• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Friends
0

14 posts in this topic

A really close friend of mine is so worryed about me. He wants to blame him self bout me having celiac disease. I just dont know what to do. I keep telling him to stop worrying bout me cuz i will be fine but he still worrys. I was thinking of tellin him to, if it makes him feel better, to go gluten free with me but he has told me before when we first found out that he would die if he couldnt have bread. Plus i know how hard it is to be gluten free i just dont want him to go through it and i dont think he could do it. I think he is willing to try. What do you think i should do?

Joe Moe

Gluten-free since February 23, 2004

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Celiacs is a genetic disease so there is no way he is to blame for you having it. If he is feeling this bad maybe going gluten-free would ease his feelings. I have friends who want to try my food but I wouldn never want them to go gluten-free if they don't have to. Talk to him and let him know to lighten up and that this is your new way of life. It is a new diet and you will be fine. It is better to know and be healthy that to not know and be sick. At least he cares a lot about you.

Kristina

0

Share this post


Link to post
Share on other sites

i keep tellin him that i will be fine. he just wont listen he will worry bout me no matter what so maybe i can tell him to go gluten-free that might help but i wont know till he trys. so thanks for the help. i will post later what he thinks bout goin gluten-free.

Joe Moe

ps i even talked to his sister and she said that he wont stop worryin bout me.

0

Share this post


Link to post
Share on other sites

Hya

Its good to hear ytou have someone close to you who cares.

but i was wondering why he wants to blame himself for your illness?

Does he think something he has done made it happen?

Maybe try surfing the website with him so he can see where celiac disease comes from and how many people have it for years before being diagnosed.

it might be that ytou had it before you knew him - you never know.

I hope you get sorted anyway - good luck!

nickra

0

Share this post


Link to post
Share on other sites

yeah he really does care bout me but i dont know why he blames him self he said it is just something that he does. i told him to go on line and try to talk to people that have friends that have celiac disease i dont know if he did or not i hope he did. well i got to go talk to him so i will post later

joe

0

Share this post


Link to post
Share on other sites
Ads by Google:


so this is what he said

me: i was askin round to peeps to see how i could help you to stop worrin bout me so much and they said that maybe that it would make you feel better if you went on the gluten free diet with me

him: whats got glutens in it?

me: bread

him: it'll be tough but i can try

him: im not sayin that you sould do it but if you think it will make you feel better then go for it

him: well it might make me feel a bit better, so i'll try it

me: ok

him: i'll still worry about you, but it might reduce the fears a bit

me: i will warn you it is hard you wont beacble to eat school if you are really gonna do it

him: like what?

me: burgers spagetti umm you name it it has glutens in it

him: wow...well, i will see what i can do for the most part, ok?

me: ok

him: i can't make guarentees

me: ok thats fine your doin this for you not me

him: ok, i will

Joe

0

Share this post


Link to post
Share on other sites

That is really weird. Hoepfully he will calm down some by going gluten-free, too.

Kristina

0

Share this post


Link to post
Share on other sites

It sounds like you have a tough situation but one where someone cares. Ultimately it is up to him to make the decision. I would suggest telling him how you feel once in a while, I mean if you feel sick or frustrated with the disease or if you feel great. It can be annoying but it may just help him settle down. I would also suggest going on the internet and finding information with him help him learn about the disease.

If it comes down to it and he is really dedicated to the diet, I wouldn't suggest it, but if he is let him do it and help you with your own after a while it gets easier to not eat gluten and enjoy life. Your friend will realize that after a few months.

Stepha

0

Share this post


Link to post
Share on other sites

Thanks for all your guys help. I do tell him when i do and dont feel good but when i do tell him that i dont feel good he really doesnt like it. I did suggest the gluten-free diet but he isnt doin good with that one. I think he want to do it but he just doesnt want to bring a lunch to school. So i dont know what he is gonna do. Thanks for the help i really appreciate it!

Joe Moe

0

Share this post


Link to post
Share on other sites

I have just one more suggestion:

Send him to this site and have him sign up. There is a message board for family members and friends that know someone with celiac, it might be a big help for him to find a support group.

Stepha

0

Share this post


Link to post
Share on other sites

I have told him about this site and he told me that he looked at it but i dont know if it helped any. I will ask him later if he has checked things out on the message boards.

