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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Does It Injure Other Areas Of The Body?
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9 posts in this topic

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Googles    27

When I get glutened I tend to get bone and joint pain and neurological symptoms (there may be others but these are the big other two) in addition to the digestive problems. I was wondering if there is damage being done to those other body parts (ie bones and joints or brain) when I get trouble in those areas. Is it just inflammation in some areas, or is it more serious damage? I know it destroys the intestines, but was wondering if it is also destroying other areas where there is pain. Thanks for any insight.

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ravenwoodglass    1,214

In my own case the answer is yes. I still have nerve damage, although I have come a long way from where I was at diagnosis. I also have deformed hands but they now function normally and are painfree off gluten but they do look a bit nasty.

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saintmaybe    39

Yes. In gluten ataxia, antibodies are attacking and destroying Purkinje cells, which are responsible for perception of space and your position in it. Celiac has also been known To cause severe MS like and RA like symtpto

S, the damage of which is so similar to the real thing, they are Often clinically indistinguishable.

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lil'chefy    2

In my own case the answer is yes. I still have nerve damage, although I have come a long way from where I was at diagnosis. I also have deformed hands but they now function normally and are painfree off gluten but they do look a bit nasty.

In what way are your hands deformed?

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ravenwoodglass    1,214

In what way are your hands deformed?

Like they would be with RA.

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Googles    27

Thank you all for your replies. it really sucks. I wish that it would save it's damage for the GI track. Does anyone know what type of damage it causes to bones and joints? Does the damage to the brain make the problems you get when glutened become permanent? I am working really hard but lately have been getting glutened more lately (from CC). Ugh I hate this all.

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saintmaybe    39

Thank you all for your replies. it really sucks. I wish that it would save it's damage for the GI track. Does anyone know what type of damage it causes to bones and joints? Does the damage to the brain make the problems you get when glutened become permanent? I am working really hard but lately have been getting glutened more lately (from CC). Ugh I hate this all.

I believe untreated celiac causes an inflammatory cascade, that can inflame the joints and cause damage. In my own case, I've recently been dealing with inflammation of the hip, specifically the bursa. I also have osteoarthritis of the spine, and possible very early stages of degenerative disc disease. Both of which had a familial history anyway, but when you add in the celiac, it triggered an early onset of all of them.

It doesn't help that celiac has been linked to the onset of *actual* Rheumatoid arthritis, lupus, chronic fatigue, fibromyalgia, MS, and many other disorders. Once you develop one inflammatory disorder, your chances of developing others are unfortunately exponentially higher. I have no idea if going gluten free really reduces the risk of developing those other disorders.

Keep a wary eye on your symptoms- and have a GI, a rheumy, an endocrinologist, and a hemotologist in your back pocket if symptoms worsen.

P.S. As far as brain damage is concerned- sources vary as to whether it's permanent. It is an established medical fact that the neurological symptoms are treatment resistant and take a long time to heal on a strict gluten free diet. But people on these very boards have described medical miracles- recovering from canes and wheelchairs, regaining their balance. So it can and does happen. The brain is very plastic, and recovery is at least possible

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Lori2    27

Thank you all for your replies. it really sucks. I wish that it would save it's damage for the GI track. Does anyone know what type of damage it causes to bones and joints? Does the damage to the brain make the problems you get when glutened become permanent? I am working really hard but lately have been getting glutened more lately (from CC). Ugh I hate this all.

For me it has caused osteoporosis. The spinal density on my latest bone scan was 58% of the normal young adult. Whether this will reverse or not now that I am absorbing nutrients, I don't know--I can only hope so.

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Chad Sines    69

My progression is normally lower GI, then upper GI (nausea, vomiting, heartburn), insomnia, sinus congestion, then wooziness/dizziness like an ear infection, then weird pinpoint chest pain issues (not heart), then bone pain.

It really seems to hit so much which does make sense since your body's immune system is attacking itself. You get worn out from the body fighting and worn out because it is hurting itself. Then it had to repair itself... It is amazing that the damage and symptoms are not worse than they are. Oh, and then you have to include nutrient deficiencies from a damaged GI..

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