting disease" aka celiac but unfortunately an understudied/unexpected experient.

I don't think this gluten/grain issue would be such a big deal to study if it wasn't for economics and history. ugghh.

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I should explain my response. I'm not a "wasting disease" typical case. overweight, avoided breakfast, didn't like sandwiches, pasta etc etc .. overweight and lethargy.. so must be lazy and need to get a life.

I wonder if there was serious and sufficient research that there would be a not-celiac but alternative "disease" for us that are bloated, overweight, lethargic etc?

Just putting it out there. No arguments please!

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I would like to see the weekly diet log of those who ate gluten free, didn't lose weight, and their respective exercise activity. Unfortunately, I think it's relatively safe to assume that their food diaries would have a number of gluten free items that MOST definitely will not lead to weight loss: gluten-free Cookies, gluten-free Cakes, gluten-free Brownies, gluten-free Cheesecakes, etc. In fact, these are generally empty calories, full of carbohydrates and sugar.

I would recommend that if the participant in the study were eating the aforementioned "processed items" (regardless of exercise or not) that they replace them with foods that have been gluten free for thousands of years.

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I had someone tell me his mom buys gluten-free processed stuff because she thinks it's healthier.

I could tell he didn't buy it...he was quite interested in what I had to say, especially hearing that I'm on the gluten-free diet for a medical reason. He also thought it was funny that I buy very few gluten-free processed products.

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I think the thing is that people who have no problems with gluten (i.e. not celiac, no wheat allergy, not non-celiac gluten intolerant) who normally eat poorly (i.e. a lot of processed foods, fast food) see gluten free as the answer to loose weight because they view it as less carbs, cooking from scratch, etc. But I bet they could just as easily lose the weight by eating whole grain (with wheat bread), cutting out fast food, exercising, etc. My mom eats super healthy, but she still eats gluten! A gluten free chocolate brownie is still a chocolate brownie!

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He also thought it was funny that I buy very few gluten-free processed products.

Funny or WISE?

Good decision making my friend.

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Funny or WISE?

Good decision making my friend.

Funny because his mom buys them to be healhy and I DON'T buy them to be healthy :).

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There are some bodybuilders who use a gluten-free diet as a contest preparation. They claim that going gluten-free drains excess liquids from their body and makes the muscles more visible. This is not comparable to our situations however, because these people have often dieted for years and are as lean as can be.

Still, if you make the right choices a gluten-free diet can be very healthy, even more healthy than your average "see-food" diet. I'm speaking from personal experience when I say that you're less likely to eat junk food and snacks. Especially when on the go gluten-free foods are hard to find. Your cooking style also radically changes: no more cooking from bags and boxes but fresh flavours like herbs, garlic and pepppers instead.

As Gladiator said, a lot of health food is naturally gluten-free. I've switched to a diet that's slightly higher in protein and fat and easier on the carbs. Instead of having a sandwich for a meal I switched to unprocessed nuts, eggs or a salad with fish or chicken. For breakfast I use slow-carb foods like pancakes from teff flour or buckwheat, or gluten-free oats with seeds and dried fruit. This also helps against hunger-cravings that I used to have. Compared to what I used to eat before the diagnosis, my diet has improved a lot.

This didn't happen at once though, the first year was quite a puzzle. You see, gluten-free products like cookies and starchy crackers are widely available, but I haven't had a decent bite of brown bread until last week. They finally started to sell oat-bread here in NL, it's made from oats that were grown in a controlled field. Absolutely great!

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I would like to see the weekly diet log of those who ate gluten free, didn't lose weight, and their respective exercise activity. Unfortunately, I think it's relatively safe to assume that their food diaries would have a number of gluten free items that MOST definitely will not lead to weight loss: gluten-free Cookies, gluten-free Cakes, gluten-free Brownies, gluten-free Cheesecakes, etc. In fact, these are generally empty calories, full of carbohydrates and sugar.

I would recommend that if the participant in the study were eating the aforementioned "processed items" (regardless of exercise or not) that they replace them with foods that have been gluten free for thousands of years.

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I could not agree more. When I told my mom I had to go gluten free, she started calling me up every single time she saw any thing labeled gluten free. Nine times out of ten it was some kind of bread or cake substitute. She meant well and I just thanked her.

The "Aunt Bee Effect" to a "T" LOL

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    • Good advice Ennis!  I would add baking and freezing some gluten-free cupcakes to have on hand, so that she is never left out.  Be sure to read our Newbie 101 tips under the coping section of the forum.  Cross contamination is a big issue,  If the house is not gluten free, make sure everyone is in board with kitchen procedures.   Hopefully, your GI talked about the fact that this AI issue is genetic.   Get tested (and your TD1 child).  TD1 is strongly linked to celiac disease.  About 10% of TD1's develop celiac disease and vice versa.  Get tested even if you do not display any symptoms.    http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/
    • What does weak mean?  Like you squat down and and you can not get back up?  Or are you fatigued?  When you said blood panel, was your thyroid tested?  Antibodies for thyroid should be checked if you have celiac.  So many of us have thyroid issues.  
    • We are not doctors, but based on the results you provided, you tested negative on the celiac screening test.  You could ask for the entire celiac blood panel to help rule out celiac disease.  The other IgA that was high?  It normally is given as a control test for the TTG IgA test (meaning if the celiac test results are valid).  In your case, the TTG IgA test works.  Outside of celiac disease, you might have some infection.  Discuss this with your doctor as he has access to your entire medical file.  I would not worry about it though over the weekend!  
    • See: http://www.cureceliacdisease.org/faq/can-a-skin-biopsy-for-dermatitis-herpetiformis-dh-confirm-celiac-disease-or-is-an-endoscopy-still-needed/ Take a copy of that with you or mail it to the doc. How many endoscopic biopsies did they take? Those with dh tend to have patchier damage than "normal" celiacs.
    • Ironictruth, I think that is a very insightful thought. since different antibodies present for different body systems all the ways gluten affects the body is still not well understood. Here is a case of presumably someone who had the gut damage of a celiac but also had neurological damage. http://www.nature.com/nrneurol/journal/v3/n10/full/ncpneuro0631.html entitled "A case of celiac disease mimicking amyotrophic lateral sclerosis" so it has happened in the literal but since this is not well understood people don't make the connection today. I would also point you to this hindawi article on the "Lesson's learned from Pellagra" but I am afraid we haven' learn't yet. https://www.hindawi.com/journals/cggr/2012/302875/ notice specially the 2.1 section clinical feature of pellagra and all the neurological symptom's once associated with a Pellagra patient. quoting "The neurological manifestation did not stop there because other degenerative conditions, such as an amyotrophic lateral sclerosis-like picture, were described, with fasciculation of the tongue and upper and lower motor neuron signs. Cerebellar syndromes occurred and vertigo was frequent. Headaches, sensory and pain syndromes, epilepsy, and involuntary movements were noted as well as sleep disturbances. Cord lesions were also seen, as was optic atrophy, so there were multiple sclerosis (MS), like variants." which tells me doctor's don't recognize pellagra today when they see it because they haven't seen it in 75+ years. ***this is not medical advice but read the hindawi journal on lesson's learned and I think you will see yourself in their many descriptions of all the way Pellagra presents itself to doctor's and patients still suffering today and you can see why it (like celiac) is hard to pin down today because it presents in so many ways it can be soo overwhelming and since vitamins are not a focus anymore today (especially b-vitamins) that today I believe we are doomed to repeat history's lessons unless the current generation learns again all the ways pellagra presents itself today. good luck on your continued journey. posterboy by the grace of God,  
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