Thanks,

Joe Moe

0

Share this post


Link to post
Share on other sites

Well i talked to him and i dont think he is goin to go the goluten free diet. i have decided to just not bring it up. So if i just dont talk bout it everything will be just fine.

Joe Moe

0

Share this post


Link to post
Share on other sites

I'm newish to gluten-free and my friends and family still worry about eating in front of me. I smell everyone's food (weird, but at least I get to semi-taste it) and I just tell them that I live vicariously through them... I think it helps them to know that I'm glad THEY enjoy gluten.

Camila

0

Share this post


Link to post
Share on other sites

I don't have someone who worries about me like that but what the other said is true why would he blame himself? it's genetic and he can't possibly be responsable. My friends were just glad to see me gain weight as I was 60 lbs weighing less than my 6 year old friend. My very best friend (a guy aswell) doesn't blame himself because he knows it's genetic and stuff but he worries that I don't eat enough and that I'm going to die and stuff but I tell him that I ain't going to die by missing a meal now and then. I don't think he believes me that much

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,802
    • Total Posts
      932,550
  • Member Statistics

    • Total Members
      64,291
    • Most Online
      3,093

    Newest Member
    1Newtothis
    Joined
  • Popular Now

  • Topics

  • Posts

    • I would suggest a certified gluten free soy sauce, just to be safe.  Test that and if you react, you'll be able to rule out a gluten reaction from La Choy.  
    • I second cycling lady here, you should not go gluten free unless your doctor confirms you have celiac disease via the blood test and a biopsy. You need to be eating gluten for the testing to be accurate so a 30 day trial based on the gene is a REALLY bad idea, getting back on gluten for the testing is a nightmare once out of your system. Also going gluten free, what are you eating? If your eating just a bunch of gluten-free foods that are processed like the pre made breads, foods etc. your on the wrong path. Those are normally non enriched and more like junk food/comfort food. You need to eat a whole foods diet, of various greens, meats, nuts, seeds, (fruit if you can have it and sweet potatoes). etc. Doing this will boost your healing and you and introduce some of those processed foods later on sometimes. If you have celiac disease then your intestines are probably damaged and you will need to supplement some nutrients, we all have common ones like magnesium, iron, b-vitamins, folate, potassium, D etc. and you should talk to a good doctor about what your missing. The whole out of it things sounds like b-vitamins to me. Another point is going gluten free, you have to be careful for CC if your a celiac, after removing gluten re exposure to gluten makes your symptoms MUCH worse, and the tend to change and evolve in addition. Be sure to check the Newbie 101, your pretty much have to replace most of your cookware, condiments, etc. https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/  
    • Do you still consume gluten and/or dairy? If so, I highly recommend that you eliminate both entirely. That includes anything with the ingredients; whey powder, casein, "lactose free" can be misleading as well. I also recommend taking a good probiotic regularly.  http://mentalhealthdaily.com/2016/03/01/10-best-probiotics-for-depression-anxiety-gut-brain-axis-modification/  I use Garden of Life brand for Mood. I buy it in the refrigerated section at Whole Foods. I also recommend double doses of B vitamin for a stint. However, you should have a full work up done by a neurologist, if you haven't already. Assuming everything comes  back negative then I highly recommend trying these few things.  I hope you can find answers and start feeling healthy again.
    • I suggest researching Mast Cell Activation Syndrome or EOE.   http://www.mayoclinic.org/diseases-conditions/eosinophilic-esophagitis/basics/definition/con-20035681  Also, Benadryl crosses the blood brain barrier and there have been long-term complications.  Talk to your doctor about using  another antihistamine.  If your reactions have been anaphylactic, you should have an epi pen.  I hope you feel better soon!  
    • Welcome!   Yikes, first I would suggest that you consider a new doctor.  Your doctor gave you some pretty bad advice biased on your posting.   The celiac gene is common.  Some 30% or more of the population carries the genes that could develop into celiac disease.  Are you sure it was not an antibodies test?  Telling you to go gluten free for a 30 day trial is another huge error.  Often they takes months to years for a celiac to recover.  A celiac is diagosed by blood tests and small intestinal biopsies obtained via an endoscopy.  There are times when an endoscopy is skipped because if financial reasons, too ill or long wait times.   Learn more at the University of Chicago's celiac website which is very informative and well-recognized.   http://www.cureceliacdisease.org/screening/  
  • Upcoming Events