This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
Support this site by shopping at The Celiac.com Store.
These results, assuming you have been on a gluten free diet since the original tests in 2015, likely mean you are still being exposed to gluten which is why you still feel shitty.
Go see a GI or go on a non processed gluten free no going out to eat strict diet for 3 months and see how you feel.
Kitty! Thank you so much! Reading these words is so reassuring.... I've had a horrid weekend googling 'white spot on tongue' - so many horror stories about such a symptom. I then read a few more articles which were more balanced and gave other things - such as teeth grinding and sharp teeth being a cause, which for my sanity's sake I'm trying to focus on! Esp. as said sore is remaining stubbornly on my tongue!
I must thank you for the links, too.
Fascinating: In one it talks about 'Crazy muscle cramps in the form of stabbing pains in toes, calves, arches of feet, and backs of legs.'
The Deficiency: Magnesium, calcium, and potassium. "If it's happening frequently, it's a tip-off that you're lacking in these,"
That's absolutely incredible - I never knew that, as at night I am being woken by these pains in my toes and feet. Thank you so much. I did used to supplement these things and have stopped. I will look into this and try to eat more healthily and supplement too in the short to medium term while I recover.
I'm off to see my doctor tomorrow so having this information that you have sent in mind will be so helpful.
My tongue is the weirdest colour - my dentist spotted it straight away and said, 'Wow, you are anemic'. So if my ferritin is low - which I know it is - I'm probably running other deficiencies too.
Thank you so much again for taking the time to post.
Thank you so much for saying that. I don't deal well with unexpected things and getting a phone call saying hey we want you to go to the hospital for an endoscopy has thrown me for a loop. I googled celiac and everything mentioned cancers, chirosis, and lots of scary stuff. It caused me to go into a panic.
Having celiac means you have to buy brand b instead of brand a. A diagnosis for most people just means they have to go gluten free. Think of it in phases.
phase 1 - eat all of your favorite stuff with wheat, barley and rye until after the official diagnosis.
phase 2 - eat stews and simple foods until your symptoms go away.
phase 3 - eat whatever you want as long as it's gluten free. There's lots of great tasting equivalents to the stuff you're used to. Barilla pasta, Canyon Bakehouse bread, Betty Crocker cakes.
Oh, and the endoscopy is easy peasy.