This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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I haven't seen mine yet, but I got a recommendation from a friend who's son has celiac. When I called the large practice, the scheduler recommended seeing another dr who specializes in celiac. Perhaps ask around?
That ad made me cry. It was so beautiful!
I still feel like a sad child sometimes when I go somewhere and there's nothing I can eat. My extended family does not understand at all, and I always have to bring my own food. I know lots of people have to do this too, but sometimes I feel like a big baby, lol!
Hi Christiana, thanks for the reply. I am both interested in the outcome of this story for curiousity and for how it relates a bit to me,
Is your pain and pressure similar to the feeling of all your insides about to slide out onto the ground? It is similar to carrying a baby in the third trimester! I get this when I've been standing and walking for most of the day. There is also pain presenting in my Pelvic area, although I thought this was from a nerve cluster that was damaged during my hysterectomy .
Is there anything you do about this?
In comes SIBO Girl to join Captain NCGS
One other thought: have you looked at the possibility of having small intestine bacterial overgrowth (SIBO)? The pain you are feeling may be related to bloating pressure, which, if it is caused by SIBO, would continue after the removal of gluten because lots of foods feed the bacteria in your small intestines once they have become established where they don't belong.
One of the things that is confusing about celiac/gluten sensitivity is that is causes so many other things. Anemia, for example. Remove the gluten you feel better, but you may still need to treat the anemia to make those anemia-specific symptoms go away. Same thing with B vitamin supplimentation (nod to Professor Pellagra) and some of the neurological symptoms. Same with bacteria in the small intestines.
Guten affects my daughter's nerves. These affect motility, which affect her body's ability to prevent bacterial overgrowth. The removal of gluten was key to eliminating most of her symptoms. But removing excessive fermentable carbs was important for the SIBO to be kept at bay. That's the Fodmap component (but not JUST Fodmaps). Going grain free has been amazing for her health.
Here is the best website for SIBO. Just something to consider.
Incidentaly, SIBO is very common in folks with gluten sensitivities. I personally think that everyone diagnose with celiac disease should also be tested for SIBO just like they test for vitamin deficiencies. It would probably greatly help in recovery if you treated that condition as well.